Civic Intelligence

Pitt Hopkins Research Foundation

EIN 46-0770142 • 501(c)3 • Winstonsalem, NC

Profile

Pitt hopkins research foundation's mission is to support research dedicated to finding a treatment and an eventual cure of pitt hopkins syndrome and other similar disorders. The organization's mission is to also support the pitt hopkins community with resource recommendations, parental support and the latest medical information.

200 Harmon CTWinstonsalem, NC 27106

www.pitthopkins.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

37th percentile

0.02x

Higher debt load relative to assets than 37% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

36th percentile

0.03x

Higher debt load relative to revenue than 36% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

92nd percentile

59%

Higher net margin than 92% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

Score unavailable

No value available

No filing with officer rows is available for this organization yet.

Asset Growth

78th percentile

20%

Faster asset growth than 78% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

95th percentile

163%

Faster revenue growth than 95% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets37th percentile

Assets

Up

$1,206,999

Up $71,192 (+6.3%) from 2023

Liabilities

Up

$338,207

Up $182,557 (+117%) from 2023

Net Assets

Down

$868,792

Down $111,365 (-11%) from 2023

Operations
Liabilities / Revenue36th percentileNet Margin92nd percentile

Revenue

Up

$598,736

Up $200,786 (+50%) from 2023

Expenses

Up

$710,101

Up $110,571 (+18%) from 2023

Net Income

Up

-$111,365

Up $90,215 (+45%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth78th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$1.5M$1.0M$500K$0Assets 2013: $186,289Liabilities 2013: $29,550Net Assets 2013: $156,7392013Assets 2014: $200,206Liabilities 2014: $170,000Net Assets 2014: $30,2062014Assets 2015: $327,257Liabilities 2015: $238,780Net Assets 2015: $88,4772015Assets 2016: $346,542Liabilities 2016: $78,100Net Assets 2016: $268,4422016Assets 2017: $523,975Liabilities 2017: $202,931Net Assets 2017: $321,0442017Assets 2018: $637,812Liabilities 2018: $226,225Net Assets 2018: $411,5872018Assets 2019: $793,081Liabilities 2019: $419,821Net Assets 2019: $373,2602019Assets 2020: $838,553Liabilities 2020: $237,661Net Assets 2020: $600,8922020Assets 2021: $1,004,696Liabilities 2021: $367,681Net Assets 2021: $637,0152021Assets 2022: $1,204,954Liabilities 2022: $23,217Net Assets 2022: $1,181,7372022Assets 2023: $1,135,807Liabilities 2023: $155,650Net Assets 2023: $980,1572023Assets 2024: $1,206,999Liabilities 2024: $338,207Net Assets 2024: $868,7922024

Highlighted filing

2024

Assets$1,206,999
Liabilities$338,207
Net Assets$868,792
Open 2024 Filing

Operations Trend

Revenue Growth95th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2013: $371,946Expenses 2013: $215,207Net Income 2013: $156,7392013Revenue 2014: $369,229Expenses 2014: $495,762Net Income 2014: -$126,5332014Revenue 2015: $348,194Expenses 2015: $289,923Net Income 2015: $58,2712015Revenue 2016: $291,324Expenses 2016: $131,862Net Income 2016: $159,4622016Revenue 2017: $418,729Expenses 2017: $366,127Net Income 2017: $52,6022017Revenue 2018: $530,225Expenses 2018: $439,682Net Income 2018: $90,5432018Revenue 2019: $493,775Expenses 2019: $532,102Net Income 2019: -$38,3272019Revenue 2020: $383,809Expenses 2020: $156,177Net Income 2020: $227,6322020Revenue 2021: $351,382Expenses 2021: $315,259Net Income 2021: $36,1232021Revenue 2022: $923,115Expenses 2022: $378,393Net Income 2022: $544,7222022Revenue 2023: $397,950Expenses 2023: $599,530Net Income 2023: -$201,5802023Revenue 2024: $598,736Expenses 2024: $710,101Net Income 2024: -$111,3652024

Highlighted filing

2024

Revenue$598,736
Expenses$710,101
Net Income-$111,365
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,206,999
Liabilities
$338,207
Net assets
$868,792
Revenue
$598,736
Expenses
$710,101
Net income
-$111,365
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.21$0.34$0.87$0.60$0.71$0.11
2023Detailed filing. Detailed filing data is available for this year.$1.14$0.16$0.98$0.40$0.60$0.20
2022Detailed filing. Detailed filing data is available for this year.$1.20$0.02$1.18$0.92$0.38$0.54
2021Detailed filing. Detailed filing data is available for this year.$1.00$0.37$0.64$0.35$0.32$0.04
2020Detailed filing. Detailed filing data is available for this year.$0.84$0.24$0.60$0.38$0.16$0.23
2019Detailed filing. Detailed filing data is available for this year.$0.79$0.42$0.37$0.49$0.53$0.04
2018Detailed filing. Detailed filing data is available for this year.$0.64$0.23$0.41$0.53$0.44$0.09
2017Detailed filing. Detailed filing data is available for this year.$0.52$0.20$0.32$0.42$0.37$0.05
2016Detailed filing. Detailed filing data is available for this year.$0.35$0.08$0.27$0.29$0.13$0.16
2015Detailed filing. Detailed filing data is available for this year.$0.33$0.24$0.09$0.35$0.29$0.06
2014Detailed filing. Detailed filing data is available for this year.$0.20$0.17$0.03$0.37$0.50$0.13
2013Detailed filing. Detailed filing data is available for this year.$0.19$0.03$0.16$0.37$0.22$0.16
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Mar 25, 2025
Return Version
2024v5.1
Gross Receipts
$598,736
Mission and Program Overview

Mission

Pitt hopkins research foundation's mission is to support research dedicated to finding a treatment and an eventual cure of pitt hopkins syndrome and other similar disorders. The organization's mission is to also support the pitt hopkins community with resource recommendations, parental support and the latest medical information.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,123,945$1,202,145▲ $78,200
Accounts Receivable$11,862--
Prepaid Expenses and Deferred Charges-$4,854-
Total Assets$1,135,807$1,206,999▲ $71,192
Liabilities
Other Liabilities$20,766$193,207▲ $172,441
Grants Payable$134,884$145,000▲ $10,116
Total Liabilities$155,650$338,207▲ $182,557
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$980,157$868,792▼ $111,365
Total Net Assets Fund Balance$980,157$868,792▼ $111,365
Total Liabilities and Net Assets / Fund Balance$1,135,807$1,206,999▲ $71,192
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Audrey Davidow LapidusPresident and DirectorPT$50,000$50,000
Jessica FletcherVice President and DirectorPT$6,000$6,000

Board Members and Trustees

NameTitle
Theresa PaucaVice President and Director
Aimee Ramos-martinezDirector
Claudette MiriglianiDirector
Diane KrellDirector
Stefanie Izzi Until 0224Director
Traci GreenDirector
Heather MaginnSecretary and Director
Diane SellewTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$532,196
Program Service Revenue
$0
Investment Income
$12,334
Other Revenue
$54,206
All Other Contributions
$532,196
Change in Net Assets
$-111,365

Audited Revenue Reconciliation

Revenue per Audited Statements
$598,736
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$0
Total Revenue per Audited Statements
$598,736
Total Revenue per Form 990
$598,736
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$423,223
Other Expenses$232,717
Salaries, Compensation, and Employee Benefits$54,161
Total Fundraising Expense$19,287
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$346,723--$346,723
Fees for Services Other$99,343-$853$100,196
Conferences and Meetings$85,758--$85,758
Foreign Grants$76,500--$76,500
Current Officers, Directors, Trustees, and Key Employees$40,000$5,000$5,000$50,000
Fees for Services Legal$16,400--$16,400
Fees for Services Accounting-$12,400-$12,400
Payroll Taxes$3,329$416$416$4,161
Other Expenses$1,942$1,571$100$3,613
Insurance-$350-$350
Total Functional Expenses$669,995$20,819$19,287$710,101

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$710,101
Total Expenses per Audited Statements$710,101
Total Expenses per Form 990$710,101
Expenses Not Reported on Financial Statements$0
Expenses Not Reported on Form 990$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Asu Foundation for a New American UniversityTempe, AZ501(c)(3)To Support Research Projects on Pitt Hopkins Syndrome$293,207
University of California - DavisDavis, CA501(c)(3)To Support Research Projects on Pitt Hopkins Syndrome$50,516
The University of PennsylvaniaPhiladelphia, PA501(c)(3)To Support Million Dollar Bike Ride at Upenn for Support of Pitt Hopkins Syndrome$3,000

International Summary

Offices
0
Employees
0
Spending
$0

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Contribution Payable, Net$193,207
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Treasurer, diane sellew is an aunt to audrey lapidus, president.”

Form 990, Part VI, Section B, Line 11B

“Upon completion, form 990 will be reviewed by the members of the executive committee. After any necessary revisions are made, a complete copy will be sent to all board members (via email) for their review prior to filing.”

Form 990, Part VI, Section B, Line 12C

“The president regularly and consistently monitors compliance with conflicts of interest by requesting all officers, directors and founders to disclose annuallly all interests that might conflict with any interest of the organization. When a conflict arises, the board member is excluded from the discussions.”

Form 990, Part VI, Section B, Line 15A

“The board approved the president's salary.”

Form 990, Part VI, Section C, Line 19

“The governing documents, conflict of interest policy and financial statements are made available to the public upon request.”

Filing and Contact Details

Filer

Filer Name
Pitt Hopkins Research Foundation
EIN
46-0770142
Phone
3367602016
Address
200 HARMON CT, WINSTONSALEM, NC 27106

Signing Officer

Name
Diane Sellew
Title
Treasurer
Phone
3367602016
Signed
2025-03-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Diane Sellew
Formed
2012
Legal Domicile
Nc
Voting Board Members
9
Independent Board Members
8
Employees
1
Volunteers
9

Preparer

Firm
Pozerski Hatch & Company
Address
100 LEDGEWOOD PLACE SUITE 304, ROCKLAND, MA 02370
Preparer
Michelle Hatch
Phone
7814801430
Supplemental Narrative

Additional Explanations

Form 990, Part IX, Line 11G

“Website design: program service expenses 0. Management and general expenses 0. Fundraising expenses 853. Total expenses 853. Contract research: program service expenses 99,343. Management and general expenses 0. Fundraising expenses 0. Total expenses 99,343.”

Raw XML AppendixShowing 400 of 481 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/NetAssetsOrFundBalancesBOYAmt0980157
IRS990/NetAssetsOrFundBalancesEOYAmt0868792
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0980157
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0868792
IRS990/NondeductibleContributionsInd00
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0BANK AND OTHER FEES
IRS990/OtherExpensesGrp/Desc1MISCELLANEOUS
IRS990/OtherExpensesGrp/FundraisingAmt012918
IRS990/OtherExpensesGrp/FundraisingAmt1100
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01082
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11571
IRS990/OtherExpensesGrp/ProgramServicesAmt01942
IRS990/OtherExpensesGrp/TotalAmt014000
IRS990/OtherExpensesGrp/TotalAmt13613
IRS990/OtherLiabilitiesGrp/BOYAmt020766
IRS990/OtherLiabilitiesGrp/EOYAmt0193207
IRS990/OtherRevenueMiscGrp/BusinessCd0900099
IRS990/OtherRevenueMiscGrp/BusinessCd1900099
IRS990/OtherRevenueMiscGrp/Desc0CONFERENCE SPONSORS AN
IRS990/OtherRevenueMiscGrp/Desc1REFUND ON PRIOR YEAR G
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt043161
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt111045
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt043161
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt111045
IRS990/OtherRevenueTotalAmt054206
IRS990/PartialLiquidationInd00
IRS990/PayrollTaxesGrp/FundraisingAmt0416
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0416
IRS990/PayrollTaxesGrp/ProgramServicesAmt03329
IRS990/PayrollTaxesGrp/TotalAmt04161
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt04854
IRS990/PrincipalOfficerNm0DIANE SELLEW
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0THE ORGANIZATION HELD A RESEARCH CONFERENCE IN 2024 ATTENDED BY APPROXIMATELY 200 INDIVIDUALS IN DENVER, COLORADO CONSISTING OF A SCIENTIFIC SYMPOSIUM, RESEARCH UPDATES, FAMILY TOPICS AND OTHER COMMUNITY DEVELOPMENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt085758
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt043161
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0386322
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0451452
IRS990/PYInvestmentIncomeAmt011628
IRS990/PYOtherExpensesAmt093988
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-201580
IRS990/PYSalariesCompEmpBnftPaidAmt054090
IRS990/PYTotalExpensesAmt0599530
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0397950
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-111365
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt011045
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS REVENUE: 2020 AMOUNT: $820 2021 AMOUNT: $5,303 2022 AMOUNT: $19,988 2024 AMOUNT: $54,206
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION FOR OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0532196
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0386322
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0902244
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0345080
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0379284
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt02545126
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt012334
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt011628
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt0873
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt0999
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt0394
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt026228
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt054206
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt019988
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt05303
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0820
IRS990ScheduleA/OtherIncome170Grp/TotalAmt080317
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.85700
IRS990ScheduleA/PublicSupportPY170Pct00.90720
IRS990ScheduleA/PublicSupportTotal170Amt02272474
IRS990ScheduleA/SubstantialContributorsTotAmt0272652
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0532196
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0386322
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0902244
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0345080
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0379284
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt02545126
IRS990ScheduleA/TotalSupportAmt02651671
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/ExpensesNotReportedAmt00
IRS990ScheduleD/ExpensesNotRptFinclStmtAmt00
IRS990ScheduleD/ExpensesSubtotalAmt0710101
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0193207
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0CONTRIBUTION PAYABLE, NET
IRS990ScheduleD/RevenueNotReportedAmt00
IRS990ScheduleD/RevenueNotReportedFinclStmtAmt00
IRS990ScheduleD/RevenueSubtotalAmt0598736
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0710101
IRS990ScheduleD/TotalLiabilityAmt0193207
IRS990ScheduleD/TotalRevenuePerForm990Amt0598736
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0598736
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0710101
IRS990ScheduleF/BoycottCountriesInd00
IRS990ScheduleF/ContinuationSpentAmt00
IRS990ScheduleF/ContinuationTotalEmployeeCnt00
IRS990ScheduleF/ContinuationTotalOfficeCnt00
IRS990ScheduleF/ForeignCorpOwnershipInd00
IRS990ScheduleF/ForeignPartnershipInd00
IRS990ScheduleF/GrantRecordsMaintainedInd01
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt036500
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/CashGrantAmt140000
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt00
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/NonCashAssistanceAmt10
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt0TO SUPPORT RESEARCH PROJECTS ON PITT HOPKINS SYNDROME
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/PurposeOfGrantTxt1TO SUPPORT RESEARCH PROJECTS ON PITT HOPKINS SYNDROME
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt0MIDDLE EAST AND NORTH AFRICA - ALGERIA, BAHRAIN, DJIBOUTI, EGYPT,
IRS990ScheduleF/GrantsToOrgOutsideUSGrp/RegionTxt1SOUTH AMERICA - ARGENTINA, BOLIVIA, BRAZIL, CHILE, COLUMBIA, ECUADOR,
IRS990ScheduleF/InterestInForeignTrustInd00
IRS990ScheduleF/PassiveForeignInvestmestCoInd00
IRS990ScheduleF/SubtotalEmployeesCnt00
IRS990ScheduleF/SubtotalOfficesCnt00
IRS990ScheduleF/SubtotalSpentAmt00
IRS990ScheduleF/SupplementalInformationDetail/ExplanationTxt0THE RESEARCHERS AT THE ORGANIZATIONS PARTICIPATE IN REGULARLY-SCHEDULED "COLLABORATION CALLS" WITH AUDREY DAVIDOW LAPIDUS AND THERESA PAUCA. THE PRESIDENT AND VICE PRESIDENT OF THE PITT HOPKINS RESEARCH FOUNDATION ALSO CORRESPOND THROUGH EMAIL WITH THE RESEARCHERS ON A WEEKLY, MONTHLY OR BI-MONTHLY BASIS (DEPENDING ON THE ORGANIZATION) TO MONITOR THE USE OF THE GRANT FUNDS.
IRS990ScheduleF/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleF/TotalEmployeeCnt00
IRS990ScheduleF/TotalOfficeCnt00
IRS990ScheduleF/TotalSpentAmt00
IRS990ScheduleF/TransferToForeignCorpInd00
IRS990ScheduleI/GrantRecordsMaintainedInd01
IRS990ScheduleI/RecipientTable/CashGrantAmt050516
IRS990ScheduleI/RecipientTable/CashGrantAmt1293207
IRS990ScheduleI/RecipientTable/CashGrantAmt23000
IRS990ScheduleI/RecipientTable/IRCSectionDesc0501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc1501(C)(3)
IRS990ScheduleI/RecipientTable/IRCSectionDesc2501(C)(3)
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt10
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt20
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0TO SUPPORT RESEARCH PROJECTS ON PITT HOPKINS SYNDROME
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1TO SUPPORT RESEARCH PROJECTS ON PITT HOPKINS SYNDROME
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt2TO SUPPORT MILLION DOLLAR BIKE RIDE AT UPENN FOR SUPPORT OF PITT HOPKINS SYNDROME
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF CALIFORNIA - DAVIS
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1ASU FOUNDATION FOR A NEW AMERICAN UNIVERSITY
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2THE UNIVERSITY OF PENNSYLVANIA
IRS990ScheduleI/RecipientTable/RecipientEIN0946036494
IRS990ScheduleI/RecipientTable/RecipientEIN1866051042
IRS990ScheduleI/RecipientTable/RecipientEIN2231352685
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt01850 RESEARCH PARK DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1PO BOX 2260
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt21500 MARKET STREET WEST TOWER 12TH
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt0FLOOR
IRS990ScheduleI/RecipientTable/USAddress/CityNm0DAVIS
IRS990ScheduleI/RecipientTable/USAddress/CityNm1TEMPE
IRS990ScheduleI/RecipientTable/USAddress/CityNm2PHILADELPHIA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0CA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1AZ
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd2PA
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd095618
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd185280
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd219102
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THE RESEARCHERS AT THE DIFFERENT ORGANIZATIONS PARTICIPATE IN THE REGULARLY-SCHEDULED "COLLABORATION CALLS" WITH AUDREY DAVIDOW LAPIDUS AND THERESA PAUCA. THE PRESIDENT AND VICE PRESIDENT OF THE PITT HOPKINS RESEARCH FOUNDATION ALSO CORRESPOND THROUGH EMAIL WITH THE RESEARCHERS ON A WEEKLY, MONTHLY OR BI-MONTHLY BASIS (DEPENDING ON THE ORGANIZATION) TO MONITOR THE USE OF THE GRANT FUNDS.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/Total501c3OrgCnt03
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0TREASURER, DIANE SELLEW IS AN AUNT TO AUDREY LAPIDUS, PRESIDENT.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1UPON COMPLETION, FORM 990 WILL BE REVIEWED BY THE MEMBERS OF THE EXECUTIVE COMMITTEE. AFTER ANY NECESSARY REVISIONS ARE MADE, A COMPLETE COPY WILL BE SENT TO ALL BOARD MEMBERS (VIA EMAIL) FOR THEIR REVIEW PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2THE PRESIDENT REGULARLY AND CONSISTENTLY MONITORS COMPLIANCE WITH CONFLICTS OF INTEREST BY REQUESTING ALL OFFICERS, DIRECTORS AND FOUNDERS TO DISCLOSE ANNUALLLY ALL INTERESTS THAT MIGHT CONFLICT WITH ANY INTEREST OF THE ORGANIZATION. WHEN A CONFLICT ARISES, THE BOARD MEMBER IS EXCLUDED FROM THE DISCUSSIONS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE BOARD APPROVED THE PRESIDENT'S SALARY.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4THE GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS ARE MADE AVAILABLE TO THE PUBLIC UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5WEBSITE DESIGN: PROGRAM SERVICE EXPENSES 0. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 853. TOTAL EXPENSES 853. CONTRACT RESEARCH: PROGRAM SERVICE EXPENSES 99,343. MANAGEMENT AND GENERAL EXPENSES 0. FUNDRAISING EXPENSES 0. TOTAL EXPENSES 99,343.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION B, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PART VI, SECTION C, LINE 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PART IX, LINE 11G
IRS990/SchoolOperatingInd00
IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NC

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