Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
68th percentile
Higher debt load relative to assets than 68% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
13th percentile
Higher net margin than 13% of similar nonprofits.
Top Officer Pay
Score unavailable
This filing does not contain officer compensation rows.
Asset Growth
7th percentile
Faster asset growth than 7% of similar nonprofits.
Revenue Growth
Score unavailable
No earlier valid filing was available within the previous three public years.
Assets
Down$776,040
Down $152,304 (-16%) from 2013
Net Assets
Down$539,033
Down $293,256 (-35%) from 2013
Liabilities
Up$237,007
Up $140,952 (+147%) from 2013
Revenue
Down$1,464,840
Down $20,088 (-1.4%) from 2013
Expenses
Up$1,758,096
Up $159,988 (+10%) from 2013
Net Income
Down-$293,256
Down $180,076 (-159%) from 2013
The mission of the alpha-1 association is to identify those affected with alpha-1 antitrypsin deficiency and to improve the quality of their lives through support, education, and advocacy and encourage participation in research. The mission is accomplished with the assistance of more than 745 volunteers in fiscal year 2014 from the alpha-1 community. Programs and services have been provided to more than 5,000 alpha's and family members and the association has reached more than 10,000 alpha's, family members, healthcare professionals and others through its publications and communication efforts.
The alpha-1 association is the leading national patient membership organization which has served the alpha-1 patient community since 1991. It's programs include a national support network which encompasses more than 80 support groups, 4 virtual support groups, a patient hotline, annual national education conference, regional education day programs, genetic counseling service, an advocacy/public policy program and a resource website (www.alpha1.org)
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Savings and Temporary Cash Investments | $503,253 | $499,512 | ▼ $3,741 |
| Pledges and Grants Receivable | $348,500 | $211,600 | ▼ $136,900 |
| Accounts Receivable | $4,148 | $41,749 | ▲ $37,601 |
| Prepaid Expenses and Deferred Charges | $16,693 | $0 | ▼ $16,693 |
| Cash and Non-Interest-Bearing Accounts | $23,491 | $15,341 | ▼ $8,150 |
| Land, Buildings, and Equipment, Net | $32,259 | $7,838 | ▼ $24,421 |
| Total Assets | $928,344 | $776,040 | ▼ $152,304 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $81,055 | $229,507 | ▲ $148,452 |
| Deferred Revenue | $15,000 | $7,500 | ▼ $7,500 |
| Total Liabilities | $96,055 | $237,007 | ▲ $140,952 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $443,056 | $415,912 | ▼ $27,144 |
| Unrestricted Net Assets | $389,233 | $123,121 | ▼ $266,112 |
| Total Net Assets Fund Balance | $832,289 | $539,033 | ▼ $293,256 |
| Total Liabilities and Net Assets / Fund Balance | $928,344 | $776,040 | ▼ $152,304 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $7,838 | $14,549 | $22,387 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Marlene S Erven | Executive Director | FT | $106,155 | $106,155 |
| Name | Title |
|---|---|
| Henry Moehring | Chair |
| Kenneth Benson | Past Chair |
| Jen Childress | Vice Chair |
| Dc Young | Director |
| Jennifer Jopp | Director |
| Karen Voss | Director |
| Thomas Corron | Director |
| Virginia Clark | Director |
| Dell Witcher | Secretary |
| Sandra Douglas | Treasurer |
| Line Item | Amount |
|---|---|
| Other Expenses | $1,072,947 |
| Salaries, Compensation, and Employee Benefits | $619,715 |
| Total Fundraising Expense | $72,850 |
| Grants and Similar Amounts Paid | $65,434 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $267,838 | $22,815 | $18,104 | $308,757 |
| Conferences and Meetings | $265,666 | $24,271 | $324 | $290,261 |
| Travel | $206,430 | $33,707 | $1,899 | $242,036 |
| Current Officers, Directors, Trustees, and Key Employees | $163,590 | $13,963 | $11,132 | $188,685 |
| Office Expenses | $124,492 | $31,778 | $6,557 | $162,827 |
| Fees for Services Other | $213,663 | $-57,834 | $5,908 | $161,737 |
| Occupancy | $71,681 | $6,111 | $4,858 | $82,650 |
| Other Employee Benefits | $63,738 | $5,434 | $4,319 | $73,491 |
| Grants to Domestic Individuals | $65,434 | - | - | $65,434 |
| Fees for Services Accounting | - | $53,425 | - | $53,425 |
| Payroll Taxes | $34,373 | $2,930 | $2,329 | $39,632 |
| All Other Expenses | $14,593 | $3,395 | $15,588 | $33,576 |
| Fees for Services Legal | - | $27,754 | - | $27,754 |
| Pension Plan Contributions | $7,936 | $676 | $538 | $9,150 |
| Insurance | $7,850 | $442 | $351 | $8,643 |
| Depreciation Depletion | $6,812 | $723 | $443 | $7,978 |
| Other Expenses | - | $1,560 | $500 | $2,060 |
| Total Functional Expenses | $1,514,096 | $171,150 | $72,850 | $1,758,096 |
| Line Item | Amount |
|---|---|
| Expenses per Audited Statements | $1,758,096 |
| Total Expenses per Audited Statements | $1,758,096 |
| Total Expenses per Form 990 | $1,758,096 |
| Expenses Not Reported on Financial Statements | $0 |
| Expenses Not Reported on Form 990 | $0 |
| Line Item | Amount |
|---|---|
| Professional Fundraising Fees | $0 |
“The executive committee exercises the board's powers as necessary between board meetings (excepting matters of critical importance, as defined by board resolution or powers specifically reserved to the board or membership by law, these bylaws, or resolution approved by a majority of the board's total membership). The board, in its discretion, may add directors or officers to the executive committee from time to time who shall serve until removed or replaced.”
“The alpha-1 association board voted to merge into the alpha-1 foundation, another 501(c)(3) organization, as of july 1, 2014.”
“Alpha-1 is a membership organization.”
“The nominating and governance committee presents to the members a proposed slate of qualified candidates to be elected by the general membership at the annual meeting. Directors are elected 50% by election of the membership and 50% as appointed by the board. Prior to the expiration of any term of corporate officers the nominating and governance committee presents to the board a slate of officers to fill the positions of chair, vice-chair, secretary, treasurer and chair of the nominating & governance committee.”
“Members approved the merger into the alpha-1 foundation.”
“All members of the finance committee are provided a draft of the audited financial report and a draft of the irs form 990 prior to a telephone conference where the members have management and the auditors review the audited financial statements and the form 990. The tax return is explained in detail to assure that they are fully aware of the contents of the return.”
“This association's board of directors and employees are required to acknowledge annually that he or she has read the conflict of interest statement and is in compliance with this policy. When a covered person becomes aware of a proposed covered transaction, he or she has a duty to immediately disclose the existence and circumstances of such covered transaction to the association's board in writing, refrain from using his or her personal influence to encourage the association to enter into the covered transaction and physically excuse himself or herself from any discussions regarding the covered transaction except to answer questions, including board discussions and decisions on the subject.”
“Similar positions in the florida area are researched by the human resource coordinator, through guidestar an online program that researches other non-profits and the alpha-1 foundation which has positions similar to the association's.”
“Public documents will be made available upon request.”
“The alpha-1 association board voted to merge into the alpha-1 foundation, another 501(c)(3) organization, as of july 1, 2014.”
“A tax expense or benefit from an uncertain income tax position (including tax exempt status) may be recognized only when it is more likely than not that the position will be sustained upon examination by taxing authorities. Management believes the association has no uncertain income tax positions that would result in an accrual, expense or benefit in a material amount under the more likely than not standard.”
“Loss on disposal of assets 15,904.”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 81055 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 229507 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 4148 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 41749 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | THE ALPHA-1 ASSOCIATION IS THE LEADING NATIONAL PATIENT MEMBERSHIP ORGANIZATION WHICH HAS SERVED THE ALPHA-1 PATIENT COMMUNITY SINCE 1991. IT'S PROGRAMS INCLUDE A NATIONAL SUPPORT NETWORK WHICH ENCOMPASSES MORE THAN 80 SUPPORT GROUPS, 4 VIRTUAL SUPPORT GROUPS, A PATIENT HOTLINE, ANNUAL NATIONAL EDUCATION CONFERENCE, REGIONAL EDUCATION DAY PROGRAMS, GENETIC COUNSELING SERVICE, AN ADVOCACY/PUBLIC POLICY PROGRAM AND A RESOURCE WEBSITE (WWW.ALPHA1.ORG) |
| IRS990/AddressChangeInd | 0 | X |
| IRS990/AllOtherContributionsAmt | 0 | 1301734 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 15588 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 3395 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 14593 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 33576 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/BusinessName/BusinessNameLine1 | 0 | THE ORGANIZATION |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 3055679888 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1 | 0 | 3300 PONCE DE LEON BOULEVARD |
| IRS990/BooksInCareOfDetail/USAddress/City | 0 | CORAL GABLES |
| IRS990/BooksInCareOfDetail/USAddress/State | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCode | 0 | 33134 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 23491 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 15341 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 1 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 11132 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 13963 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 163590 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 188685 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 1 |
| IRS990/ConferencesMeetingsGrp/FundraisingAmt | 0 | 324 |
| IRS990/ConferencesMeetingsGrp/ManagementAndGeneralAmt | 0 | 24271 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 265666 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 290261 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1314389 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 65434 |
| IRS990/CYInvestmentIncomeAmt | 0 | -15180 |
| IRS990/CYOtherExpensesAmt | 0 | 1072947 |
| IRS990/CYOtherRevenueAmt | 0 | 0 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 165631 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | -293256 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 619715 |
| IRS990/CYTotalExpensesAmt | 0 | 1758096 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 72850 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1464840 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 1 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/BOYAmt | 0 | 15000 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 7500 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 443 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 723 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 6812 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 7978 |
| IRS990/Desc | 0 | THE ALPHA-1 ASSOCIATION'S 21ST ANNUAL NATIONAL EDUCATIONAL CONFERENCE, WAS HELD ON JUNE 6-8, 2014 IN KANSAS CITY, MO, WITH A TOTAL OF 511 ATTENDEES. THE SPEAKERS INCLUDED SOME OF THE LEADING CLINICIANS AND RESEARCHERS IN THE FIELD OF ALPHA-1 AS WELL AS OTHER HEALTH PROFESSIONALS. THE PROGRAM COVERED A WIDE RANGE OF MEDICAL EDUCATION TOPICS AND SUPPORTIVE TOPICS TO INFORM AND EMPOWER PATIENTS ABOUT THEIR HEALTH. THE CONFERENCE ALLOWED PATIENTS TO NETWORK WITH OTHER PATIENTS, BECOME MOTIVATED TO TAKE CHARGE OF THEIR HEALTH, PARTICIPATE IN LOCAL SUPPORT GROUPS, AWARENESS, OUTREACH, OR ADVOCACY PROGRAMS. THE LAST FIVE YEARS OF PRESENTATIONS ARE AVAILABLE ON THE ASSOCIATION WEBSITE AT WWW.ALPHA1.ORG. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 9 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 451248 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 53425 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 53425 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 27754 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 27754 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 5908 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | -57834 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 213663 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 161737 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 2.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | KENNETH BENSON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | JEN CHILDRESS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | HENRY MOEHRING |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DELL WITCHER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | THOMAS CORRON |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SANDRA DOUGLAS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | JENNIFER JOPP |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DC YOUNG |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KAREN VOSS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | VIRGINIA CLARK |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | MARLENE S ERVEN |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 106155 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | PAST CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | VICE CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 1 |
| IRS990/Form990TFiledInd | 0 | 1 |
| IRS990/FormationYr | 0 | 1991 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 0 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -15904 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 10 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 65434 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 65434 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 0 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/OtherAmt | 0 | 5590 |
| IRS990/GrossReceiptsAmt | 0 | 1486334 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 10 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 1 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 351 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 442 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 7850 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 8643 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 724 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 724 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/IRPDocumentCnt | 0 | 5 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 14549 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 32259 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 7838 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 22387 |
| IRS990/LegalDomicileStateCd | 0 | MN |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 21494 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 1 |
| IRS990/LocalChaptersInd | 0 | 0 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 12655 |
| IRS990/MembersOrStockholdersInd | 0 | 1 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | THE MISSION OF THE ALPHA-1 ASSOCIATION IS TO IDENTIFY THOSE AFFECTED WITH ALPHA-1 ANTITRYPSIN DEFICIENCY AND TO IMPROVE THE QUALITY OF THEIR LIVES THROUGH SUPPORT, EDUCATION, AND ADVOCACY AND ENCOURAGE PARTICIPATION IN RESEARCH. THE MISSION IS ACCOMPLISHED WITH THE ASSISTANCE OF MORE THAN 745 VOLUNTEERS IN FISCAL YEAR 2014 FROM THE ALPHA-1 COMMUNITY. PROGRAMS AND SERVICES HAVE BEEN PROVIDED TO MORE THAN 5,000 ALPHA'S AND FAMILY MEMBERS AND THE ASSOCIATION HAS REACHED MORE THAN 10,000 ALPHA'S, FAMILY MEMBERS, HEALTHCARE PROFESSIONALS AND OTHERS THROUGH ITS PUBLICATIONS AND COMMUNICATION EFFORTS. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 832289 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 539033 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -15904 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -15904 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 4858 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 6111 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 71681 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 82650 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 6557 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 31778 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 124492 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 162827 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 4319 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 5434 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 63738 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 73491 |
| IRS990/OtherExpensesGrp/Desc | 0 | DUES AND SUBSCRIPTIONS |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 500 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 1560 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 2060 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 18104 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 22815 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 267838 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 308757 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/OwnWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2329 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2930 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 34373 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 39632 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 538 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 676 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 7936 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 9150 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 348500 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 211600 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 16693 |
| IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | ROBERT C BARRETT |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 0 | 541900 |
| IRS990/ProgramServiceRevenueGrp/BusinessCd | 1 | 511190 |
| IRS990/ProgramServiceRevenueGrp/Desc | 0 | CONFERENCE REVENUES |
| IRS990/ProgramServiceRevenueGrp/Desc | 1 | NEWSLETTER ADVERTISING |
| IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt | 0 | 98131 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 0 | 98131 |
| IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt | 1 | 67500 |
| IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt | 0 | 67500 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | PATIENT SUPPORT NETWORK - THE ALPHA-1 SUPPORT GROUP NETWORK ENCOMPASSES 80 SUPPORT GROUPS, FOUR VIRTUAL SUPPORT GROUPS, A PATIENT HOT LINE AND PEER GUIDE REFERRAL PROGRAM. SUPPORT GROUPS ARE COMMITTED TO IMPROVING THE QUALITY OF LIFE INDIVIDUALS AND THEIR FAMILIES AFFECTED BY ALPHA-1. THE FOUR VIRTUAL SUPPORT GROUPS INCLUDE THE ALPHA-1 FAMILIES, TRANSPLANT, CAREGIVERS, AND ALPHA-1 TIMELY TOPICS. IN ADDITION, MONTHLY TELECALLS ARE HELD FOR SUPPORT GROUP LEADERS TO PROVIDE ONGOING COMMUNICATION AND EDUCATION. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 242873 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 19299 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | NATIONAL EDUCATION SERIES - THIS SERIES OF SEVEN (7) ONE-DAY REGIONAL PATIENT EDUCATIONAL PROGRAMS THAT HAS BEEN CONDUCTED SINCE 1999. THE SERIES PROVIDES ACCESS TO CURRENT MEDICAL INFORMATION AND RESOURCES TO HUNDREDS OF ALPHAS, THEIR FAMILIES, AND CAREGIVERS. THIS PAST SERIES BROUGHT IN A TOTAL OF 727 ATTENDEES. THERE IS NO COST TO THE PARTICIPANTS OTHER THAN THEIR OWN PERSONAL TRAVEL EXPENSES. IN MANY CASES THESE PROGRAMS ARE PLANNED IN CONJUNCTION WITH ALPHA-1 FOUNDATION-AFFILIATED CLINICAL RESOURCE CENTERS. A DINNER OR EVENT IS HELD IN CONJUNCTION WITH EACH DAY TO PROVIDE ALPHAS AND THEIR FAMILIES AN OPPORTUNITY TO INTERACT WITH OTHER PATIENTS, SPEAKERS, AND EXHIBITORS. CONTINUING EDUCATION CREDITS ARE OFFERED TO RESPIRATORY THERAPISTS AND GENETIC COUNSELORS WHO ATTEND THESE PROGRAMS. PRESENTATIONS FROM THIS SERIES ARE MOUNTED ON THE ASSOCIATION'S WEBSITE E-EDUCATION SITE FOR VIEWING AT WWW.ALPHA1.ORG. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 315193 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | OTHER PROGRAM SERVICES: THE ALPHA-1 ASSOCIATION'S GENETIC COUNSELING PROGRAM OFFERS FREE PHONE BASED CONFIDENTIAL INFORMATION AND RESOURCES TO ALPHAS, FAMILY MEMBERS, AND MEDICAL PROFESSIONALS ON THE GENETICS OF ALPHA-1, TESTING OPTIONS AND THE RISKS AND BENEFITS OF TESTING. THE CERTIFIED GENETIC COUNSELOR HELPS PEOPLE UNDERSTAND AND ADAPT TO THE MEDICAL, PSYCHOLOGICAL, AND FAMILY IMPLICATIONS OF GENETIC CONTRIBUTIONS TO DISEASE, PROVIDES SUPPORTIVE COUNSELING, AND REFERRAL TO COMMUNITY OR STATE SUPPORT SERVICES.ADVOCACY (PUBLIC POLICY) HAS BEEN A VITAL PART OF THE ALPHA-1 ASSOCIATION'S MISSION SINCE ITS INCEPTION. ITS ADVOCACY PROGRAM MONITORS FEDERAL LEGISLATION AND REGULATIONS THAT AFFECT INDIVIDUALS AND FAMILIES LIVING WITH ALPHA-1. THE ASSOCIATION MAINTAINS A PRESENCE IN WASHINGTON, DC AND COLLABORATES CLOSELY WITH THE ALPHA-1 FOUNDATION AND OTHER ORGANIZATIONS WITH SIMILAR PUBLIC POLICY GOALS.THE ASSOCIATION PRODUCES A NEWSLETTER, ALPHA-1 NEWS, AND A MONTHLY E-NEWSLETTER, COMMUNITY CURRENTS, WHICH BRINGS NEWS AND INFORMATION TO MORE THAN 10,000 PATIENTS AND THEIR FAMILIES, CAREGIVERS, AND MEDICAL PROFESSIONALS. THE ASSOCIATION'S WEBSITE (WWW.ALPHA1.ORG) PROVIDES E-EDUCATION, COMMUNITY FORUMS, AND A WEALTH OF RESOURCES AND INFORMATION FOR ALPHAS AND THEIR FAMILIES.OTHER PROGRAM SERVICES: THE ASSOCIATION HAD OTHER PROGRAM EXPENSES WHICH INCLUDED SPECIAL PROJECTS, AWARDS AND GRANTS AND OTHER PROGRAM EXPENSES. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 504782 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 46135 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1323464 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 52616 |
| IRS990/PYInvestmentIncomeAmt | 0 | 1614 |
| IRS990/PYOtherExpensesAmt | 0 | 952977 |
| IRS990/PYOtherRevenueAmt | 0 | 0 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 159850 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -113180 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 592515 |
| IRS990/PYTotalExpensesAmt | 0 | 1598108 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1484928 |
| IRS990/QuidProQuoContributionsInd | 0 | 0 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | -293256 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 0 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990/RevenueAmt | 0 | 98131 |
| IRS990/SavingsAndTempCashInvstGrp/BOYAmt | 0 | 503253 |
| IRS990/SavingsAndTempCashInvstGrp/EOYAmt | 0 | 499512 |
| IRS990ScheduleA/Form990ScheduleAPartIVGrp/ExplanationTxt | 0 | THE ALPHA-1 ASSOCIATION MAINTAINS AN ONGOING DONOR SOLICITATION PROGRAM FROM THE GENERAL PUBLIC, THE ALPHA-1 COMMUNITY, ITS MEMBERSHIP AND PUBLIC CHARITIES. A DONOR RECOGNITION PROGRAM IS IN PLACE. FUNDRAISING ACTIVITIES INCLUDES AN ANNUAL APPEAL FOR FUNDS, NEW MEMBERSHIPS, A GRASSROOTS FUNDRAISING DRIVE AND SPECIFIC FUNDRAISING EVENTS THROUGHOUT THE YEAR. THE BOARD OF DIRECTORS HAS A DEVELOPMENT STANDING COMMITTEE TO OVERSEE FUNDRAISING EFFORTS. PUBLIC SUPPORT IS AT 26.68 % AN INCREASE OF .29% OVER LAST YEAR. EIGHTY-SEVEN PER CENT OF THE ASSOCIATION'S EXPENSES GO DIRECTLY TO VITAL PROGRAMS FOR PATIENTS. THE PRIMARY BENEFICIARIES OF THE ASSOCIATION'S FREE PROGRAMS AND SERVICES ARE INDIVIDUALS AFFECTED BY THE GENETIC CONDITION, ALPHA-1 ANTITRYPSIN DEFICIENCY (ALPHA-1) AND THEIR FAMILIES. ALPHA-1 IS A RARE DISORDER THAT AFFECTS AN ESTIMATED 100,000 INDIVIDUALS IN THE US, OF WHICH LESS THAN 10,000 HAVE BEEN DIAGNOSED. MANIFESTATION AND TREATMENT OF ALPHA-1 IS NOT WELL KNOWN IN THE MEDICAL COMMUNITY. PATIENTS AND PROFESSIONALS ARE IN NEED OF INFORMATION AND MEDICAL EDUCATION TO IMPROVE QUALITY OF LIFE, AND TO DEAL WITH THE IMPACT OF THIS LIFE-THREATENING AND LIFESTYLE LIMITING GENETIC CONDITION. ALPHA-1 CAN CAUSE SEVERE FINANCIAL PRESSURES ON FAMILIES OF THOSE AFFECTED, WHICH ADVERSELY IMPACTS THE ABILITY OF THE ASSOCIATION TO RAISE SIGNIFICANT FUNDS FROM CONSTITUENTS. THE ASSOCIATION WAS ESTABLISHED IN 1991 TO ADDRESS MULTIPLE NEEDS OF PATIENTS DIAGNOSED WITH ALPHA-1. SEED FUNDING CAME FROM COMPANIES PROVIDING PRODUCTS AND SERVICES TO THE PATIENT COMMUNITY. THESE COMPANIES CONTINUE TO HELP FUND THE ASSOCIATION AND ARE SUPPORTIVE OF THE ASSOCIATION MISSION. ALL PROGRAMS ARE DEVELOPED WITHOUT INFLUENCE OR INVOLVEMENT FROM CORPORATE CONTRIBUTORS. THE BOARD OF DIRECTORS IS COMPRISED OF INDIVIDUALS WHO ARE EITHER DIAGNOSED WITH ALPHA-1, FIRST DEGREE RELATIVES OR PHYSICIANS. DIRECTORS RESIDE IN DIVERSE GEOGRAPHIC REGIONS OF THE COUNTRY AND REPRESENT A SPECTRUM OF THE VARIOUS DISEASE STATES OF ALPHA-1 WHICH INCLUDE LUNG DISEASE AND LIVER DISEASE, AS WELL AS PARENTS WITH ALPHA-1 CHILDREN. A MEMBERSHIP DRIVE IS CONDUCTED ANNUALLY THROUGH DIRECT MAIL TO 9,500+ MEMBERS AND CONSTITUENTS. THE DUES STRUCTURE MAKES MEMBERSHIP AFFORDABLE AND ACCESSIBLE TO A BROAD CROSS SECTION OF THE PUBLIC. INDIVIDUALS WHO CANNOT AFFORD THE MEMBERSHIP FEE MAY RECEIVE AN ASSOCIATE MEMBERSHIP WITH FULL PRIVILEGES AT NO COST. THE ALPHA-1 ASSOCIATION PROVIDES FREE PROGRAMS AND SERVICES FOR THE BENEFIT OF THE GENERAL PUBLIC, INCLUDING A NATIONAL NETWORK OF 80 VOLUNTEER SUPPORT GROUPS IN LOCAL COMMUNITIES; FOUR VIRTUAL TELEPHONE SUPPORT GROUPS, A PATIENT HOTLINE, GENETIC COUNSELING PROGRAM, SIX ANNUAL REGIONAL EDUCATION PROGRAMS AND A NATIONAL EDUCATION CONFERENCE. MORE THAN 750 VOLUNTEERS ASSIST THE BOARD AND STAFF IN CARRYING OUT THE MISSION. ITS WEBSITE (WWW.ALPHA1.ORG) SERVES AS A INFORMATION AND EDUCATIONAL RESOURCE FOR ASSOCIATION CONSTITUENTS. ALPHA-1 NEWS, AND ELECTRONIC NEWSLETTER BRINGS NEWS AND INFORMATION TO MEMBERS, PATIENTS AND THEIR FAMILIES, CAREGIVERS AND MEDICAL PROFESSIONALS. |
| IRS990ScheduleA/Form990ScheduleAPartIVGrp/FormAndLineReferenceDesc | 0 | LINE 6 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 1314389 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1323464 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1256578 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1166733 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1330023 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 6391187 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt | 0 | 724 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1614 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 2310 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 4660 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 4878 |
| IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt | 0 | 14186 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 433183 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.26680 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.26290 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1708638 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 4682549 |
| IRS990ScheduleA/TenPctFactsCrcmstncsTestCYInd | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 1314389 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 1323464 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1256578 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 1166733 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 1330023 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 6391187 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 6405373 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | 1 |
| IRS990ScheduleC/DirectContactLegislatorsAmt | 0 | 10000 |
| IRS990ScheduleC/DirectContactLegislatorsInd | 0 | 1 |
| IRS990ScheduleC/GrantsOtherOrganizationsInd | 0 | 0 |
| IRS990ScheduleC/MailingsMembersInd | 0 | 0 |
| IRS990ScheduleC/MediaAdvertisementsInd | 0 | 0 |
| IRS990ScheduleC/NotDescribedSection501c3Ind | 0 | 0 |
| IRS990ScheduleC/OtherActivitiesInd | 0 | 0 |
| IRS990ScheduleC/PaidStaffOrManagementInd | 0 | 0 |
| IRS990ScheduleC/PublicationsOrBroadcastInd | 0 | 0 |
| IRS990ScheduleC/RalliesDemonstrationsInd | 0 | 0 |
| IRS990ScheduleC/SupplementalInformationDetail/ExplanationTxt | 0 | THE ALPHA-1 ASSOCIATION ENSURED THAT THE AFFORDABLE CARE ACT INCLUDED PROVISIONS FAVORABLE TO THOSE LIVING WITH CHRONIC DISEASE. THIS WAS ACHIEVED BY CONTACT WITH MEMBERS OF CONGRESS AND THEIR STAFF AND THRU PUBLIC TESTIMONY AT MEETINGS CONVENED BY THE CENTERS FOR MEDICARE AND MEDICAID SERVICES. THE ALPHA-1 ASSOCIATION SUPPORTED LEGISLATION TO IMPROVE ACCESS TO CARE THRU MEETINGS WITH MEMBERS OF CONGRESS AND THEIR STAFF. |
| IRS990ScheduleC/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART II-B, LINE 1: |
| IRS990ScheduleC/TotalLobbyingExpendituresAmt | 0 | 10000 |
| IRS990ScheduleC/VolunteersInd | 0 | 1 |
| IRS990ScheduleD/EquipmentGrp/BookValueAmt | 0 | 7838 |
| IRS990ScheduleD/EquipmentGrp/DepreciationAmt | 0 | 14549 |
| IRS990ScheduleD/EquipmentGrp/OtherCostOrOtherBasisAmt | 0 | 22387 |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesNotRptFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 1758096 |
| IRS990ScheduleD/FootnoteTextInd | 0 | X |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 15904 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 15904 |
| IRS990ScheduleD/RevenueNotReportedFinclStmtAmt | 0 | 0 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 1464840 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | A TAX EXPENSE OR BENEFIT FROM AN UNCERTAIN INCOME TAX POSITION (INCLUDING TAX EXEMPT STATUS) MAY BE RECOGNIZED ONLY WHEN IT IS MORE LIKELY THAN NOT THAT THE POSITION WILL BE SUSTAINED UPON EXAMINATION BY TAXING AUTHORITIES. MANAGEMENT BELIEVES THE ASSOCIATION HAS NO UNCERTAIN INCOME TAX POSITIONS THAT WOULD RESULT IN AN ACCRUAL, EXPENSE OR BENEFIT IN A MATERIAL AMOUNT UNDER THE MORE LIKELY THAN NOT STANDARD. |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | LOSS ON DISPOSAL OF ASSETS 15,904. |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | PART X, LINE 2: |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | PART XI, LINE 2D - OTHER ADJUSTMENTS: |
| IRS990ScheduleD/TotalBookValueLandBuildingsAmt | 0 | 7838 |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 1758096 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 1464840 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 1480744 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 1758096 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | 1 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 0 | 19299 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 1 | 17000 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 2 | 27099 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/CashGrantAmt | 3 | 2036 |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 0 | GRASS ROOTS GRANTS |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 1 | EDUCATIONAL SCHOLARSHIPS |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 2 | EMERGENCY RELIEF |
| IRS990ScheduleI/GrantsOtherAsstToIndivInUSGrp/GrantTypeTxt | 3 | OXYGEN RELIEF |
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Displayed year
2014 • Form 990Detailed filing. Detailed filing data is available for this year.