The Rare Disease Charitable Foundation
EIN 45-3132103 • Lexington, MA
Siviq Scores
Scores are not available for this record yet.
Balance Sheet
Assets
Down$0
Down $20,024,953 (-100%) from 2021
Liabilities
Flat$0
Flat from 2021
Net Assets
Down$0
Down $20,024,953 (-100%) from 2021
Operations
Revenue
Up$162,843,174
Up $4,854,453 (+3.1%) from 2021
Expenses
Up$171,314,161
Up $14,108,378 (+9.0%) from 2021
Net Income
Down-$8,470,987
Down $9,253,925 (-1182%) from 2021
Trend Graphs
Filings
Most recent year
2022 • Form 990PFDetailed filing. Detailed filing data is available for this year.
- Assets
- $0
- Liabilities
- $0
- Net assets
- $0
- Revenue
- $162,843,174
- Expenses
- $171,314,161
- Net income
- -$8,470,987
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2022 to Dec 31, 2022
- Signed
- Dec 9, 2024
- Return Version
- 2022v5.0
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Karen Shahinian | Chair | - | $0 | - | - |
| Janeen Blake | Vice Chair | - | $0 | - | - |
| Ryan McCarthy | Secretary | - | $0 | - | - |
| Michael Riffitts | Member | - | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- The Rare Disease Charitable Foundation
- EIN
- 45-3132103
- In Care Of
- % TAX DEPARTMENT
- Address
- 300 Shire Way, Lexington, MA 02421
Signing Officer
- Name
- Janeen Blake
- Title
- Chair
- Phone
- 4845958800
- Signed
- 2024-12-09
Raw XML Appendix283 raw XML fields
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
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| DissolutionStmt/DissolutionInformationGrp/ShortExplanationTxt | 0 | The Company has determined that it shall cease its 501(c)(3) tax exempt status with effect as of December 31, 2022, as well as transfer certain operations to AmeriCares Foundation, Inc. |
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| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 1 | 1180715 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 2 | 110628 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 3 | 9951120 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 4 | 26649252 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 5 | 24534923 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 6 | 61380563 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 7 | 858686 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 8 | 1450165 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 9 | 270839 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/FairMarketValueAmt | 10 | 314519 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 0 | Firazyr |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 1 | Elaprase |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 2 | VPRIV |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 3 | Cinryze |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 4 | Gattex |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 5 | Kalbitor |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 6 | Takhzyro |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 7 | Cuvitru |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 8 | Gammagard |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 9 | Glassia |
| IRS990ScheduleB/NonCashPropertyContributionGrp/NoncashPropertyDesc | 10 | HyQvia |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 0 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 1 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 2 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 3 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 4 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 5 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 6 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 7 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 8 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 9 | 2022-12-31 |
| IRS990ScheduleB/NonCashPropertyContributionGrp/ReceivedDt | 10 | 2022-12-31 |
| IRS990ScheduleB/Organization501c3ExemptPFInd | 0 | X |
| OtherAssetsSchedule/OtherAssetsScheduleGrp/Desc | 0 | PRODUCTS TO BE DONATED |
| OtherAssetsSchedule/OtherAssetsScheduleGrp/EOYBookValueAmt | 0 | 0 |
| OtherAssetsSchedule/OtherAssetsScheduleGrp/EOYFMVAmt | 0 | 0 |
| OtherDecreasesSchedule/OtherDecreasesDetail/Amt | 0 | 11553967 |
| OtherDecreasesSchedule/OtherDecreasesDetail/Desc | 0 | DISSOLUTION 501(C)(3) TO AMERICARES |
| ReturnHeader/BuildTS | 0 | 2024-10-15 13:58:12Z |
| ReturnHeader/BusinessOfficerGrp/PersonNm | 0 | Janeen Blake |
| ReturnHeader/BusinessOfficerGrp/PersonTitleTxt | 0 | Chair |
| ReturnHeader/BusinessOfficerGrp/PhoneNum | 0 | 4845958800 |
| ReturnHeader/BusinessOfficerGrp/SignatureDt | 0 | 2024-12-09 |
| ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt | 0 | THE RARE DISEASE CHARITABLE FOUNDATION |
| ReturnHeader/Filer/BusinessNameControlTxt | 0 | RARE |
| ReturnHeader/Filer/EIN | 0 | 453132103 |
| ReturnHeader/Filer/InCareOfNm | 0 | % TAX DEPARTMENT |
| ReturnHeader/Filer/USAddress/AddressLine1Txt | 0 | 300 Shire Way |
| ReturnHeader/Filer/USAddress/CityNm | 0 | Lexington |
| ReturnHeader/Filer/USAddress/StateAbbreviationCd | 0 | MA |
| ReturnHeader/Filer/USAddress/ZIPCd | 0 | 02421 |
| ReturnHeader/ReturnTs | 0 | 2024-12-12T11:26:47-06:00 |
| ReturnHeader/ReturnTypeCd | 0 | 990PF |
| ReturnHeader/TaxPeriodBeginDt | 0 | 2022-01-01 |
| ReturnHeader/TaxPeriodEndDt | 0 | 2022-12-31 |
| ReturnHeader/TaxYr | 0 | 2022 |
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