Civic Intelligence

Rare Genomics Institute Inc

EIN 45-3624709 • 501(c)3 • Hanover, MD

Profile

Our mission is to support undiagnosed and rare disease patients access genetic sequencing tests, analysis and research to get diagnosed and cured.

2657 Annapolis Road Suite G-105Hanover, MD 21076

www.raregenomics.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2020

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2020

Net Margin

95th percentile

80%

Higher net margin than 95% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2020

Top Officer Pay

92nd percentile

$39,800

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 72.8% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2018

Asset Growth

86th percentile

49%

Faster asset growth than 86% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Revenue Growth

81st percentile

40%

Faster revenue growth than 81% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets60th percentile

Assets

Up

$86,506

Up $28,487 (+49%) from 2019

Liabilities

Flat

$0

Flat from 2019

Net Assets

-

No earlier filing loaded for comparison.

Operations
Liabilities / Revenue62nd percentileNet Margin95th percentile

Revenue

Up

$35,468

Up $10,215 (+40%) from 2019

Expenses

Down

$6,981

Down $37,355 (-84%) from 2019

Net Income

Up

$28,487

Up $47,570 (+249%) from 2019

Trend Graphs

Balance Sheet Trend

Asset Growth86th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$200K$150K$100K$50K$0Assets 2013: $125,812Liabilities 2013: $0Net Assets 2013: $125,8122013Assets 2014: $168,289Liabilities 2014: $0Net Assets 2014: $168,2892014Assets 2015: $195,538Liabilities 2015: $916Net Assets 2015: $194,6222015Assets 2016: $61,865Liabilities 2016: $0Net Assets 2016: $61,8652016Assets 2017: $79,219Liabilities 2017: $490Net Assets 2017: $78,7292017Assets 2018: $69,572Liabilities 2018: $0Net Assets 2018: $69,5722018Assets 2019: $58,019Liabilities 2019: $02019Assets 2020: $86,506Liabilities 2020: $02020

Highlighted filing

2020

Assets$86,506
Liabilities$0
Net Assets-
Open 2020 Filing

Operations Trend

Revenue Growth81st percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$400K$200K$0-$200KRevenue 2013: $223,024Expenses 2013: $166,759Net Income 2013: $56,2652013Revenue 2014: $119,053Expenses 2014: $39,026Net Income 2014: $80,0272014Revenue 2015: $282,896Expenses 2015: $256,562Net Income 2015: $26,3342015Revenue 2016: $38,194Expenses 2016: $167,911Net Income 2016: -$129,7172016Revenue 2017: $79,694Expenses 2017: $66,663Net Income 2017: $13,0312017Revenue 2018: $54,684Expenses 2018: $63,841Net Income 2018: -$9,1572018Revenue 2019: $25,253Expenses 2019: $44,336Net Income 2019: -$19,0832019Revenue 2020: $35,468Expenses 2020: $6,981Net Income 2020: $28,4872020

Highlighted filing

2020

Revenue$35,468
Expenses$6,981
Net Income$28,487
Open 2020 Filing

Filings

Most recent year

2020 • Form 990EZSummary only. Only limited summary data is available for this year.

Open filing
Assets
$86,506
Liabilities
$0
Net assets
-
Revenue
$35,468
Expenses
$6,981
Net income
$28,487
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2020Summary only. Only limited summary data is available for this year.$0.87$0.00$0.35$0.07$0.28
2019Summary only. Only limited summary data is available for this year.$0.58$0.00$0.25$0.44$0.19
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.70$0.00$0.70$0.55$0.64$0.09
2017Summary only. Only limited summary data is available for this year.$0.79$0.00$0.79$0.80$0.67$0.13
2016Summary only. Only limited summary data is available for this year.$0.62$0.00$0.62$0.38$1.68$1.30
2015Detailed filing. Detailed filing data is available for this year.$1.96$0.01$1.95$2.83$2.57$0.26
2014Detailed filing. Detailed filing data is available for this year.$1.68$0.00$1.68$1.19$0.39$0.80
2013Summary only. Only limited summary data is available for this year.$1.26$0.00$1.26$2.23$1.67$0.56
Latest Detailed Filing

The latest 2020 filing currently has summary financial data only. Showing the latest detailed filing from 2015 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2015 to Dec 31, 2015
Signed
Aug 15, 2016
Return Version
2015v2.1
Gross Receipts
$282,896
Mission and Program Overview

Mission

Our mission is to support undiagnosed and rare disease patients access genetic sequencing tests, analysis and research to get diagnosed and cured.

Our mission is to help patients secure funding and to obtain a genetic sequence of their rare disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$168,288$172,651▲ $4,363
Accounts Receivable$0$17,300▲ $17,300
Land, Buildings, and Equipment, Net-$5,587-
Savings and Temporary Cash Investments$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$168,288$195,538▲ $27,250
Liabilities
Accounts Payable and Accrued Expenses$0$916▲ $916
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0--
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$916▲ $916
Net Assets / Fund Balance
Temporarily Rstr Net Assets$60,000$168,288▲ $108,288
Unrestricted Net Assets$108,288$26,334▼ $81,954
Permanently Rstr Net Assets$0$0→ $0
Total Net Assets Fund Balance$168,288$194,622▲ $26,334
Total Liabilities and Net Assets / Fund Balance$168,288$195,538▲ $27,250

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$4,809$137$4,946
Other Land Buildings$778$299$1,077
Buildings$0$0$0
Land$0-$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseTotal
Paul SchindlerExecutive Direct & CEOFT$82,500$82,500
Romina OrtizDirectorPT$20,000$20,000

Board Members and Trustees

NameTitle
Jimmy LinChairman
Hugh RienhoffDirector
Imran BabarDirector
Joe BeeryDirector
Revenue and Support

Revenue Composition

Contributions and Grants
$282,896
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$282,896
Change in Net Assets
$26,334
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$177,339
Other Expenses$79,223
Total Fundraising Expense$12,104
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Current Officers, Directors, Trustees, and Key Employees$41,250$41,250$0$82,500
Other Salaries and Wages$79,258$0$0$79,258
Information Technology$22,155$3,792$599$26,546
Other Expenses$14,340$0$0$14,340
Payroll Taxes$7,844$5,483$0$13,327
Fees for Services Other$2,000$0$11,000$13,000
Office Expenses$6,550$4,234$460$11,244
Fees for Services Accounting$0$6,127$0$6,127
Conferences and Meetings$1,328$2,844$45$4,217
Travel$1,303$2,010$0$3,313
Other Employee Benefits$2,254$0$0$2,254
Depreciation Depletion$0$436$0$436
Total Functional Expenses$178,282$66,176$12,104$256,562
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“Once the 990 has been prepared by the external accounting firm and approved by the finance director, it goes to the ceo/ed for approval. The ceo/ed in turn provides the 990 to the founder and board of directors for their review, allowing them 5 days for review & comment. Any questions or comments are then addressed and the 990 is modified if needed (and if the modification is approved by the founder and board of directors).”

Form 990, Part VI, Section B, Line 15

“The rare genomics board of directors must agree that an individual should be hired into a paid position. Once the decision has been agreed to, the rare genomics board of directors themselves develop the compensation package. This results in a yearly employment contract that is reviewed by the rare genomics board of directors on an annual basis.”

Form 990, Part VI, Section C, Line 19

“Documents are available upon reasonable request.”

Filing and Contact Details

Filer

Filer Name
Rare Genomics Institute Inc
EIN
45-3624709
Phone
8444487273
Address
2657 Annapolis Road Suite G-105, Hanover, MD 21076

Signing Officer

Name
Paul Schindler
Title
Executive Director
Phone
8444887273
Signed
2016-08-15
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Paul Schindler
Formed
2011
Legal Domicile
Ma
Voting Board Members
5
Independent Board Members
5
Employees
3
Volunteers
127

Preparer

Firm
Easy Office dba Jitasa
Address
1750 W Front Street Suite 200, Boise, ID 83702
Preparer
Mary Soper
Phone
2082874777
Raw XML AppendixShowing 400 of 495 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt00
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt02254
IRS990/OtherEmployeeBenefitsGrp/TotalAmt02254
IRS990/OtherExpensesGrp/Desc0Client Specific Program Expenses
IRS990/OtherExpensesGrp/FundraisingAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ProgramServicesAmt014340
IRS990/OtherExpensesGrp/TotalAmt014340
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherRevenueTotalAmt00
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt00
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt00
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt079258
IRS990/OtherSalariesAndWagesGrp/TotalAmt079258
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt05483
IRS990/PayrollTaxesGrp/ProgramServicesAmt07844
IRS990/PayrollTaxesGrp/TotalAmt013327
IRS990/PensionPlanContributionsGrp/FundraisingAmt00
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt00
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt00
IRS990/PensionPlanContributionsGrp/TotalAmt00
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt00
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt00
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt00
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt00
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt00
IRS990/PrincipalOfficerNm0Paul Schindler
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd00
IRS990/ProgSrvcAccomActy2Grp/Desc0PATIENT ADVOCACY TEAM - ONCE A FAMILY APPLIES TO RGI FOR ASSISTANCE WITH GENOME TESTING, THEY ARE ASSIGNED A PATIENT ADVOCATE WHO WILL WORK WITH THEM THROUGHOUT THE ENTIRE PROCESS. THIS INCLUDES IDENTIFYING THE RGI SITE (AN RGI SITE CONSISTS OF A RESEARCH FACILITY THAT IS ABLE TO PERFORM DNA SEQUENCING AND A CLINICIAN AND/OR SCIENTIST THAT CAN INTERPRET THE DATA FROM SEQUENCING) THAT BEST SUITS THE NEEDS OF THE PATIENT, AND PROVIDING SUPPORT TO THE PATIENT AND FAMILY ALL THE WAY THROUGH SEQUENCING AND RESULTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt015386
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt0671
IRS990/ProgSrvcAccomActy3Grp/Desc0RARESHARE - ONLINE SOCIAL NETWORK FOR PATIENTS, FAMILIES, HEALTHCARE PROFESSIONALS AND OTHERS AFFECTED BY RARE DISEASE. WE HAVE OVER 1,000 DIFFERENT RARE DISEASE COMMUNITIES WITH OVER 8,000 MEMBERS; RARESHARE CONNECTS THESE COMMUNITIES VIA DIRECT MESSAGING AND FORUM DISCUSSIONS. RARESHARE ALSO HOLDS EDUCATIONAL PODCASTS ON TOPICS AND DISEASES OF INTEREST, FEATURING EXPERTS FROM AROUND THE WORLD. A MEDICAL AND CLINICAL TRIAL DIRECTORY IS ALSO AVAILABLE FOR THOSE WANTING TO EXPLORE ADDITIONAL TREATMENT CENTERS AND OPTIONS.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01144
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProgSrvcAccomActyOtherGrp/Desc0ALL OTHER PROGRAMS; BeHEARD, RareShare, and Science 2.0.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt01308
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt00
IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt05500
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt027312
IRS990/PYContributionsGrantsAmt0119053
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/FundraisingAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ManagementAndGeneralAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ProgramServicesAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt05534
IRS990/PYOtherRevenueAmt00
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt080027
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt039026
IRS990/PYTotalProfFndrsngExpnsAmt06180
IRS990/PYTotalRevenueAmt0119053
IRS990/QuidProQuoContributionsInd00
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt026334
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/RelatedOrganizationsAmt00
IRS990/RentalIncomeOrLossGrp/PersonalAmt00
IRS990/RentalIncomeOrLossGrp/RealAmt00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0181125
IRS990/RoyaltiesGrp/FundraisingAmt00
IRS990/RoyaltiesGrp/ManagementAndGeneralAmt00
IRS990/RoyaltiesGrp/ProgramServicesAmt00
IRS990/RoyaltiesGrp/TotalAmt00
IRS990/SavingsAndTempCashInvstGrp/BOYAmt00
IRS990/SavingsAndTempCashInvstGrp/EOYAmt00
IRS990ScheduleA/First5Years170Ind0X
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt0282896
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt0119053
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0223024
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt096722
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt0721695
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportTotal170Amt0425865
IRS990ScheduleA/SubstantialContributorsTotAmt0295830
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt0282896
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0119053
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0223024
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt096722
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt00
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0721695
IRS990ScheduleA/TotalSupportAmt0721695
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/BuildingsGrp/BookValueAmt00
IRS990ScheduleD/BuildingsGrp/DepreciationAmt00
IRS990ScheduleD/BuildingsGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/BuildingsGrp/OtherCostOrOtherBasisAmt00
IRS990ScheduleD/EquipmentGrp/BookValueAmt04809
IRS990ScheduleD/EquipmentGrp/DepreciationAmt0137
IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt04946
IRS990ScheduleD/LandGrp/BookValueAmt00
IRS990ScheduleD/LandGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/LandGrp/OtherCostOrOtherBasisAmt00
IRS990ScheduleD/LeaseholdImprovementsGrp/BookValueAmt00
IRS990ScheduleD/LeaseholdImprovementsGrp/DepreciationAmt00
IRS990ScheduleD/LeaseholdImprovementsGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/LeaseholdImprovementsGrp/OtherCostOrOtherBasisAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/BookValueAmt0778
IRS990ScheduleD/OtherLandBuildingsGrp/DepreciationAmt0299
IRS990ScheduleD/OtherLandBuildingsGrp/InvestmentCostOrOtherBasisAmt00
IRS990ScheduleD/OtherLandBuildingsGrp/OtherCostOrOtherBasisAmt01077
IRS990ScheduleD/TotalBookValueLandBuildingsAmt05587
IRS990/ScheduleJRequiredInd00
IRS990/ScheduleORequiredInd01
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0ONCE THE 990 HAS BEEN PREPARED BY THE EXTERNAL ACCOUNTING FIRM AND APPROVED BY THE FINANCE DIRECTOR, IT GOES TO THE CEO/ED FOR APPROVAL. THE CEO/ED IN TURN PROVIDES THE 990 TO THE FOUNDER AND BOARD OF DIRECTORS FOR THEIR REVIEW, ALLOWING THEM 5 DAYS FOR REVIEW & COMMENT. ANY QUESTIONS OR COMMENTS ARE THEN ADDRESSED AND THE 990 IS MODIFIED IF NEEDED (AND IF THE MODIFICATION IS APPROVED BY THE FOUNDER AND BOARD OF DIRECTORS).
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE RARE GENOMICS BOARD OF DIRECTORS MUST AGREE THAT AN INDIVIDUAL SHOULD BE HIRED INTO A PAID POSITION. ONCE THE DECISION HAS BEEN AGREED TO, THE RARE GENOMICS BOARD OF DIRECTORS THEMSELVES DEVELOP THE COMPENSATION PACKAGE. THIS RESULTS IN A YEARLY EMPLOYMENT CONTRACT THAT IS REVIEWED BY THE RARE GENOMICS BOARD OF DIRECTORS ON AN ANNUAL BASIS.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2DOCUMENTS ARE AVAILABLE UPON REASONABLE REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990, Part VI, Section B, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990, Part VI, Section B, Line 15
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990, Part VI, Section C, Line 19
IRS990/SchoolOperatingInd00

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