Civic Intelligence

Prader-Willi Syndrome Association (USA)

990 • Fiscal year 2014 • EIN 41-1306908

Jan 01, 2014 to Dec 31, 2014 • Filed on Aug 13, 2015

Organization ProfileWWW.PWSAUSA.ORG
8588 Potter Park Drive Suite 500Sarasota, FL 34238

(941) 312-0400

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

43rd percentile

0.07x

Higher debt load relative to assets than 43% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Liabilities / Revenue

42nd percentile

0.07x

Higher debt load relative to revenue than 42% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Net Margin

69th percentile

11%

Higher net margin than 69% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Top Officer Pay

34th percentile

$0

Higher top officer pay than 34% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2014

Asset Growth

70th percentile

9.9%

Faster asset growth than 70% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Revenue Growth

67th percentile

12%

Faster revenue growth than 67% of similar nonprofits.

2014 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2013 to 2014

Balance Sheet
Liabilities / Assets43rd percentile

Assets

Up

$1,512,024

Up $136,739 (+9.9%) from 2013

Net Assets

Up

$1,412,894

Up $146,820 (+12%) from 2013

Liabilities

Down

$99,130

Down $10,081 (-9.2%) from 2013

Revenue And Expenses
Liabilities / Revenue42nd percentileNet Margin69th percentile

Revenue

Up

$1,358,953

Up $149,443 (+12%) from 2013

Expenses

Down

$1,208,873

Down $231,393 (-16%) from 2013

Net Income

Up

$150,080

Up $380,836 (+165%) from 2013

Historical Trend

Balance Sheet Trend

Asset Growth70th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$4.0M$3.0M$2.0M$1.0M$0Assets 2010: $1,552,155Liabilities 2010: $47,462Net Assets 2010: $1,504,6932010Assets 2011: $1,537,043Liabilities 2011: $113,733Net Assets 2011: $1,423,3102011Assets 2012: $1,474,573Liabilities 2012: $71,275Net Assets 2012: $1,403,2982012Assets 2013: $1,375,285Liabilities 2013: $109,211Net Assets 2013: $1,266,0742013Assets 2014: $1,512,024Liabilities 2014: $99,130Net Assets 2014: $1,412,8942014Assets 2015: $1,980,049Liabilities 2015: $240,473Net Assets 2015: $1,739,5762015Assets 2016: $2,434,992Liabilities 2016: $71,811Net Assets 2016: $2,363,1812016Assets 2017: $2,074,188Liabilities 2017: $306,014Net Assets 2017: $1,768,1742017Assets 2018: $1,829,880Liabilities 2018: $170,586Net Assets 2018: $1,659,2942018Assets 2019: $2,200,383Liabilities 2019: $579,542Net Assets 2019: $1,620,8412019Assets 2020: $1,920,086Liabilities 2020: $107,681Net Assets 2020: $1,812,4052020Assets 2021: $2,440,137Liabilities 2021: $53,581Net Assets 2021: $2,386,5562021Assets 2022: $2,880,192Liabilities 2022: $112,201Net Assets 2022: $2,767,9912022Assets 2023: $2,753,019Liabilities 2023: $54,396Net Assets 2023: $2,698,6232023Assets 2024: $3,678,825Liabilities 2024: $778,529Net Assets 2024: $2,900,2962024

Highlighted filing

2014

Assets$1,512,024
Liabilities$99,130
Net Assets$1,412,894
Open 2014 Filing

Operations Trend

Revenue Growth67th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MExpenses 2010: $1,066,4302010Expenses 2011: $1,295,2462011Expenses 2012: $1,084,4822012Revenue 2013: $1,209,510Expenses 2013: $1,440,266Net Income 2013: -$230,7562013Revenue 2014: $1,358,953Expenses 2014: $1,208,873Net Income 2014: $150,0802014Revenue 2015: $1,844,062Expenses 2015: $1,454,509Net Income 2015: $389,5532015Revenue 2016: $2,069,104Expenses 2016: $1,443,614Net Income 2016: $625,4902016Revenue 2017: $1,379,822Expenses 2017: $2,018,842Net Income 2017: -$639,0202017Revenue 2018: $1,261,658Expenses 2018: $1,223,962Net Income 2018: $37,6962018Revenue 2019: $1,498,022Expenses 2019: $1,730,503Net Income 2019: -$232,4812019Revenue 2020: $1,219,448Expenses 2020: $1,200,266Net Income 2020: $19,1822020Revenue 2021: $1,719,245Expenses 2021: $1,238,362Net Income 2021: $480,8832021Revenue 2022: $2,242,320Expenses 2022: $1,555,709Net Income 2022: $686,6112022Revenue 2023: $1,577,352Expenses 2023: $1,847,424Net Income 2023: -$270,0722023Revenue 2024: $1,585,370Expenses 2024: $1,567,125Net Income 2024: $18,2452024

Highlighted filing

2014

Revenue$1,358,953
Expenses$1,208,873
Net Income$150,080
Open 2014 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2014 to Dec 31, 2014
Signed
Aug 13, 2015
Return Version
2014v5.0
Gross Receipts
$1,411,892
Mission and Program Overview

Mission

Advocate, educate and support individuals affected by prader-willi syndrome and their caregivers.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$1,067,724$873,885▼ $193,839
Cash and Non-Interest-Bearing Accounts$196,775$509,664▲ $312,889
Prepaid Expenses and Deferred Charges$15,623$29,954▲ $14,331
Inventories for Sale or Use$19,177$22,624▲ $3,447
Pledges and Grants Receivable$20,325$12,308▼ $8,017
Land, Buildings, and Equipment, Net$10,796$9,731▼ $1,065
Accounts Receivable$3,252$5,608▲ $2,356
Total Assets$1,375,285$1,512,024▲ $136,739
Other Assets Total$41,613$48,250▲ $6,637
Liabilities
Accounts Payable and Accrued Expenses$109,211$99,130▼ $10,081
Total Liabilities$109,211$99,130▼ $10,081
Net Assets / Fund Balance
Temporarily Rstr Net Assets$481,468$703,651▲ $222,183
Unrestricted Net Assets$681,158$598,093▼ $83,065
Permanently Rstr Net Assets$103,448$111,150▲ $7,702
Total Net Assets Fund Balance$1,266,074$1,412,894▲ $146,820
Total Liabilities and Net Assets / Fund Balance$1,375,285$1,512,024▲ $136,739

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$9,637$56,559$66,196
Leasehold Improvements$94$11,612$11,706

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2014$103,448$7,702--$111,150
2013$97,821$5,627--$103,448
2012$89,079$8,742--$97,821
2011$78,829$10,250--$89,079
2010$78,544$285--$78,829
Compensation and Service Providers
Top Officer Pay34th percentile

Board Members and Trustees

NameTitle
Michelle TolbertChair
Jim KoerberVice-chair
Dan DriscollDirector
Denise WestenfieldDirector
Gregg CherpesDirector
Jackie MallowDirector
Lisa ThorntonDirector
Michael AltermanDirector
Michael TroopDirector
Rob LutzDirector
Rob SeelyDirector
Sybil CohenDirector
Tammie PentaDirector
Julie DohertySecretary
Bert MartinezTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$804,809
Program Service Revenue
$107,842
Investment Income
$65,635
Other Revenue
$380,667
All Other Contributions
$804,809
Change in Net Assets
$150,080

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,358,953
Revenue Not Reported on Form 990
$710,709
Total Revenue per Audited Statements
$2,069,662
Total Revenue per Form 990
$1,358,953
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$635,468
Other Expenses$379,581
Grants and Similar Amounts Paid$193,824
Total Fundraising Expense$120,064
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$302,980$153,180$74,851$531,011
Grants to Domestic Orgs$126,445--$126,445
Grants to Domestic Individuals$67,379--$67,379
Occupancy$55,730$6,715$4,700$67,145
Other Employee Benefits$36,833$18,622$9,099$64,554
Travel$51,086$6,155$4,308$61,549
All Other Expenses$40,512$3,792$13,697$58,001
Information Technology$33,199$3,999$2,800$39,998
Payroll Taxes$22,767$11,511$5,625$39,903
Conferences and Meetings$24,475--$24,475
Fees for Services Accounting-$22,500-$22,500
Office Expenses$17,195$2,071$1,450$20,716
Other Expenses$12,932$1,558$1,091$15,581
Insurance$12,894$1,554$1,088$15,536
Depreciation Depletion$4,440$535$374$5,349
Total Functional Expenses$855,216$233,593$120,064$1,208,873

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,922,842
Expenses per Audited Statements$1,208,873
Total Expenses per Form 990$1,208,873
Expenses Not Reported on Form 990$713,969
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
University of Pittsburgh--Pig Model for Hyperphagia$81,850
Ku Medical Center Research--Oxytocin Research$22,607
Regents of California--Oxytocin Research$21,988
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$415,053
Fundraising Direct Expenses$40,507
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Events$415,053$415,053$40,507$374,546
Total Events$415,053$415,053$40,507$374,546
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Federal income taxes-
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
Yes
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 7A

“Election of and their rights - the organization has members that may be members of the board of directors.”

Form 990, Part VI, Section A, Line 7B

“Decisions subject to approval of members - some decisions of the governing body are subject to approval of the members of the organization.”

Form 990, Part VI, Section B, Line 10B

“Policies and procedures governing chapters - the organization has written policies and procedures governing the activities of chapters, affiliates, and branches to ensure that their operations are consistent with those of the organization.”

Form 990, Part VI, Section B, Line 11B

“Organizations process to review form 990 - the executive committee and treasurer reviewed and approved the irs form 990.”

Form 990, Part VI, Section B, Line 12C

“Enforcement of conflicts of policy - officers, directors, and key employees sign a conflict of interest form each year at the fall semi-annual board meeting.”

Form 990, Part VI, Section B, Line 15A

“Compensation process for top officials - the policy for determining compensation of the pwsa executive director includes the elements of 1 review and approval by the executive committee of board of directors, 2 use of data as to comparable compensation, and 3 contemporaneaous documentation and recordkeeping.”

Form 990, Part VI, Section C, Line 19

“Governing documents disclosure explanation - the association when requested will provide its governing documents, conflict of interest policy, and financial statements available to the requesting public.”

Filing and Contact Details

Filer

Filer Name
Prader-willi Syndrome Association (usa)
EIN
41-1306908
Phone
9413120400
Address
8588 POTTER PARK DRIVE SUITE 500, SARASOTA, FL 34238

Signing Officer

Name
Ken Smith
Title
Executive Director
Signed
2015-08-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Ken Smith
Formed
2000
Voting Board Members
15
Independent Board Members
15
Employees
18

Preparer

Firm
Lawrence a Kraujalis CPA Pa
Address
4016 CORTEZ ROAD WEST SUITE 1205, BRADENTON, FL 34210
Preparer
Lawrence a Kraujalis
Phone
9415183805
Supplemental Narrative

Additional Explanations

Form 990, Part III, Line 4D

“Program Service Expenses 153,026, Grants and allocations 0, Revenue 0 RESEARCH DIRECTED AT IMPROVING CURRENT TREATMENT METHODS AND TO DEVELOP A CURE.”

Financial Statement Notes

V 4

“Intended use of endowment funds - endowment fund investments to be held indefinitely. The income from which is expendable for providing assistance to families dealing with prader-willi syndrome.”

XI 2D

“Revenue included in financials - direct fund raising expenses 40,507 and other direct expense of promotional material 12,432.”

XII 2D

“Expense amounts included in financials - direct fund raising expenses 40,507 and other direct expense of promotional materials 12,432.”

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IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
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IRS990/OtherEmployeeBenefitsGrp/TotalAmt064554
IRS990/OtherExpensesGrp/Desc0INTERNATIONAL ACTIVITIES
IRS990/OtherExpensesGrp/Desc1NEWSLETTER
IRS990/OtherExpensesGrp/Desc2EQUIPMENT RENTAL MAINT
IRS990/OtherExpensesGrp/Desc3BANK CHARGES
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IRS990/OtherExpensesGrp/FundraisingAmt11091
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt01401
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt11558
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IRS990/OtherExpensesGrp/ProgramServicesAmt117228
IRS990/OtherExpensesGrp/ProgramServicesAmt211628
IRS990/OtherExpensesGrp/ProgramServicesAmt312932
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IRS990/OtherExpensesGrp/TotalAmt117228
IRS990/OtherExpensesGrp/TotalAmt214010
IRS990/OtherExpensesGrp/TotalAmt315581
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IRS990/PensionPlanContributionsGrp/TotalAmt00
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IRS990/PoliticalCampaignActyInd0false
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IRS990/PrincipalOfficerNm0KEN SMITH
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IRS990/ProgSrvcAccomActy2Grp/Desc0CRISIS AND INTERVENTION TRAINING TO ASSIST IN TREATMENT AND SUPPORT.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0410294
IRS990/ProgSrvcAccomActy3Grp/Desc0DISTRIBUTION OF EDUCATIONAL MATERIALS AND PARENT INTERVENTION REGARDING PRADER-WILLI SYNDROME.
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IRS990/PYContributionsGrantsAmt0405595
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt0255702
IRS990/PYInvestmentIncomeAmt063898
IRS990/PymtTravelEntrtnmntPubOfclGrp/TotalAmt00
IRS990/PYOtherExpensesAmt0648671
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IRS990/ReportLandBuildingEquipmentInd0true
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IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
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IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0496832
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0881580
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0831914
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IRS990ScheduleA/InvestmentIncomeCYPct00.05000
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IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/CurrentTaxYearMinus4YearsAmt0104375
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt01490664
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearAmt0670777
IRS990ScheduleA/SubstantialContributorsAmtGrp/CurrentTaxYearMinus1YearAmt0302365

Document Assets

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Filings

Displayed year

2014 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,512,024
Liabilities
$99,130
Net assets
$1,412,894
Revenue
$1,358,953
Expenses
$1,208,873
Net income
$150,080
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$3.68$0.78$2.90$1.59$1.57$0.02
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.75$0.05$2.70$1.58$1.85$0.27
2022Detailed filing. Detailed filing data is available for this year.$2.88$0.11$2.77$2.24$1.56$0.69
2021Detailed filing. Detailed filing data is available for this year.$2.44$0.05$2.39$1.72$1.24$0.48
2020Detailed filing. Detailed filing data is available for this year.$1.92$0.11$1.81$1.22$1.20$0.02
2019Detailed filing. Detailed filing data is available for this year.$2.20$0.58$1.62$1.50$1.73$0.23
2018Detailed filing. Detailed filing data is available for this year.$1.83$0.17$1.66$1.26$1.22$0.04
2017Detailed filing. Detailed filing data is available for this year.$2.07$0.31$1.77$1.38$2.02$0.64
2016Detailed filing. Detailed filing data is available for this year.$2.43$0.07$2.36$2.07$1.44$0.63
2015Detailed filing. Detailed filing data is available for this year.$1.98$0.24$1.74$1.84$1.45$0.39
2014Detailed filing. Detailed filing data is available for this year.$1.51$0.10$1.41$1.36$1.21$0.15
2013Detailed filing. Detailed filing data is available for this year.$1.38$0.11$1.27$1.21$1.44$0.23
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.47$0.07$1.40$1.08
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.54$0.11$1.42$1.30
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.55$0.05$1.50$1.07
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2014 filings • 501(c)3 • $1M-$5M nonprofits