Liabilities / Assets
82nd percentile
Higher debt load relative to assets than 82% of similar nonprofits.
Conquering Congenital Heart Disease
EIN 46-3576700 • 501(c)3 • Middleton, WI
Profile
At conquering chd we exist to conquerin the most common birth defect. We engage, listen, learn, and act. We create visibility and empower all impacted by chd. We accomplish this through awareness, knowledge, community and research.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.17x
Liabilities / Revenue
70th percentile
Higher debt load relative to revenue than 70% of similar nonprofits.
Net Margin
27th percentile
Higher net margin than 27% of similar nonprofits.
Top Officer Pay
92nd percentile
Higher top officer pay than 92% of similar nonprofits.
Top officer pay equals 13.2% of source-year revenue.
Asset Growth
13th percentile
Faster asset growth than 13% of similar nonprofits.
Revenue Growth
17th percentile
Faster revenue growth than 17% of similar nonprofits.
Balance Sheet
Assets
Down$21,394
Down $94,989 (-82%) from 2022
Liabilities
Down$3,610
Down $52,474 (-94%) from 2022
Net Assets
Down$17,784
Down $42,515 (-71%) from 2022
Revenue
Down$291,957
Down $353,448 (-55%) from 2022
Expenses
Down$333,995
Down $295,606 (-47%) from 2022
Net Income
Down-$42,038
Down $57,842 (-366%) from 2022
Trend Graphs
Filings
Most recent year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.
- Assets
- $21,394
- Liabilities
- $3,610
- Net assets
- $17,784
- Revenue
- $291,957
- Expenses
- $333,995
- Net income
- -$42,038
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2023 to Dec 31, 2023
- Signed
- Nov 15, 2024
- Return Version
- 2023v5.0
- Gross Receipts
- $291,957
Mission and Program Overview
Mission
The organization's mission is to "conquer congenital heart disease." we are accomplishing this through collaboration with patients, parents, providers, and partner organizations to improve quality and outcomes through chd education, support, research and awareness.
Conquering chd exists to conquer the most common birth defect. We engage, listen, learn and act. We create visibility and empower all impacted by chd. We accomplish this through awareness, knowledge, community and research.
Balance Sheet Detail
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $85,940 | $14,529 | ▼ $71,411 |
| Prepaid Expenses and Deferred Charges | $8,078 | $3,217 | ▼ $4,861 |
| Intangible Assets | $3,126 | $2,648 | ▼ $478 |
| Accounts Receivable | $19,239 | $1,000 | ▼ $18,239 |
| Inventories for Sale or Use | $0 | - | - |
| Total Assets | $116,383 | $21,394 | ▼ $94,989 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $45,439 | $2,749 | ▼ $42,690 |
| Other Liabilities | $10,645 | $861 | ▼ $9,784 |
| Deferred Revenue | $0 | - | - |
| Total Liabilities | $56,084 | $3,610 | ▼ $52,474 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $60,299 | $17,784 | ▼ $42,515 |
| Net Assets With Donor Restrictions | $0 | $0 | → $0 |
| Total Net Assets Fund Balance | $60,299 | $17,784 | ▼ $42,515 |
| Total Liabilities and Net Assets / Fund Balance | $116,383 | $21,394 | ▼ $94,989 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Amy Basken | Former Executive Director | FT | $38,461 | $38,461 |
| Carissa Ostrom | Executive Director | FT | $30,855 | $30,855 |
| Mark Fried | Former Executive Director | FT | $16,797 | $16,797 |
Board Members and Trustees
| Name | Title |
|---|---|
| Melissa Stevens | Director |
| Tom Eby | Director |
Revenue and Support
Revenue Composition
- Contributions and Grants
- $250,821
- Program Service Revenue
- $41,136
- Investment Income
- $0
- Other Revenue
- $0
- All Other Contributions
- $220,347
- Change in Net Assets
- $-42,038
Expenses and Functional Allocation
Major Expense Lines
| Line Item | Amount |
|---|---|
| Other Expenses | $191,299 |
| Salaries, Compensation, and Employee Benefits | $142,696 |
| Grants and Similar Amounts Paid | $0 |
| Professional Fundraising Fees | $0 |
| Total Fundraising Expense | $0 |
Functional Expense Allocation
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Advertising | $102,410 | - | - | $102,410 |
| Current Officers, Directors, Trustees, and Key Employees | $64,540 | $21,513 | - | $86,053 |
| Other Salaries and Wages | $44,844 | - | - | $44,844 |
| Fees for Services Other | $15,459 | $2,142 | - | $17,601 |
| Conferences and Meetings | $16,550 | - | - | $16,550 |
| Payroll Taxes | $10,799 | - | - | $10,799 |
| Insurance | - | $6,499 | - | $6,499 |
| Fees for Services Accounting | $5,883 | - | - | $5,883 |
| All Other Expenses | $4,599 | - | - | $4,599 |
| Travel | $289 | $2,331 | - | $2,620 |
| Other Expenses | $52 | $1,942 | - | $1,942 |
| Office Expenses | - | $1,208 | - | $1,208 |
| Other Employee Benefits | $1,000 | - | - | $1,000 |
| Fees for Services Legal | - | $742 | - | $742 |
| Depreciation Depletion | - | $477 | - | $477 |
| Total Functional Expenses | $289,040 | $44,955 | $0 | $333,995 |
Fundraising, Events, and Gaming
- Fundraising activities
- No
- Gaming activities
- No
- Professional fundraiser used
- No
Fundraising and Gaming Totals
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $0 |
| Fundraising Gross Income | $0 |
| Professional Fundraising Fees | $0 |
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Gala | $18,500 | $0 | $2,349 | $-2,349 |
| Steps For CHD | $7,074 | $0 | - | $0 |
| Total Events | $25,574 | $0 | $15,659 | $-15,659 |
Political and Lobbying Activity
- Political campaign activity
- No
- Lobbying activity
- Yes
- Subject to proxy tax
- No
Governance and Compliance
Governance Checklist
- Compiled or reviewed by an accountant
- No
- Annual disclosure for covered persons
- Yes
- Backup withholding compliance
- Yes
- Business relationship with 35% controlled entity
- No
- Business relationship with family members
- No
- Business relationship with organization members
- No
- Material changes to governing documents
- No
- Compensation from other sources disclosed
- No
- CEO compensation reviewed
- Yes
- Other officer compensation reviewed
- No
- Conflict-of-interest policy
- Yes
- Audited financial statements prepared
- No
- Key decisions subject to board approval
- No
- Management duties delegated
- No
Governance Explanations
FORM 990, PART VI, SECTION B, LINE 11B:
“Reviewed by the board of directors before filing”
FORM 990, PART VI, SECTION B, LINE 12C:
“Periodic reviews are conducted per the organization's conflict of interest policy”
FORM 990, PART VI, SECTION B, LINE 15A:
“The governing body reviewed the executive director's performance and compensation package, referring to comparability data for similar type positions and duties”
FORM 990, PART VI, SECTION C, LINE 19:
“UPON REQUEST”
Part VI, Line 11B
“Reviewed by the board of directors before filing.”
Part VI, Line 12C
“Periodic reviews are conducted per the organization's conflict of interest policy.”
Part VI, Line 15A
“The governing body reviewed the executive director's performance and compensation package, referring to comparability data for similar type positions and duties.”
Part VI, Line 19
“UPON REQUEST”
Filing and Contact Details
Filer
- Filer Name
- Conquering Congenital Heart Disease
- EIN
- 46-3576700
- Phone
- 8507979354
- Address
- 8383 Greenway Blvd Suite 600, Middleton, WI 53562
Signing Officer
- Name
- Carissa Ostrom
- Title
- Executive Director
- Phone
- 8507979354
- Signed
- 2024-11-15
Organization Details
- Principal Officer
- Carissa Ostrom
- Formed
- 2013
- Legal Domicile
- Wi
- Voting Board Members
- 5
- Independent Board Members
- 4
- Employees
- 6
- Volunteers
- 75
Supplemental Narrative
Additional Explanations
FORM 990, PART I, LINE 1, DESCRIPTION OF ORGANIZATION MISSION:
“Act. We create visibility and empower all impacted by chd. We accomplish this through awareness, knowledge, community and research.”
FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS:
“Through our care packages, our website and social media, we are completing a multicenter quality improvement project with the country's top heart hospitals, to document that we are achieving our desired goals with this tool. More broadly, we are influencing national policy and culture surrounding public reporting of pediatric and congenital heart disease outcomes. We are achieving this through a series of stakeholder summits, faculty presentations at national conferences, and building relationships with partner organizations. Results include modifications to national ranking systems (u.s. News and world report) and the increase in respect for and utilization of the parent voice within the medical community. We are presently working with an extensive list of stakeholders toward the development of the organization website to include centralized congenital heart outcome data reporting and information to support interpretation for patients, families and the providers who care for them”
FORM 990, PART XII, LINE 2C:
“The process has not changed.”
Financial Statement Notes
Part X, Line 2
“The organization is a nonprofit corporation, incorporated under the wisconsin non-stock corporation law (chapter 181 of the wisconsin statutes). The organization is a not-for-profit organization exempt from federal income tax under section 501(c)(3) of the internal revenue code. In addition, the organization has been classified as an organization that is not a private foundation under section 509(a)(2) and is exempt from wisconsin income and franchise taxes. The organization has adopted the accounting guidance for recognizing and measuring uncertain tax positions. The organization follows the statutory requirements for their income tax accounting generally avoids risks associated with potentially problematic tax positions that may be challenged upon examination. Management believes any liability resulting from taxing authorities imposed additional income taxes from activities deemed to be unrelated to the organization's tax-exempt status would not have a material effect on the financial statements. The organization's federal exempt organization tax returns are subject to examination by the internal revenue service, generally for three years after they are filed. With few exceptions, the organization is no longer subject to such examinations for years before 2019.”
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| IRS990/Desc | 0 | LEARNING YOUR CHILD HAS CONGENITAL HEART DISEASE CAN BE OVERWHELMING. MANY CHILDREN WITH CONGENITAL HEART DISEASE NEED LIFE SAVING SURGERY OR INTERVENTION IN THE FIRST FEW WEEKS OR MONTHS OF THEIR LIFE. THIS LEADS TO IMPORTANT MEDICAL DECISIONS ABOUT THE CARE OF YOUR CHILD, OFTEN IN A SHORT AMOUNT OF TIME AND UNDER STRESS. HOWEVER, THE ABILITY TO GET IMPORTANT INFORMATION ABOUT WHERE YOUR CHILD WILL GET THEIR TREATMENT IS LIMITED. THE ORGANIZATION IS WORKING TO ADDRESS THIS ISSUE ON MANY LEVELS. WE EMPOWER PATIENTS AND FAMILIES DIRECTLY THROUGH THE USE OF THE GUIDED QUESTIONS TOOL. GIVEN TO FAMILIES AT THE TIME OF DIAGNOSIS, THIS LIST OF QUESTIONS OFFERS SUPPORT AND CONFIDENCE WHEN TALKING TO DOCTORS, SURGEONS AND THE CARE TEAM ABOUT QUALITY, WHAT TO EXPECT WHEN IN THE HOSPITAL, AND BEYOND. ALTHOUGH WIDELY DISTRIBUTED. |
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| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | THE ORGANIZATION CONTINUES TO GROW OUR DIRECT IMPACT THROUGH THE IMPLEMENTATION OF A STATE CHAPTER INFRASTRUCTURE. WHILE INDEPENDENT ENTITIES, OUR STATE CHAPTERS ARE PROVIDED WITH ADMINISTRATIVE AND LEADERSHIP SUPPORT, BRANDED RESOURCES, CORE CARE PACKAGE MATERIALS AND GROUP EXEMPTION THROUGH THE NATIONAL ORGANIZATION. THIS PROGRAM WAS DISCONTINUED DECEMBER 2023. |
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| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | LOBBYING ACTIVITIES CONSIST OF PRO BONO LOBBYIST SERVICES WITH THE PURPOSE OF AMPLIFYING THE VOICE OF THE CONGENTIAL HEART DISEASE (CHD) COMMUNITY TO INFORM POLICYMAKERS OF THE SIGNIFICANT PUBLIC HEALTH BURDEN RELATED TO CHD, AND TO PROMOTE KEY POLICY CHANGES THAT IMPACT THE CHD COMMUNITY AS A WHOLE. |
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| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | THE ORGANIZATION IS A NONPROFIT CORPORATION, INCORPORATED UNDER THE WISCONSIN NON-STOCK CORPORATION LAW (CHAPTER 181 OF THE WISCONSIN STATUTES). THE ORGANIZATION IS A NOT-FOR-PROFIT ORGANIZATION EXEMPT FROM FEDERAL INCOME TAX UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. IN ADDITION, THE ORGANIZATION HAS BEEN CLASSIFIED AS AN ORGANIZATION THAT IS NOT A PRIVATE FOUNDATION UNDER SECTION 509(A)(2) AND IS EXEMPT FROM WISCONSIN INCOME AND FRANCHISE TAXES. THE ORGANIZATION HAS ADOPTED THE ACCOUNTING GUIDANCE FOR RECOGNIZING AND MEASURING UNCERTAIN TAX POSITIONS. THE ORGANIZATION FOLLOWS THE STATUTORY REQUIREMENTS FOR THEIR INCOME TAX ACCOUNTING GENERALLY AVOIDS RISKS ASSOCIATED WITH POTENTIALLY PROBLEMATIC TAX POSITIONS THAT MAY BE CHALLENGED UPON EXAMINATION. MANAGEMENT BELIEVES ANY LIABILITY RESULTING FROM TAXING AUTHORITIES IMPOSED ADDITIONAL INCOME TAXES FROM ACTIVITIES DEEMED TO BE UNRELATED TO THE ORGANIZATION'S TAX-EXEMPT STATUS WOULD NOT HAVE A MATERIAL EFFECT ON THE FINANCIAL STATEMENTS. THE ORGANIZATION'S FEDERAL EXEMPT ORGANIZATION TAX RETURNS ARE SUBJECT TO EXAMINATION BY THE INTERNAL REVENUE SERVICE, GENERALLY FOR THREE YEARS AFTER THEY ARE FILED. WITH FEW EXCEPTIONS, THE ORGANIZATION IS NO LONGER SUBJECT TO SUCH EXAMINATIONS FOR YEARS BEFORE 2019. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | ACT. WE CREATE VISIBILITY AND EMPOWER ALL IMPACTED BY CHD. WE ACCOMPLISH THIS THROUGH AWARENESS, KNOWLEDGE, COMMUNITY AND RESEARCH. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | THROUGH OUR CARE PACKAGES, OUR WEBSITE AND SOCIAL MEDIA, WE ARE COMPLETING A MULTICENTER QUALITY IMPROVEMENT PROJECT WITH THE COUNTRY'S TOP HEART HOSPITALS, TO DOCUMENT THAT WE ARE ACHIEVING OUR DESIRED GOALS WITH THIS TOOL. MORE BROADLY, WE ARE INFLUENCING NATIONAL POLICY AND CULTURE SURROUNDING PUBLIC REPORTING OF PEDIATRIC AND CONGENITAL HEART DISEASE OUTCOMES. WE ARE ACHIEVING THIS THROUGH A SERIES OF STAKEHOLDER SUMMITS, FACULTY PRESENTATIONS AT NATIONAL CONFERENCES, AND BUILDING RELATIONSHIPS WITH PARTNER ORGANIZATIONS. RESULTS INCLUDE MODIFICATIONS TO NATIONAL RANKING SYSTEMS (U.S. NEWS AND WORLD REPORT) AND THE INCREASE IN RESPECT FOR AND UTILIZATION OF THE PARENT VOICE WITHIN THE MEDICAL COMMUNITY. WE ARE PRESENTLY WORKING WITH AN EXTENSIVE LIST OF STAKEHOLDERS TOWARD THE DEVELOPMENT OF THE ORGANIZATION WEBSITE TO INCLUDE CENTRALIZED CONGENITAL HEART OUTCOME DATA REPORTING AND INFORMATION TO SUPPORT INTERPRETATION FOR PATIENTS, FAMILIES AND THE PROVIDERS WHO CARE FOR THEM |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | REVIEWED BY THE BOARD OF DIRECTORS BEFORE FILING |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | PERIODIC REVIEWS ARE CONDUCTED PER THE ORGANIZATION'S CONFLICT OF INTEREST POLICY |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | THE GOVERNING BODY REVIEWED THE EXECUTIVE DIRECTOR'S PERFORMANCE AND COMPENSATION PACKAGE, REFERRING TO COMPARABILITY DATA FOR SIMILAR TYPE POSITIONS AND DUTIES |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | THE PROCESS HAS NOT CHANGED. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 7 | REVIEWED BY THE BOARD OF DIRECTORS BEFORE FILING. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 8 | PERIODIC REVIEWS ARE CONDUCTED PER THE ORGANIZATION'S CONFLICT OF INTEREST POLICY. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 9 | THE GOVERNING BODY REVIEWED THE EXECUTIVE DIRECTOR'S PERFORMANCE AND COMPENSATION PACKAGE, REFERRING TO COMPARABILITY DATA FOR SIMILAR TYPE POSITIONS AND DUTIES. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 10 | UPON REQUEST |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | FORM 990, PART I, LINE 1, DESCRIPTION OF ORGANIZATION MISSION: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | FORM 990, PART III, LINE 4A, PROGRAM SERVICE ACCOMPLISHMENTS: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | FORM 990, PART VI, SECTION B, LINE 11B: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | FORM 990, PART VI, SECTION B, LINE 12C: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | FORM 990, PART VI, SECTION B, LINE 15A: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | FORM 990, PART VI, SECTION C, LINE 19: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | FORM 990, PART XII, LINE 2C: |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 7 | Part VI, Line 11b |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 8 | Part VI, Line 12c |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 9 | Part VI, Line 15a |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 10 | Part VI, Line 19 |
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