Civic Intelligence

Association for Creatine Deficiencies Inc

990 • Fiscal year 2021 • EIN 46-2133007

Jan 01, 2021 to Dec 31, 2021 • Filed on Nov 02, 2022

6965 El Camino Real 105-598Carlsbad, CA 92009

(601) 942-2373

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

47th percentile

0.02x

Higher debt load relative to assets than 47% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Liabilities / Revenue

51st percentile

0.03x

Higher debt load relative to revenue than 51% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Net Margin

6th percentile

-47%

Higher net margin than 6% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Top Officer Pay

52nd percentile

$0

Higher top officer pay than 52% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2021

Asset Growth

7th percentile

-20%

Faster asset growth than 7% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Revenue Growth

6th percentile

-50%

Faster revenue growth than 6% of similar nonprofits.

2021 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2020 to 2021

Assets

Down

$574,512

Down $139,655 (-20%) from 2020

Net Assets

Down

$564,897

Down $141,536 (-20%) from 2020

Liabilities

Up

$9,615

Up $1,881 (+24%) from 2020

Revenue

Down

$322,273

Down $316,341 (-50%) from 2020

Expenses

Up

$474,054

Up $378,105 (+394%) from 2020

Net Income

Down

-$151,781

Down $694,446 (-128%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$800K$600K$400K$200K$0Assets 2015: $50,178Net Assets 2015: $50,1782015Assets 2016: $70,095Net Assets 2016: $70,0952016Assets 2017: $122,042Net Assets 2017: $122,0422017Assets 2018: $123,591Net Assets 2018: $123,5912018Assets 2019: $165,371Liabilities 2019: $1,603Net Assets 2019: $163,7682019Assets 2020: $714,167Liabilities 2020: $7,734Net Assets 2020: $706,4332020Assets 2021: $574,512Liabilities 2021: $9,615Net Assets 2021: $564,8972021Assets 2022: $685,374Liabilities 2022: $25,423Net Assets 2022: $659,9512022Assets 2023: $674,679Liabilities 2023: $26,722Net Assets 2023: $647,9572023Assets 2024: $418,617Liabilities 2024: $10,372Net Assets 2024: $408,2452024

Highlighted filing

2021

Assets$574,512
Liabilities$9,615
Net Assets$564,897

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2015: $49,160Expenses 2015: $22,676Net Income 2015: $26,4842015Revenue 2016: $57,312Expenses 2016: $37,395Net Income 2016: $19,9172016Revenue 2017: $97,055Expenses 2017: $45,108Net Income 2017: $51,9472017Revenue 2018: $145,080Expenses 2018: $143,531Net Income 2018: $1,5492018Revenue 2019: $128,625Expenses 2019: $88,448Net Income 2019: $40,1772019Revenue 2020: $638,614Expenses 2020: $95,949Net Income 2020: $542,6652020Revenue 2021: $322,273Expenses 2021: $474,054Net Income 2021: -$151,7812021Revenue 2022: $699,129Expenses 2022: $599,640Net Income 2022: $99,4892022Revenue 2023: $588,192Expenses 2023: $602,613Net Income 2023: -$14,4212023Revenue 2024: $411,288Expenses 2024: $653,844Net Income 2024: -$242,5562024

Highlighted filing

2021

Revenue$322,273
Expenses$474,054
Net Income-$151,781
Jump To
Filing Snapshot
Filing Period
Jan 1, 2021 to Dec 31, 2021
Signed
Nov 2, 2022
Return Version
2021v4.2
Gross Receipts
$322,273
Mission and Program Overview

Mission

The corporation is a charitable corporation as defined in n.c. Gen. Stat. 55a-1-40(4) and is organized exclusively for one or more of the purposes specified in section 501(c)(3) of the internal revenue code of 1986 (or the corresponding provision of any future united states internal revenue law), including but not limited to improving the diagnosis,

To promote and fund medial research for treatments and cures, provide patient, family, and public education, and advocate for early intervention through newborn screening for Cerebral Creatine Deficiency Syndromes (CCDS).

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$569,491$429,199▼ $140,292
Investments in Publicly Traded Securities$58,961$69,207▲ $10,246
Prepaid Expenses and Deferred Charges$85,714$66,106▼ $19,608
Pledges and Grants Receivable-$10,000-
Total Assets$714,166$574,512▼ $139,654
Liabilities
Accounts Payable and Accrued Expenses$7,734$9,615▲ $1,881
Total Liabilities$7,734$9,615▲ $1,881
Net Assets / Fund Balance
Net Assets With Donor Restrictions$521,031$315,447▼ $205,584
Net Assets Without Donor Restrictions$185,401$249,450▲ $64,049
Total Net Assets Fund Balance$706,432$564,897▼ $141,535
Total Liabilities and Net Assets / Fund Balance$714,166$574,512▼ $139,654
Compensation and Service Providers

Board Members and Trustees

NameTitle
Heidi WallacePresident
Randy AllenVice President
Kim TuminelloDirector of Advocacy
Erin CollerDirector of Comm
Mikelle LawDirector of Compliance
Celeste GrahamDirector of Education
Laura TrutoiuDirector of Research
Daniel CollerFinancial Director
Revenue and Support

Revenue Composition

Contributions and Grants
$320,742
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$1,531
All Other Contributions
$285,982
Change in Net Assets
$-151,781

Audited Revenue Reconciliation

Revenue per Audited Statements
$322,273
Revenue Not Reported on Form 990
$28,246
Total Revenue per Audited Statements
$350,519
Total Revenue per Form 990
$322,273
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$282,817
Grants and Similar Amounts Paid$151,130
Salaries, Compensation, and Employee Benefits$40,107
Total Fundraising Expense$20,892
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$153,920$11,092-$165,012
Grants to Domestic Orgs$111,130--$111,130
Conferences and Meetings$63,142--$63,142
Foreign Grants$40,000--$40,000
Other Salaries and Wages$20,943$10,447$6,878$38,268
Advertising$16,167$474$8,567$25,208
Fees for Services Accounting$598$11,756$212$12,566
Office Expenses$5,822$1,083$4,026$10,931
Information Technology$1,062$1,421$878$3,361
Pension Plan Contributions$1,006$502$331$1,839
Insurance-$1,827-$1,827
Fees for Services Legal$770--$770
Total Functional Expenses$414,560$38,602$20,892$474,054

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$492,054
Expenses per Audited Statements$474,054
Total Expenses per Form 990$474,054
Expenses Not Reported on Form 990$18,000
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Indiana UniversityIndianapolis, IN501c3-$30,000
The Hospital for Sick ChildrenWashington, DC501c3-$30,000
University of UtahSalt Lake City, UT501c3-$25,000
NORD RegistryQuincy, MA501c3-$14,055
UclaLos Angeles, CA501c3-$10,000

International Summary

Spending
$143,161

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe including Iceland and GreenlandProgram servicesResearch--$113,161
North America Not the United StatesProgram servicesResearch--$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Special Even$34,760---
Total Events$34,760---
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

Erin Coller and Daniel Coller are married.

Form 990 governing body review Part VI line 11

The IRS Form 990 is provided to all board members prior to filing.

Governing documents etc available to public Part VI line 19

These documents are available upon request.

Filing and Contact Details

Filer

Filer Name
Association of Creatine Deficiencies
EIN
46-2133007
Address
6965 El Camino Real 105-598, Carlsbad, CA 92009

Signing Officer

Name
Daniel Coller
Title
Financial Direc
Phone
6019422373
Signed
2022-11-02
Discuss with paid preparer
Yes

Organization Details

Formed
2012
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
8
Employees
1
Volunteers
5

Preparer

Firm
Mullins PC
Address
7625 Wisconsin Avenue, Bethesda, MD 20814
Preparer
John Mullins
Phone
2027706371
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

Other Professional Fees $61,851Research $103,161

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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt01432223
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt095952
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt02652898
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt090
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt090
IRS990ScheduleA/InvestmentIncomeCYPct00.00000
IRS990ScheduleA/InvestmentIncomePYPct00.00000
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearAmt01531
IRS990ScheduleA/OtherIncome509Grp/CurrentTaxYearMinus1YearAmt02786
IRS990ScheduleA/OtherIncome509Grp/TotalAmt04317
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.99840
IRS990ScheduleA/PublicSupportPY509Pct00.99740
IRS990ScheduleA/PublicSupportTotal509Amt02652988
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0338742
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0657446
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0128625
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt01432223
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt095952
IRS990ScheduleA/Total509Grp/TotalAmt02652988
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0340273
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0660232
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0128625
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt01432223
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt095952
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02657305
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DonatedServicesAndUseFcltsAmt018000
IRS990ScheduleD/DonatedServicesUseFcltsAmt018000
IRS990ScheduleD/ExpensesNotReportedAmt018000
IRS990ScheduleD/ExpensesSubtotalAmt0474054
IRS990ScheduleD/NetUnrealizedGainsInvstAmt010246
IRS990ScheduleD/RevenueNotReportedAmt028246
IRS990ScheduleD/RevenueSubtotalAmt0322273
IRS990ScheduleD/TotalExpensesPerForm990Amt0474054
IRS990ScheduleD/TotalRevenuePerForm990Amt0322273
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0350519
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0492054
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt0113161
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTotalExpendituresAmt130000
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt0Europe including Iceland and Greenland
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/RegionTxt1North America Not the United States
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt0Research
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/SpecificServicesProvidedTxt1Research
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt0Program services
IRS990ScheduleF/AccountActivitiesOutsideUSGrp/TypeOfActivitiesConductedTxt1Program services
IRS990ScheduleF/BoycottCountriesInd0false
IRS990ScheduleF/ForeignCorpOwnershipInd0false
IRS990ScheduleF/ForeignPartnershipInd0false
IRS990ScheduleF/GrantRecordsMaintainedInd0true
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt030000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt110000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1Research
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0North America Not the United States
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1Europe including Iceland and Greenland
IRS990ScheduleF/InterestInForeignTrustInd0false
IRS990ScheduleF/PassiveForeignInvestmestCoInd0false
IRS990ScheduleF/SubtotalSpentAmt0143161
IRS990ScheduleF/TotalSpentAmt0143161
IRS990ScheduleF/TransferToForeignCorpInd0false
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt034760
IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt034760
IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm0Special Even
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt034760
IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt034760
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt025000
IRS990ScheduleI/RecipientTable/CashGrantAmt130000
IRS990ScheduleI/RecipientTable/CashGrantAmt214055
IRS990ScheduleI/RecipientTable/CashGrantAmt330000
IRS990ScheduleI/RecipientTable/CashGrantAmt410000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc3501c3
IRS990ScheduleI/RecipientTable/IRCSectionDesc4501c3
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0University of Utah
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1The Hospital for Sick Children
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2NORD Registry
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3Indiana University
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt4UCLA
IRS990ScheduleI/RecipientTable/RecipientEIN0876000525
IRS990ScheduleI/RecipientTable/RecipientEIN1530204670
IRS990ScheduleI/RecipientTable/RecipientEIN2133223946
IRS990ScheduleI/RecipientTable/RecipientEIN3351955872
IRS990ScheduleI/RecipientTable/RecipientEIN4956006143
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0201 S Presidents Circle
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11731 Bunker Hill Rd NE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt2900 Crown Colony Drive
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt3950 N Meridian St
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt457 Westwood Plaza
IRS990ScheduleI/RecipientTable/USAddress/CityNm0Salt Lake City
IRS990ScheduleI/RecipientTable/USAddress/CityNm1Washington
IRS990ScheduleI/RecipientTable/USAddress/CityNm2Quincy
IRS990ScheduleI/RecipientTable/USAddress/CityNm3Indianapolis
IRS990ScheduleI/RecipientTable/USAddress/CityNm4Los Angeles
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0UT
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1DC
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2MA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd3IN
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd4CA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd084112
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd120017
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd202169
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd346202
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd490095
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0The Organization requires that grantees provide reports and substantiation for the funding provided.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0Monitoring procedures (Part I, line 2)
IRS990ScheduleI/Total501c3OrgCnt05
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Erin Coller and Daniel Coller are married.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1The IRS Form 990 is provided to all board members prior to filing.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2These documents are available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Other Professional Fees $61,851Research $103,161
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3List of other fees for services expenses Part IX line 11g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0714166

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