Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
990EZ • Fiscal year 2019 • EIN 46-2133007
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
Liabilities / Revenue
67th percentile
Higher debt load relative to revenue than 67% of similar nonprofits.
Net Margin
84th percentile
Higher net margin than 84% of similar nonprofits.
Top Officer Pay
77th percentile
Higher top officer pay than 77% of similar nonprofits.
Top officer pay equals 0.0% of source-year revenue.
Asset Growth
79th percentile
Faster asset growth than 79% of similar nonprofits.
Revenue Growth
32nd percentile
Faster revenue growth than 32% of similar nonprofits.
Assets
Up$165,371
Up $41,780 (+34%) from 2018
Net Assets
Up$163,768
Up $40,177 (+33%) from 2018
Liabilities
$1,603
No earlier filing loaded for comparison.
Revenue
Down$128,625
Down $16,455 (-11%) from 2018
Expenses
Down$88,448
Down $55,083 (-38%) from 2018
Net Income
Up$40,177
Up $38,628 (+2494%) from 2018
The corporation is a charitable corporation as defined in n.c. Gen. Stat. 55a-1-40(4) and is organized exclusively for one or more of the purposes specified in section 501(c)(3) of the internal revenue code of 1986 (or the corresponding provision of any future united states internal revenue law), including but not limited to improving the diagnosis,
| Description | Grants | Expenses |
|---|---|---|
| Promoting research to improve diagnoses & treatment through: Advocating Federal Funding for Rare Diseases,increase Patient Registry enrollment, Non-Drug research opportunities, and outreach;Helping patients & families with CCDS: Quarterly web newsletters, Online reasource Guides, etc. | $0 | $54,301 |
| Providing accurate and up to date information through: Attendance at Medical & Scientific Symposiums, & etc.;Publication of CCDS educational video, etc; Quarterly website updates;Public awareness campaigns in local communities. | $3,232 | $4,772 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| KIMBERLY TUMINELLO | Director Of Advocacy | PT | $0 | - | - |
| WHITNIE STRAUSS | President | PT | $0 | - | - |
| MELISSA PARKER | Financial Director | PT | $0 | - | - |
| HEIDI WALLIS | Vice-President | PT | $0 | - | - |
| LAURA TRUTOIU PHD | Director Of Research | PT | $0 | - | - |
“Conference expense 27688.”
“PROGRAM EXPENSE 13525.”
“PROFESSIONAL FEES 18307.”
“Operations expense 14522.”
“Mutual funds - american funds 4000305176 25721. 56174.”
“OTHER ASSETS 7646. 3652.”
“Payroll liabilities 0. 1603.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990EZ/ActivitiesNotPreviouslyRptInd | 0 | false |
| IRS990EZ/AddressChangeInd | 0 | X |
| IRS990EZ/BooksInCareOfDetail/PersonNm | 0 | MELISSA PARKER |
| IRS990EZ/BooksInCareOfDetail/PhoneNum | 0 | 6019422373 |
| IRS990EZ/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 2806 MORTON RANKIN COUNTY LINE ROAD |
| IRS990EZ/BooksInCareOfDetail/USAddress/CityNm | 0 | MORTON |
| IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | MS |
| IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 39117 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/BOYAmt | 0 | 90224 |
| IRS990EZ/CashSavingsAndInvestmentsGrp/EOYAmt | 0 | 105545 |
| IRS990EZ/ChgMadeToOrgnzngDocNotRptInd | 0 | false |
| IRS990EZ/ContributionsGiftsGrantsEtcAmt | 0 | 128625 |
| IRS990EZ/CostOfGoodsSoldAmt | 0 | 0 |
| IRS990EZ/CostOrOtherBasisExpenseSaleAmt | 0 | 0 |
| IRS990EZ/DonorAdvisedFndsInd | 0 | false |
| IRS990EZ/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990EZ/ExcessOrDeficitForYearAmt | 0 | 40177 |
| IRS990EZ/FiledScheduleAInd | 0 | true |
| IRS990EZ/ForeignFinancialAccountInd | 0 | false |
| IRS990EZ/ForeignOfficeInd | 0 | false |
| IRS990EZ/Form1120PolFiledInd | 0 | false |
| IRS990EZ/Form990TotalAssetsGrp/BOYAmt | 0 | 123591 |
| IRS990EZ/Form990TotalAssetsGrp/EOYAmt | 0 | 165371 |
| IRS990EZ/FundraisingGrossIncomeAmt | 0 | 0 |
| IRS990EZ/GainOrLossFromSaleOfAssetsAmt | 0 | 0 |
| IRS990EZ/GrossProfitLossSlsOfInvntryAmt | 0 | 0 |
| IRS990EZ/GrossReceiptsAmt | 0 | 128625 |
| IRS990EZ/GrossReceiptsForPublicUseAmt | 0 | 0 |
| IRS990EZ/InfoInScheduleOPartIIInd | 0 | X |
| IRS990EZ/InfoInScheduleOPartIInd | 0 | X |
| IRS990EZ/InitiationFeesAndCapContriAmt | 0 | 0 |
| IRS990EZ/InvestmentIncomeAmt | 0 | 0 |
| IRS990EZ/LobbyingActivitiesInd | 0 | false |
| IRS990EZ/MadeLoansToFromOfficersInd | 0 | false |
| IRS990EZ/MembershipDuesAmt | 0 | 0 |
| IRS990EZ/MethodOfAccountingCashInd | 0 | X |
| IRS990EZ/NetAssetsOrFundBalancesBOYAmt | 0 | 123591 |
| IRS990EZ/NetAssetsOrFundBalancesEOYAmt | 0 | 163768 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/BOYAmt | 0 | 123591 |
| IRS990EZ/NetAssetsOrFundBalancesGrp/EOYAmt | 0 | 163768 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 0 | 5.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 1 | 15.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 2 | 5.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 3 | 15.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/AverageHrsPerWkDevotedToPosRt | 4 | 20.00 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/CompensationAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/EmployeeBenefitProgramAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 0 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 1 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 2 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 3 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/ExpenseAccountOtherAllwncAmt | 4 | 0 |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 0 | KIMBERLY TUMINELLO |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 1 | WHITNIE STRAUSS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 2 | MELISSA PARKER |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 3 | HEIDI WALLIS |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/PersonNm | 4 | LAURA TRUTOIU PHD |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 0 | DIRECTOR OF ADVOCACY |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 1 | PRESIDENT |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 2 | FINANCIAL DIRECTOR |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 3 | VICE-PRESIDENT |
| IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt | 4 | DIRECTOR OF RESEARCH |
| IRS990EZ/OperateHospitalInd | 0 | false |
| IRS990EZ/Organization501c3Ind | 0 | X |
| IRS990EZ/OrganizationDissolvedEtcInd | 0 | false |
| IRS990EZ/OrganizationHadUBIInd | 0 | false |
| IRS990EZ/OtherAssetsTotalDetail/BOYAmt | 0 | 33367 |
| IRS990EZ/OtherAssetsTotalDetail/EOYAmt | 0 | 59826 |
| IRS990EZ/OtherExpensesTotalAmt | 0 | 74042 |
| IRS990EZ/PartVIHghstPdCntrctProfSrvcTxt | 0 | NONE |
| IRS990EZ/PartVIOfCompOfHghstPdEmplTxt | 0 | NONE |
| IRS990EZ/PoliticalCampaignActyInd | 0 | false |
| IRS990EZ/PrimaryExemptPurposeTxt | 0 | THE CORPORATION IS A CHARITABLE CORPORATION AS DEFINED IN N.C. GEN. STAT. 55A-1-40(4) AND IS ORGANIZED EXCLUSIVELY FOR ONE OR MORE OF THE PURPOSES SPECIFIED IN SECTION 501(C)(3) OF THE INTERNAL REVENUE CODE OF 1986 (OR THE CORRESPONDING PROVISION OF ANY FUTURE UNITED STATES INTERNAL REVENUE LAW), INCLUDING BUT NOT LIMITED TO IMPROVING THE DIAGNOSIS, |
| IRS990EZ/ProgramServiceRevenueAmt | 0 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | Providing accurate and up to date information through: Attendance at Medical & Scientific Symposiums, & etc.;Publication of CCDS educational video, etc; Quarterly website updates;Public awareness campaigns in local communities. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 1 | Promoting research to improve diagnoses & treatment through: Advocating Federal Funding for Rare Diseases,increase Patient Registry enrollment, Non-Drug research opportunities, and outreach;Helping patients & families with CCDS: Quarterly web newsletters, Online reasource Guides, etc. |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 0 | 3232 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt | 1 | 0 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 0 | 4772 |
| IRS990EZ/ProgramSrvcAccomplishmentGrp/ProgramServiceExpensesAmt | 1 | 54301 |
| IRS990EZ/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990EZ/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990EZ/SalariesOtherCompEmplBnftAmt | 0 | 14406 |
| IRS990EZ/ScheduleBNotRequiredInd | 0 | X |
| IRS990EZ/SchoolOperatingInd | 0 | false |
| IRS990EZ/SpecialEventsDirectExpensesAmt | 0 | 0 |
| IRS990EZ/SpecialEventsNetIncomeLossAmt | 0 | 0 |
| IRS990EZ/SubjectToProxyTaxInd | 0 | false |
| IRS990EZ/SumOfTotalLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990EZ/SumOfTotalLiabilitiesGrp/EOYAmt | 0 | 1603 |
| IRS990EZ/TanningServicesProvidedInd | 0 | false |
| IRS990EZ/TotalExpensesAmt | 0 | 88448 |
| IRS990EZ/TotalProgramServiceExpensesAmt | 0 | 59073 |
| IRS990EZ/TotalRevenueAmt | 0 | 128625 |
| IRS990EZ/TransactionWithControlEntInd | 0 | false |
| IRS990EZ/TrnsfrExmptNonChrtblRltdOrgInd | 0 | false |
| IRS990EZ/TypeOfOrganizationCorpInd | 0 | X |
| IRS990EZ/WebsiteAddressTxt | 0 | creatineinfo.org |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 128625 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 143223 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 95952 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 57312 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 49160 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 474272 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/InvestmentIncomeCYPct | 0 | 0.00000 |
| IRS990ScheduleA/OtherSupportSumAmt | 0 | 0 |
| IRS990ScheduleA/PubliclySupportedOrg509a2Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0 |
| IRS990ScheduleA/PublicSupportCY509Pct | 0 | 1.00000 |
| IRS990ScheduleA/PublicSupportTotal509Amt | 0 | 474272 |
| IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind | 0 | X |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt | 0 | 128625 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt | 0 | 143223 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 95952 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 57312 |
| IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 49160 |
| IRS990ScheduleA/Total509Grp/TotalAmt | 0 | 474272 |
| IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt | 0 | 474272 |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 0 | CONFERENCE EXPENSE 27688. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | PROGRAM EXPENSE 13525. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 2 | PROFESSIONAL FEES 18307. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 3 | OPERATIONS EXPENSE 14522. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 4 | MUTUAL FUNDS - AMERICAN FUNDS 4000305176 25721. 56174. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 5 | OTHER ASSETS 7646. 3652. |
| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 6 | PAYROLL LIABILITIES 0. 1603. |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 2 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 3 | Form 990EZ, Part I, Line 16 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 4 | Form 990EZ, Part II, Line 24 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 5 | Form 990EZ, Part II, Line 24 |
| IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc | 6 | Form 990EZ, Part II, Line 26 |
| ReturnHeader/BuildTS | 0 | 2021-01-29 14:40:06Z |
| ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd | 0 | true |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | MELISSA PARKER |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | FINANCIAL DIRECTOR |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 6019422373 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2020-11-11 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | ASSOCIATION FOR CREATINE DEFICIENCIES INC |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | ASSO |
| ReturnHeader/Filer/EIN | 0 | 462133007 |
| ReturnHeader/Filer/PhoneNum | 0 | 6019422373 |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 6965 EL CAMINO REAL |
| ReturnHeader/Filer/USAddress/CityNm | 0 | CARLSBAD |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 92009 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId | 0 | 81F3DC546622B56CCA17582F849C396C8DF05F39 |
| ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId | 0 | 81F3DC546622B56CCA17582F849C396C8DF05F39 |
| ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd | 0 | P |
| ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt | 0 | 68.228.81.20 |
| ReturnHeader/FilingSecurityInformation/IPDt | 0 | 2020-11-12 |
| ReturnHeader/FilingSecurityInformation/IPTimezoneCd | 0 | PS |
| ReturnHeader/FilingSecurityInformation/IPTm | 0 | 16:07:33 |
| ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt | 0 | Titanium Accounting Services |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt | 0 | 18100 VON KARMAN AVE SUITE 850 |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm | 0 | IRVINE |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd | 0 | CA |
| ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd | 0 | 92612 |
| ReturnHeader/PreparerPersonGrp/PhoneNum | 0 | 4158160044 |
| ReturnHeader/PreparerPersonGrp/PreparationDt | 0 | 2020-11-12 |
| ReturnHeader/PreparerPersonGrp/PreparerPersonNm | 0 | MARIDAY TARUC |
| ReturnHeader/PreparerPersonGrp/SelfEmployedInd | 0 | X |
| ReturnHeader/ReturnTs | 0 | 2020-11-12T16:07:45-08:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990EZ |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2019-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2019-12-31 |
| ReturnHeader/TaxYr | 0 | 2019 |
No mirrored PDF or thumbnail assets are attached yet.
Displayed year
2019 • Form 990EZDetailed filing. Detailed filing data is available for this year.