Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
The Susie Foundation Inc
EIN 46-2687969 • 501(c)3 • West Hartford, CT
Profile
The mission of The Susie Foundation is provide families living with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) with compassionate and enduring support services that help them overcome the adversities of the disease and access richer, fuller, and more meaningful lives.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
61st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
26th percentile
Higher net margin than 26% of similar nonprofits.
Top Officer Pay
84th percentile
Higher top officer pay than 84% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
44th percentile
Faster asset growth than 44% of similar nonprofits.
Revenue Growth
23rd percentile
Faster revenue growth than 23% of similar nonprofits.
Balance Sheet
Assets
Down$193,459
Down $10,794 (-5.3%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Down$193,459
Down $10,794 (-5.3%) from 2023
Revenue
Down$68,580
Down $37,493 (-35%) from 2023
Expenses
Down$79,374
Down $38,029 (-32%) from 2023
Net Income
Up-$10,794
Up $536 (+4.7%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $193,459
- Liabilities
- $0
- Net assets
- $193,459
- Revenue
- $68,580
- Expenses
- $79,374
- Net income
- -$10,794
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- May 15, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $118,912
Mission and Program Overview
Mission
The mission of The Susie Foundation is provide families living with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) with compassionate and enduring support services that help them overcome the adversities of the disease and access richer, fuller, and more meaningful lives.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| The Susie Foundation provided $71,660 in grant funding to 109 families living with Amyotrophic Lateral Sclerosis to help offset out-of-pocket medical support costs. By doing so, The Susie Foundation is helping individuals across New England living with Amyotrophic Lateral Sclerosis to continue residing safely and comfortably in their own homes, while receiving the support they need to achieve richer, fuller, and more meaningful lives. | $71,660 | $3,500 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Ryan Matthews | Founder & Executive Director | PT | $0 | - | - |
| Aaron Smith | Board Of Directors | - | $0 | - | - |
| Neil Matthews | Board Of Directors | - | $0 | - | - |
| Christopher Hershey | Board Of Directors | - | $0 | - | - |
| Eric Turmel | Board Of Directors | - | $0 | - | - |
| Samantha Grenus | Board Of Directors | - | $0 | - | - |
| Lisanne O'Reilly | Board Of Directors | - | $0 | - | - |
| Michael Stankus | Board Of Directors | - | $0 | - | - |
| Andrew Shannon | Board Of Directors | - | $0 | - | - |
| Ben Roberts | Board Of Directors | - | $0 | - | - |
| Benjamin Kozera | Board Of Directors | - | $0 | - | - |
Fundraising, Events, and Gaming
Fundraising Events
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| The Susie Open | $58,882 | $58,882 | $11,202 | $47,680 |
| The Its O'Kay Classic | $27,810 | $27,810 | $5,917 | $21,893 |
| Total Events | $94,113 | $94,113 | $49,743 | $44,370 |
Filing and Contact Details
Filer
- Filer Name
- The Susie Foundation Inc
- EIN
- 46-2687969
- Phone
- 2034906694
- Address
- 15 Carleton Road, West Hartford, CT 06107
Signing Officer
- Name
- Ryan Matthews
- Title
- Executive Director
- Phone
- 2034906694
- Signed
- 2025-05-15
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 10
“The Flex Grant Program provides direct financial support to ALS-affected families across New England. Designed to ease the out-of-pocket costs that aren't covered by insurance or public programs, Flex Grants offer up to $2,000 per quarter (and $4,000 annually) to help with essential expenses like home care, adaptive equipment, clinic co-pays, and home modifications. The program is open to individuals with a confirmed ALS diagnosis who are homebound, and aims to meet families where they are-offering compassionate, flexible aid when it's needed most. In 2025, The Susie Foundation provided $71,660 in support of 109 patients and families.”
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The mission of The Susie Foundation is provide families living with Amyotrophic Lateral Sclerosis (ALS or Lou Gehrig's Disease) with compassionate and enduring support services that help them overcome the adversities of the disease and access richer, fuller, and more meaningful lives. |
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| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsPY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 118912 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 164834 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 257691 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 192338 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 159981 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 893756 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 123711 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 166817 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 258205 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 192585 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 160323 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 901641 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent1Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesEvent2Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CashPrizesTotalEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 49743 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent1Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentEvent2Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/EntertainmentTotalEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | The Susie Open |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | The Its O'Kay Classic |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent1Amt | 0 | 9324 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageEvent2Amt | 0 | 3000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/FoodAndBeverageTotalEventsAmt | 0 | 12324 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 58882 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 27810 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 7421 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 94113 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 58882 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 27810 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 7421 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 94113 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 44370 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent1Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesEvent2Amt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NonCashPrizesTotalEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 746 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 17865 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 11202 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 5917 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent1Amt | 0 | 12954 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFacilityCostsEvent2Amt | 0 | 6600 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsOtherEventsAmt | 0 | 0 |
| IRS990ScheduleG/FundraisingEventInformationGrp/RentFcltyCostsTotalEventsAmt | 0 | 19554 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | The Flex Grant Program provides direct financial support to ALS-affected families across New England. Designed to ease the out-of-pocket costs that aren't covered by insurance or public programs, Flex Grants offer up to $2,000 per quarter (and $4,000 annually) to help with essential expenses like home care, adaptive equipment, clinic co-pays, and home modifications. The program is open to individuals with a confirmed ALS diagnosis who are homebound, and aims to meet families where they are-offering compassionate, flexible aid when it's needed most. In 2025, The Susie Foundation provided $71,660 in support of 109 patients and families. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990-EZ, Part I, Line 10 |
| ReturnHeader/BuildTS | 0 | 2025-03-06 01:10:19Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Ryan Matthews |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Executive Director |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 2034906694 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2025-05-15 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | THE SUSIE FOUNDATION INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | SUSI |
| ReturnHeader/Filer/EIN | 0 | 462687969 |
| ReturnHeader/Filer/PhoneNum | 0 | 2034906694 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 15 Carleton Road |
| ReturnHeader/Filer/USAddress/CityNm | 0 | West Hartford |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CT |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 06107 |
| ReturnHeader/IRSResponsiblePrtyInfoCurrInd | 0 | 1 |
| ReturnHeader/ReturnTs | 0 | 2025-05-15T11:36:21-07:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2024-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2024-12-31 |
| ReturnHeader/TaxYr | 0 | 2024 |
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