Civic Intelligence

Sickle Cell 101

EIN 46-4141467 • 501(c)3 • San Jose, CA

RevokedPub. 78 Eligible990-N Coverage

Profile

To engage in charitable activities and to globally provide and improve education, research and awareness of sickle cell disease and sickle cell traits. To support key community stakeholders, especially patients, caregivers, and the general public.

Revocation date: Apr 15, 2016

760 Newhall Drive Suite 1085San Jose, CA 95110

sc101.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

10th percentile

-97%

Higher net margin than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

97th percentile

$75,332

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 42.3% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

17th percentile

-61%

Faster asset growth than 17% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

19th percentile

-49%

Faster revenue growth than 19% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$41,813

Down $64,313 (-61%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

-$9,826

Down $115,952 (-109%) from 2023

Operations
Liabilities / Revenue62nd percentileNet Margin10th percentile

Revenue

Down

$178,037

Down $171,464 (-49%) from 2023

Expenses

Down

$349,964

Down $3,792 (-1.1%) from 2023

Net Income

Down

-$171,927

Down $167,672 (-3941%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth17th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$200K$150K$100K$50K$0-$50KAssets 2019: $112,706Liabilities 2019: $0Net Assets 2019: $112,7062019Assets 2020: $53,365Liabilities 2020: $0Net Assets 2020: $53,3652020Assets 2021: $137,267Liabilities 2021: $0Net Assets 2021: $137,2672021Assets 2022: $166,356Liabilities 2022: $0Net Assets 2022: $166,3562022Assets 2023: $106,126Liabilities 2023: $0Net Assets 2023: $106,1262023Assets 2024: $41,813Liabilities 2024: $0Net Assets 2024: -$9,8262024

Highlighted filing

2024

Assets$41,813
Liabilities$0
Net Assets-$9,826
Open 2024 Filing

Operations Trend

Revenue Growth19th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2019: $227,516Expenses 2019: $123,741Net Income 2019: $103,7752019Revenue 2020: $77,701Expenses 2020: $83,531Net Income 2020: -$5,8302020Revenue 2021: $227,316Expenses 2021: $195,195Net Income 2021: $32,1212021Revenue 2022: $246,717Expenses 2022: $252,710Net Income 2022: -$5,9932022Revenue 2023: $349,501Expenses 2023: $353,756Net Income 2023: -$4,2552023Revenue 2024: $178,037Expenses 2024: $349,964Net Income 2024: -$171,9272024

Highlighted filing

2024

Revenue$178,037
Expenses$349,964
Net Income-$171,927
Open 2024 Filing

Filings

Most recent year

2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$41,813
Liabilities
$0
Net assets
-$9,826
Revenue
$178,037
Expenses
$349,964
Net income
-$171,927
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.42$0.00$0.10$1.78$3.50$1.72
2023Detailed filing. Detailed filing data is available for this year.$1.06$0.00$1.06$3.50$3.54$0.04
2022Detailed filing. Detailed filing data is available for this year.$1.66$0.00$1.66$2.47$2.53$0.06
2021Detailed filing. Detailed filing data is available for this year.$1.37$0.00$1.37$2.27$1.95$0.32
2020Detailed filing. Detailed filing data is available for this year.$0.53$0.00$0.53$0.78$0.84$0.06
2019Detailed filing. Detailed filing data is available for this year.$1.13$0.00$1.13$2.28$1.24$1.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Nov 30, 2024
Signed
May 8, 2025
Return Version
2024v5.1
Gross Receipts
$178,037
Mission and Program Overview

Mission

To engage in charitable activities and to globally provide and improve education, research and awareness of sickle cell disease and sickle cell traits. To support key community stakeholders, especially patients, caregivers, and the general public.

To educate,engage, empower the global sickle cell

Program Services

DescriptionGrantsExpenses
Data Insights and Scientific Collaborations (1) Clinical trials and survey study awareness (2) Collect and report sickle cell community insights$128,137$128,137
Education and Empowerment (1) Community educational Initiatives$95,060$95,060
Global Collaborative (1) In-person attendance for congress, symposium etc. (2) Multi-stakeholder virtual collaborations and support$90,473$90,473
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
CASSANDRA TRIMNELL EHRLICHExecutive DirectorFT$75,332-$75,332
STEPHEN AGYENIM-BOATENGKey EmployeePT$20,000-$20,000
KEITH QUIROLOKey EmployeePT$13,750-$13,750
ANGELA EHRLICHBoard ChairPT$0--
MARKUS KOTHNERSecretaryPT$0--
Filing and Contact Details

Filer

Filer Name
Sickle Cell 101
EIN
46-4141467
Phone
4158817101
Address
760 NEWHALL DRIVE SUITE 1085, SAN JOSE, CA 95110

Signing Officer

Name
Cassandra Trimnell-ehrlich
Title
Executive Director
Phone
4158817101
Signed
2025-05-08
Discuss with paid preparer
Yes

Preparer

Firm
Frempong CPA
Address
P O BOX 801, DULUTH, GA 30096
Preparer
Eric Nti Frempong
Phone
6782300677
Supplemental Narrative

Additional Explanations

Form 990-ez, Part III

“The PRIMARY EXEMPT PURPOSE OF SICKLE CELL 101 is to Educate, Engange, and Empower the Global Sickle Cell Community. The impact of Sickle Cell 101 reaches at least 3 million individuals annually. 75% of these individuals live with sickle cell disease residing in 130 countries. The organization currently has about 60,000 followers on social media and other digital platforms. Sickle Cell 101 s 3 main focus areas are: (1) Education and Empowerment (2) Data Insights and Scientific Collaborations (3) Global Collaborations”

Part I, line 10

“Activity: AWARDS Grantee Name: VARIOUS INDIVIDUALS Grantee Address: Amount: 15377 Relationship: NO RELATION”

Part I, line 10

“Activity: PROGRAM ACTIVITIES Grantee Name: VARIOUS TESTS AND PROGRAMS Grantee Address: Amount: 75330 Relationship: NO RELATION”

Part I, line 20

“Description: OFFICE RENTAL Amount: 16384”

Part I, line 20

“Description: EQUIPMENT Amount: 289”

Part I, line 20

“Description: TELEPHONE Amount: 3219”

Raw XML Appendix160 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990EZ/ActivitiesNotPreviouslyRptInd0false
IRS990EZ/BooksInCareOfDetail/PersonNm0CASSANDRA TRIMNELL EHRLICH
IRS990EZ/BooksInCareOfDetail/PhoneNum04158817101
IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt0760 NEWHALL DRIVE SUITE 1085
IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0SAN JOSE
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd095110
IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt0162101
IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt041813
IRS990EZ/ChgMadeToOrgnzngDocNotRptInd0false
IRS990EZ/ContributionsGiftsGrantsEtcAmt0178037
IRS990EZ/DonorAdvisedFndsInd0false
IRS990EZ/EngagedInExcessBenefitTransInd0false
IRS990EZ/ExcessOrDeficitForYearAmt0-171927
IRS990EZ/FeesAndOtherPymtToIndCntrctAmt059383
IRS990EZ/FiledScheduleAInd0true
IRS990EZ/ForeignFinancialAccountInd0false
IRS990EZ/ForeignOfficeInd0false
IRS990EZ/Form1120PolFiledInd0false
IRS990EZ/Form990TotalAssetsGrp/BOYAmt0162101
IRS990EZ/Form990TotalAssetsGrp/EOYAmt041813
IRS990EZ/GrantsAndSimilarAmountsPaidAmt090707
IRS990EZ/GrossReceiptsAmt0178037
IRS990EZ/InfoInScheduleOPartIIIInd0X
IRS990EZ/InfoInScheduleOPartIInd0X
IRS990EZ/LobbyingActivitiesInd0false
IRS990EZ/MadeLoansToFromOfficersInd0false
IRS990EZ/MethodOfAccountingCashInd0X
IRS990EZ/NetAssetsOrFundBalancesBOYAmt0162101
IRS990EZ/NetAssetsOrFundBalancesEOYAmt0-9826
IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt0162101
IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt041813
IRS990EZ/OccupancyRentUtltsAndMaintAmt019892
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt040
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt15
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt210
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt320
IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt420
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt075332
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt10
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt20
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt320000
IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt413750
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm0CASSANDRA TRIMNELL EHRLICH
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm1ANGELA EHRLICH
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm2MARKUS KOTHNER
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm3STEPHEN AGYENIM-BOATENG
IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm4KEITH QUIROLO
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt0EXECUTIVE DIRECTOR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt1BOARD CHAIR
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt2SECRETARY
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3KEY EMPLOYEE
IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt4KEY EMPLOYEE
IRS990EZ/OperateHospitalInd0false
IRS990EZ/Organization501c3Ind0X
IRS990EZ/OrganizationDissolvedEtcInd0false
IRS990EZ/OrganizationHadUBIInd0false
IRS990EZ/PoliticalCampaignActyInd0false
IRS990EZ/PrimaryExemptPurposeTxt0TO EDUCATE,ENGAGE, EMPOWER THE GLOBAL SICKLE CELL
IRS990EZ/PrintingPublicationsPostageAmt011731
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt0Education and Empowerment (1) Community educational Initiatives
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Data Insights and Scientific Collaborations (1) Clinical trials and survey study awareness (2) Collect and report sickle cell community insights
IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt2Global Collaborative (1) In-person attendance for congress, symposium etc. (2) Multi-stakeholder virtual collaborations and support
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt095060
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt1128137
IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt290473
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt095060
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt1128137
IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt290473
IRS990EZ/ProhibitedTaxShelterTransInd0false
IRS990EZ/RelatedOrganizationCtrlEntInd0false
IRS990EZ/SalariesOtherCompEmplBnftAmt0168251
IRS990EZ/SchoolOperatingInd0false
IRS990EZ/StatesWhereCopyOfReturnIsFldCd0CA
IRS990EZ/SubjectToProxyTaxInd0false
IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt00
IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt00
IRS990EZ/TanningServicesProvidedInd0false
IRS990EZ/TotalExpensesAmt0349964
IRS990EZ/TotalProgramServiceExpensesAmt0313670
IRS990EZ/TotalRevenueAmt0178037
IRS990EZ/TransactionWithControlEntInd0false
IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd0false
IRS990EZ/TypeOfOrganizationCorpInd0X
IRS990EZ/WebsiteAddressTxt0WWW.SC101.ORG
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0174693
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0349501
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0246717
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0227316
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt077701
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01075928
IRS990ScheduleA/InvestmentIncomeCYPct00
IRS990ScheduleA/InvestmentIncomePYPct00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct01
IRS990ScheduleA/PublicSupportPY509Pct01
IRS990ScheduleA/PublicSupportTotal509Amt01075928
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0174693
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0349501
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0246717
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0227316
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt077701
IRS990ScheduleA/Total509Grp/TotalAmt01075928
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0174693
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0349501
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0246717
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0227316
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt077701
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01075928
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0The PRIMARY EXEMPT PURPOSE OF SICKLE CELL 101 is to Educate, Engange, and Empower the Global Sickle Cell Community. The impact of Sickle Cell 101 reaches at least 3 million individuals annually. 75% of these individuals live with sickle cell disease residing in 130 countries. The organization currently has about 60,000 followers on social media and other digital platforms. Sickle Cell 101 s 3 main focus areas are: (1) Education and Empowerment (2) Data Insights and Scientific Collaborations (3) Global Collaborations
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Activity: AWARDS Grantee Name: VARIOUS INDIVIDUALS Grantee Address: Amount: 15377 Relationship: NO RELATION
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Activity: PROGRAM ACTIVITIES Grantee Name: VARIOUS TESTS AND PROGRAMS Grantee Address: Amount: 75330 Relationship: NO RELATION
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Description: OFFICE RENTAL Amount: 16384
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Description: EQUIPMENT Amount: 289
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Description: TELEPHONE Amount: 3219
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990-EZ, PART III
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Part I, line 10
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Part I, line 10
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Part I, line 20
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Part I, line 20
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Part I, line 20
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd0true
ReturnHeader/BusinessOfficerGrp/PersonNm0CASSANDRA TRIMNELL-EHRLICH
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0EXECUTIVE DIRECTOR
ReturnHeader/BusinessOfficerGrp/PhoneNum04158817101
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-05-08
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0SICKLE CELL 101
ReturnHeader/Filer/BusinessNameControlTxt0SICK
ReturnHeader/Filer/EIN0464141467
ReturnHeader/Filer/PhoneNum04158817101
ReturnHeader/Filer/USAddress/AddressLine1Txt0760 NEWHALL DRIVE SUITE 1085
ReturnHeader/Filer/USAddress/CityNm0SAN JOSE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd095110
ReturnHeader/IRSResponsiblePrtyInfoCurrInd0true
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0454009245
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0FREMPONG CPA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0P O BOX 801
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0DULUTH
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0GA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd030096
ReturnHeader/PreparerPersonGrp/PhoneNum06782300677
ReturnHeader/PreparerPersonGrp/PreparationDt02025-05-09
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0ERIC NTI FREMPONG
ReturnHeader/PreparerPersonGrp/SelfEmployedInd0X
ReturnHeader/ReturnTs02025-05-09T20:18:12-05:00
ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-11-30
ReturnHeader/TaxYr02024

Document Assets

No mirrored PDF or thumbnail assets are attached yet.