Civic Intelligence

The Dysautonomia Project Inc

EIN 46-5433260 • 501(c)3 • Clearwater, FL

Profile

The Dysautonomia Project is a non-profit collaborative effort of volunteer healthcare providers, patients, and community leaders working together to bridge the gap between what autonomic specialists know and what community-based providers and patients need to know.

4592 Ulmerton Road Ste 104Clearwater, FL 33762

www.thedysautonomiaproject.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

50th percentile

0.06x

Higher debt load relative to assets than 50% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

60th percentile

0.15x

Higher debt load relative to revenue than 60% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

62nd percentile

11%

Higher net margin than 62% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

77th percentile

18%

Faster asset growth than 77% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

18th percentile

-15%

Faster revenue growth than 18% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Assets

Up

$1,443,606

Up $222,936 (+18%) from 2023

Liabilities

Up

$91,766

Up $51,639 (+129%) from 2023

Net Assets

Up

$1,351,840

Up $171,297 (+15%) from 2023

Revenue

Down

$631,634

Down $109,496 (-15%) from 2023

Expenses

Up

$560,349

Up $34,623 (+6.6%) from 2023

Net Income

Down

$71,285

Down $144,119 (-67%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2014: $36,519Liabilities 2014: $02014Assets 2015: $77,916Liabilities 2015: $8212015Assets 2016: $97,815Liabilities 2016: $1022016Assets 2017: $174,893Liabilities 2017: $1,1612017Assets 2018: $190,802Liabilities 2018: $9912018Assets 2019: $446,994Liabilities 2019: $566Net Assets 2019: $446,4282019Assets 2020: $451,712Liabilities 2020: $19,699Net Assets 2020: $432,0132020Assets 2021: $584,031Liabilities 2021: $850Net Assets 2021: $583,1812021Assets 2022: $918,188Liabilities 2022: $12,300Net Assets 2022: $905,8882022Assets 2023: $1,220,670Liabilities 2023: $40,127Net Assets 2023: $1,180,5432023Assets 2024: $1,443,606Liabilities 2024: $91,766Net Assets 2024: $1,351,8402024

Highlighted filing

2024

Assets$1,443,606
Liabilities$91,766
Net Assets$1,351,840

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0Revenue 2014: $50,158Expenses 2014: $13,639Net Income 2014: $36,5192014Revenue 2015: $49,979Expenses 2015: $9,403Net Income 2015: $40,5762015Revenue 2016: $34,524Expenses 2016: $15,539Net Income 2016: $18,9852016Revenue 2017: $115,813Expenses 2017: $40,108Net Income 2017: $75,7052017Revenue 2018: $89,656Expenses 2018: $69,319Net Income 2018: $20,3372018Revenue 2019: $430,611Expenses 2019: $178,765Net Income 2019: $251,8462019Revenue 2020: $205,516Expenses 2020: $199,428Net Income 2020: $6,0882020Revenue 2021: $205,670Expenses 2021: $111,474Net Income 2021: $94,1962021Revenue 2022: $626,154Expenses 2022: $253,214Net Income 2022: $372,9402022Revenue 2023: $741,130Expenses 2023: $525,726Net Income 2023: $215,4042023Revenue 2024: $631,634Expenses 2024: $560,349Net Income 2024: $71,2852024

Highlighted filing

2024

Revenue$631,634
Expenses$560,349
Net Income$71,285

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 15, 2025
Return Version
2024v5.0
Gross Receipts
$634,209
Mission and Program Overview

Mission

To educate healthcare professionals, communities, and patients about dysautonomia.

The Dysautonomia Project is a non-profit collaborative effort of volunteer healthcare providers, patients, and community leaders working together to bridge the gap between what autonomic specialists know and what community-based providers and patients need to know.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$904,708$1,053,789▲ $149,081
Cash and Non-Interest-Bearing Accounts$147,723$134,529▼ $13,194
Prepaid Expenses and Deferred Charges$76,354$95,543▲ $19,189
Pledges and Grants Receivable$9,000$93,000▲ $84,000
Land, Buildings, and Equipment, Net$82,885$66,745▼ $16,140
Total Assets$1,220,670$1,443,606▲ $222,936
Liabilities
Deferred Revenue$20,280$59,150▲ $38,870
Accounts Payable and Accrued Expenses$19,847$32,616▲ $12,769
Grants Payable$0--
Total Liabilities$40,127$91,766▲ $51,639
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,180,543$1,221,840▲ $41,297
Net Assets With Donor Restrictions$0$130,000▲ $130,000
Total Net Assets Fund Balance$1,180,543$1,351,840▲ $171,297
Total Liabilities and Net Assets / Fund Balance$1,220,670$1,443,606▲ $222,936

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$60,077$16,423$76,500
Equipment$3,627$15,206$18,833
Leasehold Improvements$3,041$4,563$7,604
Buildings$0$0$0
Land$0-$0

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$276,107$0▲ $50,748$0$326,855
2023$0$250,000▲ $26,107$0$276,107
2022$0$0→ $0$0$0
2021$0$0→ $0$0$0
2020$0$0→ $0$0$0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Alexandra KeyExecutive DirectorFT$123,798$3,490$127,288

Board Members and Trustees

NameTitle
Hunt BrandPresident
Jason JensenVice President
Al RuechelDirector
Carlton WardDirector
John HiersDirector
Susie JinksDirector
Beth PikeSecretary
Pamela ReederTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$564,552
Program Service Revenue
$19,194
Investment Income
$47,224
Other Revenue
$664
All Other Contributions
$564,552
Change in Net Assets
$71,285

Audited Revenue Reconciliation

Revenue per Audited Statements
$631,634
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$134,532
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$766,166
Total Revenue per Form 990
$631,634
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$291,231
Salaries, Compensation, and Employee Benefits$269,118
Total Fundraising Expense$78,883
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$92,849$18,569$12,380$123,798
Other Salaries and Wages$88,047$7,522$20,827$116,396
Office Expenses$3,047$447$19,910$23,404
Payroll Taxes$14,205$2,083$2,652$18,940
Depreciation Depletion$13,364$1,960$2,495$17,819
Information Technology$8,929$1,461$5,819$16,209
Fees for Services Accounting$797$12,947$149$13,893
Fees for Services Other$5,200$2,000$800$8,000
Other Expenses$0$0$6,096$6,096
Pension Plan Contributions$4,113$823$548$5,484
All Other Expenses$503$2,215$2,687$5,405
Other Employee Benefits$2,625$605$1,270$4,500
Conferences and Meetings$817$1,261$902$2,980
Insurance$1,682$247$314$2,243
Total Functional Expenses$429,326$52,140$78,883$560,349

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$594,869
Expenses per Audited Statements$560,349
Total Expenses per Form 990$560,349
Expenses Not Reported on Form 990$34,520
Expenses Not Reported on Financial Statements$0
Other Expense Adjustments$0
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

A Board member is the father-in-law of another Board member.

Form 990, Part VI, Section B, Line 11B

The Form 990 is prepared by a CPA and reviewed by the Executive Director and the Finance Committee. Before it is filed, the Board of Directors reviews the Form 990.

Form 990, Part VI, Section B, Line 12C

A conflict of interest policy is annually reviewed and signed by the Board of Directors. Annual disclosures are required.

Form 990, Part VI, Section B, Line 15

All compensation decisions are made by the Finance committee in the budget process. The committee gathers data from similar nonprofit organizations to base salary data from.

Form 990, Part VI, Section C, Line 19

The Organization provides these documents upon request.

Filing and Contact Details

Filer

Filer Name
Dysautonomia Project Inc
EIN
46-5433260
Phone
7273041547
Address
4592 Ulmerton Road Ste 104, Clearwater, FL 33762

Signing Officer

Name
Pamela Reeder
Title
Board Treasurer
Phone
7274464564
Signed
2025-07-15

Organization Details

Principal Officer
Pamela Reeder
Formed
2014
Legal Domicile
Fl
Voting Board Members
8
Independent Board Members
8
Employees
4
Volunteers
50
Supplemental Narrative

Financial Statement Notes

Schedule D, Part V, Line 4

The board designated endowment fund's purpose is to provide a stable source of income to support the Organization's needs.

Raw XML AppendixShowing 400 of 569 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0Our programs and initiatives are as unique as our mission. They range from our award-winning book, The Dysautonomia Project, which remains the cornerstone of our mission, to the first ever free, online video library (Autonomic Education) connecting the world's leading specialists to providers and patients anywhere. The Residents Course mini fellowship, presented in partnership with the American Autonomic Society, is the first program of its kind exponentially increasing the number of doctors able to diagnose and treat dysautonomia.
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IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt023211
IRS990/NetGainOrLossInvestmentsGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0100012
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt01180543
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt01221840
IRS990/NoncashContributionsAmt00
IRS990/NondeductibleContributionsInd00
IRS990/OfficeExpensesGrp/FundraisingAmt019910
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0447
IRS990/OfficeExpensesGrp/ProgramServicesAmt03047
IRS990/OfficeExpensesGrp/TotalAmt023404
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt01270
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt0605
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt02625
IRS990/OtherEmployeeBenefitsGrp/TotalAmt04500
IRS990/OtherExpensesGrp/Desc0Employee training
IRS990/OtherExpensesGrp/Desc1Educational speaker fees
IRS990/OtherExpensesGrp/Desc2Educational costs
IRS990/OtherExpensesGrp/Desc3Indirect fundraising costs
IRS990/OtherExpensesGrp/FundraisingAmt02034
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/FundraisingAmt20
IRS990/OtherExpensesGrp/FundraisingAmt36096
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt30
IRS990/OtherExpensesGrp/ProgramServicesAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt115000
IRS990/OtherExpensesGrp/ProgramServicesAmt2178148
IRS990/OtherExpensesGrp/ProgramServicesAmt30
IRS990/OtherExpensesGrp/TotalAmt02034
IRS990/OtherExpensesGrp/TotalAmt115000
IRS990/OtherExpensesGrp/TotalAmt2178148
IRS990/OtherExpensesGrp/TotalAmt36096
IRS990/OtherRevenueTotalAmt0664
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt020827
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt07522
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt088047
IRS990/OtherSalariesAndWagesGrp/TotalAmt0116396
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt02652
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt02083
IRS990/PayrollTaxesGrp/ProgramServicesAmt014205
IRS990/PayrollTaxesGrp/TotalAmt018940
IRS990/PensionPlanContributionsGrp/FundraisingAmt0548
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0823
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt04113
IRS990/PensionPlanContributionsGrp/TotalAmt05484
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt09000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt093000
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt076354
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt095543
IRS990/PrincipalOfficerNm0Pamela Reeder
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0813212
IRS990/ProgramServiceRevenueGrp/BusinessCd1813212
IRS990/ProgramServiceRevenueGrp/Desc0The Residents Course Conference fees
IRS990/ProgramServiceRevenueGrp/Desc1Dyscourse Conference revenues
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/ExclusionAmt10
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt09261
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt19933
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt09261
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt19933
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt10
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0753780
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt046621
IRS990/PYOtherExpensesAmt0234221
IRS990/PYOtherRevenueAmt0-71291
IRS990/PYProgramServiceRevenueAmt012020
IRS990/PYRevenuesLessExpensesAmt0215404
IRS990/PYSalariesCompEmpBnftPaidAmt0291505
IRS990/PYTotalExpensesAmt0525726
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0741130
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt071285
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt019194
IRS990/RoyaltiesRevenueGrp/ExclusionAmt00
IRS990/RoyaltiesRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/RoyaltiesRevenueGrp/TotalRevenueColumnAmt00
IRS990/RoyaltiesRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0Other income is product sales.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0Schedule A, Part II, Line 10
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0564552
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0753780
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0684580
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0170647
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0200873
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02374432
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt024013
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt019314
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt043327
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt043069
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt040259
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt042132
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt042667
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt022261
IRS990ScheduleA/OtherIncome170Grp/TotalAmt0190388
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.91039
IRS990ScheduleA/PublicSupportPY170Pct00.91786
IRS990ScheduleA/PublicSupportTotal170Amt02374432
IRS990ScheduleA/ThirtyThrPctSuprtTestsPY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0564552
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0753780
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0684580
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0170647
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0200873
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02374432
IRS990ScheduleA/TotalSupportAmt02608147
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BoardDesignatedBalanceEOYPct01
IRS990ScheduleD/BuildingsGrp/BookValueAmt00
IRS990ScheduleD/BuildingsGrp/DepreciationAmt00
IRS990ScheduleD/BuildingsGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt00

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