The Courageous Parents Network Inc.

“The form 990 and state information return is distributed to the board, who reviews and approves gives its approval to file.”

“Compensation is set by board of directors. Entire board reviewed a comparative study of compensation packages of non-profit organizations in new england and approved the package.”

“Compensation is set by board of directors. Entire board reviewed a comparative study of compensation packages of non-profit organizations in new england and approved the package.”

“Governing documents, conflict of interest, and financial statements are available upon request. No requests were received during the year.”

“The mission of courageous parents network is to support parents and families of children living with lifelimiting illness with the tools they need as they adjust to the prognosis and then when they contemplate their childs transition to endoflife.”

“In 2020, cpn prioritized outreach to pediatric providers, patient disease groups and the rare disease industry. With the onset of covid, demand for cpn's content about resiliency in the face of grief increased significantly, as did requests for virtual presentations to provider groups, especially as zoom has made it easier and less expensive for departments in children's hospitals to focus on particular topics. Cpn's activities over the past 10 months have included: "presentation at 7 virtual pediatric rounds and several palliative care meetings "direct mailing of books and cpn materials on preparing for end of life (in english and spanish) to 50 community-based palliative and hospice care organizations "submission of cpn videos for inclusion in epec & elnec courses "authoring of articles about cpn's content and learning for palliative care newsletters and journals "monthly emails with update about new content and 'voices of the parents' "collaboration in research, bringing the parent voice to multiple academic medical research projects "collaboration with the patient disease and rare community "new content development and production (podcasts, guides, videos, guided pathways) on topics including considering the clinical trial; preparing for end-of-life; understanding tracheostomy; introduction to palliative care; transitioning to adulthood; heart transplant and having another child after child loss "launch of "in the room with cpn: conversations about what parents really wonder about" monthly webinar series. These activities have resulted in measurable growth of both parent and provider membership in cpn (membership is optional, but providers must 'join' cpn to access the provider portal) as well as audience on facebook. Total and unique monthly visitors to the cpn site has remained steady. Cpn is averaging 5200 users a month total. In 2020: "provider membership has grown to 1281. "parent membership has grown to 1004 "video views has doubled from 7000 to 15,000”

“Community manager 30,370 1,000 800 design consultant 5,450 0 1,490 evaluation consultant 6,600 0 0 patient disease outreach 16,360 0 0 video production 8,900 0 0 other contract services 12,411 608 6,800 direct provider outreach 57,364 0 0 marketing 73,195 0 0 total 210,650 1,608 9,090”

“Direct event expenses 9,267 direct event expenses -9,267”