Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
990 • Fiscal year 2021 • EIN 46-2133007
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
47th percentile
Higher debt load relative to assets than 47% of similar nonprofits.
Liabilities / Revenue
51st percentile
Higher debt load relative to revenue than 51% of similar nonprofits.
Net Margin
6th percentile
Higher net margin than 6% of similar nonprofits.
Top Officer Pay
52nd percentile
Higher top officer pay than 52% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
7th percentile
Faster asset growth than 7% of similar nonprofits.
Revenue Growth
6th percentile
Faster revenue growth than 6% of similar nonprofits.
Assets
Down$574,512
Down $139,655 (-20%) from 2020
Net Assets
Down$564,897
Down $141,536 (-20%) from 2020
Liabilities
Up$9,615
Up $1,881 (+24%) from 2020
Revenue
Down$322,273
Down $316,341 (-50%) from 2020
Expenses
Up$474,054
Up $378,105 (+394%) from 2020
Net Income
Down-$151,781
Down $694,446 (-128%) from 2020
The corporation is a charitable corporation as defined in n.c. Gen. Stat. 55a-1-40(4) and is organized exclusively for one or more of the purposes specified in section 501(c)(3) of the internal revenue code of 1986 (or the corresponding provision of any future united states internal revenue law), including but not limited to improving the diagnosis,
To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $569,491 | $429,199 | ▼ $140,292 |
| Investments in Publicly Traded Securities | $58,961 | $69,207 | ▲ $10,246 |
| Prepaid Expenses and Deferred Charges | $85,714 | $66,106 | ▼ $19,608 |
| Pledges and Grants Receivable | - | $10,000 | - |
| Total Assets | $714,166 | $574,512 | ▼ $139,654 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $7,734 | $9,615 | ▲ $1,881 |
| Total Liabilities | $7,734 | $9,615 | ▲ $1,881 |
| Net Assets / Fund Balance | |||
| Net Assets With Donor Restrictions | $521,031 | $315,447 | ▼ $205,584 |
| Net Assets Without Donor Restrictions | $185,401 | $249,450 | ▲ $64,049 |
| Total Net Assets Fund Balance | $706,432 | $564,897 | ▼ $141,535 |
| Total Liabilities and Net Assets / Fund Balance | $714,166 | $574,512 | ▼ $139,654 |
| Name | Title |
|---|---|
| Heidi Wallace | President |
| Randy Allen | Vice President |
| Kim Tuminello | Director of Advocacy |
| Erin Coller | Director of Comm |
| Mikelle Law | Director of Compliance |
| Celeste Graham | Director of Education |
| Laura Trutoiu | Director of Research |
| Daniel Coller | Financial Director |
| Line Item | Amount |
|---|---|
| Other Expenses | $282,817 |
| Grants and Similar Amounts Paid | $151,130 |
| Salaries, Compensation, and Employee Benefits | $40,107 |
| Total Fundraising Expense | $20,892 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Fees for Services Other | $153,920 | $11,092 | - | $165,012 |
| Grants to Domestic Orgs | $111,130 | - | - | $111,130 |
| Conferences and Meetings | $63,142 | - | - | $63,142 |
| Foreign Grants | $40,000 | - | - | $40,000 |
| Other Salaries and Wages | $20,943 | $10,447 | $6,878 | $38,268 |
| Advertising | $16,167 | $474 | $8,567 | $25,208 |
| Fees for Services Accounting | $598 | $11,756 | $212 | $12,566 |
| Office Expenses | $5,822 | $1,083 | $4,026 | $10,931 |
| Information Technology | $1,062 | $1,421 | $878 | $3,361 |
| Pension Plan Contributions | $1,006 | $502 | $331 | $1,839 |
| Insurance | - | $1,827 | - | $1,827 |
| Fees for Services Legal | $770 | - | - | $770 |
| Total Functional Expenses | $414,560 | $38,602 | $20,892 | $474,054 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $492,054 |
| Expenses per Audited Statements | $474,054 |
| Total Expenses per Form 990 | $474,054 |
| Expenses Not Reported on Form 990 | $18,000 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Indiana University | Indianapolis, IN | 501c3 | - | $30,000 |
| The Hospital for Sick Children | Washington, DC | 501c3 | - | $30,000 |
| University of Utah | Salt Lake City, UT | 501c3 | - | $25,000 |
| NORD Registry | Quincy, MA | 501c3 | - | $14,055 |
| Ucla | Los Angeles, CA | 501c3 | - | $10,000 |
| Region | Activity | Services | Offices | Employees | Spending |
|---|---|---|---|---|---|
| Europe including Iceland and Greenland | Program services | Research | - | - | $113,161 |
| North America Not the United States | Program services | Research | - | - | $30,000 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Special Even | $34,760 | - | - | - |
| Total Events | $34,760 | - | - | - |
“Erin Coller and Daniel Coller are married.”
“The IRS Form 990 is provided to all board members prior to filing.”
“These documents are available upon request.”
“Other Professional Fees $61,851Research $103,161”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | false |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 7734 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 9615 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 8567 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 474 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 16167 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 25208 |
| IRS990/AllOtherContributionsAmt | 0 | 285982 |
| IRS990/AuditCommitteeInd | 0 | true |
| IRS990/BackupWthldComplianceInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | The Organization |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 6019422373 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 6965 El Camino Real 105-598 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | Carlsbad |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | CA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 92009 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 569491 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 429199 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | false |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 63142 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 63142 |
| IRS990/ConflictOfInterestPolicyInd | 0 | false |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 34760 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 320742 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 151130 |
| IRS990/CYInvestmentIncomeAmt | 0 | 0 |
| IRS990/CYOtherExpensesAmt | 0 | 282817 |
| IRS990/CYOtherRevenueAmt | 0 | 1531 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -151781 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 40107 |
| IRS990/CYTotalExpensesAmt | 0 | 474054 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 20892 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 322273 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/Desc | 0 | Providing accurate and up to date information through attendance at Medical & Scientific Symposiums, & etc. Publication of CCDS educational video, etc.; Quarterly website updates. Public awareness campaigns in local communities.Promoting research to improve diagnoses & treatment through advocating federal funding for rare diseases, increasing patient registry enrollment, non-drug research opportunities and outreach. Helping patients & families with CCDS. Quarterly web newsletter, online resource guides & etc. |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | false |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRestrictionNetAssetsGrp/BOYAmt | 0 | 521031 |
| IRS990/DonorRestrictionNetAssetsGrp/EOYAmt | 0 | 315447 |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 1 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 414560 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 212 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 11756 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 598 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 12566 |
| IRS990/FeesForServicesLegalGrp/ProgramServicesAmt | 0 | 770 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 770 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 11092 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 153920 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 165012 |
| IRS990/ForeignActivitiesInd | 0 | true |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignGrantsGrp/ProgramServicesAmt | 0 | 40000 |
| IRS990/ForeignGrantsGrp/TotalAmt | 0 | 40000 |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 0 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 1 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 2 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 3 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 4 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 5 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 6 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRltdOrgRt | 7 | 0.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 12.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 25.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | Mikelle Law |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | Kim Tuminello |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | Laura Trutoiu |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | Randy Allen |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | Daniel Coller |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | Heidi Wallace |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | Celeste Graham |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | Erin Coller |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | Director of Compliance |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | Director of Advocacy |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | Director of Research |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | Vice President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | Financial Director |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | President |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | Director of Education |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | Director of Comm |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | false |
| IRS990/FormationYr | 0 | 2012 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | true |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 34760 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 8 |
| IRS990/GrantAmt | 0 | 141130 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 111130 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 111130 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 322273 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 8 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIXInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 878 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 1421 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 1062 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 3361 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1827 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 1827 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 58961 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 69207 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LegalDomicileStateCd | 0 | CA |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | false |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | true |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS). |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | true |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 706432 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 564897 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | 10246 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 185401 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 249450 |
| IRS990/NoListedPersonsCompensatedInd | 0 | X |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 4026 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 1083 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 5822 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 10931 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | Other |
| IRS990/OtherRevenueMiscGrp/ExclusionAmt | 0 | 1531 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 1531 |
| IRS990/OtherRevenueTotalAmt | 0 | 1531 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 6878 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 10447 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 20943 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 38268 |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 331 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 502 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 1006 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 1839 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 10000 |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 85714 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 66106 |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 635738 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYInvestmentIncomeAmt | 0 | 2786 |
| IRS990/PYOtherExpensesAmt | 0 | 59574 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 90 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 542665 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 36375 |
| IRS990/PYTotalExpensesAmt | 0 | 95949 |
| IRS990/PYTotalRevenueAmt | 0 | 638614 |
| IRS990/QuidProQuoContributionsInd | 0 | true |
| IRS990/QuidProQuoContriDisclInd | 0 | true |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -151781 |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | Other Income $1,531 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | Other income Part II line 10 or Part III line 12 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 338742 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 657356 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 128625 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1432223 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 95952 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 2652898 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 90 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 90 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/InvestmentIncomePYPct | 0 | 0.00000 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt | 0 | 1531 |
| IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 2786 |
| IRS990ScheduleA/OtherIncome509Grp/TotalAmt | 0 | 4317 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 0.99840 |
| IRS990ScheduleA/PublicSupportPY509Pct | 0 | 0.99740 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 2652988 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 338742 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 657446 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 128625 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1432223 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 95952 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 2652988 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt | 0 | 340273 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt | 0 | 660232 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt | 0 | 128625 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt | 0 | 1432223 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt | 0 | 95952 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 2657305 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/DonatedServicesAndUseFcltsAmt | 0 | 18000 |
| IRS990ScheduleD/DonatedServicesUseFcltsAmt | 0 | 18000 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 18000 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 474054 |
| IRS990ScheduleD/NetUnrealizedGainsInvstAmt | 0 | 10246 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 28246 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 322273 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 474054 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 322273 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 350519 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 492054 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 0 | 113161 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt | 1 | 30000 |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 0 | Europe including Iceland and Greenland |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt | 1 | North America Not the United States |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 0 | Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt | 1 | Research |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 0 | Program services |
| IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt | 1 | Program services |
| IRS990ScheduleF/BoycottCountriesInd | 0 | false |
| IRS990ScheduleF/ForeignCorpOwnershipInd | 0 | false |
| IRS990ScheduleF/ForeignPartnershipInd | 0 | false |
| IRS990ScheduleF/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 0 | 30000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt | 1 | 10000 |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 0 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt | 1 | Research |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 0 | North America Not the United States |
| IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt | 1 | Europe including Iceland and Greenland |
| IRS990ScheduleF/InterestInForeignTrustInd | 0 | false |
| IRS990ScheduleF/PassiveForeignInvestmestCoInd | 0 | false |
| IRS990ScheduleF/SubtotalSpentAmt | 0 | 143161 |
| IRS990ScheduleF/TotalSpentAmt | 0 | 143161 |
| IRS990ScheduleF/TransferToForeignCorpInd | 0 | false |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 34760 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 34760 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | Special Even |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 34760 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 34760 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 25000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 30000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 14055 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 30000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 10000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501c3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501c3 |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | University of Utah |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | The Hospital for Sick Children |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | NORD Registry |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | Indiana University |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | UCLA |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 876000525 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 530204670 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 133223946 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 351955872 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 956006143 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | 201 S Presidents Circle |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | 1731 Bunker Hill Rd NE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 900 Crown Colony Drive |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 950 N Meridian St |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | 57 Westwood Plaza |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | Salt Lake City |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | Washington |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | Quincy |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | Indianapolis |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | Los Angeles |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | UT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | DC |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | IN |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | CA |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 84112 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 20017 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 02169 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 46202 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 90095 |
| IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt | 0 | The Organization requires that grantees provide reports and substantiation for the funding provided. |
| IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Monitoring procedures (Part I, line 2) |
| IRS990ScheduleI/Total501c3OrgCnt | 0 | 5 |
| IRS990/ScheduleJRequiredInd | 0 | false |
| IRS990/ScheduleORequiredInd | 0 | true |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | Erin Coller and Daniel Coller are married. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | The IRS Form 990 is provided to all board members prior to filing. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | These documents are available upon request. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | Other Professional Fees $61,851Research $103,161 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Officer directors etc family relationship Part VI line 2 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990 governing body review Part VI line 11 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Governing documents etc available to public Part VI line 19 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | List of other fees for services expenses Part IX line 11g |
| IRS990/SchoolOperatingInd | 0 | false |
| IRS990/SignificantChangeInd | 0 | false |
| IRS990/SignificantNewProgramSrvcInd | 0 | false |
| IRS990/SubjectToExcsTaxNetInvstIncInd | 0 | false |
| IRS990/SubjectToProxyTaxInd | 0 | false |
| IRS990/SubjToTaxRmnrtnExPrchtPymtInd | 0 | false |
| IRS990/TaxablePartyNotificationInd | 0 | false |
| IRS990/TaxExemptBondsInd | 0 | false |
| IRS990/TerminateOperationsInd | 0 | false |
| IRS990/TotalAssetsBOYAmt | 0 | 714166 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.