Civic Intelligence

Decoding Developmental Epilepsies

EIN 47-1822559 • 501(c)3 • Washington, DC

Profile

We work collaboratively to accelerate the pace of science on scn8a and related disorders in order to bring hope and improved outcomes for all those living with rare epilepsies and their families.

1234 Crittenden St NWWashington, DC 20011

scn8aalliance.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

31st percentile

0.01x

Higher debt load relative to assets than 31% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

29th percentile

0.01x

Higher debt load relative to revenue than 29% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

88th percentile

45%

Higher net margin than 88% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

91st percentile

58%

Faster asset growth than 91% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

86th percentile

54%

Faster revenue growth than 86% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets31st percentile

Assets

Up

$1,086,442

Up $397,252 (+58%) from 2023

Liabilities

Down

$9,549

Down $8,342 (-47%) from 2023

Net Assets

Up

$1,076,893

Up $405,594 (+60%) from 2023

Operations
Liabilities / Revenue29th percentileNet Margin88th percentile

Revenue

Up

$902,175

Up $315,955 (+54%) from 2023

Expenses

Up

$496,581

Up $185,874 (+60%) from 2023

Net Income

Up

$405,594

Up $130,081 (+47%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth91st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2020: $71,779Liabilities 2020: $0Net Assets 2020: $71,7792020Assets 2021: $202,042Liabilities 2021: $19,619Net Assets 2021: $182,4232021Assets 2022: $453,877Liabilities 2022: $2,229Net Assets 2022: $451,6482022Assets 2023: $689,190Liabilities 2023: $17,891Net Assets 2023: $671,2992023Assets 2024: $1,086,442Liabilities 2024: $9,549Net Assets 2024: $1,076,8932024

Highlighted filing

2024

Assets$1,086,442
Liabilities$9,549
Net Assets$1,076,893
Open 2024 Filing

Operations Trend

Revenue Growth86th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0Revenue 2020: $74,786Expenses 2020: $21,037Net Income 2020: $53,7492020Revenue 2021: $328,884Expenses 2021: $218,240Net Income 2021: $110,6442021Revenue 2022: $629,384Expenses 2022: $260,064Net Income 2022: $369,3202022Revenue 2023: $586,220Expenses 2023: $310,707Net Income 2023: $275,5132023Revenue 2024: $902,175Expenses 2024: $496,581Net Income 2024: $405,5942024

Highlighted filing

2024

Revenue$902,175
Expenses$496,581
Net Income$405,594
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$1,086,442
Liabilities
$9,549
Net assets
$1,076,893
Revenue
$902,175
Expenses
$496,581
Net income
$405,594
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.09$0.01$1.08$0.90$0.50$0.41
2023Detailed filing. Detailed filing data is available for this year.$0.69$0.02$0.67$0.59$0.31$0.28
2022Detailed filing. Detailed filing data is available for this year.$0.45$0.00$0.45$0.63$0.26$0.37
2021Detailed filing. Detailed filing data is available for this year.$0.20$0.02$0.18$0.33$0.22$0.11
2020Detailed filing. Detailed filing data is available for this year.$0.07$0.00$0.07$0.07$0.02$0.05
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 17, 2025
Return Version
2024v5.2
Gross Receipts
$914,332
Mission and Program Overview

Mission

We work collaboratively to accelerate the pace of science on scn8a and related disorders in order to bring hope and improved outcomes for all those living with rare epilepsies and their families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$674,188$1,040,886▲ $366,698
Accounts Receivable$15,000$45,550▲ $30,550
Savings and Temporary Cash Investments-$0-
Other Notes and Loans Receivable, Net-$0-
Pledges and Grants Receivable-$0-
Receivable From Disqualified Prsn-$0-
Receivables From Officers Etc-$0-
Investments Other Securities-$0-
Investments Program Related-$0-
Investments in Publicly Traded Securities-$0-
Land, Buildings, and Equipment, Net-$0-
Intangible Assets-$0-
Inventories for Sale or Use-$0-
Prepaid Expenses and Deferred Charges-$0-
Total Assets$689,190$1,086,442▲ $397,252
Other Assets Total$2$6▲ $4
Liabilities
Accounts Payable and Accrued Expenses$12,685$6,381▼ $6,304
Other Liabilities$5,206$3,168▼ $2,038
Total Liabilities$17,891$9,549▼ $8,342
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$401,811$807,405▲ $405,594
Net Assets With Donor Restrictions$269,488$269,488→ $0
Total Net Assets Fund Balance$671,299$1,076,893▲ $405,594
Total Liabilities and Net Assets / Fund Balance$689,190$1,086,442▲ $397,252
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Gabi ConeckerExecutive DirectorFT$100,000$100,000

Board Members and Trustees

NameTitle
JayEtta HeckerChairman
Anne Thompson HellerDirector
Ariel GibbonsDirector
Eric WengertDirector
Mandy MillsDirector
Michael HammerDirector
Michael HalpernSecretary
Mohammad Nabeel MiskeenyarTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$853,884
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$48,291
All Other Contributions
$853,884
Change in Net Assets
$405,594
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$305,209
Salaries, Compensation, and Employee Benefits$115,572
Grants and Similar Amounts Paid$75,800
Total Fundraising Expense$2,641
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees-$100,000-$100,000
Grants to Domestic Orgs$75,800--$75,800
Travel$2,469$16,606-$19,075
Payroll Taxes$184$8,840-$9,024
Conferences and Meetings$1,029$6,465-$7,494
Other Salaries and Wages$1,984$4,071-$6,055
Fees for Services Accounting-$4,731-$4,731
Information Technology$1,035$3,492-$4,527
Other Expenses$9,023$591$16$591
Other Employee Benefits-$493-$493
All Other Expenses-$89-$89
Advertising$55--$55
Total Functional Expenses$289,693$204,247$2,641$496,581
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of West Australia--Research$55,000
Nationwide Childrens HospDetroit, MI, CA-Research$20,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$60,000
Fundraising Direct Expenses$12,157
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Special Events$60,000$60,000$12,157$47,843
Total Events$60,000$60,000$12,157$47,843
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Receivables from Disqualified Persons-$0-
Receivables from Officers, Directors, Trustees, and Key Employees-$0-
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Credit Card$3,168
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 will be reviewed by the external accounting cfo and the organization?s board of directors and management team before efiling.”

Form 990, Part VI, Section C, Line 19

“No documents available to the public.”

Filing and Contact Details

Filer

Filer Name
Wishes For Elliott
EIN
47-1822559
Phone
2025990444
Address
1234 Crittenden St NW, Washington, DC 20011

Signing Officer

Name
Gabrielle A Conecker
Title
Executive Director
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gabrielle A Conecker
Formed
2019
Legal Domicile
Dc
Voting Board Members
9
Independent Board Members
8
Employees
3

Preparer

Firm
Attolero
Address
9508 Devonshire Drive, Huntersville, NC 28078
Preparer
Robert Bales
Phone
7046412949
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This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherExpensesGrp/ProgramServicesAmt0198114
IRS990/OtherExpensesGrp/ProgramServicesAmt19023
IRS990/OtherExpensesGrp/TotalAmt0257730
IRS990/OtherExpensesGrp/TotalAmt19609
IRS990/OtherExpensesGrp/TotalAmt21308
IRS990/OtherExpensesGrp/TotalAmt3591
IRS990/OtherLiabilitiesGrp/BOYAmt05206
IRS990/OtherLiabilitiesGrp/EOYAmt03168
IRS990/OtherRevenueMiscGrp/Desc0Sales of Product Income
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt0448
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IRS990/OtherRevenueTotalAmt0448
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt04071
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01984
IRS990/OtherSalariesAndWagesGrp/TotalAmt06055
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IRS990/OwnWebsiteInd0X
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IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt08840
IRS990/PayrollTaxesGrp/ProgramServicesAmt0184
IRS990/PayrollTaxesGrp/TotalAmt09024
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd0false
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IRS990/PrincipalOfficerNm0Gabrielle A Conecker
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION: WE WORK TO IMPROVE THE UNDERSTANDING OF SCN8A BY ENSURING THAT STAKEHOLDERS FOSTER RELATIONSHIPS BREAK DOWN BARRIERS AND COLLABORATE TO FIND TREATMENTS AND IMPROVE THE QUALITY OF LIFE FOR ALL. EDUCATION IS A TWO WAY STREET. WE LEARN FROM FAMILIES AND WE PROVIDE OPPORTUNITIES FOR FAMILIES TO ENGAGE WITH RESEARCHERS PHARMA CLINICIANS REGULATORS AND BEYOND. WE BREAK DOWN SILOS THAT STALL PROGRESS AND ENSURE ALL ARE WORKING WITH THE UTMOST SPEED TO REACH OUR GOAL A CURE FOR OUR CHILDREN. WE HOST REGULR ONLINE MEETINGS WITH FAMILIES TO EDUCATE THEM ON THE EMERGING SCIENCE AND EMPOWER THEM TO BE THE MOST INFORMED ADVOCATES THEY CAN BE. IN OUR WORK ACROSS THE DEES VIA DEE-P CONNECTIONS, WE HAVE HOSTED MORE THAN 80 WEBINARS TO HELP FAMILIES NAVIGATE CARING FOR A LOVED ONE WITH MAJOR MEDICAL COMPLEXITIES AND FIND SUPPORT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt066048
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt05550
IRS990/ProgSrvcAccomActy3Grp/Desc0ADVOCACY : OUR EFFORTS, SPANNING BOTH THE BROAD RANGE OF DEVELOPMENTAL AND EPILEPTIC ENCEPHALOPATHIES (DEES) AND SCN8A, INCLUDE DIVERSE ADVOCACY EFFORTS TO BOTH LEGISLATIVE AND ADMINISTRATIVE POLICYMAKERS. OUR LEGISLATIVE ADVOCACY INCLUDES MULTIPLE EFFORTS ADDRESSING PENDING LEGISLATIVE ACTIONS AND APPROPRIATIONS THAT AFFECT SUPPORTED RESEARCH AND SUPPORT FOR FAMILIES I.E., PROPOSED MEDICAID CHANGES AS WELL AS ADVOCATING FOR ADDITIONAL FEDERAL FUNDING FOR TRANSLATIONAL EPILEPSY RESEARCH. TO ENSURE OUR COMMUNITY IS HEARD, WE HAVE ALSO PROVIDED MULTIPLE COMMENTS TO FEDERAL AGENCIES, INCLUDING THE FDA, NIH, AND CDC, OFTEN BUT NOT EXCLUSIVELY IN RESPONSE TO PUBLISHED RFIS. A SIGNIFICANT EFFORTS HAVE INCLUDED A SUBMISSION OF DATA AND FAMILY STORIES ON SCN8A AND A CROSS-DEE PATIENT LISTENING SESSION WITH THE FDA. ADDITIONALLY, WE HAVE HELD A CRITICAL PATH INNOVATION MEETING, IN COLLABORATION WITH OUR INCHSTONE PROJECT RESEARCHERS, TO ENSURE APPROPRIATE TOOLS EXIST TO MEASURE CHANGE IN THOSE PROFOUNDLY IMPACTED BY DISEASES IN CLINICAL TRIALS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt05395
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0585540
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt05900
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0164996
IRS990/PYOtherRevenueAmt0680
IRS990/PYRevenuesLessExpensesAmt0275513
IRS990/PYSalariesCompEmpBnftPaidAmt0139811
IRS990/PYTotalExpensesAmt0310707
IRS990/PYTotalRevenueAmt0586220
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
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IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0true
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0507500
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0585540
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0628810
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0323870
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt074783
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02466887
IRS990ScheduleA/GovtFurnSrvcFcltsVl509Grp/TotalAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt08
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt013
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt021
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt00
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt0680
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus2YearsAmt0566
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt05000
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt06246
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IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt013
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt021
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt060448
IRS990ScheduleA/OtherIncome509Grp/TotalAmt060448
IRS990ScheduleA/Post1975UBTIGrp/TotalAmt00
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IRS990ScheduleA/PublicSupportCY509Pct00.97610
IRS990ScheduleA/PublicSupportTotal509Amt02473133
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0629376
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0328870
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt074783
IRS990ScheduleA/Total509Grp/TotalAmt02473133
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0914332
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0586220
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0629384
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0328883
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt074783
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02533602
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
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IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
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IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt03168
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0Credit Card
IRS990ScheduleD/TotalLiabilityAmt03168
IRS990ScheduleG/AgrmtProfFundraisingActyInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt012157
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Special Events
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IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt060000
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt060000
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt047843
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt012157
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt012157
IRS990ScheduleI/GrantRecordsMaintainedInd0false
IRS990ScheduleI/RecipientTable/CashGrantAmt020000
IRS990ScheduleI/RecipientTable/CashGrantAmt155000
IRS990ScheduleI/RecipientTable/ForeignAddress/AddressLine1Txt035 Stirling Highway
IRS990ScheduleI/RecipientTable/ForeignAddress/CityNm0CRAWLEY
IRS990ScheduleI/RecipientTable/ForeignAddress/CountryCd0CA
IRS990ScheduleI/RecipientTable/ForeignAddress/ForeignPostalCd06009
IRS990ScheduleI/RecipientTable/ForeignAddress/ProvinceOrStateNm0Canada
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Research
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1Research
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Nationwide Childrens Hosp
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1University of West Australia
IRS990ScheduleI/RecipientTable/RecipientEIN0316056230
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0PO Box 78000
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Detroit
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0MI
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd048278
IRS990ScheduleI/Total501c3OrgCnt00
IRS990ScheduleI/TotalOtherOrgCnt02
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 WILL BE REVIEWED BY THE EXTERNAL ACCOUNTING CFO AND THE ORGANIZATION?S BOARD OF DIRECTORS AND MANAGEMENT TEAM BEFORE EFILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No documents available to the public.

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