Civic Intelligence

Pkd Foundation

990 • Fiscal year 2018 • EIN 43-1266906

Jul 01, 2017 to Jun 30, 2018 • Filed on Nov 19, 2018

Organization Profilewww.pkdcure.org

View Organization Page

1001 E 101st Terr Suite 220Kansas City, MO 64131

(816) 931-2600

Siviq Scores

Scores are not available for this record yet.

Balance Sheet

Assets

Flat

$5,218,772

Flat from 2017

Net Assets

Flat

$4,715,718

Flat from 2017

Liabilities

Flat

$503,054

Flat from 2017

Revenue And Expenses

Revenue

Flat

$5,788,558

Flat from 2017

Expenses

Flat

$6,120,336

Flat from 2017

Net Income

Flat

-$331,778

Flat from 2017

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$40M$30M$20M$10M$0Assets 2011: $2,390,354Liabilities 2011: $716,250Net Assets 2011: $1,674,1042011Assets 2012: $2,409,330Liabilities 2012: $598,488Net Assets 2012: $1,810,8422012Assets 2013: $4,726,619Liabilities 2013: $332,038Net Assets 2013: $4,394,5812013Assets 2014: $5,023,924Liabilities 2014: $500,993Net Assets 2014: $4,522,9312014Assets 2015: $6,476,331Liabilities 2015: $941,887Net Assets 2015: $5,534,4442015Assets 2016: $5,695,290Liabilities 2016: $855,835Net Assets 2016: $4,839,4552016Assets 2017: $5,218,772Liabilities 2017: $503,054Net Assets 2017: $4,715,7182017Assets 2018: $5,218,772Liabilities 2018: $503,054Net Assets 2018: $4,715,7182018Assets 2018: $11,398,154Liabilities 2018: $1,354,476Net Assets 2018: $10,043,6782018Assets 2019: $10,606,466Liabilities 2019: $1,852,410Net Assets 2019: $8,754,0562019Assets 2020: $20,909,832Liabilities 2020: $3,109,449Net Assets 2020: $17,800,3832020Assets 2021: $25,693,539Liabilities 2021: $3,143,870Net Assets 2021: $22,549,6692021Assets 2022: $31,113,409Liabilities 2022: $620,624Net Assets 2022: $30,492,7852022Assets 2023: $33,103,416Liabilities 2023: $662,475Net Assets 2023: $32,440,9412023

Highlighted filing

2018

Assets$5,218,772
Liabilities$503,054
Net Assets$4,715,718
Open 2018 Filing

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$20M$15M$10M$5.0M$0-$5.0MExpenses 2011: $8,308,4962011Expenses 2012: $6,931,1072012Expenses 2013: $6,421,8062013Revenue 2014: $6,902,898Expenses 2014: $6,774,548Net Income 2014: $128,3502014Revenue 2015: $7,507,779Expenses 2015: $6,496,266Net Income 2015: $1,011,5132015Revenue 2016: $5,868,967Expenses 2016: $6,630,190Net Income 2016: -$761,2232016Revenue 2017: $5,788,558Expenses 2017: $6,120,336Net Income 2017: -$331,7782017Revenue 2018: $5,788,558Expenses 2018: $6,120,336Net Income 2018: -$331,7782018Revenue 2018: $12,950,845Expenses 2018: $7,731,213Net Income 2018: $5,219,6322018Revenue 2019: $6,759,603Expenses 2019: $8,169,957Net Income 2019: -$1,410,3542019Revenue 2020: $16,124,449Expenses 2020: $7,241,943Net Income 2020: $8,882,5062020Revenue 2021: $8,954,721Expenses 2021: $6,814,636Net Income 2021: $2,140,0852021Revenue 2022: $18,472,948Expenses 2022: $7,358,317Net Income 2022: $11,114,6312022Revenue 2023: $10,283,998Expenses 2023: $9,075,142Net Income 2023: $1,208,8562023

Highlighted filing

2018

Revenue$5,788,558
Expenses$6,120,336
Net Income-$331,778
Open 2018 Filing
Jump To
Filing Snapshot
Filing Period
Jul 1, 2017 to Jun 30, 2018
Signed
Nov 19, 2018
Return Version
2017v2.0
Gross Receipts
$7,304,471
Mission and Program Overview

Mission

We give hope. We fund research, advocate for patients, and build a community for all impacted by pkd.

Promote programs of research and education to discover treatments and a cure for polycystic kidney disease (pkd).

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$2,938,227$3,316,937▲ $378,710
Savings and Temporary Cash Investments$1,888,329$1,303,737▼ $584,592
Pledges and Grants Receivable$375,424$177,030▼ $198,394
Land, Buildings, and Equipment, Net$190,886$136,924▼ $53,962
Cash and Non-Interest-Bearing Accounts$112,888$130,705▲ $17,817
Prepaid Expenses and Deferred Charges$21,327$51,837▲ $30,510
Accounts Receivable$92,246$51,290▼ $40,956
Inventories for Sale or Use$32,772$31,084▼ $1,688
Other Notes and Loans Receivable, Net$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Intangible Assets$0$0→ $0
Loans From Officers Directors$0$0→ $0
Total Assets$5,695,290$5,218,772▼ $476,518
Other Assets Total$43,191$19,228▼ $23,963
Liabilities
Accounts Payable and Accrued Expenses$480,346$243,087▼ $237,259
Grants Payable$333,333$166,667▼ $166,666
Deferred Revenue$0$93,300▲ $93,300
Other Liabilities$42,156$0▼ $42,156
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$855,835$503,054▼ $352,781
Net Assets / Fund Balance
Unrestricted Net Assets$3,672,367$3,553,782▼ $118,585
Permanently Rstr Net Assets$1,000,000$1,000,000→ $0
Temporarily Rstr Net Assets$167,088$161,936▼ $5,152
Total Net Assets Fund Balance$4,839,455$4,715,718▼ $123,737
Total Liabilities and Net Assets / Fund Balance$5,695,290$5,218,772▼ $476,518

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$136,924$289,837$426,761
Buildings$0$0$0
Other Land Buildings$0$0$0
Land$0-$0
Leasehold Improvements$0$0$0

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$2,773,007$0▲ $310,566$108,000$2,960,433
2016$0$2,700,000▲ $77,487$0$2,773,007
2015$0$0→ $0$0$0
2014$0$0→ $0$0$0
2013$0$0→ $0$0$0
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
David BaronChief Scientific OfficerFT$181,300$66,829$248,129
Ray SmithCFO - left July 17FT$139,838$45,864$185,702
Angela ConnellyChief Marketing Officer left Dec. 16FT$108,705$68,120$176,825
Jamey RoseDirector of ITFT$112,642$27,523$140,165
Andy BettsCEOFT$40,333$4,272$44,605

Highest Paid Contractors

ContractorServicesLocationCompensation
Gabriel GroupFundraising Consultant3190 Rider Trail S, Earth City, MO 63045$139,046
Revenue and Support

Revenue Composition

Contributions and Grants
$5,709,118
Program Service Revenue
$0
Investment Income
$114,587
Other Revenue
$-35,147
All Other Contributions
$5,419,922
Change in Net Assets
$-331,778

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
Yes

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded14$166,249Fair Value
Other Non Cash Contri Table374$56,065Fair Value
Total Noncash Contributions388$222,314-

Audited Revenue Reconciliation

Revenue per Audited Statements
$5,773,418
Revenue Not Reported on Financial Statements
$15,140
Revenue Not Reported on Form 990
$651,189
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$6,424,607
Total Revenue per Form 990
$5,788,558
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$2,720,408
Other Expenses$1,822,437
Grants and Similar Amounts Paid$1,531,349
Total Fundraising Expense$762,604
Professional Fundraising Fees$46,142

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$1,115,136$349,335$287,706$1,752,177
Grants to Domestic Orgs$1,298,194--$1,298,194
Conferences and Meetings$586,855$30,095$63,284$680,234
Current Officers, Directors, Trustees, and Key Employees$146,217$225,986$84,789$456,992
Occupancy$196,521$86,382$35,969$318,872
Other Employee Benefits$133,057$45,885$47,158$226,100
Fees for Services Other$128,984$16,982$76,677$222,643
Office Expenses$116,590$75,345$26,807$218,742
Payroll Taxes$102,915$45,692$30,066$178,673
Foreign Grants$120,000--$120,000
Grants to Domestic Individuals$113,155--$113,155
Pension Plan Contributions$69,302$17,926$19,238$106,466
Information Technology$57,026$24,165$14,657$95,848
Depreciation Depletion$75,414$12,037$7,388$94,839
Fees for Services Lobbying$50,000$0$0$50,000
Fees for Services Professional Fundraising--$46,142$46,142
Fees for Services Accounting$0$26,700$0$26,700
Other Expenses$19,585$0$0$19,585
Fees for Service Investment Mgmnt Fees-$15,140-$15,140
Fees for Services Legal$8,147$2,532$1,662$12,341
Insurance$6,921$3,115$2,050$12,086
Advertising$11,315--$11,315
Total Functional Expenses$4,372,175$985,557$762,604$6,120,336

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$6,548,344
Total Expenses per Form 990$6,120,336
Expenses per Audited Statements$6,105,196
Expenses Not Reported on Form 990$443,148
Expenses Not Reported on Financial Statements$15,140
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Mayo ClinicRochester, MN501(c)(3)Research on Adpkd Gene Mutation Registry (40,000) Pkd Mutation Genetic Database Support$220,000
Yale UniversityNew Haven, CT501(c)(3)Research on Examining the Role of Xbp1 in the Pathogenesis of Protein Folding-associated$210,000
University of Kansas Medical Center Research InstituteFairway, KS501(c)(3)Research on Targeting the Lkb1-ampk Signaling Pathway in Polycystic Kidney Disease (50,000),$205,000
University of Alabama at BirminghamBirmingham, AL501(c)(3)Research on Injury Response Mediated Pathogenesis in Ciliopathies (80,000) and$160,000
Case Western Reserve UniversityCleveland, OH501(c)(3)Research on Magnetic Resonance Fingerprinting (mrf) to Assess Arpkd Kidney and Liver Disease.$80,000
New York UniversityNew York, NY5Ol( C ) ( 3 )Research a Novel Screen to Identify Kinases That Are Activated in Pkd Kidneys$80,000
SEATTLE CHILDREN'S HOSPITALSeattle, WA501(c)(3)Research on Screening for Modifiers of Pkd Severity Using Enu Mutagenesis$80,000
University of Maryland School of MedicineBaltimore, MDGovResearch on the Role - Fibrocystin/polyductin in Health and Arpkd (80,000)$80,000
University of WashingtonSeattle, WAGovResearch on Modeling Human Pkd Cystogenesis With Pluripotent Stem Cells$80,000
University of ColoradoDenver, COGovResearch on Pkd Gene Therapy Targeting the 4e-bp1 Pathway$50,000
FasebBethesda, MD501(c)(3)2017 Faseb Science Research Conference on Pkd (18,000) and Research on the Biology Cilie$33,000
Ku Medical Center EndowmentKansas City, KS501(c)(3)Grantham Symposium Sponsorship$10,000

International Summary

Offices
0
Employees
0
Spending
$120,000

International Compliance

Foreign grant records maintained
No
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
Europe (including Iceland and Greenland)GrantmakingEXPENDITURES ARE REPORTED AT THE AMOUNT OF THE GRANT AWARDED AND ARE ACCOUNTED FOR USING THE SAME METHOD IN THE ORGANIZATION'S FINANCIAL STATEMENTS.00$80,000
North America (including Canada and Mexico, but not the United States)GrantmakingEXPENDITURES ARE REPORTED AT THE AMOUNT OF THE GRANT AWARDED AND ARE ACCOUNTED FOR USING THE SAME METHOD IN THE ORGANIZATION'S FINANCIAL STATEMENTS.00$40,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$74,212
Professional Fundraising Fees$46,142
Fundraising Gross Income$38,880

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Gratitude Benefit$328,076$38,880$29,832$9,048
Total Events$328,076$38,880$74,512$-35,632
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
Yes
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The form 990 is prepared by an independent accounting firm. Prior to filing the form 990 for pkd foundation, a draft copy will be provided to the board of trustees for review and comment. Any comments will be accumulated by management and addressed accordingly prior to filing with the irs. Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 12C

“Members of the board of trustees of pkd foundation are required to sign an annual statement disclosing any conflicts of interest. The governance committee reviews the statements and ensures that board members are prohibited from participating in discussions or decisions related to transactions that involve actual conflicts of interest.”

Form 990, Part VI, Section B, Line 15

“Annually, the chairman of the board of trustees works with the ceo to develop the ceo's goals for the new fiscal year. At the end of each fiscal year, the executive committee evaluates the ceo against these goals and recommends to the board the ceo's compensation package for approval, based on this evaluation. Annually, the executive committee reviews a national salary survey conducted by an independent consultant. Upon that review, salaries are compared to the ranges recommended for each position. Foundation management then acts to ensure that salaries are within appropriate ranges.”

Form 990, Part VI, Section C, Line 17

“List of states receiving copy of form 990: ak,al,ar,ca,co,ct,fl,ga,hi,il,ks,ky,ma,md,me,mi,mn,ms,nc,nd,nh,nj,nm,nv,ny oh,ok,or,pa,ri,sc,tn,ut,va,wa,wi,wv”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public on their own website and upon request.”

Form 990, Part VII, Section A, Line 1A

“Pkd foundation contracts with adp totalsource to provide certain employee benefits and payroll services. Employees are considered to be jointly employed by both pkd foundation and adp totalsource. In order to comply with transparency directives as a part of the form 990, the foundation has decided to report compensation in part vii to include amounts paid and reported on w-2's by adp totalsource.”

Filing and Contact Details

Filer

Filer Name
PKD Foundation
EIN
43-1266906
Phone
8169312600
Address
1001 E 101st Terr Suite 220, Kansas City, MO 64131

Signing Officer

Name
Russ Petry
Title
Controller
Phone
8169312600
Signed
2018-11-19

Organization Details

Principal Officer
Andy Betts
Formed
1982
Legal Domicile
Mo
Voting Board Members
16
Independent Board Members
16
Employees
46
Volunteers
2,400
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4A

“Program service accomplishments: research grants: invested $1,105,000 on grant funding to 15 pkd projects that focus on the development of a treatment for pkd or on understanding the way in which cysts develop or enlarge in pkd. Fellowships: provided $200,000 in fellowship funding to 4 pkd projects. Core grants: invested $60,000 to support core research grants services and resources for pkd scientists in two core labs so that foundation dollars can be leveraged across the pkd research community. Scientific meetings: invested $53,000 to fund pkd-related meetings that bring experts together and provide continuing education for health professionals.”

Form 990, Part III, Line 4B

“Program service accomplishments: held this year that raised $469,170. Chapters also raise awareness and money through the walk for pkd, the foundation's signature fundraising and public awareness event. The walk takes place in more than 50 cities across the nation each year and has raised nearly $28 million since 2000. On a national level, the foundation provides in-depth resources and education about living with pkd to empower people to manage their health. Offerings include webinars, videos, a multi-faceted website (pkdcure.org/learn), online communities and print materials. Additionally, 10 webinars were attended or viewed by more than 819 people. The pkd patient handbook is available for people with adpkd to help them navigate their disease. It was sent to 731 people last year.”

Form 990, Part III, Line 4C

“Program service accomplishments: received 17,579 visits and three issues of pkd progress were sent to more than 20,000 members of the pkd community. The foundation plays a key role in legislative advocacy to support pkd-related initiatives. The pkd advocacy action center (pkdcure.org/advocate) sent advocacy alerts to 8,453 people about legislative and public policy issues impacting pkd patients and families. The foundation joins with other kidney disease-related organizations in events that allow advocates to meet with members of congress to raise awareness of pkd and discuss legislative priorities. Pkd foundation staff members and patients attended three events in washington, d.c.”

Form 990, Part XII, Line 2C

“No change from the prior year.”

Financial Statement Notes

Schedule D, Part V, Line 4

“The purpose of the research opportunity fund and named endowments (collectively referred to as "endowments") is to provide for growth-oriented long-term investment of funds that are not needed to meet the day-to-day financial obligations of the foundation.”

Schedule D, Part X, Line 2

“The foundation is exempt from income taxes under section 501(c)(3) of the u.s. Internal revenue code. The foundation does not operate as a private foundation. Although it is exempt from federal and state income taxes on its principal operations, the foundation is subject to federal income taxes on the net income from any operations identified by the internal revenue service to generate unrelated business income. No such unrelated business income tax was incurred during 2017 or 2016. The foundation follows the standards for evaluating uncertain tax positions and has determined no liability should be recorded for uncertain tax positions.”

Schedule D, Part XI, Line 2D

“Other adjustments: cost of goods sold for merchandise sales 8,330.”

Schedule D, Part XII, Line 2D

“Other adjustments: cost of goods sold for merchandise sales 8,330.”

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IRS990/ActivityOrMissionDesc0PROMOTE PROGRAMS OF RESEARCH AND EDUCATION TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE (PKD).
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IRS990/Desc0RESEARCH: SINCE ITS FOUNDING IN 1982, THE PKD FOUNDATION HAS INVESTED MORE THAN $43 MILLION IN RESEARCH, CLINICAL AND SCIENTIFIC GRANTS, AS WELL AS FELLOWSHIPS AND SCIENTIFIC MEETINGS, MAKING US THE LARGEST PRIVATE FUNDER OF POLYCYSTIC KIDNEY DISEASE (PKD) RESEARCH. THIS HAS LED TO NEW DISCOVERIES ABOUT PKD, INCLUDING IDENTIFYING THE GENES RESPONSIBLE FOR PKD, WHICH ENABLES RESEARCHERS TO INVESTIGATE POSSIBLE TREATMENTS. THE FOUNDATION HAS A COMPREHENSIVE, INTEGRATED RESEARCH AND DEVELOPMENT PROGRAM THAT REPRESENTS THE CORE OF OUR WORK, AIMED TO SPEED UP DEVELOPMENT OF TREATMENTS WHICH COULD SLOW OR STOP THE PROGRESSION OF PKD. THE FOUNDATION'S FISCAL YEAR INVESTMENTS IN RESEARCH IS OUTLINED BELOW.
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IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt00
IRS990/FeesForServicesAccountingGrp/TotalAmt026700
IRS990/FeesForServicesLegalGrp/FundraisingAmt01662
IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt02532
IRS990/FeesForServicesLegalGrp/ProgramServicesAmt08147
IRS990/FeesForServicesLegalGrp/TotalAmt012341
IRS990/FeesForServicesLobbyingGrp/FundraisingAmt00
IRS990/FeesForServicesLobbyingGrp/ManagementAndGeneralAmt00
IRS990/FeesForServicesLobbyingGrp/ProgramServicesAmt050000
IRS990/FeesForServicesLobbyingGrp/TotalAmt050000
IRS990/FeesForServicesManagementGrp/FundraisingAmt00
IRS990/FeesForServicesManagementGrp/ManagementAndGeneralAmt00
IRS990/FeesForServicesManagementGrp/ProgramServicesAmt00
IRS990/FeesForServicesManagementGrp/TotalAmt00
IRS990/FeesForServicesOtherGrp/FundraisingAmt076677
IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt016982
IRS990/FeesForServicesOtherGrp/ProgramServicesAmt0128984
IRS990/FeesForServicesOtherGrp/TotalAmt0222643
IRS990/FeesForServicesProfFundraising/FundraisingAmt046142
IRS990/FeesForServicesProfFundraising/TotalAmt046142
IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt015140
IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt015140
IRS990/ForeignActivitiesInd01
IRS990/ForeignFinancialAccountInd00
IRS990/ForeignGrantsGrp/ProgramServicesAmt0120000
IRS990/ForeignGrantsGrp/TotalAmt0120000
IRS990/ForeignOfficeInd00
IRS990/Form8282PropertyDisposedOfInd00
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt040
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt140
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt240
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt340
IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt440
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd0X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd1X
IRS990/Form990PartVIISectionAGrp/HighestCompensatedEmployeeInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd0X
IRS990/Form990PartVIISectionAGrp/OfficerInd1X
IRS990/Form990PartVIISectionAGrp/OfficerInd2X
IRS990/Form990PartVIISectionAGrp/OfficerInd3X
IRS990/Form990PartVIISectionAGrp/OfficerInd4X
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt04272
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt132842
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt248109
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt340125
IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt427523
IRS990/Form990PartVIISectionAGrp/PersonNm0Andy Betts
IRS990/Form990PartVIISectionAGrp/PersonNm1Ray Smith
IRS990/Form990PartVIISectionAGrp/PersonNm2David Baron
IRS990/Form990PartVIISectionAGrp/PersonNm3Angela Connelly
IRS990/Form990PartVIISectionAGrp/PersonNm4Jamey Rose
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt040333
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt1152860
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt2200020
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt3136700
IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt4112642
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/TitleTxt0CEO
IRS990/Form990PartVIISectionAGrp/TitleTxt1CFO - left July 17
IRS990/Form990PartVIISectionAGrp/TitleTxt2Chief Scientific Officer
IRS990/Form990PartVIISectionAGrp/TitleTxt3Chief Marketing Officer left Dec. 16
IRS990/Form990PartVIISectionAGrp/TitleTxt4Director of IT
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/Form990TFiledInd01
IRS990/FormationYr01982
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0289196
IRS990/FundraisingDirectExpensesAmt074212
IRS990/FundraisingGrossIncomeAmt038880
IRS990/GainOrLossGrp/OtherAmt00
IRS990/GainOrLossGrp/SecuritiesAmt041143
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt016
IRS990/GovernmentGrantsAmt00
IRS990/GrantAmt01531349
IRS990/GrantsPayableGrp/BOYAmt0333333
IRS990/GrantsPayableGrp/EOYAmt0166667
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt0113155
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt0113155
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt01298194
IRS990/GrantsToDomesticOrgsGrp/TotalAmt01298194
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/OtherAmt00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt01474514
IRS990/GrossReceiptsAmt07304471
IRS990/GrossSalesOfInventoryAmt06293
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IncmFromInvestBondProceedsGrp/ExclusionAmt00
IRS990/IncmFromInvestBondProceedsGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/IncmFromInvestBondProceedsGrp/TotalRevenueColumnAmt00
IRS990/IncmFromInvestBondProceedsGrp/UnrelatedBusinessRevenueAmt00
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt016
IRS990/IndivRcvdGreaterThan100KCnt05
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InformationTechnologyGrp/FundraisingAmt014657
IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt024165
IRS990/InformationTechnologyGrp/ProgramServicesAmt057026
IRS990/InformationTechnologyGrp/TotalAmt095848
IRS990/InsuranceGrp/FundraisingAmt02050
IRS990/InsuranceGrp/ManagementAndGeneralAmt03115
IRS990/InsuranceGrp/ProgramServicesAmt06921
IRS990/InsuranceGrp/TotalAmt012086
IRS990/IntangibleAssetsGrp/BOYAmt00
IRS990/IntangibleAssetsGrp/EOYAmt00
IRS990/InterestGrp/FundraisingAmt00
IRS990/InterestGrp/ManagementAndGeneralAmt00
IRS990/InterestGrp/ProgramServicesAmt00
IRS990/InterestGrp/TotalAmt00
IRS990/InventoriesForSaleOrUseGrp/BOYAmt032772
IRS990/InventoriesForSaleOrUseGrp/EOYAmt031084
IRS990/InvestmentExpenseAmt00
IRS990/InvestmentIncomeGrp/ExclusionAmt073444
IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt073444
IRS990/InvestmentIncomeGrp/UnrelatedBusinessRevenueAmt00
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsOtherSecuritiesGrp/BOYAmt00
IRS990/InvestmentsOtherSecuritiesGrp/EOYAmt00
IRS990/InvestmentsProgramRelatedGrp/BOYAmt00
IRS990/InvestmentsProgramRelatedGrp/EOYAmt00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt02938227
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03316937
IRS990/IRPDocumentCnt018
IRS990/IRPDocumentW2GCnt00
IRS990/JointCostsInd0X
IRS990/LandBldgEquipAccumDeprecAmt0289837
IRS990/LandBldgEquipBasisNetGrp/BOYAmt0190886
IRS990/LandBldgEquipBasisNetGrp/EOYAmt0136924
IRS990/LandBldgEquipCostOrOtherBssAmt0426761
IRS990/LegalDomicileStateCd0MO
IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt00
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt01433371
IRS990/LoanOutstandingInd00
IRS990/LoansFromOfficersDirectorsGrp/BOYAmt00
IRS990/LoansFromOfficersDirectorsGrp/EOYAmt00
IRS990/LobbyingActivitiesInd01
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MiscellaneousRevenueGrp/ExclusionAmt00
IRS990/MiscellaneousRevenueGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/MiscellaneousRevenueGrp/TotalRevenueColumnAmt00
IRS990/MiscellaneousRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/MissionDesc0PROMOTE PROGRAMS OF RESEARCH, ADVOCACY, EDUCATION, SUPPORT AND AWARENESS IN ORDER TO DISCOVER TREATMENTS AND A CURE FOR POLYCYSTIC KIDNEY DISEASE AND IMPROVE THE LIVES OF ALL IT AFFECTS.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd01
IRS990/MortgNotesPyblScrdInvstPropGrp/BOYAmt00
IRS990/MortgNotesPyblScrdInvstPropGrp/EOYAmt00
IRS990/NetAssetsOrFundBalancesBOYAmt04839455
IRS990/NetAssetsOrFundBalancesEOYAmt04715718
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt041143
IRS990/NetGainOrLossInvestmentsGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt041143
IRS990/NetGainOrLossInvestmentsGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt0-35332
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-35332
IRS990/NetIncmFromFundraisingEvtGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetIncomeOrLossGrp/ExclusionAmt00
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt0-2037
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt0-2037
IRS990/NetIncomeOrLossGrp/UnrelatedBusinessRevenueAmt00
IRS990/NetUnrelatedBusTxblIncmAmt0-249
IRS990/NetUnrlzdGainsLossesInvstAmt0208041
IRS990/NoncashContributionsAmt0222314
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt035969
IRS990/OccupancyGrp/ManagementAndGeneralAmt086382
IRS990/OccupancyGrp/ProgramServicesAmt0196521
IRS990/OccupancyGrp/TotalAmt0318872
IRS990/OfficeExpensesGrp/FundraisingAmt026807
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt075345
IRS990/OfficeExpensesGrp/ProgramServicesAmt0116590
IRS990/OfficeExpensesGrp/TotalAmt0218742
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt043191
IRS990/OtherAssetsTotalGrp/EOYAmt019228
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt047158
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt045885
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0133057
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0226100
IRS990/OtherExpensesGrp/Desc0Dues, Fees, Memberships
IRS990/OtherExpensesGrp/Desc1Research
IRS990/OtherExpensesGrp/FundraisingAmt019011
IRS990/OtherExpensesGrp/FundraisingAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt08240
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ProgramServicesAmt016841
IRS990/OtherExpensesGrp/ProgramServicesAmt119585
IRS990/OtherExpensesGrp/TotalAmt044092
IRS990/OtherExpensesGrp/TotalAmt119585
IRS990/OtherLiabilitiesGrp/BOYAmt042156
IRS990/OtherLiabilitiesGrp/EOYAmt00
IRS990/OtherRevenueMiscGrp/BusinessCd0511120
IRS990/OtherRevenueMiscGrp/BusinessCd1900099
IRS990/OtherRevenueMiscGrp/Desc0ADVERTISING
IRS990/OtherRevenueMiscGrp/Desc1MISCELLANEOUS
IRS990/OtherRevenueMiscGrp/ExclusionAmt00
IRS990/OtherRevenueMiscGrp/ExclusionAmt1737
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt00
IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt10
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt01485
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt1737
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt01485
IRS990/OtherRevenueMiscGrp/UnrelatedBusinessRevenueAmt10
IRS990/OtherRevenueTotalAmt02222
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0287706
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt0349335
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt01115136
IRS990/OtherSalariesAndWagesGrp/TotalAmt01752177
IRS990/OtherWebsiteInd0X
IRS990/OthNotesLoansReceivableNetGrp/BOYAmt00
IRS990/OthNotesLoansReceivableNetGrp/EOYAmt00
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PaymentsToAffiliatesGrp/FundraisingAmt00
IRS990/PaymentsToAffiliatesGrp/ManagementAndGeneralAmt00
IRS990/PaymentsToAffiliatesGrp/ProgramServicesAmt00
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt030066
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt045692
IRS990/PayrollTaxesGrp/ProgramServicesAmt0102915
IRS990/PayrollTaxesGrp/TotalAmt0178673
IRS990/PensionPlanContributionsGrp/FundraisingAmt019238
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt017926
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt069302
IRS990/PensionPlanContributionsGrp/TotalAmt0106466
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt01000000
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt01000000
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt0375424
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt0177030
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt021327
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt051837
IRS990/PrincipalOfficerNm0Andy Betts
IRS990/PriorPeriodAdjustmentsAmt00
IRS990/ProfessionalFundraisingInd01
IRS990/ProgSrvcAccomActy2Grp/Desc0EDUCATION AND SUPPORT: THE FOUNDATION PROVIDES LOCAL SERVICES THROUGH ITS MORE THAN 60 VOLUNTEER-RUN CHAPTERS ACROSS THE COUNTRY. THESE VOLUNTEERS BRING TO LIFE THE MISSION OF THE ORGANIZATION BY ENSURING THAT NO ONE FACES THIS DISEASE ALONE. EDUCATION MEETINGS PROVIDE VALUABLE INFORMATION FROM HEALTH CARE PROFESSIONALS, WHILE SUPPORT ACTIVITIES RANGE FROM LENDING A LISTENING EAR TO ORGANIZED GROUP OUTINGS. THIS YEAR ALONE , OUR CHAPTERS HELD l09 EDUCATION AND SUPPORT EVENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt01148310
IRS990/ProgSrvcAccomActy2Grp/GrantAmt00
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt06293
IRS990/ProgSrvcAccomActy3Grp/Desc0AWARENESS AND ADVOCACY: THE FOUNDATION RAISES AWARENESS THROUGH MARKETING AND PUBLIC RELATIONS SO PEOPLE KNOW WHAT PKD IS, ABOUT THE FOUNDATION AND HOW TO DONATE. MARKETING MATERIALS INCLUDE PKD PROGRESS MAGAZINE, PKDNEWS MONTHLY EMAIL NEWSLETTER, SOCIAL MEDIA, DISCUSSION FORUMS, BLOGS AND PKDCURE.ORG. VOICES OF PKD (PKDCURE.ORG/VOICESOFPKD) FEATURES TESTIMONIALS AND STORIES ABOUT PEOPLE'S EXPERIENCES WITH THE DISEASE. THERE WAS A SIGNIFICANT INCREASE ON SOCIAL MEDIA, REACHING MORE THAN 40,000 FOLLOWERS INCLUDING FACEBOOK, TWITTER, INSTAGRAM AND YOUTUBE. PKDCURE.ORG RECEIVED 474,800 VISITS, PKD CONNECTION.ORG RECEIVED 79,070 VISIT, WALKFORPKD.ORG RECEIVED 93,347 VISITS. DISCUSSION FORUMS
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt01094597
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt05881314
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt01770056
IRS990/PYInvestmentIncomeAmt024748
IRS990/PymtTravelEntrtnmntPubOfclGrp/FundraisingAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ManagementAndGeneralAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/ProgramServicesAmt00
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt01988701
IRS990/PYOtherRevenueAmt0-37095
IRS990/PYProgramServiceRevenueAmt00
IRS990/PYRevenuesLessExpensesAmt0-761223
IRS990/PYSalariesCompEmpBnftPaidAmt02792233
IRS990/PYTotalExpensesAmt06630190
IRS990/PYTotalProfFndrsngExpnsAmt079200
IRS990/PYTotalRevenueAmt05868967
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvblFromDisqualifiedPrsnGrp/BOYAmt00
IRS990/RcvblFromDisqualifiedPrsnGrp/EOYAmt00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReceivablesFromOfficersEtcGrp/BOYAmt00
IRS990/ReceivablesFromOfficersEtcGrp/EOYAmt00
IRS990/ReconcilationRevenueExpnssAmt0-331778
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00

Document Assets

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Filings

Displayed year

2018 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$5,218,772
Liabilities
$503,054
Net assets
$4,715,718
Revenue
$5,788,558
Expenses
$6,120,336
Net income
-$331,778
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2023Summary only. Only limited summary data is available for this year.$33.1$0.66$32.4$10.3$9.08$1.21
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$31.1$0.62$30.5$18.5$7.36$11.1
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$25.7$3.14$22.5$8.95$6.81$2.14
2020Summary only. Only limited summary data is available for this year.$20.9$3.11$17.8$16.1$7.24$8.88
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$10.6$1.85$8.75$6.76$8.17$1.41
2018Facts available. Structured filing facts are available, but richer extracted sections are limited.$11.4$1.35$10.0$13.0$7.73$5.22
2018Detailed filing. Detailed filing data is available for this year.$5.22$0.50$4.72$5.79$6.12$0.33
2017Facts available. Structured filing facts are available, but richer extracted sections are limited.$5.22$0.50$4.72$5.79$6.12$0.33
2016Detailed filing. Detailed filing data is available for this year.$5.70$0.86$4.84$5.87$6.63$0.76
2015Summary only. Only limited summary data is available for this year.$6.48$0.94$5.53$7.51$6.50$1.01
2014Detailed filing. Detailed filing data is available for this year.$5.02$0.50$4.52$6.90$6.77$0.13
2013Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.73$0.33$4.39$6.42
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.41$0.60$1.81$6.93
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$2.39$0.72$1.67$8.31