Civic Intelligence

Prader-Willi Syndrome Association

990 • Fiscal year 2016 • EIN 41-1306908

Jan 01, 2016 to Dec 31, 2016 • Filed on Jul 25, 2017

Organization ProfileWWW.PWSAUSA.ORG
8588 Potter Park Drive Suite 500Sarasota, FL 34238

(941) 312-0400

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

34th percentile

0.03x

Higher debt load relative to assets than 34% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Liabilities / Revenue

30th percentile

0.03x

Higher debt load relative to revenue than 30% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Net Margin

86th percentile

30%

Higher net margin than 86% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Top Officer Pay

35th percentile

$0

Higher top officer pay than 35% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2016

Asset Growth

84th percentile

23%

Faster asset growth than 84% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Revenue Growth

69th percentile

12%

Faster revenue growth than 69% of similar nonprofits.

2016 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2015 to 2016

Balance Sheet
Liabilities / Assets34th percentile

Assets

Up

$2,434,992

Up $454,943 (+23%) from 2015

Net Assets

Up

$2,363,181

Up $623,605 (+36%) from 2015

Liabilities

Down

$71,811

Down $168,662 (-70%) from 2015

Revenue And Expenses
Liabilities / Revenue30th percentileNet Margin86th percentile

Revenue

Up

$2,069,104

Up $225,042 (+12%) from 2015

Expenses

Down

$1,443,614

Down $10,895 (-0.7%) from 2015

Net Income

Up

$625,490

Up $235,937 (+61%) from 2015

Historical Trend

Balance Sheet Trend

Asset Growth84th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,552,155Liabilities 2010: $47,462Net Assets 2010: $1,504,6932010Assets 2011: $1,537,043Liabilities 2011: $113,733Net Assets 2011: $1,423,3102011Assets 2012: $1,474,573Liabilities 2012: $71,275Net Assets 2012: $1,403,2982012Assets 2013: $1,375,285Liabilities 2013: $109,211Net Assets 2013: $1,266,0742013Assets 2014: $1,512,024Liabilities 2014: $99,130Net Assets 2014: $1,412,8942014Assets 2015: $1,980,049Liabilities 2015: $240,473Net Assets 2015: $1,739,5762015Assets 2016: $2,434,992Liabilities 2016: $71,811Net Assets 2016: $2,363,1812016Assets 2017: $2,074,188Liabilities 2017: $306,014Net Assets 2017: $1,768,1742017Assets 2018: $1,829,880Liabilities 2018: $170,586Net Assets 2018: $1,659,2942018Assets 2019: $2,200,383Liabilities 2019: $579,542Net Assets 2019: $1,620,8412019Assets 2020: $1,920,086Liabilities 2020: $107,681Net Assets 2020: $1,812,4052020Assets 2021: $2,440,137Liabilities 2021: $53,581Net Assets 2021: $2,386,5562021Assets 2022: $2,880,192Liabilities 2022: $112,201Net Assets 2022: $2,767,9912022Assets 2023: $2,753,019Liabilities 2023: $54,396Net Assets 2023: $2,698,6232023Assets 2024: $3,678,825Liabilities 2024: $778,529Net Assets 2024: $2,900,2962024

Highlighted filing

2016

Assets$2,434,992
Liabilities$71,811
Net Assets$2,363,181
Open 2016 Filing

Operations Trend

Revenue Growth69th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,066,4302010Expenses 2011: $1,295,2462011Expenses 2012: $1,084,4822012Revenue 2013: $1,209,510Expenses 2013: $1,440,266Net Income 2013: -$230,7562013Revenue 2014: $1,358,953Expenses 2014: $1,208,873Net Income 2014: $150,0802014Revenue 2015: $1,844,062Expenses 2015: $1,454,509Net Income 2015: $389,5532015Revenue 2016: $2,069,104Expenses 2016: $1,443,614Net Income 2016: $625,4902016Revenue 2017: $1,379,822Expenses 2017: $2,018,842Net Income 2017: -$639,0202017Revenue 2018: $1,261,658Expenses 2018: $1,223,962Net Income 2018: $37,6962018Revenue 2019: $1,498,022Expenses 2019: $1,730,503Net Income 2019: -$232,4812019Revenue 2020: $1,219,448Expenses 2020: $1,200,266Net Income 2020: $19,1822020Revenue 2021: $1,719,245Expenses 2021: $1,238,362Net Income 2021: $480,8832021Revenue 2022: $2,242,320Expenses 2022: $1,555,709Net Income 2022: $686,6112022Revenue 2023: $1,577,352Expenses 2023: $1,847,424Net Income 2023: -$270,0722023Revenue 2024: $1,585,370Expenses 2024: $1,567,125Net Income 2024: $18,2452024

Highlighted filing

2016

Revenue$2,069,104
Expenses$1,443,614
Net Income$625,490
Open 2016 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2016 to Dec 31, 2016
Signed
Jul 25, 2017
Return Version
2016v3.0
Gross Receipts
$2,137,283
Mission and Program Overview

Mission

Advocate, educate and support individuals affected by prader-willi syndrome and their caregivers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,056,943$1,275,696▲ $218,753
Cash and Non-Interest-Bearing Accounts$771,513$1,001,865▲ $230,352
Pledges and Grants Receivable$22,575$23,449▲ $874
Inventories for Sale or Use$22,349$10,275▼ $12,074
Prepaid Expenses and Deferred Charges$16,800$9,735▼ $7,065
Land, Buildings, and Equipment, Net$6,602$3,109▼ $3,493
Accounts Receivable$5,472$780▼ $4,692
Total Assets$1,980,049$2,434,992▲ $454,943
Other Assets Total$77,795$110,083▲ $32,288
Liabilities
Accounts Payable and Accrued Expenses$240,473$71,811▼ $168,662
Total Liabilities$240,473$71,811▼ $168,662
Net Assets / Fund Balance
Temporarily Rstr Net Assets$1,070,297$1,338,295▲ $267,998
Unrestricted Net Assets$535,395$864,952▲ $329,557
Permanently Rstr Net Assets$133,884$159,934▲ $26,050
Total Net Assets Fund Balance$1,739,576$2,363,181▲ $623,605
Total Liabilities and Net Assets / Fund Balance$1,980,049$2,434,992▲ $454,943

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$3,109$64,059$67,168
Leasehold Improvements-$11,706$11,706

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2016$133,884$26,050--$159,934
2015$111,150$22,734--$133,884
2014$103,448$7,702--$111,150
2013$97,821$5,627--$103,448
2012$89,079$8,742--$97,821
Compensation and Service Providers
Top Officer Pay35th percentile

Board Members and Trustees

NameTitle
Michelle TolbertChair
Jim KoerberVice-chair
Dan BeaverDirector
Dan DriscollDirector
James KaneDirector
Leon Caldwell PhdDirector
Marguerite RupnowDirector
Pete GirardDirector
Rob LutzDirector
Rob SeelyDirector
Tammie PentaDirector
Tom ConwayDirector
Tom NoonanDirector
Julie DohertySecretary
Denise WestenfieldTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,565,184
Program Service Revenue
$87,567
Investment Income
$79,680
Other Revenue
$336,673
All Other Contributions
$1,565,184
Change in Net Assets
$625,490

Audited Revenue Reconciliation

Revenue per Audited Statements
$2,069,104
Revenue Not Reported on Form 990
$776,700
Total Revenue per Audited Statements
$2,845,804
Total Revenue per Form 990
$2,069,104
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$772,498
Other Expenses$386,711
Grants and Similar Amounts Paid$284,405
Total Fundraising Expense$90,723
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$475,310$123,930$51,778$651,018
Grants to Domestic Orgs$238,802--$238,802
Occupancy$60,639$13,538$10,384$84,561
Other Employee Benefits$50,651$13,207$5,517$69,375
Fees for Service Investment Mgmnt Fees-$60,000-$60,000
All Other Expenses$48,177$4,842$3,715$56,734
Payroll Taxes$38,042$9,919$4,144$52,105
Grants to Domestic Individuals$45,603--$45,603
Office Expenses$20,522$4,582$3,514$28,618
Travel$12,324$2,751$2,110$17,185
Other Expenses$11,700$2,613$2,004$16,317
Information Technology$10,568$2,357$1,809$14,734
Insurance$10,035$2,240$1,718$13,993
Fees for Services Accounting$8,860$1,978$1,517$12,355
Conferences and Meetings$5,854--$5,854
Depreciation Depletion-$3,493-$3,493
Total Functional Expenses$1,104,166$248,725$90,723$1,443,614

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,222,199
Expenses per Audited Statements$1,443,614
Total Expenses per Form 990$1,443,614
Expenses Not Reported on Form 990$778,585
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
CHILDREN'S HOSPITAL OF PITTSBURGH--Pig Model Research$138,750
Case Western Reserve Univ--Telehealth Intervention$29,966
Univ of South Florida--Data Management$25,000
Intl Consortium to Adv Clinical Trials--Clinical Trials$10,000
Kansas Univ Medical Center--Pws Mortality Thrombotic$10,000
St Louis University--Abnormal Proteins Drive$7,867
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$386,356
Fundraising Direct Expenses$52,808
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Events$386,356$386,356$52,808$333,548
Total Events$386,356$386,356$52,808$333,548
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Federal income taxes-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“Election of board members and their rights - the organization has members that may be members of the board of directors.”

Form 990, Part VI, Section A, Line 7B

“Decisions subject to approval of members - some decisions of the governing body are subject to approval of the members of the organization.”

Form 990, Part VI, Section B, Line 10B

“Policies and procedures governing chapters - the organization has written policies and procedures governing the activities of chapters, affiliates, and branches to ensure that their operations are consistent with those of the organization.”

Form 990, Part VI, Section B, Line 11B

“Organizations process to review form 990 - the executive committee and treasurer reviewed and approved the irs form 990.”

Form 990, Part VI, Section B, Line 12C

“Enforcement of conflicts of interest policy - officers, directors, and key employees sign a conflict of interest form each year at the fall semi-annual board meeting.”

Form 990, Part VI, Section B, Line 15A

“Compensation process for top officials - the policy for determining compensation of the pwsa executive director includes the elements of 1 review and approval by the executive committee of board of directors, 2 use of data of comparable compensation, and 3 contemporaneous documentation and recordkeeping.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure explanation - the association when requested will provide its governing documents, conflict of interest policy, and financial statements available to the requesting public.”

Filing and Contact Details

Filer

Filer Name
Prader-willi Syndrome Association (usa)
EIN
41-1306908
Phone
9413120400
Address
8588 POTTER PARK DRIVE SUITE 500, SARASOTA, FL 34238

Signing Officer

Name
Ken Smith
Title
Executive Director
Signed
2017-07-25
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ken Smith
Formed
2000
Voting Board Members
15
Independent Board Members
15
Employees
21

Preparer

Firm
Lawrence a Kraujalis CPA Pa
Address
4016 CORTEZ ROAD WEST SUITE 1205, BRADENTON, FL 34210
Preparer
Lawrence a Kraujalis
Phone
9415183805
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D

“Program Service Expenses 372,857, Grants and allocations 0, Revenue 0 RESEARCH DIRECTED AT IMPROVING CURRENT TREATMENT METHODS AND TO DEVELOP A CURE.”

Financial Statement Notes

V 4

“Intended use of endowment funds - endowment fund investments to be held indefinitely. The income from which is expendable for providing assistance to families dealing with prader-willi syndrome.”

XI 2D

“Revenue included in financials - direct fund raising expenses 52,808 and other direct expense of promotional material 15,371.”

XII 2D

“Expense amounts included in financials - direct fund raising expenses 52,808 and other direct expense of promotional material 15,371.”

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IRS990/OccupancyGrp/FundraisingAmt010384
IRS990/OccupancyGrp/ManagementAndGeneralAmt013538
IRS990/OccupancyGrp/ProgramServicesAmt060639
IRS990/OccupancyGrp/TotalAmt084561
IRS990/OfficeExpensesGrp/FundraisingAmt03514
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt069375
IRS990/OtherExpensesGrp/Desc0NEWSLETTER
IRS990/OtherExpensesGrp/Desc1FAMILY SUPPORT
IRS990/OtherExpensesGrp/Desc2OFFICE SUPPLIES
IRS990/OtherExpensesGrp/Desc3BANK CHARGES
IRS990/OtherExpensesGrp/FundraisingAmt02513
IRS990/OtherExpensesGrp/FundraisingAmt12004
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt03275
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12613
IRS990/OtherExpensesGrp/ProgramServicesAmt024349
IRS990/OtherExpensesGrp/ProgramServicesAmt128057
IRS990/OtherExpensesGrp/ProgramServicesAmt214673
IRS990/OtherExpensesGrp/ProgramServicesAmt311700
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IRS990/OtherExpensesGrp/TotalAmt128057
IRS990/OtherExpensesGrp/TotalAmt220461
IRS990/OtherExpensesGrp/TotalAmt316317
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt051778
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IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0475310
IRS990/OtherSalariesAndWagesGrp/TotalAmt0651018
IRS990/PartialLiquidationInd0false
IRS990/PaymentsToAffiliatesGrp/TotalAmt00
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt04144
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IRS990/PayrollTaxesGrp/ProgramServicesAmt038042
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IRS990/PensionPlanContributionsGrp/TotalAmt00
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IRS990/PledgesAndGrantsReceivableGrp/BOYAmt022575
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt023449
IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt016800
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt09735
IRS990/PrincipalOfficerNm0KEN SMITH
IRS990/ProfessionalFundraisingInd0false
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt131692
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IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0310852
IRS990/ProgSrvcAccomActy3Grp/Desc0DISTRIBUTION OF EDUCATIONAL MATERIALS AND PARENT INTERVENTION REGARDING PRADER-WILLI SYNDROME.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0331993
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0916256
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0140428
IRS990/PYInvestmentIncomeAmt054561
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0615651
IRS990/PYOtherRevenueAmt0422122
IRS990/PYProgramServiceRevenueAmt0451123
IRS990/PYRevenuesLessExpensesAmt0389553
IRS990/PYSalariesCompEmpBnftPaidAmt0698430
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IRS990/PYTotalRevenueAmt01844062
IRS990/QuidProQuoContributionsInd0true
IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0625490
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0838581
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Filings

Displayed year

2016 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$2,434,992
Liabilities
$71,811
Net assets
$2,363,181
Revenue
$2,069,104
Expenses
$1,443,614
Net income
$625,490
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.68$0.78$2.90$1.59$1.57$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.05$2.70$1.58$1.85$0.27
2022Detailed filing. Detailed filing data is available for this year.$2.88$0.11$2.77$2.24$1.56$0.69
2021Detailed filing. Detailed filing data is available for this year.$2.44$0.05$2.39$1.72$1.24$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.92$0.11$1.81$1.22$1.20$0.02
2019Detailed filing. Detailed filing data is available for this year.$2.20$0.58$1.62$1.50$1.73$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.17$1.66$1.26$1.22$0.04
2017Detailed filing. Detailed filing data is available for this year.$2.07$0.31$1.77$1.38$2.02$0.64
2016Detailed filing. Detailed filing data is available for this year.$2.43$0.07$2.36$2.07$1.44$0.63
2015Detailed filing. Detailed filing data is available for this year.$1.98$0.24$1.74$1.84$1.45$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.51$0.10$1.41$1.36$1.21$0.15
2013Detailed filing. Detailed filing data is available for this year.$1.38$0.11$1.27$1.21$1.44$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.07$1.40$1.08
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$0.11$1.42$1.30
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.05$1.50$1.07