Civic Intelligence

Prader-Willi Syndrome Association (USA)

990 • Fiscal year 2017 • EIN 41-1306908

Jan 01, 2017 to Dec 31, 2017 • Filed on Jan 09, 2019

Organization ProfileWWW.PWSAUSA.ORG
8588 Potter Park Drive Suite 500Sarasota, FL 34238

(941) 312-0400

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

45th percentile

0.07x

Higher debt load relative to assets than 45% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Liabilities / Revenue

50th percentile

0.10x

Higher debt load relative to revenue than 50% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Net Margin

9th percentile

-33%

Higher net margin than 9% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Top Officer Pay

63rd percentile

$88,346

Higher top officer pay than 63% of similar nonprofits.

Top officer pay equals 6.1% of source-year revenue.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2017

Asset Growth

8th percentile

-15%

Faster asset growth than 8% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Revenue Growth

8th percentile

-31%

Faster revenue growth than 8% of similar nonprofits.

2017 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2016 to 2017

Balance Sheet
Liabilities / Assets45th percentile

Assets

Down

$2,069,063

Down $365,929 (-15%) from 2016

Net Assets

Down

$1,930,263

Down $432,918 (-18%) from 2016

Liabilities

Up

$138,800

Up $66,989 (+93%) from 2016

Revenue And Expenses
Liabilities / Revenue50th percentileNet Margin9th percentile

Revenue

Down

$1,436,803

Down $632,301 (-31%) from 2016

Expenses

Up

$1,917,524

Up $473,910 (+33%) from 2016

Net Income

Down

-$480,721

Down $1,106,211 (-177%) from 2016

Historical Trend

Balance Sheet Trend

Asset Growth8th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,552,155Liabilities 2010: $47,462Net Assets 2010: $1,504,6932010Assets 2011: $1,537,043Liabilities 2011: $113,733Net Assets 2011: $1,423,3102011Assets 2012: $1,474,573Liabilities 2012: $71,275Net Assets 2012: $1,403,2982012Assets 2013: $1,375,285Liabilities 2013: $109,211Net Assets 2013: $1,266,0742013Assets 2014: $1,512,024Liabilities 2014: $99,130Net Assets 2014: $1,412,8942014Assets 2015: $1,980,049Liabilities 2015: $240,473Net Assets 2015: $1,739,5762015Assets 2016: $2,434,992Liabilities 2016: $71,811Net Assets 2016: $2,363,1812016Assets 2017: $2,069,063Liabilities 2017: $138,800Net Assets 2017: $1,930,2632017Assets 2018: $1,829,880Liabilities 2018: $170,586Net Assets 2018: $1,659,2942018Assets 2019: $2,200,383Liabilities 2019: $579,542Net Assets 2019: $1,620,8412019Assets 2020: $1,920,086Liabilities 2020: $107,681Net Assets 2020: $1,812,4052020Assets 2021: $2,440,137Liabilities 2021: $53,581Net Assets 2021: $2,386,5562021Assets 2022: $2,880,192Liabilities 2022: $112,201Net Assets 2022: $2,767,9912022Assets 2023: $2,753,019Liabilities 2023: $54,396Net Assets 2023: $2,698,6232023Assets 2024: $3,678,825Liabilities 2024: $778,529Net Assets 2024: $2,900,2962024

Highlighted filing

2017

Assets$2,069,063
Liabilities$138,800
Net Assets$1,930,263
Open 2017 Filing

Operations Trend

Revenue Growth8th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,066,4302010Expenses 2011: $1,295,2462011Expenses 2012: $1,084,4822012Revenue 2013: $1,209,510Expenses 2013: $1,440,266Net Income 2013: -$230,7562013Revenue 2014: $1,358,953Expenses 2014: $1,208,873Net Income 2014: $150,0802014Revenue 2015: $1,844,062Expenses 2015: $1,454,509Net Income 2015: $389,5532015Revenue 2016: $2,069,104Expenses 2016: $1,443,614Net Income 2016: $625,4902016Revenue 2017: $1,436,803Expenses 2017: $1,917,524Net Income 2017: -$480,7212017Revenue 2018: $1,261,658Expenses 2018: $1,223,962Net Income 2018: $37,6962018Revenue 2019: $1,498,022Expenses 2019: $1,730,503Net Income 2019: -$232,4812019Revenue 2020: $1,219,448Expenses 2020: $1,200,266Net Income 2020: $19,1822020Revenue 2021: $1,719,245Expenses 2021: $1,238,362Net Income 2021: $480,8832021Revenue 2022: $2,242,320Expenses 2022: $1,555,709Net Income 2022: $686,6112022Revenue 2023: $1,577,352Expenses 2023: $1,847,424Net Income 2023: -$270,0722023Revenue 2024: $1,585,370Expenses 2024: $1,567,125Net Income 2024: $18,2452024

Highlighted filing

2017

Revenue$1,436,803
Expenses$1,917,524
Net Income-$480,721
Open 2017 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2017 to Dec 31, 2017
Signed
Jan 9, 2019
Return Version
2017v2.3
Gross Receipts
$1,436,014
Mission and Program Overview

Mission

Advocate, educate and support individuals affected by prader-willi syndrome and their caregivers.

To enhance the quality of life and empower those affected by prader-willi syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,275,696$1,468,903▲ $193,207
Cash and Non-Interest-Bearing Accounts$1,001,865$429,899▼ $571,966
Pledges and Grants Receivable$23,449$11,504▼ $11,945
Inventories for Sale or Use$10,275$10,000▼ $275
Prepaid Expenses and Deferred Charges$9,735--
Land, Buildings, and Equipment, Net$3,109$2,794▼ $315
Accounts Receivable$780$0▼ $780
Total Assets$2,434,992$2,074,188▼ $360,804
Other Assets Total$110,083$151,088▲ $41,005
Liabilities
Accounts Payable and Accrued Expenses$71,811$306,014▲ $234,203
Total Liabilities$71,811$306,014▲ $234,203
Net Assets / Fund Balance
Temporarily Rstr Net Assets$1,338,295$1,009,022▼ $329,273
Unrestricted Net Assets$864,952$588,053▼ $276,899
Permanently Rstr Net Assets$159,934$171,099▲ $11,165
Total Net Assets Fund Balance$2,363,181$1,768,174▼ $595,007
Total Liabilities and Net Assets / Fund Balance$2,434,992$2,074,188▼ $360,804

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$2,794$51,483$54,277
Other Land Buildings$0$26,186$26,186
Other Assets Org$2,581--

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2017$159,934$11,165--$171,099
2016$133,884$26,050--$159,934
2015$111,150$22,734--$133,884
2014$103,448$7,702--$111,150
2013$97,821$5,627--$103,448
Compensation and Service Providers
Top Officer Pay63rd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Kenneth R SmithExecutive DirectorFT$79,093$9,253$88,346

Board Members and Trustees

NameTitle
Michelle TolbertChair
Jim KoerberVice-chair
Dan BeaverDirector
James KaneDirector
Leon Caldwell PhdDirector
Marguerite RupnowDirector
Mitchell CohenDirector
Pete GirardDirector
Rob LutzDirector
Rob SeelyDirector
Tammie PentaDirector
Tom ConwayDirector
Julie DohertySecretary
Denise WestenfieldTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,044,695
Program Service Revenue
$169,620
Investment Income
$76,220
Other Revenue
$89,287
All Other Contributions
$850,122
Change in Net Assets
$-639,020

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,379,548
Revenue Not Reported on Financial Statements
$274
Revenue Not Reported on Form 990
$959,948
Total Revenue per Audited Statements
$2,339,496
Total Revenue per Form 990
$1,379,822
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$827,951
Other Expenses$703,035
Grants and Similar Amounts Paid$487,856
Total Fundraising Expense$84,237
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$496,403$80,666$43,436$620,505
Grants to Domestic Orgs$426,628--$426,628
Conferences and Meetings$332,309--$332,309
Office Expenses$76,368$16,183$7,376$99,927
Current Officers, Directors, Trustees, and Key Employees$70,677$11,485$6,184$88,346
Occupancy$66,500$11,028$5,826$83,354
Grants to Domestic Individuals$61,228--$61,228
Other Employee Benefits$46,316$7,527$4,052$57,895
Payroll Taxes$40,163$6,527$3,514$50,204
All Other Expenses$21,036$3,642$1,842$26,520
Other Expenses$14,567$2,367$1,275$18,209
Travel$12,170$2,018$1,067$15,255
Insurance$10,427$1,729$914$13,070
Pension Plan Contributions$8,801$1,430$770$11,001
Fees for Services Other$6,382$1,059$559$8,000
Fees for Services Accounting$4,755$773$416$5,944
Depreciation Depletion$1,518$252$133$1,903
Advertising$582$97$51$730
Fees for Service Investment Mgmnt Fees-$274-$274
Total Functional Expenses$1,774,734$159,871$84,237$2,018,842

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,934,503
Total Expenses per Form 990$2,018,842
Expenses per Audited Statements$2,018,568
Expenses Not Reported on Form 990$915,935
Expenses Not Reported on Financial Statements$274
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Florida--Oxytocin Clinical Trial$162,089
CHILDREN'S HOSPITAL OF PITTSBURGH--Pig Model Research$120,000
University of Western AustraliaPittsburgh, PA-Gh Substitution$77,989
University of South FloridaTampa, FL, CA-Tamura Dmcc$37,500
Govenors of the University of AlbertaWalnut, CA, As-Gut Microbiome Study$16,095
Foundation for Prader-willi ResearchGainsville, FL-Consortium Clinical Trials$10,000
Faheemah Mustafaa--Male Caregiver Survey Research$2,500
Various Assistance--Miscellaneous Assistance$455
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$137,165
Fundraising Direct Expenses$49,291
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Events$301,408$137,165$49,291$87,874
Total Events$301,408$137,165$49,291$87,874
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“Election of board members and their rights - the organization has members that may be members fo the board of directors.”

Form 990, Part VI, Section A, Line 7B

“Decisions subject to approval of members - some decisions of the governing body are subject to approval of the members of the organization.”

Form 990, Part VI, Section B, Line 11B

“The executive committee and treasurer reviewed and approved the irs form 990.”

Form 990, Part VI, Section B, Line 12C

“Enforcement of conflicts of interest policy - officers, directors, and key employees sign a conflict of interest form each year at the fall semi-annual board meeting.”

Form 990, Part VI, Section B, Line 15A

“Compensation process for top officials - the policy for determining compensation of the pwsa executive director includes the elements of 1) review and approval by the executive committee of board of directors, 2) use of data of comparable compensation, and 3) comtemporaneous documentation and recordkeeping.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure explanation - the association when requested will provide its governing documents, conflict of interest policy, and financial statements available to the requesting public.”

Filing and Contact Details

Filer

Filer Name
Prader-willi Syndrome Association (usa)
EIN
41-1306908
Phone
9413120400
Address
8588 POTTER PARK DRIVE SUITE 500, SARASOTA, FL 34238

Signing Officer

Name
Steve Queior
Title
CEO
Phone
9413120400
Signed
2019-01-09
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Steve Queior
Formed
1998
Legal Domicile
Fl
Voting Board Members
14
Independent Board Members
14
Employees
22
Volunteers
100

Preparer

Firm
Cavanaugh & Co Llp
Address
2381 FRUITVILLE ROAD, SARASOTA, FL 34237
Preparer
Michael R Pender
Phone
9413662983
Supplemental Narrative

Additional Explanations

Form 990, Part XII, Line 2C

“The process has not changed from the prior year.”

Form 990 and Various Lines

“This form 990 was amended to add an additional grant to schedule i. This also changed the following parts of the form 990: part viii, page 9, line 1f and 7a part ix, page 10, line 11f part x, page 11, line 1, 9 and 18 part ix, page 10, line 1 part xi, page 12, line 5 schedule d, part xi, page 4, line 2a and 4a schedule d, part xii, page 4, line 1 and 4a”

Financial Statement Notes

PART X, LINE 2:

“Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the association had no uncertain income tax positions that could have a significant effect on the financial statements for the year ended december 31, 2017. The association's federal income tax returns are subject to examination by the internal revenue service, generally for three years after the federal income tax returns were filed.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expense - $49,291 promotional material - $6,901”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Fundraising expense - $49,291 promotional material - $6,601”

Raw XML AppendixShowing 400 of 681 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt00
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt10
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt20
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt30
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt40
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt50
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt60
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt70
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt80
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt90
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt100
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt110
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt120
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt130
IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt140
IRS990/Form990PartVIISectionAGrp/TitleTxt0CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE-CHAIR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd00
IRS990/FormationYr01998
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0164243
IRS990/FundraisingDirectExpensesAmt049291
IRS990/FundraisingGrossIncomeAmt0137165
IRS990/GainOrLossGrp/SecuritiesAmt047837
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt014
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt061228
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt061228
IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt0426628
IRS990/GrantsToDomesticOrgsGrp/TotalAmt0426628
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd01
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt047837
IRS990/GrossReceiptsAmt01436014
IRS990/GrossSalesOfInventoryAmt08314
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt014
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt0914
IRS990/InsuranceGrp/ManagementAndGeneralAmt01729
IRS990/InsuranceGrp/ProgramServicesAmt010427
IRS990/InsuranceGrp/TotalAmt013070
IRS990/InventoriesForSaleOrUseGrp/BOYAmt010275
IRS990/InventoriesForSaleOrUseGrp/EOYAmt010000
IRS990/InvestmentIncomeGrp/ExclusionAmt028383
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt028383
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt01275696
IRS990/InvestmentsPubTradedSecGrp/EOYAmt01468903
IRS990/IRPDocumentCnt07
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt077669
IRS990/LandBldgEquipBasisNetGrp/BOYAmt03109
IRS990/LandBldgEquipBasisNetGrp/EOYAmt02794
IRS990/LandBldgEquipCostOrOtherBssAmt080463
IRS990/LegalDomicileStateCd0FL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd01
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt030330
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO ENHANCE THE QUALITY OF LIFE AND EMPOWER THOSE AFFECTED BY PRADER-WILLI SYNDROME.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt02363181
IRS990/NetAssetsOrFundBalancesEOYAmt01768174
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt047837
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt047837
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt087874
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt087874
IRS990/NetIncomeOrLossGrp/RelatedOrExemptFuncIncomeAmt01413
IRS990/NetIncomeOrLossGrp/TotalRevenueColumnAmt01413
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt044013
IRS990/NoncashContributionsAmt019897
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt05826
IRS990/OccupancyGrp/ManagementAndGeneralAmt011028
IRS990/OccupancyGrp/ProgramServicesAmt066500
IRS990/OccupancyGrp/TotalAmt083354
IRS990/OfficeExpensesGrp/FundraisingAmt07376
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt016183
IRS990/OfficeExpensesGrp/ProgramServicesAmt076368
IRS990/OfficeExpensesGrp/TotalAmt099927
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsSFAS117Ind0X
IRS990/OtherAssetsTotalGrp/BOYAmt0110083
IRS990/OtherAssetsTotalGrp/EOYAmt0151088
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt04052
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt07527
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt046316
IRS990/OtherEmployeeBenefitsGrp/TotalAmt057895
IRS990/OtherExpensesGrp/Desc0LOGO ITEMS
IRS990/OtherExpensesGrp/Desc1FAMILY SUPPORT
IRS990/OtherExpensesGrp/Desc2NEWSLETTER
IRS990/OtherExpensesGrp/Desc3AWARENESS AND EDUCATION
IRS990/OtherExpensesGrp/FundraisingAmt02753
IRS990/OtherExpensesGrp/FundraisingAmt12377
IRS990/OtherExpensesGrp/FundraisingAmt21692
IRS990/OtherExpensesGrp/FundraisingAmt31275
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt05113
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt14499
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt23202
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt32367
IRS990/OtherExpensesGrp/ProgramServicesAmt031464
IRS990/OtherExpensesGrp/ProgramServicesAmt127130
IRS990/OtherExpensesGrp/ProgramServicesAmt219310
IRS990/OtherExpensesGrp/ProgramServicesAmt314567
IRS990/OtherExpensesGrp/TotalAmt039330
IRS990/OtherExpensesGrp/TotalAmt134006
IRS990/OtherExpensesGrp/TotalAmt224204
IRS990/OtherExpensesGrp/TotalAmt318209
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt043436
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt080666
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0496403
IRS990/OtherSalariesAndWagesGrp/TotalAmt0620505
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt03514
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt06527
IRS990/PayrollTaxesGrp/ProgramServicesAmt040163
IRS990/PayrollTaxesGrp/TotalAmt050204
IRS990/PensionPlanContributionsGrp/FundraisingAmt0770
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt01430
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt08801
IRS990/PensionPlanContributionsGrp/TotalAmt011001
IRS990/PermanentlyRstrNetAssetsGrp/BOYAmt0159934
IRS990/PermanentlyRstrNetAssetsGrp/EOYAmt0171099
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt023449
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt011504
IRS990/PoliciesReferenceChaptersInd01
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt09735
IRS990/PrincipalOfficerNm0STEVE QUEIOR
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0900099
IRS990/ProgramServiceRevenueGrp/Desc0CONFERENCE INCOME
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0169620
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0169620
IRS990/ProgSrvcAccomActy2Grp/Desc0CRISIS AND INTERVENTION TRAINING TO ASSIST IN TREATMENT AND SUPPORT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0863206
IRS990/ProgSrvcAccomActy2Grp/GrantAmt061228
IRS990/ProgSrvcAccomActy3Grp/Desc0DISTRIBUTION OF EDUCATIONAL MATERIALS AND PARENT INTERVENTION REGARDING PRADER-WILLI SYNDROME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt058455
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt01413
IRS990/ProgSrvcAccomActyOtherGrp/Desc0RESEARCH DIRECTED AT IMPROVING CURRENT TREATMENT METHODS AND TO DEVELOP A CURE.
IRS990/ProgSrvcAccomActyOtherGrp/ExpenseAmt0426628
IRS990/ProgSrvcAccomActyOtherGrp/GrantAmt0426628
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01565184
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt0284405
IRS990/PYInvestmentIncomeAmt079680
IRS990/PYOtherExpensesAmt0386711
IRS990/PYOtherRevenueAmt0336673
IRS990/PYProgramServiceRevenueAmt087567
IRS990/PYRevenuesLessExpensesAmt0625490
IRS990/PYSalariesCompEmpBnftPaidAmt0772498
IRS990/PYTotalExpensesAmt01443614
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt02069104
IRS990/QuidProQuoContributionsInd01
IRS990/QuidProQuoContriDisclInd01
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0-639020
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd01
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt0169620
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt01044695
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt01621059
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0989771
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0838581
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0450130
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt04944236
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt076220
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt079680
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt054561
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt065635
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt063898
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt0339994
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0177934
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0336673
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0422122
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0380667
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0403601
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt01720997

Document Assets

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Filings

Displayed year

2017 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,069,063
Liabilities
$138,800
Net assets
$1,930,263
Revenue
$1,436,803
Expenses
$1,917,524
Net income
-$480,721
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.68$0.78$2.90$1.59$1.57$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.05$2.70$1.58$1.85$0.27
2022Detailed filing. Detailed filing data is available for this year.$2.88$0.11$2.77$2.24$1.56$0.69
2021Detailed filing. Detailed filing data is available for this year.$2.44$0.05$2.39$1.72$1.24$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.92$0.11$1.81$1.22$1.20$0.02
2019Detailed filing. Detailed filing data is available for this year.$2.20$0.58$1.62$1.50$1.73$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.17$1.66$1.26$1.22$0.04
2017Detailed filing. Detailed filing data is available for this year.$2.07$0.14$1.93$1.44$1.92$0.48
2016Detailed filing. Detailed filing data is available for this year.$2.43$0.07$2.36$2.07$1.44$0.63
2015Detailed filing. Detailed filing data is available for this year.$1.98$0.24$1.74$1.84$1.45$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.51$0.10$1.41$1.36$1.21$0.15
2013Detailed filing. Detailed filing data is available for this year.$1.38$0.11$1.27$1.21$1.44$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.07$1.40$1.08
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$0.11$1.42$1.30
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.05$1.50$1.07