Civic Intelligence

Down Syndrome Diagnosis Network

EIN 46-3042112 • 501(c)3 • Stillwater, MN

Profile

The mission of the down syndrome diagnosis network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections.

7130 Manning Ave NStillwater, MN 55082

www.dsdiagnosisnetwork.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

55th percentile

0.03x

Higher debt load relative to assets than 55% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

57th percentile

0.03x

Higher debt load relative to revenue than 57% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

24th percentile

-10%

Higher net margin than 24% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

19th percentile

-11%

Faster asset growth than 19% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

22nd percentile

-12%

Faster revenue growth than 22% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Down

$627,566

Down $73,698 (-11%) from 2023

Liabilities

Up

$19,280

Up $6,253 (+48%) from 2023

Net Assets

Down

$608,286

Down $79,951 (-12%) from 2023

Revenue

Down

$562,113

Down $74,156 (-12%) from 2023

Expenses

Up

$618,904

Up $43,039 (+7.5%) from 2023

Net Income

Down

-$56,791

Down $117,195 (-194%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$800K$600K$400K$200K$0Assets 2013: $500Liabilities 2013: $02013Assets 2015: $47,177Liabilities 2015: $02015Assets 2016: $77,727Liabilities 2016: $02016Assets 2017: $135,731Liabilities 2017: $0Net Assets 2017: $135,7312017Assets 2018: $398,238Liabilities 2018: $0Net Assets 2018: $398,2382018Assets 2019: $480,500Liabilities 2019: $0Net Assets 2019: $480,5002019Assets 2020: $633,954Liabilities 2020: $0Net Assets 2020: $633,9542020Assets 2021: $633,644Liabilities 2021: $0Net Assets 2021: $633,6442021Assets 2022: $643,501Liabilities 2022: $15,668Net Assets 2022: $627,8332022Assets 2023: $701,264Liabilities 2023: $13,027Net Assets 2023: $688,2372023Assets 2024: $627,566Liabilities 2024: $19,280Net Assets 2024: $608,2862024

Highlighted filing

2024

Assets$627,566
Liabilities$19,280
Net Assets$608,286

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$800K$600K$400K$200K$0-$200KRevenue 2013: $3,555Expenses 2013: $3,055Net Income 2013: $5002013Revenue 2015: $70,541Expenses 2015: $33,881Net Income 2015: $36,6602015Revenue 2016: $106,635Expenses 2016: $76,085Net Income 2016: $30,5502016Revenue 2017: $211,165Expenses 2017: $153,161Net Income 2017: $58,0042017Revenue 2018: $624,420Expenses 2018: $361,758Net Income 2018: $262,6622018Revenue 2019: $667,289Expenses 2019: $585,027Net Income 2019: $82,2622019Revenue 2020: $409,033Expenses 2020: $255,579Net Income 2020: $153,4542020Revenue 2021: $423,411Expenses 2021: $423,720Net Income 2021: -$3092021Revenue 2022: $500,167Expenses 2022: $505,978Net Income 2022: -$5,8112022Revenue 2023: $636,269Expenses 2023: $575,865Net Income 2023: $60,4042023Revenue 2024: $562,113Expenses 2024: $618,904Net Income 2024: -$56,7912024

Highlighted filing

2024

Revenue$562,113
Expenses$618,904
Net Income-$56,791

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Nov 1, 2023 to Oct 31, 2024
Signed
Jul 10, 2025
Return Version
2023v6.0
Gross Receipts
$629,592
Mission and Program Overview

Mission

The mission of the down syndrome diagnosis network is to connect, support, and provide accurate information to parents - and the medical professionals who serve them - from the time of diagnosis through age 3 while fostering the opportunity for lifelong connections.

To connect, support, and provide accurate information to families with a down syndrome diagnosis

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$404,136$346,438▼ $57,698
Pledges and Grants Receivable$23,780$229,150▲ $205,370
Cash and Non-Interest-Bearing Accounts$110,294$40,053▼ $70,241
Prepaid Expenses and Deferred Charges$10,079--
Inventories for Sale or Use$1,226$1,226→ $0
Land, Buildings, and Equipment, Net$151,749$699▼ $151,050
Total Assets$701,264$627,566▼ $73,698
Other Assets Total$0$10,000▲ $10,000
Liabilities
Accounts Payable and Accrued Expenses$13,027$19,280▲ $6,253
Total Liabilities$13,027$19,280▲ $6,253
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$688,237$608,286▼ $79,951
Total Net Assets Fund Balance$688,237$608,286▼ $79,951
Total Liabilities and Net Assets / Fund Balance$701,264$627,566▼ $73,698

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$699-$699
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Melissa ShutwellExecutive DirectorPT$80,250$80,250

Board Members and Trustees

NameTitle
Kathleen SeitzPresident
Patricia NesbittVice President
Anna Yen KimDirector
Ben HughesDirector
Cassandra DrakeDirector
Jennifer DingmanDirector
Jenny Di BenedettoDirector
Michael PascualDirector
Sarah Mesa-haasDirector
Tony NowickiDirector
Taryn LagonigroSecretary
Julia KaufmanTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$415,864
Program Service Revenue
$134,697
Investment Income
$6,883
Other Revenue
$4,669
All Other Contributions
$122,818
Change in Net Assets
$-56,791
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$456,051
Salaries, Compensation, and Employee Benefits$149,103
Total Fundraising Expense$58,592
Grants and Similar Amounts Paid$13,750
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Travel$95,038--$95,038
Current Officers, Directors, Trustees, and Key Employees$40,125$8,025$32,100$80,250
Other Salaries and Wages$48,822$5,506$733$55,061
Office Expenses$26,746$4,062$9,809$40,617
Conferences and Meetings$29,832-$6,994$36,826
Fees for Services Accounting-$26,968-$26,968
Information Technology$9,956$1,514$3,651$15,121
Payroll Taxes$9,081$1,380$3,331$13,792
Grants to Domestic Orgs$13,750--$13,750
Fees for Services Other$5,380$817$1,974$8,171
Insurance-$2,964-$2,964
Other Expenses$1,785--$1,785
Fees for Services Legal-$1,398-$1,398
All Other Expenses$920--$920
Advertising-$762-$762
Total Functional Expenses$506,916$53,396$58,592$618,904
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
National Down Syndrome CongressRoswell, GA501c3Medical Outreach$13,750
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$59,099
Fundraising Gross Income$59,099
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Event 1$352,145$59,099$59,099$0
Total Events$352,145$59,099$59,099$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

The completed form 990 will be available for the officers and board members to review before filing.

Form 990, Part VI, Section B, Line 15A

The board of directors performs an annual performance review of the executive director. Compensation is decided at the board level, taking into account the performance of the executive director and the budget.

Form 990, Part VI, Section C, Line 19

Governing documents, conflict of interest policy and financial statements are available upon request.

Filing and Contact Details

Filer

Filer Name
Down Syndrome Diagnosis Network
EIN
46-3042112
Phone
6124600765
Address
7130 MANNING AVE N, STILLWATER, MN 55082

Signing Officer

Name
Anna Yen Kim
Title
Current Treasurer
Phone
6124600765
Signed
2025-07-10
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Anna Yen Kim
Formed
2013
Legal Domicile
Mn
Voting Board Members
12
Independent Board Members
12
Employees
4
Volunteers
150

Preparer

Firm
Carpenter Evert & Associates Ltd
Address
7760 FRANCE AVE S SUITE 940, BLOOMINGTON, MN 55435
Preparer
Neal Evert
Phone
9528310085
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IRS990/OtherExpensesGrp/TotalAmt0219789
IRS990/OtherExpensesGrp/TotalAmt12955
IRS990/OtherExpensesGrp/TotalAmt22737
IRS990/OtherExpensesGrp/TotalAmt31785
IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt03177
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt03177
IRS990/OtherRevenueTotalAmt03177
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0733
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt05506
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt048822
IRS990/OtherSalariesAndWagesGrp/TotalAmt055061
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03331
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt01380
IRS990/PayrollTaxesGrp/ProgramServicesAmt09081
IRS990/PayrollTaxesGrp/TotalAmt013792
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt023780
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0229150
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt010079
IRS990/PrincipalOfficerNm0ANNA YEN KIM
IRS990/PriorPeriodAdjustmentsAmt0-23160
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/BusinessCd1900099
IRS990/ProgramServiceRevenueGrp/BusinessCd2900099
IRS990/ProgramServiceRevenueGrp/Desc0RETREAT REGISTRATIONS
IRS990/ProgramServiceRevenueGrp/Desc1SPONSORSHIPS
IRS990/ProgramServiceRevenueGrp/Desc2RETREAT EXHIBITORS
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0105240
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt121520
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt27937
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0105240
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt121520
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt27937
IRS990/ProgSrvcAccomActy2Grp/Desc0INFORM - DSDN'S BOARD MEMBERS AND VOLUNTEERS ATTEND DOWN SYNDROME RELATED CONFERENCES TO SHARE INFORMATION ABOUT DSDN'S SERVICES TO FAMILIES, LOCAL DOWN SYNDROME ORGANIZATIONS, AND MEDICAL PROFESSIONALS. DSDN TEAM MEMBERS ALSO ATTEND NATIONAL MEDICAL CONFERENCES TO ADVOCATE FOR AN UNBIASED, UP-TO-DATE AND FACTUAL DOWN SYNDROME DIAGNOSIS FORFAMILIES, AS WELL AS TO SHARE ABOUT DSDN'S SERVICES. DSDN ALSO CREATES AND DISTRIBUTES MATERIALS ON DELIVERING A DOWN SYNDROME DIAGNOSIS TO LOCAL ORGANIZATIONS AND MEDICAL PROFESSIONALS.
IRS990/ProgSrvcAccomActy3Grp/Desc0SUPPORT - DSDN PROVIDES SUPPORT TO EXPECTANT AND NEW FAMILIES THROUGH ONLINE SUPPORT GROUPS, WHICH ARE NOW PART OF A DSDN MOBILE APP. DSDN ALSO PROVIDES PREGNANCY GIFTS, NEW BABY GIFTS, AND WELCOME GIFTS WHEN A NEW FAMILY JOINS OUR COMMUNITY, AS WELL AS CARE PACKAGES WHEN A CHILD IS IN THE HOSPITAL, AND MEMORIAL GIFTS WHEN A CHILD PASSES AWAY. EACH YEAR, DSDN ALSO OFFERS ADOPTION GRANTS FOR FAMILIES IN THE PROCESS OF ADOPTING A CHILD WITH DOWN SYNDROME. ALSO PART OF OUR SUPPORT SERVICES, DSDN OFFERS SCHOLARSHIPS TO ATTEND THE DSDN ROCKIN' MOM AND ROCKIN' DAD RETREATS. DSDN ALSO AWARDED GRANTS TO LOCAL DOWN SYNDROME ORGANIZATIONS.
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0509792
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt017500
IRS990/PYInvestmentIncomeAmt07110
IRS990/PYOtherExpensesAmt0431699
IRS990/PYOtherRevenueAmt0418
IRS990/PYProgramServiceRevenueAmt0118949
IRS990/PYRevenuesLessExpensesAmt060404
IRS990/PYSalariesCompEmpBnftPaidAmt0126666
IRS990/PYTotalExpensesAmt0575865
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0636269
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-56791
IRS990/RegularMonitoringEnfrcInd00
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0139366
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0404136
IRS990/SavingsAndTempCashInvstGrp/EOYAmt0346438
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0122818
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0509792
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0424924
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0383917
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0393193
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt01834644
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt06883
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt07110
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0294
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt047
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt014334
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.99220
IRS990ScheduleA/PublicSupportPY170Pct00.98360
IRS990ScheduleA/PublicSupportTotal170Amt01834644
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0122818
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0509792
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0424924
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0383917
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0393193
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01834644
IRS990ScheduleA/TotalSupportAmt01848978
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt0699
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt0699
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0699
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt0293046
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt0293046
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt059099
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt0352145
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt0352145
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt059099
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt059099
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt00
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt059099
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt059099
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt013750
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501C3
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0MEDICAL OUTREACH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0NATIONAL DOWN SYNDROME CONGRESS
IRS990ScheduleI/RecipientTable/RecipientEIN0510163631
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt030 MANSELL COURT 108
IRS990ScheduleI/RecipientTable/USAddress/CityNm0ROSWELL
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0GA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd030076
IRS990ScheduleI/Total501c3OrgCnt01
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE COMPLETED FORM 990 WILL BE AVAILABLE FOR THE OFFICERS AND BOARD MEMBERS TO REVIEW BEFORE FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE BOARD OF DIRECTORS PERFORMS AN ANNUAL PERFORMANCE REVIEW OF THE EXECUTIVE DIRECTOR. COMPENSATION IS DECIDED AT THE BOARD LEVEL, TAKING INTO ACCOUNT THE PERFORMANCE OF THE EXECUTIVE DIRECTOR AND THE BUDGET.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE AVAILABLE UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION C, LINE 19
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0MN
IRS990/SubjectToExcsTaxNetInvstIncInd00
IRS990/SubjectToProxyTaxInd00
IRS990/SubjToTaxRmnrtnExPrchtPymtInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TerminateOperationsInd00

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