Civic Intelligence

Bardet Biedl Syndrome Foundation

EIN 46-3343666 • 501(c)3 • West Chester, PA

Profile

Funding research for Bardet Biedl Syndrome

403 Oermead LaneWest Chester, PA 19380

www.bardetbiedl.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2023

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2023

Net Margin

90th percentile

54%

Higher net margin than 90% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2023

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2023

Asset Growth

91st percentile

93%

Faster asset growth than 91% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Revenue Growth

93rd percentile

138%

Faster revenue growth than 93% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2023

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$415,865

Up $200,340 (+93%) from 2022

Liabilities

Flat

$0

Flat from 2022

Net Assets

Up

$415,865

Up $200,340 (+93%) from 2022

Operations
Liabilities / Revenue62nd percentileNet Margin90th percentile

Revenue

Up

$372,565

Up $216,073 (+138%) from 2022

Expenses

Up

$172,225

Up $4,820 (+2.9%) from 2022

Net Income

Up

$200,340

Up $211,253 (+1936%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth91st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2020: $198,220Liabilities 2020: $02020Assets 2021: $226,438Liabilities 2021: $0Net Assets 2021: $226,4382021Assets 2022: $215,525Liabilities 2022: $0Net Assets 2022: $215,5252022Assets 2023: $415,865Liabilities 2023: $0Net Assets 2023: $415,8652023

Highlighted filing

2023

Assets$415,865
Liabilities$0
Net Assets$415,865
Open 2023 Filing

Operations Trend

Revenue Growth93rd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0-$100KRevenue 2020: $156,873Expenses 2020: $54,148Net Income 2020: $102,7252020Revenue 2021: $74,680Expenses 2021: $46,462Net Income 2021: $28,2182021Revenue 2022: $156,492Expenses 2022: $167,405Net Income 2022: -$10,9132022Revenue 2023: $372,565Expenses 2023: $172,225Net Income 2023: $200,3402023

Highlighted filing

2023

Revenue$372,565
Expenses$172,225
Net Income$200,340
Open 2023 Filing

Filings

Most recent year

2023 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$415,865
Liabilities
$0
Net assets
$415,865
Revenue
$372,565
Expenses
$172,225
Net income
$200,340
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Detailed filing. Detailed filing data is available for this year.$4.16$0.00$4.16$3.73$1.72$2.00
2022Detailed filing. Detailed filing data is available for this year.$2.16$0.00$2.16$1.56$1.67$0.11
2021Detailed filing. Detailed filing data is available for this year.$2.26$0.00$2.26$0.75$0.46$0.28
2020Summary only. Only limited summary data is available for this year.$1.98$0.00$1.57$0.54$1.03
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Aug 1, 2022 to Jul 31, 2023
Signed
Nov 28, 2023
Return Version
2022v5.0
Gross Receipts
$372,565
Mission and Program Overview

Mission

Funding research for Bardet Biedl Syndrome

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$215,525$415,865▲ $200,340
Cap Stk Tr Prin Current Funds$215,525$415,865▲ $200,340
Cash and Non-Interest-Bearing Accounts$0$0→ $0
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Rtn Earn Endowment Incm Other Fnds$0$0→ $0
Total Assets$215,525$415,865▲ $200,340
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$215,525$415,865▲ $200,340
Total Liabilities and Net Assets / Fund Balance$215,525$415,865▲ $200,340
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Timothy OgdenPresident
Alex OgekaVice-President
Nathan ArnesenTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$372,549
Program Service Revenue
$0
Investment Income
$16
Other Revenue
$0
All Other Contributions
$254,966
Change in Net Assets
$200,340
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$100,000
Other Expenses$72,225
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$100,000--$100,000
All Other Expenses$48,338--$48,338
Advertising$13,695$0$0$13,695
Fees for Services Management$7,084$0$0$7,084
Conferences and Meetings$2,936--$2,936
Other Expenses$0$94$0$94
Fees for Services Accounting$48$0$0$48
Total Functional Expenses$172,101$124$0$172,225
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Marshfield Clinic Health System Foundation IncMarshfield, WI501(c)(3)Funding support of the Clinical Registry Investigating Bardet Biedl Syndrome$100,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Turkey Trot$70,000$70,000$25,125$44,875
Rocky Ride$12,587$12,587$6,363$6,224
Total Events$117,583$117,583$48,338$69,245
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The Form 990 is sent via email to all 3 members of the governing body”

Form 990, Part VI, Section C, Line 19

“We post our 990 filing documents on our website”

Filing and Contact Details

Filer

Filer Name
Bardet Biedl Syndrome Foundation
EIN
46-3343666
Phone
8018503750
Address
403 Oermead Lane, West Chester, PA 19380

Signing Officer

Name
Nathan Arnesen
Title
Treasurer
Phone
8018503750
Signed
2023-11-28

Organization Details

Principal Officer
Timothy Ogden
Formed
2014
Legal Domicile
De
Voting Board Members
3
Independent Board Members
3
Employees
0
Volunteers
5
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 24E

“Fundraising expense”

Raw XML AppendixShowing 400 of 553 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt03
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IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt09
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IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt00
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IRS990ScheduleA/NetIncomeFromOtherUBIGrp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/NetIncomeFromOtherUBIGrp/TotalAmt00
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IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt00
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt075000
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IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
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IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0129687
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IRS990ScheduleA/TotalSupportAmt0944170
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IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED

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