Civic Intelligence

LI Fraumeni Syndrome Association Inc

EIN 45-2284811 • 501(c)3 • Holliston, MA

Profile

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

PO Box 6458Holliston, MA 01746

www.lfsassociation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

63rd percentile

0.00x

Higher debt load relative to assets than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

64th percentile

0.00x

Higher debt load relative to revenue than 64% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

48th percentile

0.8%

Higher net margin than 48% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

21st percentile

-45%

Faster asset growth than 21% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2024

Revenue Growth

Score unavailable

No value available

A valid growth rate could not be computed from the available filing history.

Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Down

$114,375

Down $266,041 (-70%) from 2022

Liabilities

Up

$354

Up $354 from 2022

Net Assets

Down

$114,021

Down $266,395 (-70%) from 2022

Operations
Liabilities / Revenue64th percentileNet Margin48th percentile

Revenue

Up

$277,931

Up $277,931 from 2022

Expenses

Up

$275,728

Up $275,728 from 2022

Net Income

Up

$2,203

Up $2,203 from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth21st percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2013: $27,706Liabilities 2013: $02013Assets 2014: $70,081Liabilities 2014: $02014Assets 2015: $73,307Liabilities 2015: $0Net Assets 2015: $73,3072015Assets 2016: $518,390Liabilities 2016: $0Net Assets 2016: $518,3902016Assets 2017: $355,109Liabilities 2017: $0Net Assets 2017: $355,1092017Assets 2018: $28,541Liabilities 2018: $0Net Assets 2018: $28,5412018Assets 2019: $17,789Liabilities 2019: $6572019Assets 2020: $451,882Liabilities 2020: $10,588Net Assets 2020: $441,2942020Assets 2021: $381,148Liabilities 2021: $732Net Assets 2021: $380,4162021Assets 2022: $380,416Liabilities 2022: $0Net Assets 2022: $380,4162022Assets 2024: $114,375Liabilities 2024: $354Net Assets 2024: $114,0212024

Highlighted filing

2024

Assets$114,375
Liabilities$354
Net Assets$114,021
Open 2024 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.0M$500K$0-$500KRevenue 2013: $40,663Expenses 2013: $17,678Net Income 2013: $22,9852013Revenue 2014: $156,553Expenses 2014: $114,178Net Income 2014: $42,3752014Revenue 2015: $67,314Expenses 2015: $64,088Net Income 2015: $3,2262015Revenue 2016: $734,506Expenses 2016: $289,423Net Income 2016: $445,0832016Revenue 2017: $206,087Expenses 2017: $369,367Net Income 2017: -$163,2802017Revenue 2018: $309,495Expenses 2018: $636,063Net Income 2018: -$326,5682018Revenue 2019: $173,676Expenses 2019: $185,085Net Income 2019: -$11,4092019Revenue 2020: $604,521Expenses 2020: $180,483Net Income 2020: $424,0382020Revenue 2021: $155,582Expenses 2021: $216,460Net Income 2021: -$60,8782021Revenue 2022: $0Expenses 2022: $0Net Income 2022: $02022Revenue 2024: $277,931Expenses 2024: $275,728Net Income 2024: $2,2032024

Highlighted filing

2024

Revenue$277,931
Expenses$275,728
Net Income$2,203
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$114,375
Liabilities
$354
Net assets
$114,021
Revenue
$277,931
Expenses
$275,728
Net income
$2,203
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.14$0.00$1.14$2.78$2.76$0.02
2022Detailed filing. Detailed filing data is available for this year.$3.80$0.00$3.80$0.00$0.00$0.00
2021Detailed filing. Detailed filing data is available for this year.$3.81$0.01$3.80$1.56$2.16$0.61
2020Summary only. Only limited summary data is available for this year.$4.52$0.11$4.41$6.05$1.80$4.24
2019Summary only. Only limited summary data is available for this year.$0.18$0.01$1.74$1.85$0.11
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.29$0.00$0.29$3.09$6.36$3.27
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.55$0.00$3.55$2.06$3.69$1.63
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.18$0.00$5.18$7.35$2.89$4.45
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.73$0.00$0.73$0.67$0.64$0.03
2014Summary only. Only limited summary data is available for this year.$0.70$0.00$1.57$1.14$0.42
2013Summary only. Only limited summary data is available for this year.$0.28$0.00$0.41$0.18$0.23
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 26, 2025
Return Version
2024v5.2
Gross Receipts
$277,931
Mission and Program Overview

Mission

Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$30,333$81,114▲ $50,781
Savings and Temporary Cash Investments$82,347$33,261▼ $49,086
Total Assets$112,680$114,375▲ $1,695
Liabilities
Accounts Payable and Accrued Expenses$862$354▼ $508
Total Liabilities$862$354▼ $508
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$111,818$114,021▲ $2,203
Total Net Assets Fund Balance$111,818$114,021▲ $2,203
Total Liabilities and Net Assets / Fund Balance$112,680$114,375▲ $1,695
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Jennifer PerryPresident/Co- Founder
Holly FraumeniVice President
Deb SopranoDev. Director
Rob LufkinMed. Director
Gina VildComm.
Kathy HigginsEduc. & Aware.
Sean DowningScience
Erica KirschnerSecretary
Michele GiovenelliTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$0
Program Service Revenue
$277,925
Investment Income
$6
Other Revenue
$0
Change in Net Assets
$2,203
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$275,728
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Advertising$52,569--$52,569
Travel$28,973--$28,973
All Other Expenses$8,868$1,560-$10,428
Fees for Services Other$7,700--$7,700
Office Expenses-$3,693-$3,693
Other Expenses$3,339--$3,339
Total Functional Expenses$270,475$5,253$0$275,728
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, line 11B

“UPON REQUEST”

Form 990, Part VI, Section B, line 12C

“Board members and senior staff will annually disclose and promptly update any disclosures previously made to the president on an annual conflict disclosure questionnaire form provided by the organization.”

Form 990, Part VI, Section C, line 19

“UPON REQUEST”

Filing and Contact Details

Filer

Filer Name
Li Fraumeni Syndrome Association Inc
EIN
45-2284811
Phone
7742660503
Address
PO Box 6458, Holliston, MA 01746

Signing Officer

Name
Jennifer Perry
Title
President
Phone
7742660503
Signed
2025-11-26
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jennifer Perry
Formed
2011
Legal Domicile
Ma
Voting Board Members
10
Independent Board Members
0
Employees
0
Volunteers
130

Preparer

Firm
Dugre Croteau Morton & Co PC
Address
727 Grattan Street, Chicopee, MA 01020
Preparer
Marta Sudol
Phone
4135360666
Raw XML Appendix334 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0Li-Fraumeni Syndrome Association, Inc. provides a wide range of information, advocacy, and support services for individuals and families with Li Fraumeni Syndrome. We support a consortium of researchers, medical providers and caregivers to further research and promote optimal care for the LFS community.
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IRS990/TotalFunctionalExpensesGrp/TotalAmt0275728
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0862
IRS990/TotalLiabilitiesEOYAmt0354
IRS990/TotalLiabilitiesGrp/BOYAmt0862
IRS990/TotalLiabilitiesGrp/EOYAmt0354
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt0111818
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt0114021
IRS990/TotalOtherCompensationAmt00
IRS990/TotalProgramServiceExpensesAmt0270475
IRS990/TotalProgramServiceRevenueAmt0277925
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt06
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0277925
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0277931
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt0130
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt0112680
IRS990/TotLiabNetAssetsFundBalanceGrp/EOYAmt0114375
IRS990/TotReportableCompRltdOrgAmt00
IRS990/TravelGrp/ProgramServicesAmt028973
IRS990/TravelGrp/TotalAmt028973
IRS990/TrnsfrExmptNonChrtblRltdOrgInd00
IRS990/UnrelatedBusIncmOverLimitInd00
IRS990/UponRequestInd0X
IRS990/USAddress/AddressLine1Txt0196 Fletcher Circle
IRS990/USAddress/CityNm0Chicopee
IRS990/USAddress/StateAbbreviationCd0MA
IRS990/USAddress/ZIPCd001020
IRS990/VotingMembersGoverningBodyCnt010
IRS990/VotingMembersIndependentCnt00
IRS990/WebsiteAddressTxt0http://www.lfsassociation.org
IRS990/WhistleblowerPolicyInd01
ReturnHeader/BuildTS02025-03-06 01:10:19Z
ReturnHeader/BusinessOfficerGrp/DiscussWithPaidPreparerInd01
ReturnHeader/BusinessOfficerGrp/PersonNm0Jennifer Perry
ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0President
ReturnHeader/BusinessOfficerGrp/PhoneNum07742660503
ReturnHeader/BusinessOfficerGrp/SignatureDt02025-11-26
ReturnHeader/Filer/BusinessName/BusinessNameLine1Txt0Li Fraumeni Syndrome Association Inc
ReturnHeader/Filer/BusinessNameControlTxt0LIFR
ReturnHeader/Filer/EIN0452284811
ReturnHeader/Filer/PhoneNum07742660503
ReturnHeader/Filer/USAddress/AddressLine1Txt0PO Box 6458
ReturnHeader/Filer/USAddress/CityNm0Holliston
ReturnHeader/Filer/USAddress/StateAbbreviationCd0MA
ReturnHeader/Filer/USAddress/ZIPCd001746
ReturnHeader/IRSResponsiblePrtyInfoCurrInd00
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0851779940
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0Dugre Croteau Morton & Co PC
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt0727 Grattan Street
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0Chicopee
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0MA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd001020
ReturnHeader/PreparerPersonGrp/PhoneNum04135360666
ReturnHeader/PreparerPersonGrp/PreparationDt02025-11-26
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Marta Sudol
ReturnHeader/ReturnTs02025-11-26T10:12:32-06:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02024-01-01
ReturnHeader/TaxPeriodEndDt02024-12-31
ReturnHeader/TaxYr02024

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