Civic Intelligence

Cute Syndrome Foundation Inc.

EIN 46-2699066 • 501(c)3 • Ozark, MO

Pub. 78 Eligible990-N Coverage

Profile

Our mission is to raise awareness of scn8a mutations, fund the the scientists researching scn8a, and support the families who are affected by scn8a.

PO Box 842Ozark, MO 65721

www.thecutesyndrome.com

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

70th percentile

0.02x

Higher debt load relative to assets than 70% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

69th percentile

0.01x

Higher debt load relative to revenue than 69% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

26th percentile

-16%

Higher net margin than 26% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

97th percentile

$75,000

Higher top officer pay than 97% of similar nonprofits.

Top officer pay equals 20.5% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

22nd percentile

-43%

Faster asset growth than 22% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

36th percentile

-17%

Faster revenue growth than 36% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets70th percentile

Assets

Down

$176,654

Down $130,932 (-43%) from 2023

Liabilities

Down

$3,773

Down $2,583 (-41%) from 2023

Net Assets

Down

$172,881

Down $128,349 (-43%) from 2023

Operations
Liabilities / Revenue69th percentileNet Margin26th percentile

Revenue

Down

$365,290

Down $74,345 (-17%) from 2023

Expenses

Up

$424,115

Up $2,164 (+0.5%) from 2023

Net Income

Down

-$58,825

Down $76,509 (-433%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth22nd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$400K$300K$200K$100K$0Assets 2019: $155,022Liabilities 2019: $02019Assets 2020: $169,719Liabilities 2020: $02020Assets 2021: $221,465Liabilities 2021: $0Net Assets 2021: $221,4652021Assets 2022: $289,587Liabilities 2022: $6,041Net Assets 2022: $283,5462022Assets 2023: $307,586Liabilities 2023: $6,356Net Assets 2023: $301,2302023Assets 2024: $176,654Liabilities 2024: $3,773Net Assets 2024: $172,8812024

Highlighted filing

2024

Assets$176,654
Liabilities$3,773
Net Assets$172,881
Open 2024 Filing

Operations Trend

Revenue Growth36th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KRevenue 2019: $154,776Expenses 2019: $81,205Net Income 2019: $73,5712019Revenue 2020: $152,934Expenses 2020: $138,279Net Income 2020: $14,6552020Revenue 2021: $245,729Expenses 2021: $193,983Net Income 2021: $51,7462021Revenue 2022: $352,644Expenses 2022: $290,563Net Income 2022: $62,0812022Revenue 2023: $439,635Expenses 2023: $421,951Net Income 2023: $17,6842023Revenue 2024: $365,290Expenses 2024: $424,115Net Income 2024: -$58,8252024

Highlighted filing

2024

Revenue$365,290
Expenses$424,115
Net Income-$58,825
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$176,654
Liabilities
$3,773
Net assets
$172,881
Revenue
$365,290
Expenses
$424,115
Net income
-$58,825
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.77$0.04$1.73$3.65$4.24$0.59
2023Detailed filing. Detailed filing data is available for this year.$3.08$0.06$3.01$4.40$4.22$0.18
2022Detailed filing. Detailed filing data is available for this year.$2.90$0.06$2.84$3.53$2.91$0.62
2021Detailed filing. Detailed filing data is available for this year.$2.21$0.00$2.21$2.46$1.94$0.52
2020Summary only. Only limited summary data is available for this year.$1.70$0.00$1.53$1.38$0.15
2019Summary only. Only limited summary data is available for this year.$1.55$0.00$1.55$0.81$0.74
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 13, 2025
Return Version
2024v5.2
Gross Receipts
$391,840
Mission and Program Overview

Mission

Our mission is to raise awareness of scn8a mutations, fund the the scientists researching scn8a, and support the families who are affected by scn8a.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$127,762$143,280▲ $15,518
Cash and Non-Interest-Bearing Accounts$178,822$33,153▼ $145,669
Land, Buildings, and Equipment, Net$1,002$221▼ $781
Total Assets$307,586$176,654▼ $130,932
Liabilities
Accounts Payable and Accrued Expenses$6,356$3,773▼ $2,583
Total Liabilities$6,356$3,773▼ $2,583
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$301,230$172,881▼ $128,349
Total Net Assets Fund Balance$301,230$172,881▼ $128,349
Total Liabilities and Net Assets / Fund Balance$307,586$176,654▼ $130,932

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$221$8,363$8,584
Compensation and Service Providers
Top Officer Pay97th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Kacie CraigExecutive DirectorFT$75,000$75,000

Board Members and Trustees

NameTitle
Hillary SavoiePresident
Philip GitlenVice Chair
Lan AronsonDirector
Marianne SutcliffeSecretary
Ryan PitinoTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$357,095
Program Service Revenue
$0
Investment Income
$7,151
Other Revenue
$1,044
All Other Contributions
$286,360
Change in Net Assets
$-58,825
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$336,164
Grants and Similar Amounts Paid$87,951
Total Fundraising Expense$26,485
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Management$132,400$7,500$14,900$154,800
Conferences and Meetings$103,019--$103,019
Grants to Domestic Individuals$58,657--$58,657
Foreign Grants$29,294--$29,294
Travel$16,387--$16,387
Other Expenses$6,857$730$7,670$6,857
Advertising$3,015-$3,015$6,030
Office Expenses$5,368-$597$5,965
Information Technology$2,718-$303$3,021
Fees for Services Accounting-$2,325-$2,325
Insurance$810$971-$1,781
Depreciation Depletion-$781-$781
Total Functional Expenses$385,323$12,307$26,485$424,115
International Activity

International Summary

Offices
0
Employees
0
Spending
$29,294

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland & Greenland)Program ServiceFamily Support00$21,625
East Asia and the PacificProgram ServiceFamily Support00$4,343
North AmericaProgram ServiceFamily Support00$3,326
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$27,594
Fundraising Direct Expenses$26,550
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Bowling Fundraiser$81,600$22,886$206$22,680
Virtual 5k Fundraiser$16,104$4,708$825$3,883
Total Events$97,704$27,594$23,711$3,883
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Form 990 was provided to the board for review and approval prior to filing.”

Form 990, Part VI, Section C, Line 19

“Documents are available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
The Cute Syndrome Foundation
EIN
46-2699066
Phone
4178486203
Address
PO BOX 842, OZARK, MO 65721

Signing Officer

Name
Kacie Craig
Title
Executive Director
Phone
4178486203
Signed
2025-11-13

Organization Details

Principal Officer
Hillary Savoie
Formed
2013
Legal Domicile
De
Voting Board Members
5
Independent Board Members
5
Employees
0
Volunteers
23

Preparer

Firm
Bryans & Gramuglia Cpas LLC
Address
1 PINE WEST PLAZA SUITE 107, ALBANY, NY 12205
Preparer
Robert V Gramuglia
Phone
5184528055
Supplemental Narrative

Additional Explanations

Form 990 - Part XII - Line 1

“The financial statements of the cute syndrome foundation have been prepared on the modified cash basis of accounting.”

Form 990 - Part XII - Line 2C -

“The process has not changed since the prior year.”

Financial Statement Notes

PART X, LINE 2:

“The foundation is a deleware not-for-profit corporation and is exempt from income taxes as an organization qualified under section 501(c)(3) of the internal revenue code. The foundation has also been classified by the internal revenue service as an entity that is not a private foundation. The financial accounting standards board (fasb) issued fasb asc 740-10 which requires entities to disclose in their financial statements the nature of any uncertainty in their tax position. For tax-exempt entities, their tax-exempt status itself is deemed to be an uncertainty, since events could occur to jeopardize their tax-exempt status. However, the foundation has no knowledge of events or circumstances that would jeopardize its tax-exempt status. The foundation implemented fasb asc 740-10 and its current accounting policy for evaluating uncertain tax positions is in accordance with generally accepted accounting principles. The foundation has not recognized any benefits from uncertain tax positions in 2024 and believes it has no uncertain tax positions for which it is reasonably possible that the total amounts of unrecognized tax benefits will significantly increase or decrease within 12 months of the statement of financial position date. The foundation evaluated its tax position and concluded that all of the positions taken by the foundation would more likely than not be sustained upon examination, based on technical merits. The information returns of the foundation for 2021, 2022, and 2023 are subject to examination by tax authorities, generally for three years after they were filed.”

Raw XML AppendixShowing 400 of 488 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleA/PublicSupportTotal170Amt01544600
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0357095
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0438048
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0352488
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0245077
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0151892
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt01544600
IRS990ScheduleA/TotalSupportAmt01553780
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/EquipmentGrp/BookValueAmt0221
IRS990ScheduleD/EquipmentGrp/DepreciationAmt08363
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt08584
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0THE FOUNDATION IS A DELEWARE NOT-FOR-PROFIT CORPORATION AND IS EXEMPT FROM INCOME TAXES AS AN ORGANIZATION QUALIFIED UNDER SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE. THE FOUNDATION HAS ALSO BEEN CLASSIFIED BY THE INTERNAL REVENUE SERVICE AS AN ENTITY THAT IS NOT A PRIVATE FOUNDATION. THE FINANCIAL ACCOUNTING STANDARDS BOARD (FASB) ISSUED FASB ASC 740-10 WHICH REQUIRES ENTITIES TO DISCLOSE IN THEIR FINANCIAL STATEMENTS THE NATURE OF ANY UNCERTAINTY IN THEIR TAX POSITION. FOR TAX-EXEMPT ENTITIES, THEIR TAX-EXEMPT STATUS ITSELF IS DEEMED TO BE AN UNCERTAINTY, SINCE EVENTS COULD OCCUR TO JEOPARDIZE THEIR TAX-EXEMPT STATUS. HOWEVER, THE FOUNDATION HAS NO KNOWLEDGE OF EVENTS OR CIRCUMSTANCES THAT WOULD JEOPARDIZE ITS TAX-EXEMPT STATUS. THE FOUNDATION IMPLEMENTED FASB ASC 740-10 AND ITS CURRENT ACCOUNTING POLICY FOR EVALUATING UNCERTAIN TAX POSITIONS IS IN ACCORDANCE WITH GENERALLY ACCEPTED ACCOUNTING PRINCIPLES. THE FOUNDATION HAS NOT RECOGNIZED ANY BENEFITS FROM UNCERTAIN TAX POSITIONS IN 2024 AND BELIEVES IT HAS NO UNCERTAIN TAX POSITIONS FOR WHICH IT IS REASONABLY POSSIBLE THAT THE TOTAL AMOUNTS OF UNRECOGNIZED TAX BENEFITS WILL SIGNIFICANTLY INCREASE OR DECREASE WITHIN 12 MONTHS OF THE STATEMENT OF FINANCIAL POSITION DATE. THE FOUNDATION EVALUATED ITS TAX POSITION AND CONCLUDED THAT ALL OF THE POSITIONS TAKEN BY THE FOUNDATION WOULD MORE LIKELY THAN NOT BE SUSTAINED UPON EXAMINATION, BASED ON TECHNICAL MERITS. THE INFORMATION RETURNS OF THE FOUNDATION FOR 2021, 2022, AND 2023 ARE SUBJECT TO EXAMINATION BY TAX AUTHORITIES, GENERALLY FOR THREE YEARS AFTER THEY WERE FILED.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0PART X, LINE 2:
IRS990ScheduleD/TotalBookValueLandBuildingsAmt0221
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/EmployeeCnt20
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt00
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt10
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/OfficesCnt20
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt021625
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt14343
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt23326
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0EUROPE (INCLUDING ICELAND & GREENLAND)
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1EAST ASIA AND THE PACIFIC
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt2NORTH AMERICA
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0FAMILY SUPPORT
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1FAMILY SUPPORT
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt2FAMILY SUPPORT
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0PROGRAM SERVICE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1PROGRAM SERVICE
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt2PROGRAM SERVICE
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt03371
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt11578
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt21488
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt31986
IRS990ScheduleF/ForeignIndividualsGrantsGrp/CashGrantAmt42000
IRS990ScheduleF/ForeignIndividualsGrantsGrp/DescriptionOfNonCashAsstTxt0NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleF/ForeignIndividualsGrantsGrp/DescriptionOfNonCashAsstTxt1NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleF/ForeignIndividualsGrantsGrp/DescriptionOfNonCashAsstTxt2NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleF/ForeignIndividualsGrantsGrp/DescriptionOfNonCashAsstTxt3NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleF/ForeignIndividualsGrantsGrp/DescriptionOfNonCashAsstTxt4NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt0TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt1TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt2TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt3TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt4TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/MannerOfCashDisbursementTxt5TRANSFER
IRS990ScheduleF/ForeignIndividualsGrantsGrp/NonCashAssistanceAmt013336
IRS990ScheduleF/ForeignIndividualsGrantsGrp/NonCashAssistanceAmt11950
IRS990ScheduleF/ForeignIndividualsGrantsGrp/NonCashAssistanceAmt21340
IRS990ScheduleF/ForeignIndividualsGrantsGrp/NonCashAssistanceAmt3905
IRS990ScheduleF/ForeignIndividualsGrantsGrp/NonCashAssistanceAmt41340
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt05
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt11
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt22
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt31
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt42
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RecipientCnt51
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt0EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt1EAST ASIA AND THE PACIFIC
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt2EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt3EAST ASIA AND THE PACIFIC
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt4NORTH AMERICA
IRS990ScheduleF/ForeignIndividualsGrantsGrp/RegionTxt5EUROPE
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt0CONNOR JAMES SMITH PATIENT ASSISTANCE GRANT
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt1CONNOR JAMES SMITH PATIENT ASSISTANCE GRANT
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt2FAMILY TRAVEL GRANTS
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt3FAMILY TRAVEL GRANTS
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt4FAMILY TRAVEL GRANTS
IRS990ScheduleF/ForeignIndividualsGrantsGrp/TypeOfAssistanceTxt5CUTE CONNECTION GRANTS
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc0FMV
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc1FMV
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc2FMV
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc3FMV
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc4FMV
IRS990ScheduleF/ForeignIndividualsGrantsGrp/ValuationMethodUsedDesc5FMV
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt029294
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0ALL GRANTS AND ASSISTANCE ARE MANAGED THROUGH APPLICATIONS SUBMITTED VIA OUR WEBSITE USING A HIPAA-COMPLIANT FORM. EACH APPLICATION UNDERGOES A FORMAL REVIEW PROCESS, AND ALL RECORDS, INCLUDING SELECTION CRITERIA AND AWARD DETAILS, ARE MAINTAINED IN SPREADSHEETS BY THE EXECUTIVE DIRECTOR TO MONITOR AND DOCUMENT THE USE OF FUNDS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt029294
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt070110
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt058714
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt011396
IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt023711
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0BOWLING FUNDRAISER
IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm0VIRTUAL 5K FUNDRAISER
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt081600
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt016104
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt097704
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt022886
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt04708
IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt027594
IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt03883
IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt01031
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt0206
IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt0825
IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt022680
IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt022680
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt09546
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt17241
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt21016
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt0CONNOR JAMES SMITH PATIENT ASSISTANCE GRANT
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt1FAMILY TRAVEL GRANTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt2CUTE CONNECTION GRANTS
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceAmt010465
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceAmt130389
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceDesc0NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/NonCashAssistanceDesc1NON-CASH ASSISTANCE PROVIDED THROUGH GRANTS OR PAYMENTS MADE DIRECTLY TO VENDORS OR SERVICE PROVIDERS FOR THE BENEFIT OF INDIVIDUALS AND FAMILIES, INCLUDING BUT NOT LIMITED TO MEDICAL, THERAPEUTIC, EDUCATIONAL, TRAVEL, AND END-OF-LIFE EXPENSES.
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt010
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt110
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/RecipientCnt24
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc0FMV
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc1FMV
IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/ValuationMethodUsedDesc2FMV
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0ALL GRANTS AND ASSISTANCE ARE MANAGED THROUGH APPLICATIONS SUBMITTED VIA OUR WEBSITE USING A HIPAA-COMPLIANT FORM. EACH APPLICATION UNDERGOES A FORMAL REVIEW PROCESS, AND ALL RECORDS, INCLUDING SELECTION CRITERIA AND AWARD DETAILS, ARE MAINTAINED IN SPREADSHEETS BY THE EXECUTIVE DIRECTOR TO MONITOR AND DOCUMENT THE USE OF FUNDS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0FORM 990 WAS PROVIDED TO THE BOARD FOR REVIEW AND APPROVAL PRIOR TO FILING.

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