Civic Intelligence

Treatments for Epilepsy and Symptoms Of

EIN 47-3108868 • 501(c)3 • Menlo Park, CA

Profile

PUBLIC CHARITY

430 Claremont WayMenlo Park, CA 94025

tessresearch.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

41st percentile

0.00x

Higher debt load relative to assets than 41% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

40th percentile

0.00x

Higher debt load relative to revenue than 40% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

26th percentile

-7.8%

Higher net margin than 26% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

74th percentile

$67,838

Higher top officer pay than 74% of similar nonprofits.

Top officer pay equals 12.5% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

20th percentile

-11%

Faster asset growth than 20% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

52nd percentile

7.6%

Faster revenue growth than 52% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets41st percentile

Assets

Down

$407,310

Down $52,466 (-11%) from 2023

Liabilities

Down

$1,651

Down $10,161 (-86%) from 2023

Net Assets

Down

$405,659

Down $42,305 (-9.4%) from 2023

Operations
Liabilities / Revenue40th percentileNet Margin26th percentile

Revenue

Up

$541,973

Up $38,326 (+7.6%) from 2023

Expenses

Up

$584,239

Up $86,552 (+17%) from 2023

Net Income

Down

-$42,266

Down $48,226 (-809%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth20th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2015: $21,521Liabilities 2015: $0Net Assets 2015: $21,5212015Assets 2016: $147,816Liabilities 2016: $0Net Assets 2016: $147,8162016Assets 2017: $84,928Liabilities 2017: $0Net Assets 2017: $84,9282017Assets 2018: $198,894Liabilities 2018: $0Net Assets 2018: $198,8942018Assets 2019: $223,542Liabilities 2019: $489Net Assets 2019: $223,0532019Assets 2020: $798,282Liabilities 2020: $13,107Net Assets 2020: $785,1752020Assets 2021: $717,894Liabilities 2021: $18,273Net Assets 2021: $699,6212021Assets 2022: $447,207Liabilities 2022: $5,203Net Assets 2022: $442,0042022Assets 2023: $459,776Liabilities 2023: $11,812Net Assets 2023: $447,9642023Assets 2024: $407,310Liabilities 2024: $1,651Net Assets 2024: $405,6592024

Highlighted filing

2024

Assets$407,310
Liabilities$1,651
Net Assets$405,659
Open 2024 Filing

Operations Trend

Revenue Growth52nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2015: $41,725Expenses 2015: $20,204Net Income 2015: $21,5212015Revenue 2016: $211,284Expenses 2016: $84,989Net Income 2016: $126,2952016Revenue 2017: $185,768Expenses 2017: $248,656Net Income 2017: -$62,8882017Revenue 2018: $286,889Expenses 2018: $172,923Net Income 2018: $113,9662018Revenue 2019: $392,669Expenses 2019: $368,510Net Income 2019: $24,1592019Revenue 2020: $675,901Expenses 2020: $113,779Net Income 2020: $562,1222020Revenue 2021: $381,268Expenses 2021: $466,822Net Income 2021: -$85,5542021Revenue 2022: $610,734Expenses 2022: $868,351Net Income 2022: -$257,6172022Revenue 2023: $503,647Expenses 2023: $497,687Net Income 2023: $5,9602023Revenue 2024: $541,973Expenses 2024: $584,239Net Income 2024: -$42,2662024

Highlighted filing

2024

Revenue$541,973
Expenses$584,239
Net Income-$42,266
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$407,310
Liabilities
$1,651
Net assets
$405,659
Revenue
$541,973
Expenses
$584,239
Net income
-$42,266
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.07$0.02$4.06$5.42$5.84$0.42
2023Summary only. Only limited summary data is available for this year.$4.60$0.12$4.48$5.04$4.98$0.06
2022Summary only. Only limited summary data is available for this year.$4.47$0.05$4.42$6.11$8.68$2.58
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.18$0.18$7.00$3.81$4.67$0.86
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.98$0.13$7.85$6.76$1.14$5.62
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.24$0.00$2.23$3.93$3.69$0.24
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.99$0.00$1.99$2.87$1.73$1.14
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.85$0.00$0.85$1.86$2.49$0.63
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.48$0.00$1.48$2.11$0.85$1.26
2015Detailed filing. Detailed filing data is available for this year.$0.22$0.00$0.22$0.42$0.20$0.22
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 11, 2025
Return Version
2024v5.2
Gross Receipts
$582,303
Mission and Program Overview

Mission

Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$390,098$369,420▼ $20,678
Pledges and Grants Receivable$67,815$36,027▼ $31,788
Total Assets$459,776$407,310▼ $52,466
Other Assets Total$1,863$1,863→ $0
Liabilities
Accounts Payable and Accrued Expenses$11,812$1,651▼ $10,161
Total Liabilities$11,812$1,651▼ $10,161
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$447,964$405,659▼ $42,305
Total Net Assets Fund Balance$447,964$405,659▼ $42,305
Total Liabilities and Net Assets / Fund Balance$459,776$407,310▼ $52,466
Compensation and Service Providers
Top Officer Pay74th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Amber BlackSecretaryFT$67,838$67,838

Board Members and Trustees

NameTitle
Kimberly NyeChair & Executive Director
Michael BlackVice Chair
Adam AlbertiDirector
Courtney AlbertiDirector
Don NeaultDirector
Janet WojcickiDirector
Lee ScheuerDirector
Megan GilbertDirector
Paula GaniDirector
Rich WindischDirector
Robert WassmanDirector
Kevin McDonnellTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$581,056
Program Service Revenue
$0
Investment Income
$1,036
Other Revenue
$-40,119
All Other Contributions
$366,014
Change in Net Assets
$-42,266
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$267,681
Grants and Similar Amounts Paid$174,093
Other Expenses$142,465
Total Fundraising Expense$55,308
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$142,929-$32,759$175,688
Grants to Domestic Orgs$113,644--$113,644
Conferences and Meetings$86,169--$86,169
Current Officers, Directors, Trustees, and Key Employees$55,189-$12,649$67,838
Foreign Grants$60,449--$60,449
Payroll Taxes$13,675-$3,572$17,247
Travel$14,804--$14,804
Fees for Services Other$9,652$1,425$2,926$14,003
Information Technology$7,379$1,898-$9,277
Pension Plan Contributions$6,031--$6,031
Fees for Services Accounting-$5,701-$5,701
Office Expenses$2,294$2,299-$4,593
Other Expenses-$1,123$3,402$3,402
Advertising$3,243--$3,243
Other Employee Benefits-$877-$877
Fees for Service Investment Mgmnt Fees-$150-$150
Total Functional Expenses$515,458$13,473$55,308$584,239
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Stanford UniversityStanford, CA501c3SLC13A5 Natural History Study$80,200
CURE EpilepsyChicago, IL501c3Research$29,979

International Summary

Spending
$60,449

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesResearch--$60,449
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$40,330
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Derby Day$215,042-$40,330-
Total Events$215,042-$40,330$-40,330
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Courtney Lodato Alberti and Adam Alberti are married. Kimberly Nye and Courtney Lodato Alberti are sisters.Amber Black and Michael Black are married”

Form 990 governing body review Part VI line 11

“The 990 is presented to the board for review and approval.”

Conflict of interest policy compliance Part VI line 12C

“Each year the board complete the conflict of interest questionnaire, if there is a conflict of interest, they recuse themselves from voting.”

Other officer or key employee compensation Part VI line 15B

“Tess Research Foundations officers are all volunteers.”

Form 990 availability to public Part VI line 18

“A copy of Form 990 is provided upon request.”

Governing documents etc available to public Part VI line 19

“Governing documents, conflict of interest policy and financial statements are provided upon request.”

Filing and Contact Details

Filer

Filer Name
Treatments for Epilepsy and Symptoms of
EIN
47-3108868
In Care Of
% Kimberly Nye
Phone
6505212279
Address
430 Claremont Way, Menlo Park, CA 94025
Doing Business As
cont SLC13A5 Foundation

Signing Officer

Name
Kimberly Nye
Title
Chair & Executive Director
Phone
6505212279
Signed
2025-11-11
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Kimberly Nye
Formed
2015
Legal Domicile
CA
Voting Board Members
13
Independent Board Members
12
Employees
2
Volunteers
50

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

General explanation attachment

“Continuation of Mission Statement:a severe form of epilepsy beginning in infancy. SLC13A5 deficiency is a newly discovered, rare disease. Tess Research Foundation funds medical research, connects doctors and patients to researchers, and raises awareness and provides support and education to affected families through a website, emails, and an online support group.”

Raw XML AppendixShowing 400 of 485 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0Tess Research Foundations goal is to find better treatment options for SLC13A5 deficiency, (Continued on Sch O)
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IRS990/ProgSrvcAccomActy2Grp/Desc0Education, Family Support and Awareness - We are the only organization dedicated to supporting families with SLC13A5 Epilepsy and raising awareness about the disease. Our ongoing program includes sharing updates about the latest research findings and connecting and empowering families so they can share their experiences and support one another. We have an annual awareness day (May 13), host monthly virtual support calls, maintain a website, and send a monthly electronic newsletter.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Conference - We continue to create a patient-centered network of doctors, researchers, clinicians, and families. TESS hosted the largest-ever SLC13A5 family and professional conference in Providence, Rhode Island. We attend neurology, epilepsy, and drug development conferences.
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0SLC13A5 Natural History Study
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Stanford University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CURE Epilepsy
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IRS990ScheduleI/RecipientTable/USAddress/CityNm1Chicago
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Courtney Lodato Alberti and Adam Alberti are married. Kimberly Nye and Courtney Lodato Alberti are sisters.Amber Black and Michael Black are married
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The 990 is presented to the board for review and approval.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Each year the board complete the conflict of interest questionnaire, if there is a conflict of interest, they recuse themselves from voting.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Tess Research Foundations officers are all volunteers.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4A copy of Form 990 is provided upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Governing documents, conflict of interest policy and financial statements are provided upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Continuation of Mission Statement:a severe form of epilepsy beginning in infancy. SLC13A5 deficiency is a newly discovered, rare disease. Tess Research Foundation funds medical research, connects doctors and patients to researchers, and raises awareness and provides support and education to affected families through a website, emails, and an online support group.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Other officer or key employee compensation Part VI line 15b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990 availability to public Part VI line 18

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