Child Neurology Education and Research Foundation

“During the fiscal year 2022, Child Neurology Foundation made significant changes to its governing documents. These changes were implemented to enhance the organization's governance structure, ensure compliance with evolving legal and regulatory requirements, and to adapt to the evolving needs of our organization and the communities we serve. These changes were undertaken after thorough review and deliberation by the Board of Directors and in consultation with legal counsel to ensure compliance with all relevant laws, regulations, and best practices. It is important to note that these changes do not impact the tax-exempt status of the Child Neurology Foundation. The organization continues to operate exclusively for charitable purposes as defined under section 501(c)(3) of the Internal Revenue Code. BYLAWS AMENDMENTS: The Child Neurology Foundation amended its bylaws to reflect updated language and provisions that align with the organization's current operations and strategic direction. These amendments include updated headquarters address, board meeting requirements, and the addition of the Finance Committee established in 2019. ARTICLES OF INCORPORATION AMENDMENTS: Amendments were made to Child Neurology Foundation's Articles of Incorporation to update the organization's purpose statement, ensuring it accurately reflects its mission and activities. Additionally, clarification was made for allowable advocacy activities, to comply with applicable state and federal laws and regulations.”

“The Executive Director/CEO, Treasurer, Director of Accounting and Finance, and external counsel undertook extensive review of the draft form 990 prior to presenting to the finance committee for review. The final form 990 is presented to the board of directors for their review and approval prior to filing.”

“The Foundation has a conflict of interest policy covering all board members and any other person who has an official position with the Foundation. Board members complete a conflict of interest policy form on an annual basis which is monitored and previewed by the board officers after submission. If a director is uncertain whether a conflict of interest exists, the conflict of interest policy states that it is better to err on the side of disclosure. When a director is aware of a potential conflict of interest the director must promptly disclose that conflict to the chair or to the full Board, as appropriate. The board would determine the severity of the conflict and the appropriate action to take, including omission from voting on any related matters and document in the meeting minutes. In certain cases a director may be removed from the official Foundation capacity if they are not able to divest from the conflicting relationship.”

“The Foundation's executive committee is responsible for hiring and setting the compensation of the executive director. The committee employs procedures (use of compensation surveys and board approval) and last set compensation in 2022.”

“The Foundation does not make its governing documents or conflict of interest policy available to the public. The most recent three years of IRS Form 990s and Audited financial statements are available at https://www.childneurologyfoundation.org/about-cnf/”

“Digital Health Solutions LLC: Development of the Child Health Improvement through Computerized Automation - Child Neurology”

“The Neurology Social Services Network (NSSN) was launched by CNF in 2022 to help patient advocacy organizations refer families to local service organizations to address social determinants of health. Some examples of services for families include access to food shelves, transportation assistance, and housing assistance. The program also tracks the outcomes of those referrals, measures the impact of organizational programs, and collaboratively aggregates data about how patient advocacy organizations are making an impact.”

“The Child Neurology Foundation spent $583,705 in 2022 on contractor/service providers with specialized skills to assist with program management, advocacy, meeting and event facilitation, and marketing. The Foundation also spent $443,470 on a contract with Digital Health Solutions LLC for the development of the Child Health Improvement through Computerized Automation - Child Neurology.”