Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
990 • Fiscal year 2023 • EIN 46-2133007
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
58th percentile
Higher debt load relative to assets than 58% of similar nonprofits.
Liabilities / Revenue
59th percentile
Higher debt load relative to revenue than 59% of similar nonprofits.
Net Margin
35th percentile
Higher net margin than 35% of similar nonprofits.
Top Officer Pay
88th percentile
Higher top officer pay than 88% of similar nonprofits.
Top officer pay equals 17.9% of source-year revenue.
Asset Growth
35th percentile
Faster asset growth than 35% of similar nonprofits.
Revenue Growth
20th percentile
Faster revenue growth than 20% of similar nonprofits.
Assets
Down$674,679
Down $10,695 (-1.6%) from 2022
Net Assets
Down$647,957
Down $11,994 (-1.8%) from 2022
Liabilities
Up$26,722
Up $1,299 (+5.1%) from 2022
Revenue
Down$588,192
Down $110,937 (-16%) from 2022
Expenses
Up$602,613
Up $2,973 (+0.5%) from 2022
Net Income
Down-$14,421
Down $113,910 (-114%) from 2022
The corporation is a charitable corporation as defined in n.c. Gen. Stat. 55a-1-40(4) and is organized exclusively for one or more of the purposes specified in section 501(c)(3) of the internal revenue code of 1986 (or the corresponding provision of any future united states internal revenue law), including but not limited to improving the diagnosis,
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $509,760 | $385,706 | ▼ $124,054 |
| Pledges and Grants Receivable | $109,689 | $148,265 | ▲ $38,576 |
| Investments in Publicly Traded Securities | $64,772 | $69,685 | ▲ $4,913 |
| Land, Buildings, and Equipment, Net | - | $67,905 | - |
| Prepaid Expenses and Deferred Charges | $1,153 | $3,118 | ▲ $1,965 |
| Total Assets | $685,374 | $674,679 | ▼ $10,695 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $25,423 | $26,722 | ▲ $1,299 |
| Total Liabilities | $25,423 | $26,722 | ▲ $1,299 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $358,386 | $480,600 | ▲ $122,214 |
| Net Assets With Donor Restrictions | $301,565 | $167,357 | ▼ $134,208 |
| Total Net Assets Fund Balance | $659,951 | $647,957 | ▼ $11,994 |
| Total Liabilities and Net Assets / Fund Balance | $685,374 | $674,679 | ▼ $10,695 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $67,905 | - | $67,905 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Heidi Wallis | Executive Director | FT | $105,000 | $105,000 |
| Name | Title |
|---|---|
| Daniel Coller | Board Chair |
| Randy Allen | Vice Chair |
| Kim Tuminello | Director of Advocacy |
| Erin Coller | Director of Comm |
| Mikelle Law | Director of Compliance |
| Celeste Graham | Director of Education |
| Line Item | Amount |
|---|---|
| Other Expenses | $268,065 |
| Grants and Similar Amounts Paid | $183,000 |
| Salaries, Compensation, and Employee Benefits | $151,548 |
| Total Fundraising Expense | $39,242 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Grants to Domestic Orgs | $150,000 | - | - | $150,000 |
| Fees for Services Other | $96,921 | $31,831 | $188 | $128,940 |
| Current Officers, Directors, Trustees, and Key Employees | $74,131 | $15,366 | $15,503 | $105,000 |
| Other Salaries and Wages | $25,251 | $5,234 | $5,281 | $35,766 |
| Foreign Grants | $33,000 | - | - | $33,000 |
| Fees for Services Accounting | $20,706 | $5,688 | $34 | $26,428 |
| Travel | $23,198 | $2,276 | $74 | $25,548 |
| Other Expenses | $20,143 | - | - | $20,143 |
| Fees for Services Legal | $18,943 | - | - | $18,943 |
| Office Expenses | $9,484 | $2,625 | $4,991 | $17,100 |
| Advertising | $1,805 | $1,200 | $10,177 | $13,182 |
| Payroll Taxes | $7,612 | $1,578 | $1,592 | $10,782 |
| Conferences and Meetings | $8,940 | $374 | $56 | $9,370 |
| Information Technology | $1,386 | $1,530 | $1,346 | $4,262 |
| Occupancy | $2,100 | - | - | $2,100 |
| Insurance | $11 | $2,038 | - | $2,049 |
| Total Functional Expenses | $493,631 | $69,740 | $39,242 | $602,613 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $622,229 |
| Expenses per Audited Statements | $602,613 |
| Total Expenses per Form 990 | $602,613 |
| Expenses Not Reported on Form 990 | $19,616 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| University of Utah | Salt Lake City, UT | 501c3 | - | $140,000 |
| Uplifting Athletes | Doylestown, PA | 501c3 | - | $10,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| North America Not the United States | Program services | Research | - | - | $33,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Special Even | $40,130 | - | - | - |
| Total Events | $40,130 | - | - | - |
“Erin Coller and Daniel Coller are married.”
“The IRS Form 990 is provided to all board members prior to filing.”
“These documents are available upon request.”
“Other Professional Fees $124,672Service Fees: $1,457Board Expenses: $2,811”
“The Association is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code(the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Association is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Association has filed all of its known and required tax returns in a timely manner, including as permitted, allowed extensions.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 25423 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 26722 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 10177 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 1200 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 1805 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 13182 |
| IRS990/AllOtherContributionsAmt | 0 | 534004 |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | The Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6019422373 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6965 El Camino Real 105-598 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Carlsbad |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 92009 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 509760 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 385706 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 15503 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 15366 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 74131 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 105000 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 56 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 374 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 8940 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 9370 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 40130 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 574134 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 183000 |
| IRS990/CYInvestmentIncomeAmt | 0 | 2487 |
| IRS990/CYOtherExpensesAmt | 0 | 268065 |
| IRS990/CYOtherRevenueAmt | 0 | 6571 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 5000 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -14421 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 151548 |
| IRS990/CYTotalExpensesAmt | 0 | 602613 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 39242 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 588192 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | Providing accurate and up to date information through attendance at Medical & Scientific conferences, maintaining informational website, hosting CCDS conference and distributing recordings of talks to accelerate knowledge of creatine deficiencies and related research. Advocating for increased adoption of newborn screening. Supporting CCDS caregivers with webinars, opportunities to engage with researchers, and a structured virtual support group.Supporting research through fellowship grants and maintenance of a patient registry and natural history platform. Co-supporting research and patient communities through joint webinars, quarterly newsletters, online resources, etc. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 301565 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 167357 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 4 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 493631 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 34 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 5688 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 20706 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 26428 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 18943 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 18943 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 188 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 31831 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 96921 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 128940 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 33000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 33000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Heidi Wallis |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Mikelle Law |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Kim Tuminello |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Erin Coller |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Randy Allen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Daniel Coller |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Celeste Graham |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 105000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Executive Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director of Compliance |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director of Advocacy |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Director of Comm |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Vice Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | Board Chair |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director of Education |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 40130 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GrantAmt | 0 | 183000 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 150000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 150000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 588192 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | true |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 1346 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1530 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 1386 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 4262 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2038 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 11 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2049 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 2487 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 2487 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 64772 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 69685 |
| IRS990/IRPDocumentCnt | 0 | 8 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 67905 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 67905 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 659951 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 647957 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 2427 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 358386 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 480600 |
| IRS990/NoncashContributionsAmt | 0 | 16110 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 2100 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 2100 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 4991 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 2625 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 9484 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 17100 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherExpensesGrp/Desc | 0 | Other |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 20143 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 20143 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Other |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 6571 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 6571 |
| IRS990/OtherRevenueTotalAmt | 0 | 6571 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 5281 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 5234 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 25251 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 35766 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 1592 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 1578 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 7612 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 10782 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 109689 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 148265 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 1153 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 3118 |
| IRS990/PrincipalOfficerNm | 0 | Daniel Coller |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 900099 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | Conference |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 5000 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 5000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 646962 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 171769 |
| IRS990/PYOtherExpensesAmt | 0 | 298483 |
| IRS990/PYOtherRevenueAmt | 0 | 21089 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 31078 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 99489 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 129388 |
| IRS990/PYTotalExpensesAmt | 0 | 599640 |
| IRS990/PYTotalRevenueAmt | 0 | 699129 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -14421 |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | true |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990/RevenueAmt | 0 | 5000 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 574134 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 664962 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 338742 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 657356 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 128625 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2363819 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 2487 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 2487 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 90 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 90 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 2487 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt | 0 | 2487 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 6571 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 21089 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1531 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 2786 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 31977 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.98560 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99220 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2363909 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 574134 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 664962 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 338742 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 657446 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 128625 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2363909 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 583192 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 686051 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 340273 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 660232 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 128625 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2398373 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 19616 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 19616 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 67905 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 67905 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 19616 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 602613 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 2427 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 22043 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 588192 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | The Association is a tax-exempt entity under Code Section 501(c)(3) of the Internal Revenue Code(the Code), and are exempt from federal income taxes on related income pursuant to Section 501(a) of the Code and is not considered to be a private foundation. In addition, the Association is subject to income tax on net income that is derived from business activities that are unrelated to their exempt purposes. Management has determined that the entity is not subject to unrelated business income tax and has not filed an Exempt Organization Business Income Tax Return (Form 990-T) with the IRS. Accordingly, no provision for income taxes is included in the financial statements. The Association has filed all of its known and required tax returns in a timely manner, including as permitted, allowed extensions. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Footnote for uncertain tax position under FIN 48 (Part X) |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 67905 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 602613 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 588192 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 610235 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 622229 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 33000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | North America Not the United States |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Program services |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 22500 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 7500 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | North America Not the United States |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | North America Not the United States |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 33000 |
| IRS990ScheduleF/Total501c3OrgCnt | 0 | 2 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 33000 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 40130 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 40130 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Special Even |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 40130 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 40130 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 140000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 10000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501c3 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | Uplifting Athletes |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 876000525 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 341986485 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 201 Presidents Cir |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 8 Atkinson Drive PO Box 574 |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Doylestown |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | UT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 84112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 18901 |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 2 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Erin Coller and Daniel Coller are married. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The IRS Form 990 is provided to all board members prior to filing. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | These documents are available upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Other Professional Fees $124,672Service Fees: $1,457Board Expenses: $2,811 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Officer directors etc family relationship Part VI line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | List of other fees for services expenses Part IX line 11g |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 685374 |
| IRS990/TotalAssetsEOYAmt | 0 | 674679 |
| IRS990/TotalAssetsGrp/BOYAmt | 0 | 685374 |
| IRS990/TotalAssetsGrp/EOYAmt | 0 | 674679 |
| IRS990/TotalCompGreaterThan150KInd | 0 | false |
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Displayed year
2023 • Form 990Detailed filing. Detailed filing data is available for this year.