Civic Intelligence

Association for Creatine Deficiencies Inc

990 • Fiscal year 2022 • EIN 46-2133007

Jan 01, 2022 to Dec 31, 2022 • Filed on Oct 23, 2023

Organization Profilewww.creatineinfo.org
6965 El Camino Real 105-598Carlsbad, CA 92009

(601) 942-2373

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

57th percentile

0.04x

Higher debt load relative to assets than 57% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Liabilities / Revenue

56th percentile

0.04x

Higher debt load relative to revenue than 56% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Net Margin

63rd percentile

14%

Higher net margin than 63% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Top Officer Pay

85th percentile

$91,346

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 13.1% of source-year revenue.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2022

Asset Growth

74th percentile

19%

Faster asset growth than 74% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Revenue Growth

90th percentile

117%

Faster revenue growth than 90% of similar nonprofits.

2022 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets57th percentile

Assets

Up

$685,374

Up $110,862 (+19%) from 2021

Net Assets

Up

$659,951

Up $95,054 (+17%) from 2021

Liabilities

Up

$25,423

Up $15,808 (+164%) from 2021

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin63rd percentile

Revenue

Up

$699,129

Up $376,856 (+117%) from 2021

Expenses

Up

$599,640

Up $125,586 (+26%) from 2021

Net Income

Up

$99,489

Up $251,270 (+166%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth74th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2015: $50,178Net Assets 2015: $50,1782015Assets 2016: $70,095Net Assets 2016: $70,0952016Assets 2017: $122,042Net Assets 2017: $122,0422017Assets 2018: $123,591Net Assets 2018: $123,5912018Assets 2019: $165,371Liabilities 2019: $1,603Net Assets 2019: $163,7682019Assets 2020: $714,167Liabilities 2020: $7,734Net Assets 2020: $706,4332020Assets 2021: $574,512Liabilities 2021: $9,615Net Assets 2021: $564,8972021Assets 2022: $685,374Liabilities 2022: $25,423Net Assets 2022: $659,9512022Assets 2023: $674,679Liabilities 2023: $26,722Net Assets 2023: $647,9572023Assets 2024: $418,617Liabilities 2024: $10,372Net Assets 2024: $408,2452024

Highlighted filing

2022

Assets$685,374
Liabilities$25,423
Net Assets$659,951
Open 2022 Filing

Operations Trend

Revenue Growth90th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2015: $49,160Expenses 2015: $22,676Net Income 2015: $26,4842015Revenue 2016: $57,312Expenses 2016: $37,395Net Income 2016: $19,9172016Revenue 2017: $97,055Expenses 2017: $45,108Net Income 2017: $51,9472017Revenue 2018: $145,080Expenses 2018: $143,531Net Income 2018: $1,5492018Revenue 2019: $128,625Expenses 2019: $88,448Net Income 2019: $40,1772019Revenue 2020: $638,614Expenses 2020: $95,949Net Income 2020: $542,6652020Revenue 2021: $322,273Expenses 2021: $474,054Net Income 2021: -$151,7812021Revenue 2022: $699,129Expenses 2022: $599,640Net Income 2022: $99,4892022Revenue 2023: $588,192Expenses 2023: $602,613Net Income 2023: -$14,4212023Revenue 2024: $411,288Expenses 2024: $653,844Net Income 2024: -$242,5562024

Highlighted filing

2022

Revenue$699,129
Expenses$599,640
Net Income$99,489
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
Oct 23, 2023
Return Version
2022v5.0
Gross Receipts
$699,129
Mission and Program Overview

Mission

The corporation is a charitable corporation as defined in n.c. Gen. Stat. 55a-1-40(4) and is organized exclusively for one or more of the purposes specified in section 501(c)(3) of the internal revenue code of 1986 (or the corresponding provision of any future united states internal revenue law), including but not limited to improving the diagnosis,

To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$429,199$509,760▲ $80,561
Pledges and Grants Receivable$10,000$109,689▲ $99,689
Investments in Publicly Traded Securities$69,207$64,772▼ $4,435
Prepaid Expenses and Deferred Charges$66,106$1,153▼ $64,953
Total Assets$574,512$685,374▲ $110,862
Liabilities
Accounts Payable and Accrued Expenses$9,615$25,423▲ $15,808
Total Liabilities$9,615$25,423▲ $15,808
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$249,450$358,386▲ $108,936
Net Assets With Donor Restrictions$315,447$301,565▼ $13,882
Total Net Assets Fund Balance$564,897$659,951▲ $95,054
Total Liabilities and Net Assets / Fund Balance$574,512$685,374▲ $110,862
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseTotal
Heidi WallisExecutive DirectorPT$91,346$91,346

Board Members and Trustees

NameTitle
Laura TrutoiuBoard Chair
Daniel CollerVice Board Chair
Kim TuminelloDirector of Advocacy
Erin CollerDirector of Comm
Mikelle LawDirector of Compliance
Celeste GrahamDirector of Education
Randy AllenDirector of Fundraising
Revenue and Support

Revenue Composition

Contributions and Grants
$646,962
Program Service Revenue
$31,078
Investment Income
$0
Other Revenue
$21,089
All Other Contributions
$582,806
Change in Net Assets
$99,489

Audited Revenue Reconciliation

Revenue per Audited Statements
$699,129
Revenue Not Reported on Form 990
$13,565
Total Revenue per Audited Statements
$712,694
Total Revenue per Form 990
$699,129
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$298,483
Grants and Similar Amounts Paid$171,769
Salaries, Compensation, and Employee Benefits$129,388
Total Fundraising Expense$36,330
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$171,769--$171,769
Current Officers, Directors, Trustees, and Key Employees$81,286$3,824$6,235$91,345
Fees for Services Other$70,829$13,487-$84,316
Conferences and Meetings$70,006$148$18$70,172
Fees for Services Accounting$1,076$34,047$103$35,226
Travel$33,206$863$681$34,750
Other Salaries and Wages$25,719$1,210$1,973$28,902
Advertising$1,468$1,200$20,514$23,182
Office Expenses$9,848$6,410$3,641$19,899
Fees for Services Legal$12,765--$12,765
Payroll Taxes$8,134$383$624$9,141
Other Expenses$8,155--$8,155
Information Technology$1,642$2,313$2,541$6,496
Insurance-$1,827-$1,827
Occupancy$1,695--$1,695
Total Functional Expenses$497,598$65,712$36,330$599,640

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$617,640
Expenses per Audited Statements$599,640
Total Expenses per Form 990$599,640
Expenses Not Reported on Form 990$18,000
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Indiana UniversityIndianapolis, IN501c3-$30,000
The Hospital for Sick ChildrenWashington, DC501c3-$15,000
UclaLos Angeles, CA501c3-$10,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Special Even$64,156---
Total Events$64,156---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Erin Coller and Daniel Coller are married.”

Form 990 governing body review Part VI line 11

“The IRS Form 990 is provided to all board members prior to filing.”

Governing documents etc available to public Part VI line 19

“These documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
Association of Creatine Deficiencies
EIN
46-2133007
Address
6965 El Camino Real 105-598, Carlsbad, CA 92009

Signing Officer

Name
Daniel Coller
Title
Vice Board Chai
Phone
6019422373
Signed
2023-10-23
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Daniel Coller
Formed
2012
Legal Domicile
CA
Voting Board Members
7
Independent Board Members
7
Employees
2
Volunteers
7

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“Other Professional Fees $84,315”

Raw XML AppendixShowing 400 of 444 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
IRS990/AccountantCompileOrReviewInd0false
IRS990/AccountsPayableAccrExpnssGrp/BOYAmt09615
IRS990/AccountsPayableAccrExpnssGrp/EOYAmt025423
IRS990/ActivitiesConductedPrtshpInd0false
IRS990/ActivityOrMissionDesc0To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
IRS990/AdvertisingGrp/FundraisingAmt020514
IRS990/AdvertisingGrp/ManagementAndGeneralAmt01200
IRS990/AdvertisingGrp/ProgramServicesAmt01468
IRS990/AdvertisingGrp/TotalAmt023182
IRS990/AllOtherContributionsAmt0582806
IRS990/AuditCommitteeInd0true
IRS990/BackupWthldComplianceInd0true
IRS990/BooksInCareOfDetail/PersonNm0The Organization
IRS990/BooksInCareOfDetail/PhoneNum06019422373
IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt06965 El Camino Real 105-598
IRS990/BooksInCareOfDetail/USAddress/CityNm0Carlsbad
IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd0CA
IRS990/BooksInCareOfDetail/USAddress/ZIPCd092009
IRS990/BusinessRlnWith35CtrlEntInd0false
IRS990/BusinessRlnWithFamMemInd0false
IRS990/BusinessRlnWithOrgMemInd0false
IRS990/CashNonInterestBearingGrp/BOYAmt0429199
IRS990/CashNonInterestBearingGrp/EOYAmt0509760
IRS990/ChangeToOrgDocumentsInd0false
IRS990/CollectionsOfArtInd0false
IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt06235
IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt03824
IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt081286
IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt091345
IRS990/CompensationFromOtherSrcsInd0false
IRS990/CompensationProcessCEOInd0false
IRS990/CompensationProcessOtherInd0false
IRS990/ConferencesMeetingsGrp/FundraisingAmt018
IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt0148
IRS990/ConferencesMeetingsGrp/ProgramServicesAmt070006
IRS990/ConferencesMeetingsGrp/TotalAmt070172
IRS990/ConflictOfInterestPolicyInd0false
IRS990/ConservationEasementsInd0false
IRS990/ConsolidatedAuditFinclStmtInd0false
IRS990/ContriRptFundraisingEventAmt064156
IRS990/CreditCounselingInd0false
IRS990/CYBenefitsPaidToMembersAmt00
IRS990/CYContributionsGrantsAmt0646962
IRS990/CYGrantsAndSimilarPaidAmt0171769
IRS990/CYInvestmentIncomeAmt00
IRS990/CYOtherExpensesAmt0298483
IRS990/CYOtherRevenueAmt021089
IRS990/CYProgramServiceRevenueAmt031078
IRS990/CYRevenuesLessExpensesAmt099489
IRS990/CYSalariesCompEmpBnftPaidAmt0129388
IRS990/CYTotalExpensesAmt0599640
IRS990/CYTotalFundraisingExpenseAmt036330
IRS990/CYTotalProfFndrsngExpnsAmt00
IRS990/CYTotalRevenueAmt0699129
IRS990/DecisionsSubjectToApprovaInd0false
IRS990/DeductibleArtContributionInd0false
IRS990/DeductibleNonCashContriInd0false
IRS990/DelegationOfMgmtDutiesInd0false
IRS990/Desc0Providing accurate and up to date information through attendance at Medical & Scientific Symposiums, & etc. Publication of CCDS educational video, etc.; Quarterly website updates. Public awareness campaigns in local communities.Promoting research to improve diagnoses & treatment through advocating federal funding for rare diseases, increasing patient registry enrollment, non-drug research opportunities and outreach. Helping patients & families with CCDS. Quarterly web newsletter, online resource guides & etc.
IRS990/DescribedInSection501c3Ind0true
IRS990/DisregardedEntityInd0false
IRS990/DocumentRetentionPolicyInd0false
IRS990/DonorAdvisedFundInd0false
IRS990/DonorRestrictionNetAssetsGrp/BOYAmt0315447
IRS990/DonorRestrictionNetAssetsGrp/EOYAmt0301565
IRS990/DonorRstrOrQuasiEndowmentsInd0false
IRS990/ElectionOfBoardMembersInd0false
IRS990/EmployeeCnt02
IRS990/EmploymentTaxReturnsFiledInd0true
IRS990/EngagedInExcessBenefitTransInd0false
IRS990/ExpenseAmt0497598
IRS990/FamilyOrBusinessRlnInd0false
IRS990/FederalGrantAuditRequiredInd0false
IRS990/FeesForServicesAccountingGrp/FundraisingAmt0103
IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt034047
IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt01076
IRS990/FeesForServicesAccountingGrp/TotalAmt035226
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt012765
IRS990/FeesForServicesLegalGrp/TotalAmt012765
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt013487
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt070829
IRS990/FeesForServicesOtherGrp/TotalAmt084316
IRS990/ForeignActivitiesInd0false
IRS990/ForeignFinancialAccountInd0false
IRS990/ForeignOfficeInd0false
IRS990/Form8282PropertyDisposedOfInd0false
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt00.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt10.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt20.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt30.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt40.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt50.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt60.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt70.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt025.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt110.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt210.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt35.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt410.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt512.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt610.00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt75.00
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd0X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd1X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd2X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd3X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd4X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd5X
IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd6X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt00
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt10
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt20
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt40
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt50
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt60
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt70
IRS990/Form990PartVIISectionAGrp/PersonNm0Heidi Wallis
IRS990/Form990PartVIISectionAGrp/PersonNm1Kim Tuminello
IRS990/Form990PartVIISectionAGrp/PersonNm2Mikelle Law
IRS990/Form990PartVIISectionAGrp/PersonNm3Randy Allen
IRS990/Form990PartVIISectionAGrp/PersonNm4Erin Coller
IRS990/Form990PartVIISectionAGrp/PersonNm5Laura Trutoiu
IRS990/Form990PartVIISectionAGrp/PersonNm6Daniel Coller
IRS990/Form990PartVIISectionAGrp/PersonNm7Celeste Graham
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt091346
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/TitleTxt0Executive Director
IRS990/Form990PartVIISectionAGrp/TitleTxt1Director of Advocacy
IRS990/Form990PartVIISectionAGrp/TitleTxt2Director of Compliance
IRS990/Form990PartVIISectionAGrp/TitleTxt3Director of Fundraising
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director of Comm
IRS990/Form990PartVIISectionAGrp/TitleTxt5Board Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt6Vice Board Chair
IRS990/Form990PartVIISectionAGrp/TitleTxt7Director of Education
IRS990/Form990ProvidedToGvrnBodyInd0true
IRS990/FormationYr02012
IRS990/FormerOfcrEmployeesListedInd0false
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd0true
IRS990/FundraisingActivitiesInd0true
IRS990/FundraisingAmt064156
IRS990/GamingActivitiesInd0false
IRS990/GoverningBodyVotingMembersCnt07
IRS990/GrantAmt0171769
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0171769
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0171769
IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0699129
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0true
IRS990/IndependentVotingMemberCnt07
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt02541
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt02313
IRS990/InformationTechnologyGrp/ProgramServicesAmt01642
IRS990/InformationTechnologyGrp/TotalAmt06496
IRS990/InsuranceGrp/ManagementAndGeneralAmt01827
IRS990/InsuranceGrp/TotalAmt01827
IRS990/InvestmentInJointVentureInd0false
IRS990/InvestmentsPubTradedSecGrp/BOYAmt069207
IRS990/InvestmentsPubTradedSecGrp/EOYAmt064772
IRS990/IRPDocumentCnt011
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0564897
IRS990/NetAssetsOrFundBalancesEOYAmt0659951
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-4435
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0249450
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0358386
IRS990/NondeductibleContributionsInd0false
IRS990/OccupancyGrp/ProgramServicesAmt01695
IRS990/OccupancyGrp/TotalAmt01695
IRS990/OfficeExpensesGrp/FundraisingAmt03641
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06410
IRS990/OfficeExpensesGrp/ProgramServicesAmt09848
IRS990/OfficeExpensesGrp/TotalAmt019899
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0Other
IRS990/OtherExpensesGrp/ProgramServicesAmt08155
IRS990/OtherExpensesGrp/TotalAmt08155
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/Desc0Other
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt021089
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt021089
IRS990/OtherRevenueTotalAmt021089
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt01973
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt01210
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt025719
IRS990/OtherSalariesAndWagesGrp/TotalAmt028902
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt0624
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0383
IRS990/PayrollTaxesGrp/ProgramServicesAmt08134
IRS990/PayrollTaxesGrp/TotalAmt09141
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt010000
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0109689
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt066106
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt01153
IRS990/PrincipalOfficerNm0Daniel Coller
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0Conference
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt031078
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt031078
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0320742
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0151130
IRS990/PYOtherExpensesAmt0282817
IRS990/PYOtherRevenueAmt01531
IRS990/PYRevenuesLessExpensesAmt0-151781
IRS990/PYSalariesCompEmpBnftPaidAmt040107
IRS990/PYTotalExpensesAmt0474054
IRS990/PYTotalRevenueAmt0322273
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt099489
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0false
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt031078
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0664962
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0338742
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0657356
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0128625
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt01432223
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt03221908
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt090
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt090
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt021089
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt01531
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus2YearsAmt02786
IRS990ScheduleA/OtherIncome509Grp/TotalAmt025406
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99220
IRS990ScheduleA/PublicSupportPY509Pct00.99840
IRS990ScheduleA/PublicSupportTotal509Amt03221998
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0664962
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0338742
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0657446
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0128625
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt01432223
IRS990ScheduleA/Total509Grp/TotalAmt03221998
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0686051
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0340273
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0660232
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0128625
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt01432223
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt03247404
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt018000
IRS990ScheduleD/DonatedServicesUseFcltsAmt018000
IRS990ScheduleD/ExpensesNotReportedAmt018000
IRS990ScheduleD/ExpensesSubtotalAmt0599640
IRS990ScheduleD/NetUnrealizedGainsInvstAmt0-4435
IRS990ScheduleD/RevenueNotReportedAmt013565
IRS990ScheduleD/RevenueSubtotalAmt0699129
IRS990ScheduleD/TotalExpensesPerForm990Amt0599640
IRS990ScheduleD/TotalRevenuePerForm990Amt0699129
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0712694
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0617640
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt064156
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt064156
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Special Even
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt064156
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt064156
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt030000
IRS990ScheduleI/RecipientTable/CashGrantAmt110000
IRS990ScheduleI/RecipientTable/CashGrantAmt215000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Indiana University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1UCLA
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2The Hospital for Sick Children
IRS990ScheduleI/RecipientTable/RecipientEIN0351955872
IRS990ScheduleI/RecipientTable/RecipientEIN1956006143
IRS990ScheduleI/RecipientTable/RecipientEIN2530204670
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0950 N Meridian St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt157 Westwood Plaza
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21731 Bunker Hill Rd NE
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Indianapolis
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Los Angeles
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Washington
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0IN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2DC
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd046202
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd190095
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd220017
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Erin Coller and Daniel Coller are married.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The IRS Form 990 is provided to all board members prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2These documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Other Professional Fees $84,315
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3List of other fees for services expenses Part IX line 11g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0574512
IRS990/TotalAssetsEOYAmt0685374
IRS990/TotalAssetsGrp/BOYAmt0574512
IRS990/TotalAssetsGrp/EOYAmt0685374
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0646962
IRS990/TotalEmployeeCnt02
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt036330
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt065712
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0497598
IRS990/TotalFunctionalExpensesGrp/TotalAmt0599640
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt09615
IRS990/TotalLiabilitiesEOYAmt025423
IRS990/TotalLiabilitiesGrp/BOYAmt09615
IRS990/TotalLiabilitiesGrp/EOYAmt025423
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0564897
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0659951
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0497598
IRS990/TotalProgramServiceRevenueAmt031078
IRS990/TotalReportableCompFromOrgAmt091346
IRS990/TotalRevenueGrp/ExclusionAmt00
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt052167
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0699129
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt07
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0574512
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0685374
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/FundraisingAmt0681

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$685,374
Liabilities
$25,423
Net assets
$659,951
Revenue
$699,129
Expenses
$599,640
Net income
$99,489
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.19$0.10$4.08$4.11$6.54$2.43
2023Detailed filing. Detailed filing data is available for this year.$6.75$0.27$6.48$5.88$6.03$0.14
2022Detailed filing. Detailed filing data is available for this year.$6.85$0.25$6.60$6.99$6.00$0.99
2021Detailed filing. Detailed filing data is available for this year.$5.75$0.10$5.65$3.22$4.74$1.52
2020Detailed filing. Detailed filing data is available for this year.$7.14$0.08$7.06$6.39$0.96$5.43
2019Detailed filing. Detailed filing data is available for this year.$1.65$0.02$1.64$1.29$0.88$0.40
2018Detailed filing. Detailed filing data is available for this year.$1.24$1.24$1.45$1.44$0.02
2017Detailed filing. Detailed filing data is available for this year.$1.22$1.22$0.97$0.45$0.52
2016Detailed filing. Detailed filing data is available for this year.$0.70$0.70$0.57$0.37$0.20
2015Detailed filing. Detailed filing data is available for this year.$0.50$0.50$0.49$0.23$0.26