Civic Intelligence

Koolen-De Vries Syndrome Foundation

EIN 46-3208388 • 501(c)3 • Wilmington, NC

Profile

The koolen-de vries syndrome foundation is an international group that supports, informs, and networks with anyone affected by koolen-de vries syndrome (kdvs) and with any interested professionals. The foundation's activities include social (continued on schedule o) gatherings, patient advocacy summits, supporting research, and providing information regarding kdvs to both the general population and medical professionals.

609A Piner Road 319Wilmington, NC 28409

kdvsfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

34th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

34th percentile

-2.7%

Higher net margin than 34% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

37th percentile

-1.2%

Faster asset growth than 37% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

20th percentile

-14%

Faster revenue growth than 20% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets33rd percentile

Assets

Down

$573,519

Down $7,097 (-1.2%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$573,519

Down $7,097 (-1.2%) from 2023

Operations
Liabilities / Revenue34th percentileNet Margin34th percentile

Revenue

Down

$263,173

Down $42,448 (-14%) from 2023

Expenses

Down

$270,270

Down $54,294 (-17%) from 2023

Net Income

Up

-$7,097

Up $11,846 (+63%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth37th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2018: $104,053Liabilities 2018: $0Net Assets 2018: $104,0532018Assets 2019: $156,237Liabilities 2019: $0Net Assets 2019: $156,2372019Assets 2020: $290,242Liabilities 2020: $0Net Assets 2020: $290,2422020Assets 2021: $403,657Liabilities 2021: $0Net Assets 2021: $403,6572021Assets 2022: $599,559Liabilities 2022: $0Net Assets 2022: $599,5592022Assets 2023: $580,616Liabilities 2023: $0Net Assets 2023: $580,6162023Assets 2024: $573,519Liabilities 2024: $0Net Assets 2024: $573,5192024

Highlighted filing

2024

Assets$573,519
Liabilities$0
Net Assets$573,519
Open 2024 Filing

Operations Trend

Revenue Growth20th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$300K$200K$100K$0-$100KRevenue 2018: $103,037Expenses 2018: $63,874Net Income 2018: $39,1632018Revenue 2019: $213,930Expenses 2019: $161,746Net Income 2019: $52,1842019Revenue 2020: $154,424Expenses 2020: $38,198Net Income 2020: $116,2262020Revenue 2021: $257,578Expenses 2021: $144,163Net Income 2021: $113,4152021Revenue 2022: $237,465Expenses 2022: $41,563Net Income 2022: $195,9022022Revenue 2023: $305,621Expenses 2023: $324,564Net Income 2023: -$18,9432023Revenue 2024: $263,173Expenses 2024: $270,270Net Income 2024: -$7,0972024

Highlighted filing

2024

Revenue$263,173
Expenses$270,270
Net Income-$7,097
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$573,519
Liabilities
$0
Net assets
$573,519
Revenue
$263,173
Expenses
$270,270
Net income
-$7,097
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$5.74$0.00$5.74$2.63$2.70$0.07
2023Detailed filing. Detailed filing data is available for this year.$5.81$0.00$5.81$3.06$3.25$0.19
2022Detailed filing. Detailed filing data is available for this year.$6.00$0.00$6.00$2.37$0.42$1.96
2021Detailed filing. Detailed filing data is available for this year.$4.04$0.00$4.04$2.58$1.44$1.13
2020Detailed filing. Detailed filing data is available for this year.$2.90$0.00$2.90$1.54$0.38$1.16
2019Detailed filing. Detailed filing data is available for this year.$1.56$0.00$1.56$2.14$1.62$0.52
2018Summary only. Only limited summary data is available for this year.$1.04$0.00$1.04$1.03$0.64$0.39
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Jul 10, 2025
Return Version
2024v5.2
Gross Receipts
$263,173
Mission and Program Overview

Mission

The koolen-de vries syndrome foundation is an international group that supports, informs, and networks with anyone affected by koolen-de vries syndrome (kdvs) and with any interested professionals. The foundation's activities include social gatherings, patient advocacy summits, supporting research, and providing information regarding kdvs to both the general population and medical professionals.

The koolen-de vries syndrome foundation is an international group that (continued on schedule o) supports, informs, and networks with anyone affected by koolen-de vries syndrome (kdvs) and with any interested professionals. The foundation's activities include social gatherings, patient advocacy summits, supporting research, and providing information regarding kdvs to both the general population and medical professionals.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$506,184$338,786▼ $167,398
Savings and Temporary Cash Investments$74,432$224,865▲ $150,433
Prepaid Expenses and Deferred Charges$0$9,868▲ $9,868
Total Assets$580,616$573,519▼ $7,097
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$374,997$421,142▲ $46,145
Net Assets With Donor Restrictions$205,619$152,377▼ $53,242
Total Net Assets Fund Balance$580,616$573,519▼ $7,097
Total Liabilities and Net Assets / Fund Balance$580,616$573,519▼ $7,097
Compensation and Service Providers
Top Officer PayScore unavailable

Board Members and Trustees

NameTitle
Ashley PointPresident
Alayna HaynamBoard Member
Cindy AsburyBoard Member
Emily LemkeBoard Member
Jessica CollierBoard Member
Kaci FisherBoard Member
Katie MaherBoard Member
Maria Luisa Valentin De SolisBoard Member
Matt HolcombeBoard Member
Megan HartwellBoard Member
Neal DermererBoard Member
Gabriel StagnerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$262,702
Program Service Revenue
$38
Investment Income
$433
Other Revenue
$0
All Other Contributions
$262,702
Change in Net Assets
$-7,097
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$204,254
Other Expenses$66,016
Total Fundraising Expense$5,695
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Foreign Grants$159,754--$159,754
Grants to Domestic Orgs$44,500--$44,500
Fees for Services Other$27,447--$27,447
Advertising$5,082-$5,081$10,163
Fees for Services Accounting-$9,000-$9,000
Travel$5,124--$5,124
Other Expenses$1,475$492$614$1,967
Insurance-$1,559-$1,559
All Other Expenses$754$268-$1,022
Total Functional Expenses$248,818$15,757$5,695$270,270
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Cure EpilepsyChicago, IL-To Promote the Clinical Research of Koolen De Vries Syndrome$24,500
St JudeMemphis, TN-To Promote the Clinical Research of Koolen De Vries Syndrome$20,000

International Summary

Offices
0
Employees
0
Spending
$159,754

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland) - Albania, Andorra, Austria, BelgiumGRANTS TO RECIPIENTS THAT EXCEEDED $10,000 IN AGGREGATE---$119,466
East Asia and the PacificGRANTS TO RECIPIENTS THAT EXCEEDED $10,000 IN AGGREGATE---$40,288
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization's financial statements and other policies are made available to the public upon request.”

Form 990, Part VI, Section B, Line 12C

“Each director, principal officer or employee and committee member shall annually sign a statement that affirms such person: a. Has received a copy of the conflict of interest policy; b. Has read and understands the conflict of interest policy; c. Has agreed to comply with the conflict of interest policy; and d. Understands that the foundation is charitable, and, in order to maintain its federal tax-exemption, it must engage primarily in activities that accomplish one or more of its tax-exempt purposes.”

Form 990, Part VI, Section B, Line 15

“Currently, there are no officers or board members who are compensated by the foundation.”

Form 990, Part VI, Section C, Line 19

“The organization's financial statements and other policies are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Koolen-de Vries Syndrome Foundation
EIN
46-3208388
Phone
8337315387
Address
609A PINER ROAD 319, WILMINGTON, NC 28409

Signing Officer

Name
Gabriel Stagner
Title
Treasurer
Phone
8337315387
Signed
2025-07-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Gabriel Stagner
Formed
2013
Legal Domicile
Mo
Voting Board Members
11
Independent Board Members
11
Employees
0
Volunteers
0

Preparer

Firm
Mrm Tax and Consulting LLC
Address
3001 DALLAS PKWY SUITE 750, FRISCO, TX 75034
Preparer
Abrielle F Arnold CPA
Phone
2149690400
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Research: program service expenses 27,447. Management and general expenses 0. Fundraising expenses 0. Total expenses 27,447.”

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IRS990/PrincipalOfficerNm0GABRIEL STAGNER
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0813212
IRS990/ProgramServiceRevenueGrp/Desc0SUMMIT REGISTRATION FE
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt038
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt038
IRS990/ProgSrvcAccomActy2Grp/Desc0PROVIDING PATIENT ADVOCACY SUMMITS AND SOCIAL GATHERING EVENTS FOR THE KDVS COMMUNITY AND INTERESTED MEDICAL PROFESSIONALS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt00
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt038
IRS990/ProgSrvcAccomActy3Grp/Desc0INCREASING AWARENESS OF KDVS IN BOTH THE GENERAL POPULATION AND MEDICAL PROFESSION.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt017117
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0260020
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0159372
IRS990/PYInvestmentIncomeAmt07
IRS990/PYOtherExpensesAmt0165192
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt045594
IRS990/PYRevenuesLessExpensesAmt0-18943
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0324564
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0305621
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-7097
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt074432
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0224865
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0262702
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0260020
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0237458
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0252201
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0153968
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01166349
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt0433
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt07
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt07
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt012
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt011
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0470
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt051442
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.71820
IRS990ScheduleA/PublicSupportPY170Pct00.77590
IRS990ScheduleA/PublicSupportTotal170Amt0837977
IRS990ScheduleA/SubstantialContributorsTotAmt0328372
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0262702
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0260020
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0237458
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0252201
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0153968
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01166349
IRS990ScheduleA/TotalSupportAmt01166819
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0119466
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt140288
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND) - ALBANIA, ANDORRA, AUSTRIA, BELGIUM
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EAST ASIA AND THE PACIFIC
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0GRANTS TO RECIPIENTS THAT EXCEEDED $10,000 IN AGGREGATE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1GRANTS TO RECIPIENTS THAT EXCEEDED $10,000 IN AGGREGATE
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt040288
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt150000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt249367
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt320099
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt20
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt30
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0PROMOTING RESEARCH OF KDVS IN FIELDS INCLUDING CLINICAL, DRUG THERAPY, SPEECH THERAPY, AND EPILEPSY.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1PROMOTING RESEARCH OF KDVS IN FIELDS INCLUDING CLINICAL, DRUG THERAPY, SPEECH THERAPY, AND EPILEPSY.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt2PROMOTING RESEARCH OF KDVS IN FIELDS INCLUDING CLINICAL, DRUG THERAPY, SPEECH THERAPY, AND EPILEPSY.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt3PROMOTING RESEARCH OF KDVS IN FIELDS INCLUDING CLINICAL, DRUG THERAPY, SPEECH THERAPY, AND EPILEPSY.
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0EAST ASIA AND THE PACIFIC
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt2EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt3EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt0159754
IRS990ScheduleF/Total501c3OrgCnt03
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalOtherOrgCnt04
IRS990ScheduleF/TotalSpentAmt0159754
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt020000
IRS990ScheduleI/RecipientTable/CashGrantAmt124500
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO PROMOTE THE CLINICAL RESEARCH OF KOOLEN DE VRIES SYNDROME
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO PROMOTE THE CLINICAL RESEARCH OF KOOLEN DE VRIES SYNDROME
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0ST JUDE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1CURE EPILEPSY
IRS990ScheduleI/RecipientTable/RecipientEIN0620646012
IRS990ScheduleI/RecipientTable/RecipientEIN1364253176
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0262 DANNY THOMAS PLACE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1420 N WABASH AVE SUITE 650
IRS990ScheduleI/RecipientTable/USAddress/CityNm0MEMPHIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1CHICAGO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0TN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1IL
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd038105
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd160611
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION'S PROCEDURES FOR MONITORING THE USE OF GRANT FUNDS IS PRIMARILY FACILITATED THROUGH ITS MEDICAL ADVISORY BOARD (MAB), A COMMITTEE OF THE BOARD OF DIRECTORS (BOD). THE MAB MEETS PERIODICALLY TO MONITOR THE PROGRESS AND EFFICACY OF NEW AND ONGOING RESEARCH PROJECTS. THE MAB CONSISTS OF INDIVIDUALS WITH RELEVANT EXPERTISE SUCH AS DOCTORS AND MEDICAL SCIENTISTS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE ORGANIZATION'S FINANCIAL STATEMENTS AND OTHER POLICIES ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1EACH DIRECTOR, PRINCIPAL OFFICER OR EMPLOYEE AND COMMITTEE MEMBER SHALL ANNUALLY SIGN A STATEMENT THAT AFFIRMS SUCH PERSON: A. HAS RECEIVED A COPY OF THE CONFLICT OF INTEREST POLICY; B. HAS READ AND UNDERSTANDS THE CONFLICT OF INTEREST POLICY; C. HAS AGREED TO COMPLY WITH THE CONFLICT OF INTEREST POLICY; AND D. UNDERSTANDS THAT THE FOUNDATION IS CHARITABLE, AND, IN ORDER TO MAINTAIN ITS FEDERAL TAX-EXEMPTION, IT MUST ENGAGE PRIMARILY IN ACTIVITIES THAT ACCOMPLISH ONE OR MORE OF ITS TAX-EXEMPT PURPOSES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2CURRENTLY, THERE ARE NO OFFICERS OR BOARD MEMBERS WHO ARE COMPENSATED BY THE FOUNDATION.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION'S FINANCIAL STATEMENTS AND OTHER POLICIES ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4RESEARCH: PROGRAM SERVICE EXPENSES 27,447. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 27,447.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0CA
IRS990/StatesWhereCopyOfReturnIsFldCd1FL
IRS990/StatesWhereCopyOfReturnIsFldCd2GA
IRS990/StatesWhereCopyOfReturnIsFldCd3MI
IRS990/StatesWhereCopyOfReturnIsFldCd4MN
IRS990/StatesWhereCopyOfReturnIsFldCd5NJ
IRS990/StatesWhereCopyOfReturnIsFldCd6NY
IRS990/StatesWhereCopyOfReturnIsFldCd7NC
IRS990/StatesWhereCopyOfReturnIsFldCd8TN
IRS990/StatesWhereCopyOfReturnIsFldCd9VA
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00

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