Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2022 • EIN 39-1600965

Feb 01, 2021 to Jan 31, 2022 • Filed on Dec 13, 2022

Organization ProfileWWW.ALS.ORG/WISCONSIN
3333 N Mayfair Road 104Wauwatosa, WI 53222-3219

(414) 763-2220

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

62nd percentile

0.14x

Higher debt load relative to assets than 62% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

54th percentile

0.10x

Higher debt load relative to revenue than 54% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

39th percentile

1.7%

Higher net margin than 39% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

85th percentile

$157,884

Higher top officer pay than 85% of similar nonprofits.

Top officer pay equals 8.7% of source-year revenue.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

24th percentile

-7.5%

Faster asset growth than 24% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

73rd percentile

30%

Faster revenue growth than 73% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets62nd percentile

Assets

Down

$1,293,617

Down $104,929 (-7.5%) from 2021

Net Assets

Up

$1,108,249

Up $29,963 (+2.8%) from 2021

Liabilities

Down

$185,368

Down $134,892 (-42%) from 2021

Revenue And Expenses
Liabilities / Revenue54th percentileNet Margin39th percentile

Revenue

Up

$1,806,254

Up $413,059 (+30%) from 2021

Expenses

Up

$1,776,291

Up $437,189 (+33%) from 2021

Net Income

Down

$29,963

Down $24,130 (-45%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth24th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $897,791Liabilities 2011: $110,266Net Assets 2011: $787,5252011Assets 2012: $934,129Liabilities 2012: $177,154Net Assets 2012: $756,9752012Assets 2013: $949,246Liabilities 2013: $183,133Net Assets 2013: $766,1132013Assets 2014: $881,796Liabilities 2014: $235,999Net Assets 2014: $645,7972014Assets 2015: $1,391,096Liabilities 2015: $477,400Net Assets 2015: $913,6962015Assets 2016: $1,239,952Liabilities 2016: $439,422Net Assets 2016: $800,5302016Assets 2017: $1,316,585Liabilities 2017: $417,459Net Assets 2017: $899,1262017Assets 2018: $1,301,700Liabilities 2018: $367,336Net Assets 2018: $934,3642018Assets 2019: $1,325,418Liabilities 2019: $255,555Net Assets 2019: $1,069,8632019Assets 2020: $1,295,260Liabilities 2020: $271,067Net Assets 2020: $1,024,1932020Assets 2021: $1,398,546Liabilities 2021: $320,260Net Assets 2021: $1,078,2862021Assets 2022: $1,293,617Liabilities 2022: $185,368Net Assets 2022: $1,108,2492022

Highlighted filing

2022

Assets$1,293,617
Liabilities$185,368
Net Assets$1,108,249
Open 2022 Filing

Operations Trend

Revenue Growth73rd percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $945,6692011Revenue 2012: $953,018Expenses 2012: $983,570Net Income 2012: -$30,5522012Revenue 2013: $1,022,062Expenses 2013: $1,012,925Net Income 2013: $9,1372013Revenue 2014: $1,031,412Expenses 2014: $1,151,728Net Income 2014: -$120,3162014Revenue 2015: $1,807,172Expenses 2015: $1,559,225Net Income 2015: $247,9472015Revenue 2016: $1,367,491Expenses 2016: $1,484,213Net Income 2016: -$116,7222016Revenue 2017: $1,505,770Expenses 2017: $1,407,175Net Income 2017: $98,5952017Revenue 2018: $1,394,662Expenses 2018: $1,359,424Net Income 2018: $35,2382018Revenue 2019: $1,626,969Expenses 2019: $1,493,268Net Income 2019: $133,7012019Revenue 2020: $1,540,683Expenses 2020: $1,586,353Net Income 2020: -$45,6702020Revenue 2021: $1,393,195Expenses 2021: $1,339,102Net Income 2021: $54,0932021Revenue 2022: $1,806,254Expenses 2022: $1,776,291Net Income 2022: $29,9632022

Highlighted filing

2022

Revenue$1,806,254
Expenses$1,776,291
Net Income$29,963
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2021 to Jan 31, 2022
Signed
Dec 13, 2022
Return Version
2021v4.2
Gross Receipts
$1,960,399
Mission and Program Overview

Mission

To help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure.

To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$644,690$853,185▲ $208,495
Land, Buildings, and Equipment, Net$458,852$244,539▼ $214,313
Cash and Non-Interest-Bearing Accounts$204,928$181,162▼ $23,766
Accounts Receivable$3,398$8,742▲ $5,344
Prepaid Expenses and Deferred Charges$84,036$3,425▼ $80,611
Total Assets$1,398,546$1,293,617▼ $104,929
Other Assets Total$2,642$2,564▼ $78
Liabilities
Accounts Payable and Accrued Expenses$48,458$92,770▲ $44,312
Other Liabilities$212,834$92,598▼ $120,236
Deferred Revenue$58,968$0▼ $58,968
Total Liabilities$320,260$185,368▼ $134,892
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$991,417$805,421▼ $185,996
Net Assets With Donor Restrictions$86,869$302,828▲ $215,959
Total Net Assets Fund Balance$1,078,286$1,108,249▲ $29,963
Total Liabilities and Net Assets / Fund Balance$1,398,546$1,293,617▼ $104,929

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$244,539$453,346$697,885
Other Land Buildings$0$23,511$23,511
Compensation and Service Providers
Top Officer Pay85th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Melanie Roach-bekosExecutive DirectorFT$93,356$64,528$157,884

Board Members and Trustees

NameTitle
Mary Brennan-drumlPresident
Meg PosorskeVice President
Carl BahnemanDirector
Christopher SimmsDirector
Gerard RandalDirector
Jessica GeresDirector
Kelly SchwabDirector
Liliana Lily LopezDirector
Manis MullarkeyDirector
Maritza a GonzalezDirector
Mary Beth SchlechtDirector
Shelly SlowakDirector
Thomas KettlerDirector
MATTHEW O'NEILLSecretary
Lauren DomnickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,901,299
Program Service Revenue
$0
Investment Income
$-10,451
Other Revenue
$-84,594
All Other Contributions
$1,011,172
Change in Net Assets
$29,963

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table197$138,860Cost of Donated Prop
Total Noncash Contributions197$138,860-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,806,254
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$29,538
Total Revenue per Audited Statements
$1,835,792
Total Revenue per Form 990
$1,806,254
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$788,063
Other Expenses$720,583
Grants and Similar Amounts Paid$267,645
Total Fundraising Expense$120,059
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$288,606$212,271$43,336$544,213
Depreciation Depletion$328,270$1,260-$329,530
Grants to Domestic Orgs$204,552--$204,552
Current Officers, Directors, Trustees, and Key Employees$118,508-$39,503$158,011
Conferences and Meetings$100,335--$100,335
Fees for Services Accounting-$64,789$3,200$67,989
Grants to Domestic Individuals$63,093--$63,093
Payroll Taxes$42,059$12,681$5,716$60,456
Office Expenses$36,770$1,886$17,651$56,307
Information Technology$16,235$16,807$4,695$37,737
Occupancy$17,999$17,998-$35,997
All Other Expenses$31,208$1,221$1,593$34,022
Other Employee Benefits$2,986$22,397-$25,383
Advertising$12,843--$12,843
Travel$7,495$500$3,964$11,959
Insurance$5,417$1,170-$6,587
Fees for Services Other$1,630-$100$1,730
Other Expenses$314$348$301$314
Total Functional Expenses$1,302,904$353,328$120,059$1,776,291

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,805,829
Expenses per Audited Statements$1,776,291
Total Expenses per Form 990$1,776,291
Expenses Not Reported on Form 990$29,538
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Als Association National HeadquartersArlington, VA501(c)(3)Restricted to Research to Find the Cause, Treatments and a Cure for Als.$204,552
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$143,214
Fundraising Gross Income$58,620
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Milwaukee Walk$257,669-$13,242-
Ne Wisconsin Walk$121,547-$4,984-
Total Events$806,959$58,620$143,214$-84,594
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to National Als for Research and Revenue Share$92,598
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board members mary brennan-druml and manis mullarkey have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The form 990 was provided for review to the board of directors before being filed with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The policy is monitored on a regular basis by the finance manager and finance committee. Directors, officers, staff members, their immediate families and parties, groups or organizations to which they have an allegiance are required to promptly report conflicts of interest to the board of directors. Any person having a conflict of interest with the chapter shall leave the meeting room and shall abstain from participation in the discussion or the vote of issues surrounding the conflict with or in respect to the deliberations of the board, the executive committee or any other committee or deliberative body of the corporation. The minutes of the meeting of the board or appropriate committee shall reflect that the conflict was disclosed and that the interested person or persons left the room and did not participate in the discussion or the vote on the matter of concern.”

Form 990, Part VI, Section B, Line 15A

“The executive director's compensation is established by the board of directors on an annual basis after completing a detailed review of the executive director's performance. This review includes an assessment of the success of the year's fund-raising activities, patient service activities, and administrative functions. The executive director's compensation is compared to other area executive directors using sources such as guidestar and charity navigator. These deliberations are documented in the board meeting minutes annually during the development of the year's budget. The care services director's compensation is established by the board of directors on an annual basis after completing a detailed review of the care services director's performance. The board assesses the year's patient services activities, and compensation is compared to salary data available from the national als association and independent sources such as job search websites.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are available upon written request.”

Filing and Contact Details

Filer

Filer Name
The Als Association Inc Wisconsin
EIN
39-1600965
Phone
4147632220
Address
3333 N MAYFAIR ROAD 104, WAUWATOSA, WI 53222-3219

Signing Officer

Name
Mary Brennan-druml
Title
President
Phone
4147632220
Signed
2022-12-13
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melanie Roach-bekos
Formed
1987
Legal Domicile
Wi
Voting Board Members
15
Independent Board Members
15
Employees
22
Volunteers
200

Preparer

Firm
Wipfli Llp
Address
170 N RADNOR-CHESTER RD SUITE 200, RADNOR, PA 19087
Preparer
Solomon Mardakhaev
Phone
6105653930
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“In order to account for any uncertain tax positions, the organization determines whether it is more likely than not that a tax position will be sustained upon examination on the technical merits of the position, assuming the taxing authority has full knowledge of all information. If the tax position does not meet the more-likely-than-not recognition threshold, the benefit of that position is not recognized in the financial statements. The organization has determnined there are no amounts to record as assets or liabilities related to uncertain tax positions.”

Raw XML AppendixShowing 400 of 650 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE CHAPTER'S CARE SERVICES STAFF PROVIDES SERVICES TO PEOPLE LIVING WITH ALS, THEIR FAMILIES AND THEIR CAREGIVERS, HELPING THEM LEARN ABOUT THE DISEASE, LOCATE RESOURCES IN THE COMMUNITY AND COPE WITH THE CHANGES OCCURRING IN THEIR LIVES. DURING THE YEAR ENDING JANUARY 31, 2022, THE CHAPTER SERVED OVER 500 PEOPLE LIVING WITH ALS IN WISCONSIN. THE FOLLOWING CARE SERVICES PROGRAMS AND SERVICES ARE AVAILABLE TO ASSIST INDIVIDUALS AND FAMILIES TO MEET THE DAILY CHALLENGES OF ALS AT NO COST: SUPPORT GROUPS; SERVICES AT ALS CERTIFIED TREATMENT CENTERS OF EXCELLENCE AT FROEDTERT HOSPITAL/MEDICAL COLLEGE OF WISCONSIN AND THE CLEMENT J. ZABLOCKI MILWAUKEE VA MEDICAL CENTER; SERVICES AT UNIVERSITY HOSPITAL & CLINICS MDA ALS CLINIC IN MADISON; SERVICES AT A DEVELOPING ALS MULTIDISCIPLINARY CLINIC IN THE NEUROSCIENCES CENTER AT GUNDERSEN HEALTH SYSTEM IN LA CROSSE; EQUIPMENT LOAN PROGRAM; AUGMENTATIVE COMMUNICATION PROGRAM; BRIAN TRINASTIC GRANT PROGRAM TO PROVIDE FINANCIAL RELIEF THROUGH REIMBURSEMENT; CARE AND RESEARCH SYMPOSIUM; CARE PROGRAM FOR YOUNG CAREGIVERS.
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IRS990/Form990PartVIISectionAGrp/PersonNm12LILIANA LILY LOPEZ
IRS990/Form990PartVIISectionAGrp/PersonNm13SHELLY SLOWAK
IRS990/Form990PartVIISectionAGrp/PersonNm14GERARD RANDAL
IRS990/Form990PartVIISectionAGrp/PersonNm15MELANIE ROACH-BEKOS
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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt12DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15EXECUTIVE DIRECTOR
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IRS990/MinutesOfCommitteesInd01
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IRS990/MissionDesc0TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH, AND TO EMPOWER PEOPLE LIVING WITH ALS IN WISCONSIN, AND THEIR FAMILIES, TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0-10931
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IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt0-84594
IRS990/NetUnrelatedBusTxblIncmAmt00
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IRS990/NoncashContributionsAmt0138860
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IRS990/OccupancyGrp/ManagementAndGeneralAmt017998
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IRS990/OfficeExpensesGrp/FundraisingAmt017651
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt01886
IRS990/OfficeExpensesGrp/ProgramServicesAmt036770
IRS990/OfficeExpensesGrp/TotalAmt056307
IRS990/OfficerMailingAddressInd00
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IRS990/OtherExpensesGrp/Desc1EQUIPMENT & MAINTENANCE
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IRS990/PayrollTaxesGrp/FundraisingAmt05716
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IRS990/PayrollTaxesGrp/ProgramServicesAmt042059
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IRS990/PrincipalOfficerNm0MELANIE ROACH-BEKOS
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IRS990/ProgSrvcAccomActy2Grp/Desc0OUR CHAPTER WORKS WITH 39 OTHER CHAPTER'S ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DIRECTS FUNDS EACH YEAR TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR ALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING-EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0294121
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0204552
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IRS990/ProgSrvcAccomActy3Grp/Desc0OUR CHAPTER WORKS TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH ADVOCACY ACTIVITIES AT A STATE AND NATIONAL LEVEL. WE PROVIDE THE FOLLOWING RESOURCES TO PATIENTS AND FAMILIES THROUGHOUT WISCONSIN: BI-MONTHLY PATIENT INFORMATION AND UPDATES; A LENDING LIBRARY OF VARIOUS RESOURCES; BOOKS AND EDUCATIONAL ACTIVITIES FOR CHILDREN AND YOUNG CAREGIVERS; INFORMATION FOR NEWLY DIAGNOSED PATIENTS; INFORMATION ON VA BENEFITS. OUR CHAPTER CONDUCTS EVENTS TO GENERATE GENERAL PUBLIC AWARENESS AND USES TOOLS TO EXPAND THE AWARENESS THROUGH SOCIAL MEDIA AND THE INTERNET. THE CHAPTER PARTICIPATES IN ANNUAL CONFERENCES IN WASHINGTON D.C. TO ADVANCE PUBLIC POLICIES THAT WILL BENEFIT PEOPLE LIVING WITH ALS AND THEIR FAMILIES.
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Document Assets

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,293,617
Liabilities
$185,368
Net assets
$1,108,249
Revenue
$1,806,254
Expenses
$1,776,291
Net income
$29,963
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022Detailed filing. Detailed filing data is available for this year.$1.29$0.19$1.11$1.81$1.78$0.03
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.40$0.32$1.08$1.39$1.34$0.05
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.30$0.27$1.02$1.54$1.59$0.05
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.33$0.26$1.07$1.63$1.49$0.13
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.30$0.37$0.93$1.39$1.36$0.04
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.32$0.42$0.90$1.51$1.41$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.24$0.44$0.80$1.37$1.48$0.12
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.48$0.91$1.81$1.56$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.24$0.65$1.03$1.15$0.12
2013Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.95$0.18$0.77$1.02$1.01$0.01
2012Summary only. Only limited summary data is available for this year.$0.93$0.18$0.76$0.95$0.98$0.03
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.90$0.11$0.79$0.95