Civic Intelligence

Lgmd2 D Foundation

990 • Fiscal year 2016 • EIN 46-4128016

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 10, 2017

Organization ProfileWWW.LGMD2D.ORG
20 Sunnyside Ave Ste EMill Valley, CA 94941

(415) 850-1500

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

14th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

93rd percentile

56%

Higher net margin than 93% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

100th percentile

12136%

Faster asset growth than 100% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

99th percentile

1326%

Faster revenue growth than 99% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets14th percentile

Assets

Up

$729,523

Up $723,561 (+12136%) from 2015

Net Assets

Up

$729,523

Up $723,561 (+12136%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue14th percentileNet Margin93rd percentile

Revenue

Up

$1,294,684

Up $1,203,912 (+1326%) from 2015

Expenses

Up

$571,123

Up $485,694 (+569%) from 2015

Net Income

Up

$723,561

Up $718,218 (+13442%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth100th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2015: $5,962Liabilities 2015: $0Net Assets 2015: $5,9622015Assets 2016: $729,523Liabilities 2016: $0Net Assets 2016: $729,5232016Assets 2017: $47,573Liabilities 2017: $0Net Assets 2017: $47,5732017Assets 2018: $81,455Liabilities 2018: $0Net Assets 2018: $81,4552018Assets 2019: $125,144Liabilities 2019: $0Net Assets 2019: $125,1442019Assets 2020: $105,992Liabilities 2020: $0Net Assets 2020: $105,9922020Assets 2021: $103,066Liabilities 2021: $0Net Assets 2021: $103,0662021

Highlighted filing

2016

Assets$729,523
Liabilities$0
Net Assets$729,523
Open 2016 Filing

Operations Trend

Revenue Growth99th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500K-$1.0MRevenue 2015: $90,772Expenses 2015: $85,429Net Income 2015: $5,3432015Revenue 2016: $1,294,684Expenses 2016: $571,123Net Income 2016: $723,5612016Revenue 2017: $20,214Expenses 2017: $702,164Net Income 2017: -$681,9502017Revenue 2018: $52,297Expenses 2018: $18,415Net Income 2018: $33,8822018Revenue 2019: $100,417Expenses 2019: $17,229Net Income 2019: $83,1882019Revenue 2020: $602Expenses 2020: $19,754Net Income 2020: -$19,1522020Revenue 2021: $1Expenses 2021: $2,927Net Income 2021: -$2,9262021

Highlighted filing

2016

Revenue$1,294,684
Expenses$571,123
Net Income$723,561
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 10, 2017
Return Version
2016v3.0
Gross Receipts
$1,294,684
Mission and Program Overview

Mission

NONE

To support research and clinical trials to speed the development of treatments and cures for limb-girdle muscular dystrophy type 2d (lgmd2d). Formed in september 2013, the foundation is committed to the development and maintenance of international patient registry for individuals diagnosed with lgmd2d and to supporting relevant scientific research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$5,962$729,523▲ $723,561
Rtn Earn Endowment Incm Other Fnds$5,962$729,523▲ $723,561
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$5,962$729,523▲ $723,561
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$5,962$729,523▲ $723,561
Total Liabilities and Net Assets / Fund Balance$5,962$729,523▲ $723,561
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
Bryan BarberPresident/CEO
Caroline BarberTreasurer/secretary
Revenue and Support

Revenue Composition

Contributions and Grants
$1,294,684
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$1,294,684
Change in Net Assets
$723,561
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$556,000
Other Expenses$15,123
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$556,000--$556,000
Fees for Services Other$15,000--$15,000
Office Expenses-$44-$44
Other Expenses-$24-$24
Total Functional Expenses$571,000$123$0$571,123
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory Genetics Laboratory (egl Genetics)Tucker, GA-To Support Research and Clinical Trials to Speed the Development of Treatments and Cures for Limb-girdle Muscular Dystrophy Type 2d (lgmd2d).$420,000
Jain FoundationSeattle, WA-To Support Research and Clinical Trials to Speed the Development of Treatments and Cures for Limb-girdle Muscular Dystrophy Type 2d (lgmd2d).$130,000
American Association of Neuromuscular and Electrodiagnostic MedicineRochester, MN-To Support Education, Research Access and Patient Resources Related to the Advancement of Neuromuscular, Musculoskeletal and Electrodiagnostic Medicine.$6,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Officers bryan barber(president/ceo) and caroline barber (treasurer/secretary) are husband and wife.”

Form 990, Part VI, Section B, Line 11B

“The president and treasurer as well as board secretary reviews the form 990 (or 990-ez)before the organization submits the annual tax return to the irs.”

Form 990, Part VI, Section B, Line 12C

“The conflict of interest policy covers all directors and officers. For 2016 the organization had no employees. If there is a conflict, then the organization's board prohibits the director or officer from participating in the deliberations and decisions about the transaction or agreement.”

Form 990, Part VI, Section C, Line 19

“AVAILABLE ON REQUEST”

Filing and Contact Details

Filer

Filer Name
Lgmd2d Foundation
EIN
46-4128016
Phone
4158501500
Address
20 SUNNYSIDE AVE STE E, MILL VALLEY, CA 94941

Signing Officer

Name
Bryan Barber
Title
President
Phone
4158501500
Signed
2017-11-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Bryan Barber
Formed
2013
Legal Domicile
CA
Voting Board Members
2
Independent Board Members
2
Employees
0
Volunteers
0

Preparer

Firm
Friedlander Cherwon Capper Llp
Address
1101 FIFTH AVENUE SUITE 350, SAN RAFAEL, CA 94901
Preparer
Norman R Capper
Phone
4154565500
Raw XML Appendix309 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D).
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO SUPPORT EDUCATION, RESEARCH ACCESS AND PATIENT RESOURCES RELATED TO THE ADVANCEMENT OF NEUROMUSCULAR, MUSCULOSKELETAL AND ELECTRODIAGNOSTIC MEDICINE.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2TO SUPPORT RESEARCH AND CLINICAL TRIALS TO SPEED THE DEVELOPMENT OF TREATMENTS AND CURES FOR LIMB-GIRDLE MUSCULAR DYSTROPHY TYPE 2D (LGMD2D).
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0EMORY GENETICS LABORATORY (EGL GENETICS)
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1AMERICAN ASSOCIATION OF NEUROMUSCULAR AND ELECTRODIAGNOSTIC MEDICINE
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0OFFICERS BRYAN BARBER(PRESIDENT/CEO) AND CAROLINE BARBER (TREASURER/SECRETARY) ARE HUSBAND AND WIFE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE PRESIDENT AND TREASURER AS WELL AS BOARD SECRETARY REVIEWS THE FORM 990 (OR 990-EZ)BEFORE THE ORGANIZATION SUBMITS THE ANNUAL TAX RETURN TO THE IRS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE CONFLICT OF INTEREST POLICY COVERS ALL DIRECTORS AND OFFICERS. FOR 2016 THE ORGANIZATION HAD NO EMPLOYEES. IF THERE IS A CONFLICT, THEN THE ORGANIZATION'S BOARD PROHIBITS THE DIRECTOR OR OFFICER FROM PARTICIPATING IN THE DELIBERATIONS AND DECISIONS ABOUT THE TRANSACTION OR AGREEMENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3AVAILABLE ON REQUEST
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ReturnHeader/Filer/USAddress/ZIPCd094941
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0EF891B7E646AC7B40524BE2784AA6762DC261BE3
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0EF891B7E646AC7B40524BE2784AA6762DC261BE3
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt066.7.237.246
ReturnHeader/FilingSecurityInformation/IPDt02017-11-10
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0PS
ReturnHeader/FilingSecurityInformation/IPTm013:25:15
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0942625391
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0FRIEDLANDER CHERWON CAPPER LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt01101 FIFTH AVENUE SUITE 350
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0SAN RAFAEL
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd094901
ReturnHeader/PreparerPersonGrp/PhoneNum04154565500
ReturnHeader/PreparerPersonGrp/PreparationDt02017-11-10
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0NORMAN R CAPPER
ReturnHeader/ReturnTs02017-11-15T17:14:36-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$729,523
Liabilities
$0
Net assets
$729,523
Revenue
$1,294,684
Expenses
$571,123
Net income
$723,561
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2021Detailed filing. Detailed filing data is available for this year.$0.10$0.00$0.10$0.00$0.00$0.00
2020Detailed filing. Detailed filing data is available for this year.$0.11$0.00$0.11$0.00$0.02$0.02
2019Detailed filing. Detailed filing data is available for this year.$0.13$0.00$0.13$0.10$0.02$0.08
2018Detailed filing. Detailed filing data is available for this year.$0.08$0.00$0.08$0.05$0.02$0.03
2017Detailed filing. Detailed filing data is available for this year.$0.05$0.00$0.05$0.02$0.70$0.68
2016Detailed filing. Detailed filing data is available for this year.$0.73$0.00$0.73$1.29$0.57$0.72
2015Detailed filing. Detailed filing data is available for this year.$0.01$0.00$0.01$0.09$0.09$0.01