Civic Intelligence

Neuromuscular Study Group Inc.

990 • Fiscal year 2022 • EIN 47-4456205

Jan 01, 2022 to Dec 31, 2022 • Filed on Jun 28, 2023

Organization Profile
3901 Rainbow Blvd MS 7008Kansas City, KS 66160

(913) 588-5273

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Net Margin

10th percentile

-53%

Higher net margin than 10% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Top Officer Pay

78th percentile

$0

Higher top officer pay than 78% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2022 filings • 501(c)3 • <$500k nonprofits • Source year 2022

Asset Growth

20th percentile

-23%

Faster asset growth than 20% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Revenue Growth

16th percentile

-35%

Faster revenue growth than 16% of similar nonprofits.

2022 filings • 501(c)3 • <$500k nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets58th percentile

Assets

Down

$488,693

Down $147,312 (-23%) from 2021

Net Assets

Down

$488,693

Down $147,312 (-23%) from 2021

Liabilities

Flat

$0

Flat from 2021

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin10th percentile

Revenue

Down

$278,605

Down $149,828 (-35%) from 2021

Expenses

Up

$425,917

Up $233,463 (+121%) from 2021

Net Income

Down

-$147,312

Down $383,291 (-162%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth20th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2015: $1Liabilities 2015: $02015Assets 2016: $32,371Liabilities 2016: $0Net Assets 2016: $32,3712016Assets 2017: $77,285Liabilities 2017: $0Net Assets 2017: $77,2852017Assets 2018: $182,899Liabilities 2018: $0Net Assets 2018: $182,8992018Assets 2019: $272,554Liabilities 2019: $0Net Assets 2019: $272,5542019Assets 2020: $400,026Liabilities 2020: $0Net Assets 2020: $400,0262020Assets 2021: $636,005Liabilities 2021: $0Net Assets 2021: $636,0052021Assets 2022: $488,693Liabilities 2022: $0Net Assets 2022: $488,6932022Assets 2023: $460,644Liabilities 2023: $0Net Assets 2023: $460,6442023Assets 2024: $530,512Liabilities 2024: $0Net Assets 2024: $530,5122024

Highlighted filing

2022

Assets$488,693
Liabilities$0
Net Assets$488,693
Open 2022 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$600K$400K$200K$0-$200KRevenue 2015: $0Expenses 2015: $0Net Income 2015: $02015Revenue 2016: $213,854Expenses 2016: $181,483Net Income 2016: $32,3712016Revenue 2017: $254,954Expenses 2017: $210,040Net Income 2017: $44,9142017Revenue 2018: $350,603Expenses 2018: $244,989Net Income 2018: $105,6142018Revenue 2019: $461,043Expenses 2019: $371,388Net Income 2019: $89,6552019Revenue 2020: $284,473Expenses 2020: $157,001Net Income 2020: $127,4722020Revenue 2021: $428,433Expenses 2021: $192,454Net Income 2021: $235,9792021Revenue 2022: $278,605Expenses 2022: $425,917Net Income 2022: -$147,3122022Revenue 2023: $434,016Expenses 2023: $462,062Net Income 2023: -$28,0462023Revenue 2024: $588,959Expenses 2024: $519,092Net Income 2024: $69,8672024

Highlighted filing

2022

Revenue$278,605
Expenses$425,917
Net Income-$147,312
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Jun 28, 2023
Return Version
2022v5.0
Gross Receipts
$278,605
Mission and Program Overview

Mission

To advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$636,005$488,693▼ $147,312
Total Assets$636,005$488,693▼ $147,312
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$636,005$488,693▼ $147,312
Total Net Assets Fund Balance$636,005$488,693▼ $147,312
Total Liabilities and Net Assets / Fund Balance$636,005$488,693▼ $147,312
Compensation and Service Providers
Top Officer Pay78th percentile

Board Members and Trustees

NameTitle
Richard Barohn MdChair
Robert Griggs MdChairman Eme
Michael Hanna MdCo-chair
Rabi Tawil MdDirector
Michael Mcdermott PhdBiostatistic
Marie Wencel CcrpiCoordinator
Melissa Mcintyre DptEvaluator Me
Michael Hehir MdInvestigator
Valeria Sansone MdInvestigator
William David Md PhdInvestigator
Liz PaulkSecretary
Mazen Dimachkie MdTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$0
Program Service Revenue
$278,605
Investment Income
$0
Other Revenue
$0
Change in Net Assets
$-147,312
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$425,917
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$168,865--$168,865
Travel$65,205--$65,205
Fees for Services Management$40,000--$40,000
Information Technology$5,931$1,090-$7,021
All Other Expenses-$3,809-$3,809
Other Expenses$3,072--$3,072
Advertising-$1,358-$1,358
Office Expenses-$1,158-$1,158
Fees for Services Other-$970-$970
Fees for Services Legal-$610-$610
Insurance-$117-$117
Total Functional Expenses$416,805$9,112$0$425,917
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 6

“Organization has members.”

Form 990, Page 6, Part VI, Line 11B

“Form 990 prepared by outside accountants and reviewed by chair/president. A copy of return is provided to board prior to filing.”

Form 990, Page 6, Part VI, Line 12C

“To ensure msg operates in a manner consistent with charitable purposes, periodic reviews are conducted. These periodic reviews may, but need not, use outside advisors.”

Form 990, Page 6, Part VI, Line 19

“Governing documents available upon written request.”

Filing and Contact Details

Filer

Filer Name
Neuromuscular Study Group Inc
EIN
47-4456205
Phone
9135885273
Address
3901 RAINBOW BLVD MS 7008, KANSAS CITY, KS 66160

Signing Officer

Name
Mazen Dimachkie Md
Title
Treasurer
Signed
2023-06-28
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Richard Barohn Md
Formed
2015
Voting Board Members
6
Independent Board Members
6
Employees
0

Preparer

Firm
Cornerstone CPA LLC
Address
6540 W 95TH ST STE 103, OVERLAND PARK, KS 66212-1491
Preparer
Jennifer D Magyar CPA
Phone
9133818350
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

“To advance knowledge about the cause(s), pathogenesis, epidemiology, and clinical manifestations of muscle disease and related neuromuscular disorders and to develop and implement strategies to examine promising therapeutic interventions.”

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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TO ADVANCE KNOWLEDGE ABOUT THE CAUSE(S), PATHOGENESIS, EPIDEMIOLOGY, AND CLINICAL MANIFESTATIONS OF MUSCLE DISEASE AND RELATED NEUROMUSCULAR DISORDERS AND TO DEVELOP AND IMPLEMENT STRATEGIES TO EXAMINE PROMISING THERAPEUTIC INTERVENTIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1ORGANIZATION HAS MEMBERS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2FORM 990 PREPARED BY OUTSIDE ACCOUNTANTS AND REVIEWED BY CHAIR/PRESIDENT. A COPY OF RETURN IS PROVIDED TO BOARD PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3TO ENSURE MSG OPERATES IN A MANNER CONSISTENT WITH CHARITABLE PURPOSES, PERIODIC REVIEWS ARE CONDUCTED. THESE PERIODIC REVIEWS MAY, BUT NEED NOT, USE OUTSIDE ADVISORS.
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IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0636005
IRS990/TotalAssetsEOYAmt0488693
IRS990/TotalAssetsGrp/BOYAmt0636005
IRS990/TotalAssetsGrp/EOYAmt0488693
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt09112
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0416805
IRS990/TotalFunctionalExpensesGrp/TotalAmt0425917
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0636005
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0488693
IRS990/TotalProgramServiceExpensesAmt0416805
IRS990/TotalProgramServiceRevenueAmt0278605
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0278605
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0278605
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0636005
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0488693
IRS990/TravelGrp/ProgramServicesAmt065205
IRS990/TravelGrp/TotalAmt065205
IRS990/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd0false
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt03901 RAINBOW BLVD MS 7008
IRS990/USAddress/CityNm0KANSAS CITY
IRS990/USAddress/StateAbbreviationCd0KS
IRS990/USAddress/ZIPCd066160
IRS990/VotingMembersGoverningBodyCnt06
IRS990/VotingMembersIndependentCnt06
IRS990/WhistleblowerPolicyInd0true
ReturnHeader/BuildTS02023-04-26 12:10:37Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0MAZEN DIMACHKIE MD
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/SignatureDt02023-06-28
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0NEUROMUSCULAR STUDY GROUP INC
ReturnHeader/Filer/BusinessNameControlTxt0NEUR
ReturnHeader/Filer/EIN0474456205
ReturnHeader/Filer/PhoneNum09135885273
ReturnHeader/Filer/USAddress/AddressLine1Txt03901 RAINBOW BLVD MS 7008
ReturnHeader/Filer/USAddress/CityNm0KANSAS CITY
ReturnHeader/Filer/USAddress/StateAbbreviationCd0KS
ReturnHeader/Filer/USAddress/ZIPCd066160
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0false
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0461716255
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0CORNERSTONE CPA LLC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt06540 W 95TH ST STE 103
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0OVERLAND PARK
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0KS
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd0662121491
ReturnHeader/PreparerPersonGrp/PhoneNum09133818350
ReturnHeader/PreparerPersonGrp/PreparationDt02023-06-30
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0JENNIFER D MAGYAR CPA
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02023-07-01T12:32:15-04:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonFirstNm0MAZEN
ReturnHeader/SigningOfficerGrp/PersonFullName/PersonLastNm0DEMACHKIE
ReturnHeader/TaxPeriodBeginDt02022-01-01
ReturnHeader/TaxPeriodEndDt02022-12-31
ReturnHeader/TaxYr02022

Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$488,693
Liabilities
$0
Net assets
$488,693
Revenue
$278,605
Expenses
$425,917
Net income
-$147,312
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.31$0.00$5.31$5.89$5.19$0.70
2023Summary only. Only limited summary data is available for this year.$4.61$0.00$4.61$4.34$4.62$0.28
2022Detailed filing. Detailed filing data is available for this year.$4.89$0.00$4.89$2.79$4.26$1.47
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.36$0.00$6.36$4.28$1.92$2.36
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.00$0.00$4.00$2.84$1.57$1.27
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.73$0.00$2.73$4.61$3.71$0.90
2018Summary only. Only limited summary data is available for this year.$1.83$0.00$1.83$3.51$2.45$1.06
2017Summary only. Only limited summary data is available for this year.$0.77$0.00$0.77$2.55$2.10$0.45
2016Summary only. Only limited summary data is available for this year.$0.32$0.00$0.32$2.14$1.81$0.32
2015Summary only. Only limited summary data is available for this year.$0.00$0.00$0.00$0.00$0.00