Liabilities / Assets
51st percentile
Higher debt load relative to assets than 51% of similar nonprofits.
990 • Fiscal year 2018 • EIN 41-1306908
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
51st percentile
Higher debt load relative to assets than 51% of similar nonprofits.
Liabilities / Revenue
57th percentile
Higher debt load relative to revenue than 57% of similar nonprofits.
Net Margin
50th percentile
Higher net margin than 50% of similar nonprofits.
Top Officer Pay
65th percentile
Higher top officer pay than 65% of similar nonprofits.
Top officer pay equals 7.4% of source-year revenue.
Asset Growth
12th percentile
Faster asset growth than 12% of similar nonprofits.
Revenue Growth
20th percentile
Faster revenue growth than 20% of similar nonprofits.
Assets
Down$1,829,880
Down $244,308 (-12%) from 2017
Net Assets
Down$1,659,294
Down $108,880 (-6.2%) from 2017
Liabilities
Down$170,586
Down $135,428 (-44%) from 2017
Revenue
Down$1,261,658
Down $118,164 (-8.6%) from 2017
Expenses
Down$1,223,962
Down $794,880 (-39%) from 2017
Net Income
Up$37,696
Up $676,716 (+106%) from 2017
Advocate, educate and support individuals affected by prader-willi syndrome and their caregivers.
To enhance the quality of life and empower those affected by prader-willi syndrome.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Investments in Publicly Traded Securities | $1,468,903 | $1,474,160 | ▲ $5,257 |
| Cash and Non-Interest-Bearing Accounts | $429,899 | $274,113 | ▼ $155,786 |
| Pledges and Grants Receivable | $11,504 | $50,394 | ▲ $38,890 |
| Inventories for Sale or Use | $10,000 | $10,000 | → $0 |
| Land, Buildings, and Equipment, Net | $2,794 | $4,463 | ▲ $1,669 |
| Total Assets | $2,074,188 | $1,829,880 | ▼ $244,308 |
| Other Assets Total | $151,088 | $16,750 | ▼ $134,338 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $306,014 | $117,083 | ▼ $188,931 |
| Deferred Revenue | - | $51,000 | - |
| Other Liabilities | $0 | $2,503 | ▲ $2,503 |
| Total Liabilities | $306,014 | $170,586 | ▼ $135,428 |
| Net Assets / Fund Balance | |||
| Temporarily Rstr Net Assets | $1,009,022 | $1,202,873 | ▲ $193,851 |
| Unrestricted Net Assets | $588,053 | $262,693 | ▼ $325,360 |
| Permanently Rstr Net Assets | $171,099 | $193,728 | ▲ $22,629 |
| Total Net Assets Fund Balance | $1,768,174 | $1,659,294 | ▼ $108,880 |
| Total Liabilities and Net Assets / Fund Balance | $2,074,188 | $1,829,880 | ▼ $244,308 |
| Asset | Book Value | Depreciation | Basis |
|---|---|---|---|
| Equipment | $1,318 | $52,959 | $54,277 |
| Other Land Buildings | $3,145 | $26,429 | $29,574 |
| Period | Beginning | Contrib. | Gain/Loss | Other Uses | End |
|---|---|---|---|---|---|
| 2018 | $171,099 | $22,629 | - | - | $193,728 |
| 2017 | $159,934 | $11,165 | - | - | $171,099 |
| 2016 | $133,884 | $26,050 | - | - | $159,934 |
| 2015 | $111,150 | $22,734 | - | - | $133,884 |
| 2014 | $103,448 | $7,702 | - | - | $111,150 |
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Stephen Queior | Executive Director | FT | $91,117 | $2,733 | $93,850 |
| Name | Title |
|---|---|
| James Kane | Chair |
| Tammie Penta | Vice-chair |
| Christine Geraci | Director |
| Crystal Boser | Director |
| Dan Driscoll | Director |
| Kristi Rickenbach | Director |
| Marguerite Rupnow | Director |
| Mary K Ziccardi | Director |
| Mitchell Cohen | Director |
| Paige Rivard | Director |
| Pete Girard | Director |
| Rob Lutz | Director |
| Julie Doherty | Secretary |
| Denise Westenfield | Treasurer |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $693,298 |
| Other Expenses | $354,784 |
| Grants and Similar Amounts Paid | $175,880 |
| Total Fundraising Expense | $74,689 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Other Salaries and Wages | $397,374 | $65,905 | $34,870 | $498,149 |
| Grants to Domestic Orgs | $146,792 | - | - | $146,792 |
| Office Expenses | $77,598 | $12,870 | $6,809 | $97,277 |
| Current Officers, Directors, Trustees, and Key Employees | $74,864 | $12,416 | $6,570 | $93,850 |
| Occupancy | $58,477 | $9,698 | $5,124 | $73,299 |
| Other Employee Benefits | $39,751 | $6,593 | $3,488 | $49,832 |
| Payroll Taxes | $34,628 | $5,743 | $3,039 | $43,410 |
| Grants to Domestic Individuals | $29,088 | - | - | $29,088 |
| Fees for Services Other | $20,967 | $3,465 | $1,761 | $26,193 |
| Advertising | $13,703 | $2,273 | $1,202 | $17,178 |
| Travel | $13,654 | $2,264 | $1,196 | $17,114 |
| All Other Expenses | $12,897 | $2,139 | $1,132 | $16,168 |
| Insurance | $9,503 | $1,576 | $833 | $11,912 |
| Pension Plan Contributions | $6,427 | $1,066 | $564 | $8,057 |
| Other Expenses | $5,773 | $957 | $506 | $7,236 |
| Fees for Services Accounting | $4,478 | $740 | $379 | $5,597 |
| Depreciation Depletion | $1,371 | $227 | $120 | $1,718 |
| Fees for Service Investment Mgmnt Fees | - | $171 | - | $171 |
| Conferences and Meetings | $-20,597 | - | - | $-20,597 |
| Total Functional Expenses | $1,007,739 | $141,534 | $74,689 | $1,223,962 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $2,062,854 |
| Total Expenses per Form 990 | $1,223,962 |
| Expenses per Audited Statements | $1,223,791 |
| Expenses Not Reported on Form 990 | $839,063 |
| Expenses Not Reported on Financial Statements | $171 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| CHILDREN'S HOSPITAL OF PITTSBURGH | Pittsburgh, PA | - | Pig Model Research | $120,000 |
| University of South Florida | Tampa, FL | - | Tamura Dmcc | $12,500 |
| Foundation for Prader-willi Research | Walnut, CA | - | Consortium Clinical Trials | $10,000 |
| Line Item | Amount |
|---|---|
| Fundraising Direct Expenses | $52,711 |
| Fundraising Gross Income | $19,511 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Fundraising Events | $112,794 | $19,511 | $52,711 | $-33,200 |
| Total Events | $112,794 | $19,511 | $52,711 | $-33,200 |
| Liability | Amount |
|---|---|
| Deferred Charges | $1,607 |
| Due to Related Parties | $896 |
“Election of board members and their rights - the organization has members that may be members of the board of directors.”
“Decisions subject to approval of members - some decisions of the governing body are subject to approval of the members of the organization.”
“The executive committee and treasurer reviewed and approved the irs form 990.”
“Enforcement of conflicts of interest policy - officers, directors, and key employees sign a conflict of interest form each year at the fall semi-annual board meeting.”
“Compensation process for top officials - the policy for determining compensation of the pwsa executive director includes the elements of 1) review and approval by the executive committee of board of directors, 2) use of data of comparable compensation, and 3) comtemporaneous documentation and recordkeeping.”
“Governing documents disclosure explanation - the association when requested will provide its governing documents, conflict of interest policy, and financial statements available to the requesting public.”
“The process has not changed from the prior year.”
“Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the association had no uncertain income tax positions that could have a significant effect on the financial statements for the year ended december 31, 2018. The association's federal income tax returns are subject to examination by the internal revenue service, generally for three years after the federal income tax returns were filed.”
“Fundraising expense - $52,711 promotional material - $22,952”
“Fundraising expense - $52,711 promotional material - $22,952”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | 0 |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 306014 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 117083 |
| IRS990/ActivitiesConductedPrtshpInd | 0 | 0 |
| IRS990/ActivityOrMissionDesc | 0 | TO ENHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME. |
| IRS990/AdvertisingGrp/FundraisingAmt | 0 | 1202 |
| IRS990/AdvertisingGrp/ManagementAndGeneralAmt | 0 | 2273 |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 13703 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 17178 |
| IRS990/AllOtherContributionsAmt | 0 | 1087289 |
| IRS990/AllOtherExpensesGrp/FundraisingAmt | 0 | 1132 |
| IRS990/AllOtherExpensesGrp/ManagementAndGeneralAmt | 0 | 2139 |
| IRS990/AllOtherExpensesGrp/ProgramServicesAmt | 0 | 12897 |
| IRS990/AllOtherExpensesGrp/TotalAmt | 0 | 16168 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | 1 |
| IRS990/AuditCommitteeInd | 0 | 1 |
| IRS990/BackupWthldComplianceInd | 0 | 1 |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | STEVE QUEIOR CEO |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 9413120400 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8588 POTTER PARK DRIVE SUITE 500 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | SARASOTA |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | FL |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 34238 |
| IRS990/BusinessRlnWithFamMemInd | 0 | 0 |
| IRS990/BusinessRlnWithOfficerEntInd | 0 | 0 |
| IRS990/BusinessRlnWithOrgMemInd | 0 | 0 |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 429899 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 274113 |
| IRS990/ChangeToOrgDocumentsInd | 0 | 0 |
| IRS990/CntrctRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/CollectionsOfArtInd | 0 | 0 |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 6570 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 12416 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 74864 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 93850 |
| IRS990/CompensationFromOtherSrcsInd | 0 | 0 |
| IRS990/CompensationProcessCEOInd | 0 | 1 |
| IRS990/CompensationProcessOtherInd | 0 | 0 |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | -20597 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | -20597 |
| IRS990/ConflictOfInterestPolicyInd | 0 | 1 |
| IRS990/ConservationEasementsInd | 0 | 0 |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | 0 |
| IRS990/ContriRptFundraisingEventAmt | 0 | 93283 |
| IRS990/CostOfGoodsSoldAmt | 0 | 22952 |
| IRS990/CreditCounselingInd | 0 | 0 |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 1209997 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 175880 |
| IRS990/CYInvestmentIncomeAmt | 0 | 84301 |
| IRS990/CYOtherExpensesAmt | 0 | 354784 |
| IRS990/CYOtherRevenueAmt | 0 | -32640 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 37696 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 693298 |
| IRS990/CYTotalExpensesAmt | 0 | 1223962 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 74689 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 1261658 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | 1 |
| IRS990/DeductibleArtContributionInd | 0 | 0 |
| IRS990/DeductibleNonCashContriInd | 0 | 0 |
| IRS990/DeferredRevenueGrp/EOYAmt | 0 | 51000 |
| IRS990/DelegationOfMgmtDutiesInd | 0 | 0 |
| IRS990/DepreciationDepletionGrp/FundraisingAmt | 0 | 120 |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 227 |
| IRS990/DepreciationDepletionGrp/ProgramServicesAmt | 0 | 1371 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 1718 |
| IRS990/Desc | 0 | CONFERENCE FOR PROFESSIONALS AND PARENTS DESIGNED TO SHARE NEW APPROACHES IN DEALING WITH PRADER-WILLI SYNDROME. |
| IRS990/DescribedInSection501c3Ind | 0 | 1 |
| IRS990/DisregardedEntityInd | 0 | 0 |
| IRS990/DocumentRetentionPolicyInd | 0 | 1 |
| IRS990/DonorAdvisedFundInd | 0 | 0 |
| IRS990/ElectionOfBoardMembersInd | 0 | 1 |
| IRS990/EmployeeCnt | 0 | 17 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | 1 |
| IRS990/EngagedInExcessBenefitTransInd | 0 | 0 |
| IRS990/ExpenseAmt | 0 | 57724 |
| IRS990/FamilyOrBusinessRlnInd | 0 | 0 |
| IRS990/FederalGrantAuditRequiredInd | 0 | 0 |
| IRS990/FeesForServicesAccountingGrp/FundraisingAmt | 0 | 379 |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 740 |
| IRS990/FeesForServicesAccountingGrp/ProgramServicesAmt | 0 | 4478 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 5597 |
| IRS990/FeesForServicesOtherGrp/FundraisingAmt | 0 | 1761 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 3465 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 20967 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 26193 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/ManagementAndGeneralAmt | 0 | 171 |
| IRS990/FeesForSrvcInvstMgmntFeesGrp/TotalAmt | 0 | 171 |
| IRS990/ForeignActivitiesInd | 0 | 0 |
| IRS990/ForeignFinancialAccountInd | 0 | 0 |
| IRS990/ForeignOfficeInd | 0 | 0 |
| IRS990/Form8282PropertyDisposedOfInd | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 8 | 10.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 9 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 10 | 15.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 11 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 12 | 3.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 13 | 5.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 14 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 8 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 9 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 10 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 11 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 12 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 13 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 14 | 2733 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | CRYSTAL BOSER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | DAN DRISCOLL |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | JULIE DOHERTY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | DENISE WESTENFIELD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | CHRISTINE GERACI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | MITCHELL COHEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | PETE GIRARD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | ROB LUTZ |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 8 | KRISTI RICKENBACH |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 9 | TAMMIE PENTA |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 10 | JAMES KANE |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 11 | PAIGE RIVARD |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 12 | MARY K ZICCARDI |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 13 | MARGUERITE RUPNOW |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 14 | STEPHEN QUEIOR |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 14 | 91117 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 8 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 9 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 10 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 11 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 12 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 13 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 14 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | SECRETARY |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | TREASURER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 8 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 9 | VICE-CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 10 | CHAIR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 11 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 12 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 13 | DIRECTOR |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 14 | EXECUTIVE DIRECTOR |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | 0 |
| IRS990/FormationYr | 0 | 1998 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | 0 |
| IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/FSAuditedInd | 0 | 1 |
| IRS990/FundraisingActivitiesInd | 0 | 1 |
| IRS990/FundraisingAmt | 0 | 93283 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 52711 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 19511 |
| IRS990/GainOrLossGrp/SecuritiesAmt | 0 | 57808 |
| IRS990/GamingActivitiesInd | 0 | 0 |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 14 |
| IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt | 0 | 29088 |
| IRS990/GrantsToDomesticIndividualsGrp/TotalAmt | 0 | 29088 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 146792 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 146792 |
| IRS990/GrantsToIndividualsInd | 0 | 1 |
| IRS990/GrantsToOrganizationsInd | 0 | 1 |
| IRS990/GrantToRelatedPersonInd | 0 | 0 |
| IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt | 0 | 57808 |
| IRS990/GrossReceiptsAmt | 0 | 1337321 |
| IRS990/GrossSalesOfInventoryAmt | 0 | 23512 |
| IRS990/GroupReturnForAffiliatesInd | 0 | 0 |
| IRS990/IncludeFIN48FootnoteInd | 0 | 1 |
| IRS990/IndependentAuditFinclStmtInd | 0 | 1 |
| IRS990/IndependentVotingMemberCnt | 0 | 14 |
| IRS990/IndivRcvdGreaterThan100KCnt | 0 | 0 |
| IRS990/IndoorTanningServicesInd | 0 | 0 |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIIInd | 0 | X |
| IRS990/InsuranceGrp/FundraisingAmt | 0 | 833 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 1576 |
| IRS990/InsuranceGrp/ProgramServicesAmt | 0 | 9503 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 11912 |
| IRS990/InventoriesForSaleOrUseGrp/BOYAmt | 0 | 10000 |
| IRS990/InventoriesForSaleOrUseGrp/EOYAmt | 0 | 10000 |
| IRS990/InvestmentIncomeGrp/ExclusionAmt | 0 | 26493 |
| IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt | 0 | 26493 |
| IRS990/InvestmentInJointVentureInd | 0 | 0 |
| IRS990/InvestmentsPubTradedSecGrp/BOYAmt | 0 | 1468903 |
| IRS990/InvestmentsPubTradedSecGrp/EOYAmt | 0 | 1474160 |
| IRS990/IRPDocumentCnt | 0 | 9 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipAccumDeprecAmt | 0 | 79388 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 2794 |
| IRS990/LandBldgEquipBasisNetGrp/EOYAmt | 0 | 4463 |
| IRS990/LandBldgEquipCostOrOtherBssAmt | 0 | 83851 |
| IRS990/LegalDomicileStateCd | 0 | FL |
| IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt | 0 | 0 |
| IRS990/LoanOutstandingInd | 0 | 0 |
| IRS990/LobbyingActivitiesInd | 0 | 0 |
| IRS990/LocalChaptersInd | 0 | 1 |
| IRS990/MaterialDiversionOrMisuseInd | 0 | 0 |
| IRS990/MembershipDuesAmt | 0 | 29425 |
| IRS990/MembersOrStockholdersInd | 0 | 0 |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | 1 |
| IRS990/MinutesOfGoverningBodyInd | 0 | 1 |
| IRS990/MissionDesc | 0 | TO ENHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | 0 |
| IRS990/MoreThan5000KToOrgInd | 0 | 0 |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 1768174 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 1659294 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | 57808 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | 57808 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | -33200 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | -33200 |
| IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt | 0 | 560 |
| IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt | 0 | 560 |
| IRS990/NetUnrelatedBusTxblIncmAmt | 0 | 0 |
| IRS990/NetUnrlzdGainsLossesInvstAmt | 0 | -146576 |
| IRS990/NondeductibleContributionsInd | 0 | 0 |
| IRS990/OccupancyGrp/FundraisingAmt | 0 | 5124 |
| IRS990/OccupancyGrp/ManagementAndGeneralAmt | 0 | 9698 |
| IRS990/OccupancyGrp/ProgramServicesAmt | 0 | 58477 |
| IRS990/OccupancyGrp/TotalAmt | 0 | 73299 |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 6809 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 12870 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 77598 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 97277 |
| IRS990/OfficerMailingAddressInd | 0 | 0 |
| IRS990/OperateHospitalInd | 0 | 0 |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsSFAS117Ind | 0 | X |
| IRS990/OtherAssetsTotalGrp/BOYAmt | 0 | 151088 |
| IRS990/OtherAssetsTotalGrp/EOYAmt | 0 | 16750 |
| IRS990/OtherChangesInNetAssetsAmt | 0 | 0 |
| IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt | 0 | 3488 |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 6593 |
| IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt | 0 | 39751 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 49832 |
| IRS990/OtherExpensesGrp/Desc | 0 | FAMILY SUPPORT |
| IRS990/OtherExpensesGrp/Desc | 1 | NEWSLETTER |
| IRS990/OtherExpensesGrp/Desc | 2 | CHAPTER ACTIVITIES |
| IRS990/OtherExpensesGrp/Desc | 3 | LICENSES AND TAXES |
| IRS990/OtherExpensesGrp/FundraisingAmt | 0 | 3880 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 1 | 1905 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 2 | 1311 |
| IRS990/OtherExpensesGrp/FundraisingAmt | 3 | 506 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 0 | 7344 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 1 | 3605 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 2 | 2482 |
| IRS990/OtherExpensesGrp/ManagementAndGeneralAmt | 3 | 957 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 44284 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 1 | 21740 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 2 | 14967 |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 3 | 5773 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 55508 |
| IRS990/OtherExpensesGrp/TotalAmt | 1 | 27250 |
| IRS990/OtherExpensesGrp/TotalAmt | 2 | 18760 |
| IRS990/OtherExpensesGrp/TotalAmt | 3 | 7236 |
| IRS990/OtherLiabilitiesGrp/BOYAmt | 0 | 0 |
| IRS990/OtherLiabilitiesGrp/EOYAmt | 0 | 2503 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 34870 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 65905 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 397374 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 498149 |
| IRS990/PartialLiquidationInd | 0 | 0 |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 3039 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 5743 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 34628 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 43410 |
| IRS990/PensionPlanContributionsGrp/FundraisingAmt | 0 | 564 |
| IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt | 0 | 1066 |
| IRS990/PensionPlanContributionsGrp/ProgramServicesAmt | 0 | 6427 |
| IRS990/PensionPlanContributionsGrp/TotalAmt | 0 | 8057 |
| IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt | 0 | 171099 |
| IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt | 0 | 193728 |
| IRS990/PledgesAndGrantsReceivableGrp/BOYAmt | 0 | 11504 |
| IRS990/PledgesAndGrantsReceivableGrp/EOYAmt | 0 | 50394 |
| IRS990/PoliciesReferenceChaptersInd | 0 | 1 |
| IRS990/PoliticalCampaignActyInd | 0 | 0 |
| IRS990/PrincipalOfficerNm | 0 | STEVE QUEIOR |
| IRS990/ProfessionalFundraisingInd | 0 | 0 |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | CRISIS AND INTERVENTION TRAINING TO ASSIST IN TREATMENT AND SUPPORT. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 423672 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 29088 |
| IRS990/ProgSrvcAccomActy3Grp/Desc | 0 | DISTRIBUTION OF EDUCATIONAL MATERIALS AND PARENT INTERVENTION REGARDING PRADER-WILLI SYNDROME. |
| IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt | 0 | 229642 |
| IRS990/ProgSrvcAccomActyOtherGrp/Desc | 0 | RESEARCH DIRECTED AT IMPROVING CURRENT TREATMENT METHODS AND TO DEVELOP A CURE. |
| IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt | 0 | 296701 |
| IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt | 0 | 146792 |
| IRS990/ProgSrvcAccomActyOtherGrp/RevenueAmt | 0 | 560 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | 0 |
| IRS990/PYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/PYContributionsGrantsAmt | 0 | 1044695 |
| IRS990/PYExcessBenefitTransInd | 0 | 0 |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 487856 |
| IRS990/PYInvestmentIncomeAmt | 0 | 76220 |
| IRS990/PYOtherExpensesAmt | 0 | 703035 |
| IRS990/PYOtherRevenueAmt | 0 | 89287 |
| IRS990/PYProgramServiceRevenueAmt | 0 | 169620 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | -639020 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 827951 |
| IRS990/PYTotalExpensesAmt | 0 | 2018842 |
| IRS990/PYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/PYTotalRevenueAmt | 0 | 1379822 |
| IRS990/QuidProQuoContributionsInd | 0 | 1 |
| IRS990/QuidProQuoContriDisclInd | 0 | 1 |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | 0 |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 37696 |
| IRS990/RegularMonitoringEnfrcInd | 0 | 1 |
| IRS990/RelatedEntityInd | 0 | 0 |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | 0 |
| IRS990/ReportInvestmentsOtherSecInd | 0 | 0 |
| IRS990/ReportLandBuildingEquipmentInd | 0 | 1 |
| IRS990/ReportOtherAssetsInd | 0 | 0 |
| IRS990/ReportOtherLiabilitiesInd | 0 | 1 |
| IRS990/ReportProgramRelatedInvstInd | 0 | 0 |
| IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt | 0 | 0 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt | 0 | 1209997 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt | 0 | 1044695 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 1621059 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 989771 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 838581 |
| IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt | 0 | 5704103 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt | 0 | 26493 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt | 0 | 76220 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt | 0 | 79680 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt | 0 | 54561 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt | 0 | 65635 |
| IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt | 0 | 302589 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt | 0 | 23512 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt | 0 | 177934 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt | 0 | 336673 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt | 0 | 422122 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt | 0 | 380667 |
| IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt | 0 | 1340908 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearAmt | 0 | 19511 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus1YearAmt | 0 | 137165 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus2YearsAmt | 0 | 31692 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt | 0 | 377608 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus4YearsAmt | 0 | 74070 |
| IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt | 0 | 640046 |
| IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt | 0 | 26493 |
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Displayed year
2018 • Form 990Detailed filing. Detailed filing data is available for this year.