Civic Intelligence

Cure Dystonia Now Inc

990 • Fiscal year 2016 • EIN 45-5000038

Jan 01, 2016 to Dec 31, 2016 • Filed on Nov 14, 2017

Organization ProfileWWW.CUREDYSTONIANOW.ORG
201 Old Country Rd No 205Melville, NY 11747

(516) 584-4156

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

56th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Liabilities / Revenue

55th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Net Margin

80th percentile

24%

Higher net margin than 80% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Top Officer Pay

75th percentile

$0

Higher top officer pay than 75% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • <$500k nonprofits • Source year 2016

Asset Growth

63rd percentile

9.8%

Faster asset growth than 63% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Revenue Growth

46th percentile

-1.3%

Faster revenue growth than 46% of similar nonprofits.

2016 filings • 501(c)3 • <$500k nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets56th percentile

Assets

Up

$429,393

Up $38,430 (+9.8%) from 2015

Net Assets

Up

$429,393

Up $38,430 (+9.8%) from 2015

Liabilities

Flat

$0

Flat from 2015

Revenue And Expenses
Liabilities / Revenue55th percentileNet Margin80th percentile

Revenue

Down

$162,040

Down $2,126 (-1.3%) from 2015

Expenses

Up

$123,610

Up $48,463 (+64%) from 2015

Net Income

Down

$38,430

Down $50,589 (-57%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth63rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$600K$400K$200K$0Assets 2012: $138,372Liabilities 2012: $0Net Assets 2012: $138,3722012Assets 2013: $304,487Liabilities 2013: $0Net Assets 2013: $304,4872013Assets 2014: $301,944Liabilities 2014: $0Net Assets 2014: $301,9442014Assets 2015: $390,963Liabilities 2015: $0Net Assets 2015: $390,9632015Assets 2016: $429,393Liabilities 2016: $0Net Assets 2016: $429,3932016Assets 2017: $475,663Liabilities 2017: $0Net Assets 2017: $475,6632017Assets 2018: $491,483Liabilities 2018: $0Net Assets 2018: $491,4832018Assets 2019: $512,850Liabilities 2019: $0Net Assets 2019: $512,8502019Assets 2020: $435,178Liabilities 2020: $0Net Assets 2020: $435,1782020Assets 2021: $88,048Liabilities 2021: $0Net Assets 2021: $88,0482021Assets 2022: $0Liabilities 2022: $0Net Assets 2022: $02022

Highlighted filing

2016

Assets$429,393
Liabilities$0
Net Assets$429,393
Open 2016 Filing

Operations Trend

Revenue Growth46th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.0M$500K$0-$500KRevenue 2012: $143,175Expenses 2012: $4,803Net Income 2012: $138,3722012Revenue 2013: $219,542Expenses 2013: $53,427Net Income 2013: $166,1152013Revenue 2014: $171,369Expenses 2014: $173,912Net Income 2014: -$2,5432014Revenue 2015: $164,166Expenses 2015: $75,147Net Income 2015: $89,0192015Revenue 2016: $162,040Expenses 2016: $123,610Net Income 2016: $38,4302016Revenue 2017: $169,006Expenses 2017: $122,736Net Income 2017: $46,2702017Revenue 2018: $174,121Expenses 2018: $158,301Net Income 2018: $15,8202018Revenue 2019: $156,905Expenses 2019: $135,538Net Income 2019: $21,3672019Revenue 2020: $90,828Expenses 2020: $168,500Net Income 2020: -$77,6722020Revenue 2021: $180,712Expenses 2021: $527,842Net Income 2021: -$347,1302021Revenue 2022: $3,774Expenses 2022: $91,822Net Income 2022: -$88,0482022

Highlighted filing

2016

Revenue$162,040
Expenses$123,610
Net Income$38,430
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Nov 14, 2017
Return Version
2016v3.0
Gross Receipts
$220,832
Mission and Program Overview

Mission

Cure dystonia now inc. Is committed to advancing research for more and/or improved treatments, and ultimately a cure, for dystonia.

The foundation will raise money and use that money to help advance research for more and/or improved treatments for those afflicted with dystonia, and support efforts to cure the disorder. It will also help support the needs and well-being of affected individuals and families. The foundation will likely team up with and support other dystonia charities, such as tyler's hope and the dystonia medical reserach foundation in its efforts to advance research for more and/or improved treatments and ultimately a cure. Among other things, the foundation will likely fund individual drug studies in this regard.

Balance Sheet Detail
LineBeginningEndChange
Assets
Rtn Earn Endowment Incm Other Fnds$390,963$429,393▲ $38,430
Savings and Temporary Cash Investments$341,008$384,117▲ $43,109
Cash and Non-Interest-Bearing Accounts$49,955$45,276▼ $4,679
Pd in Cap Srpls Land Bldg Eqp Fund$0$0→ $0
Cap Stk Tr Prin Current Funds$0$0→ $0
Total Assets$390,963$429,393▲ $38,430
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Total Net Assets Fund Balance$390,963$429,393▲ $38,430
Total Liabilities and Net Assets / Fund Balance$390,963$429,393▲ $38,430
Compensation and Service Providers
Top Officer Pay75th percentile

Board Members and Trustees

NameTitle
Robin MillerCo-president
Marc MillerCo-president, Treasurer & Sct
Sidney MillerVice President
Revenue and Support

Revenue Composition

Contributions and Grants
$172,893
Program Service Revenue
$0
Investment Income
$59
Other Revenue
$-10,912
All Other Contributions
$154,343
Change in Net Assets
$38,430
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$105,000
Other Expenses$18,610
Total Fundraising Expense$12,713
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$105,000--$105,000
Fees for Services Accounting-$3,000-$3,000
Insurance-$1,628-$1,628
Conferences and Meetings-$860-$860
Fees for Services Other-$85-$85
Other Expenses-$27$12,691$27
All Other Expenses--$22$22
Total Functional Expenses$105,000$5,897$12,713$123,610
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Emory University School of MedicineAtlanta, GA501(c)(3)Perform Preclinical Testing of Fda-approved Drugs That Have Promise as Treatments for Dyt1 Dystonia.$65,000
Dystonia Medical Research FoundationChicago, IL501(c)(3)Perform Research on Why a Protein in the Brain Called Torsina Causes Dystonia When Abnormal Due to a Mutation in the Dyt1 Gene. Understanding the Role of Torsina in Dystonia May Lead to New Therapeutic Strategies to Provide Relief to Affected Patients.$40,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$58,792
Fundraising Gross Income$47,880
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
ROCKIN'FOR A CURE 2016$66,430$47,880$26,680$21,200
Total Events$66,430$47,880$58,792$-10,912
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Sidney miller is marc miller's father robin miller and marc miller are husband and wife”

Form 990, Part VI, Section B, Line 11B

“A copy of the organizations form 990 is sent to the governing body via pdf format prior to filing.”

Form 990, Part VI, Section B, Line 12C

“At each annual meeting of the board, each board member confirms that they have read and are in compliance with the foundation's conflict of interest policy. This is reflected in the board minutes.”

Form 990, Part VI, Section C, Line 19

“The organization will make it's governing documents, conflict of interest policy and financial statements available on its website as well as upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Dystonia Now Inc
EIN
45-5000038
Phone
5165844156
Address
201 OLD COUNTRY RD NO 205, MELVILLE, NY 11747

Signing Officer

Name
Marc Miller
Title
Treasurer
Phone
5165844156
Signed
2017-11-14
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Marc Miller
Formed
2012
Legal Domicile
Ny
Voting Board Members
3
Independent Board Members
3
Employees
0
Volunteers
0

Preparer

Firm
Marks Paneth Llp
Address
88 FROEHLICH FARM BLVD, WOODBURY, NY 11797
Preparer
Saul Michael P
Phone
5169925900
Raw XML Appendix360 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0PERFORM PRECLINICAL TESTING OF FDA-APPROVED DRUGS THAT HAVE PROMISE AS TREATMENTS FOR DYT1 DYSTONIA.
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt1PERFORM RESEARCH ON WHY A PROTEIN IN THE BRAIN CALLED TORSINA CAUSES DYSTONIA WHEN ABNORMAL DUE TO A MUTATION IN THE DYT1 GENE. UNDERSTANDING THE ROLE OF TORSINA IN DYSTONIA MAY LEAD TO NEW THERAPEUTIC STRATEGIES TO PROVIDE RELIEF TO AFFECTED PATIENTS.
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0EMORY UNIVERSITY SCHOOL OF MEDICINE
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1DYSTONIA MEDICAL RESEARCH FOUNDATION
IRS990ScheduleI/RecipientTable/RecipientEIN0580566256
IRS990ScheduleI/RecipientTable/RecipientEIN1953378526
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0101 WOODRUFF CIRCLE WOODRUFF
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt11 E WACKER DR STE 2810
IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt0MEMORIAL BUILDING RM 6303
IRS990ScheduleI/RecipientTable/USAddress/CityNm0ATLANTA
IRS990ScheduleI/RecipientTable/USAddress/CityNm1CHICAGO
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0GA
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd1IL
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd0303223090
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd160601
IRS990ScheduleI/SupplementalInformationDetail/ExplanationTxt0THERE IS A FORMAL GRANT REVIEW PROCESS. ALL DISBURSEMENTS ARE DOCUMENTED. GRANTEES ARE REQUIRED TO WRITE ANNUAL UPDATES ON THEIR PROGRESS AS WELL AS THE GOALS ACHIEVED. FUTURE GRANT AWARDS ARE CONTINGENT ON ACHIEVEMENT OF SPECIFIC MILESTONES.
IRS990ScheduleI/SupplementalInformationDetail/FormAndLineReferenceDesc0PART I, LINE 2:
IRS990ScheduleI/TotalOtherOrgCnt00
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0SIDNEY MILLER IS MARC MILLER'S FATHER ROBIN MILLER AND MARC MILLER ARE HUSBAND AND WIFE
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1A COPY OF THE ORGANIZATIONS FORM 990 IS SENT TO THE GOVERNING BODY VIA PDF FORMAT PRIOR TO FILING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2AT EACH ANNUAL MEETING OF THE BOARD, EACH BOARD MEMBER CONFIRMS THAT THEY HAVE READ AND ARE IN COMPLIANCE WITH THE FOUNDATION'S CONFLICT OF INTEREST POLICY. THIS IS REFLECTED IN THE BOARD MINUTES.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3THE ORGANIZATION WILL MAKE IT'S GOVERNING DOCUMENTS, CONFLICT OF INTEREST POLICY AND FINANCIAL STATEMENTS AVAILABLE ON ITS WEBSITE AS WELL AS UPON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990, PART VI, SECTION A, LINE 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PART VI, SECTION B, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PART VI, SECTION B, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PART VI, SECTION C, LINE 19
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IRS990/SignificantChangeInd00
IRS990/SignificantNewProgramSrvcInd00
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToProxyTaxInd00
IRS990/TaxablePartyNotificationInd00
IRS990/TaxExemptBondsInd00
IRS990/TempOrPermanentEndowmentsInd00
IRS990/TerminateOperationsInd00
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IRS990/TotalAssetsGrp/BOYAmt0390963
IRS990/TotalAssetsGrp/EOYAmt0429393
IRS990/TotalCompGreaterThan150KInd00
IRS990/TotalContributionsAmt0172893
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt012713
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt05897
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt0105000
IRS990/TotalFunctionalExpensesGrp/TotalAmt0123610
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt00
IRS990/TotalLiabilitiesEOYAmt00
IRS990/TotalLiabilitiesGrp/BOYAmt00
IRS990/TotalLiabilitiesGrp/EOYAmt00
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IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0429393
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0105000
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt0-10853
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0162040
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt00
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IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0429393
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/TypeOfOrganizationCorpInd0X
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
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IRS990/USAddress/CityNm0MELVILLE
IRS990/USAddress/StateAbbreviationCd0NY
IRS990/USAddress/ZIPCd011747
IRS990/VotingMembersGoverningBodyCnt03
IRS990/VotingMembersIndependentCnt03
IRS990/WebsiteAddressTxt0WWW.CUREDYSTONIANOW.ORG
IRS990/WhistleblowerPolicyInd00
ReturnHeader/BuildTS02017-02-10 21:41:12Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0MARC MILLER
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0TREASURER
ReturnHeader/BusinessOfficerGrp/PhoneNum05165844156
ReturnHeader/BusinessOfficerGrp/SignatureDt02017-11-14
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0CURE DYSTONIA NOW INC
ReturnHeader/Filer/BusinessNameControlTxt0CURE
ReturnHeader/Filer/EIN0455000038
ReturnHeader/Filer/PhoneNum05165844156
ReturnHeader/Filer/USAddress/AddressLine1Txt0201 OLD COUNTRY RD NO 205
ReturnHeader/Filer/USAddress/CityNm0MELVILLE
ReturnHeader/Filer/USAddress/StateAbbreviationCd0NY
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ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0254F62976FD672173651898391CF8868E7E4DF2F
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0376B160055706F7989534DA6408BADED8093007B
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt065.51.91.162
ReturnHeader/FilingSecurityInformation/IPDt02017-11-14
ReturnHeader/FilingSecurityInformation/IPTimezoneCd0ES
ReturnHeader/FilingSecurityInformation/IPTm015:23:40
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0113518842
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0MARKS PANETH LLP
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt088 FROEHLICH FARM BLVD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0WOODBURY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0NY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd011797
ReturnHeader/PreparerPersonGrp/PhoneNum05169925900
ReturnHeader/PreparerPersonGrp/PreparationDt02017-11-14
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0SAUL MICHAEL P
ReturnHeader/ReturnTs02017-11-15T13:02:49-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02016-01-01
ReturnHeader/TaxPeriodEndDt02016-12-31
ReturnHeader/TaxYr02016

Document Assets

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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$429,393
Liabilities
$0
Net assets
$429,393
Revenue
$162,040
Expenses
$123,610
Net income
$38,430
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Detailed filing. Detailed filing data is available for this year.$0.00$0.00$0.00$0.04$0.92$0.88
2021Detailed filing. Detailed filing data is available for this year.$0.88$0.00$0.88$1.81$5.28$3.47
2020Detailed filing. Detailed filing data is available for this year.$4.35$0.00$4.35$0.91$1.69$0.78
2019Detailed filing. Detailed filing data is available for this year.$5.13$0.00$5.13$1.57$1.36$0.21
2018Detailed filing. Detailed filing data is available for this year.$4.91$0.00$4.91$1.74$1.58$0.16
2017Detailed filing. Detailed filing data is available for this year.$4.76$0.00$4.76$1.69$1.23$0.46
2016Detailed filing. Detailed filing data is available for this year.$4.29$0.00$4.29$1.62$1.24$0.38
2015Detailed filing. Detailed filing data is available for this year.$3.91$0.00$3.91$1.64$0.75$0.89
2014Detailed filing. Detailed filing data is available for this year.$3.02$0.00$3.02$1.71$1.74$0.03
2013Detailed filing. Detailed filing data is available for this year.$3.04$0.00$3.04$2.20$0.53$1.66
2012Summary only. Only limited summary data is available for this year.$1.38$0.00$1.38$1.43$0.05$1.38