Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2021 • EIN 39-1600965

Feb 01, 2020 to Jan 31, 2021 • Filed on Oct 21, 2021

Organization ProfileWWW.ALS.ORG/WISCONSIN
3333 N Mayfair Road No 104Wauwatosa, WI 53222-3219

(414) 763-2220

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

70th percentile

0.23x

Higher debt load relative to assets than 70% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

67th percentile

0.23x

Higher debt load relative to revenue than 67% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

34th percentile

3.9%

Higher net margin than 34% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

77th percentile

$120,545

Higher top officer pay than 77% of similar nonprofits.

Top officer pay equals 8.7% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

47th percentile

8.0%

Faster asset growth than 47% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

21st percentile

-9.6%

Faster revenue growth than 21% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Balance Sheet
Liabilities / Assets70th percentile

Assets

Up

$1,398,546

Up $103,286 (+8.0%) from 2020

Net Assets

Up

$1,078,286

Up $54,093 (+5.3%) from 2020

Liabilities

Up

$320,260

Up $49,193 (+18%) from 2020

Revenue And Expenses
Liabilities / Revenue67th percentileNet Margin34th percentile

Revenue

Down

$1,393,195

Down $147,488 (-9.6%) from 2020

Expenses

Down

$1,339,102

Down $247,251 (-16%) from 2020

Net Income

Up

$54,093

Up $99,763 (+218%) from 2020

Historical Trend

Balance Sheet Trend

Asset Growth47th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $897,791Liabilities 2011: $110,266Net Assets 2011: $787,5252011Assets 2012: $934,129Liabilities 2012: $177,154Net Assets 2012: $756,9752012Assets 2013: $949,246Liabilities 2013: $183,133Net Assets 2013: $766,1132013Assets 2014: $881,796Liabilities 2014: $235,999Net Assets 2014: $645,7972014Assets 2015: $1,391,096Liabilities 2015: $477,400Net Assets 2015: $913,6962015Assets 2016: $1,239,952Liabilities 2016: $439,422Net Assets 2016: $800,5302016Assets 2017: $1,316,585Liabilities 2017: $417,459Net Assets 2017: $899,1262017Assets 2018: $1,301,700Liabilities 2018: $367,336Net Assets 2018: $934,3642018Assets 2019: $1,325,418Liabilities 2019: $255,555Net Assets 2019: $1,069,8632019Assets 2020: $1,295,260Liabilities 2020: $271,067Net Assets 2020: $1,024,1932020Assets 2021: $1,398,546Liabilities 2021: $320,260Net Assets 2021: $1,078,2862021Assets 2022: $1,293,617Liabilities 2022: $185,368Net Assets 2022: $1,108,2492022

Highlighted filing

2021

Assets$1,398,546
Liabilities$320,260
Net Assets$1,078,286
Open 2021 Filing

Operations Trend

Revenue Growth21st percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $945,6692011Revenue 2012: $953,018Expenses 2012: $983,570Net Income 2012: -$30,5522012Revenue 2013: $1,022,062Expenses 2013: $1,012,925Net Income 2013: $9,1372013Revenue 2014: $1,031,412Expenses 2014: $1,151,728Net Income 2014: -$120,3162014Revenue 2015: $1,807,172Expenses 2015: $1,559,225Net Income 2015: $247,9472015Revenue 2016: $1,367,491Expenses 2016: $1,484,213Net Income 2016: -$116,7222016Revenue 2017: $1,505,770Expenses 2017: $1,407,175Net Income 2017: $98,5952017Revenue 2018: $1,394,662Expenses 2018: $1,359,424Net Income 2018: $35,2382018Revenue 2019: $1,626,969Expenses 2019: $1,493,268Net Income 2019: $133,7012019Revenue 2020: $1,540,683Expenses 2020: $1,586,353Net Income 2020: -$45,6702020Revenue 2021: $1,393,195Expenses 2021: $1,339,102Net Income 2021: $54,0932021Revenue 2022: $1,806,254Expenses 2022: $1,776,291Net Income 2022: $29,9632022

Highlighted filing

2021

Revenue$1,393,195
Expenses$1,339,102
Net Income$54,093
Open 2021 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2020 to Jan 31, 2021
Signed
Oct 21, 2021
Return Version
2020v4.1
Gross Receipts
$1,624,022
Mission and Program Overview

Mission

To help people living with Amyotrophic Lateral Sclerosis and to leave no stone unturned in search for the cure.

To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$648,967$644,690▼ $4,277
Land, Buildings, and Equipment, Net$502,646$458,852▼ $43,794
Cash and Non-Interest-Bearing Accounts$51,709$204,928▲ $153,219
Prepaid Expenses and Deferred Charges$88,535$84,036▼ $4,499
Accounts Receivable$731$3,398▲ $2,667
Total Assets$1,295,260$1,398,546▲ $103,286
Other Assets Total$2,672$2,642▼ $30
Liabilities
Other Liabilities$22,537$212,834▲ $190,297
Deferred Revenue$154,149$58,968▼ $95,181
Accounts Payable and Accrued Expenses$94,381$48,458▼ $45,923
Total Liabilities$271,067$320,260▲ $49,193
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$935,632$991,417▲ $55,785
Net Assets With Donor Restrictions$88,561$86,869▼ $1,692
Total Net Assets Fund Balance$1,024,193$1,078,286▲ $54,093
Total Liabilities and Net Assets / Fund Balance$1,295,260$1,398,546▲ $103,286

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$458,852$245,885$704,737
Other Land Buildings$0$23,511$23,511
Compensation and Service Providers
Top Officer Pay77th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Melanie Roach-bekosExecutive DirectorFT$109,011$11,534$120,545

Board Members and Trustees

NameTitle
Mary Brennan-drumlPresident
Kathryn KeppelPresident (thru January)
Meg PosorskeVice President
Carl BahnemanDirector
Christopher SimmsDirector
Jessica GeresDirector
Manis MullarkeyDirector
Mary Beth SchlechtDirector
Thomas KettlerDirector
Holly BlakeDirector (thru November)
Joel HessDirector (thru September)
MATTHEW O'NEILLSecretary
Lauren DomnickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,520,822
Program Service Revenue
$70,709
Investment Income
$-89,354
Other Revenue
$-108,982
All Other Contributions
$730,614
Change in Net Assets
$54,093

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table207$199,175Cost of Donated Prop
Cars and Other Vehicles1$20,000Fair Market Value
Total Noncash Contributions208$219,175-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,393,195
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$220,136
Total Revenue per Audited Statements
$1,613,331
Total Revenue per Form 990
$1,393,195
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$704,499
Other Expenses$340,366
Grants and Similar Amounts Paid$294,237
Total Fundraising Expense$99,860
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$410,928$53,859$55,472$520,259
Grants to Domestic Orgs$249,836--$249,836
Depreciation Depletion$131,563$1,259-$132,822
Current Officers, Directors, Trustees, and Key Employees$89,633-$29,877$119,510
Payroll Taxes$38,278$3,446$6,320$48,044
Grants to Domestic Individuals$44,401--$44,401
Occupancy$28,718$2,586$4,741$36,045
Office Expenses$11,461$10,161-$21,622
Fees for Services Accounting-$17,746-$17,746
Other Employee Benefits$9,746$5,733$1,207$16,686
Insurance$10,484$1,151$1,852$13,487
Information Technology$3,234$5,524-$8,758
Other Expenses$6,135--$6,135
All Other Expenses$2,429$2,890$391$5,710
Travel$2,554--$2,554
Fees for Services Other$126$1,565-$1,691
Conferences and Meetings$323--$323
Total Functional Expenses$1,133,322$105,920$99,860$1,339,102

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,559,238
Expenses per Audited Statements$1,339,102
Total Expenses per Form 990$1,339,102
Expenses Not Reported on Form 990$220,136
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Als Association National HeadquartersArlington, VA501(c)(3)Restricted to Research to Find the Cause, Treatments and a Cure for Als.$249,836
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$140,750
Fundraising Gross Income$31,768
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Milwaukee Walk$290,723-$22,812-
Evening of Hope$156,930-$49,368-
Total Events$620,664-$119,141$-119,141
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Refundable Advance Liability - Paycheck Protection Program$141,788
Due to National Als for Research and Revenue Share$71,046
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board members mary brennan-druml and manis mullarkey have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The form 990 was provided for review to the board of directors before being filed with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The policy is monitored on a regular basis by the finance manager and finance committee. Directors, officers, staff members, their immediate families and parties, groups or organizations to which they have an allegiance are required to promptly report conflicts of interest to the board of directors. Any person having a conflict of interest with the chapter shall leave the meeting room and shall abstain from participation in the discussion or the vote of issues surrounding the conflict with or in respect to the deliberations of the board, the executive committee or any other committee or deliberative body of the corporation. The minutes of the meeting of the board or appropriate committee shall reflect that the conflict was disclosed and that the interested person or persons left the room and did not participate in the discussion or the vote on the matter of concern.”

Form 990, Part VI, Section B, Line 15

“The executive director's compensation is established by the board of directors on an annual basis after completing a detailed review of the executive director's performance. This review includes an assessment of the success of the year's fund-raising activities, patient service activities, and administrative functions. The executive director's compensation is compared to other area executive directors using sources such as guidestar and charity navigator. These deliberations are documented in the board meeting minutes annually during the development of the year's budget. The care services director's compensation is established by the board of directors on an annual basis after completing a detailed review of the care services director's performance. The board assesses the year's patient services activities, and compensation is compared to salary data available from the national als association and independent sources such as job search websites.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are available upon written request.”

Filing and Contact Details

Filer

Filer Name
The Als Association Inc Wisconsin
EIN
39-1600965
Phone
4147632220
Address
3333 N MAYFAIR ROAD NO 104, WAUWATOSA, WI 53222-3219

Signing Officer

Name
Mary Brennan-druml
Title
President
Phone
4147632220
Signed
2021-10-21
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melanie Roach-bekos
Formed
1987
Legal Domicile
Wi
Voting Board Members
10
Independent Board Members
10
Employees
17
Volunteers
25

Preparer

Firm
Wipfli Llp
Address
10000 INNOVATION DRIVE SUITE 250, MILWAUKEE, WI 53226-4837
Preparer
Chloe Chiuminatto
Phone
4144319300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“Accounting standards require the organization to recognize in the financial statements the impact of uncertain tax positions based on specific guidance in the standards. Management evaluated the organization's tax position and concluded that no uncertain tax positions exist as of january 31, 2021 and 2020. Penalties and interest assessed by income taxing authorities are included in management and general expenses, if applicable. The organization has not incurred any interest or penalties related to income taxes for the years ended january 31, 2021 and 2020.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Loss on disposal of equipment 90,077.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Loss on disposal of equipment 90,077.”

Raw XML AppendixShowing 400 of 614 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE CHAPTER'S CARE SERVICES STAFF PROVIDES SERVICES TO PEOPLE LIVING WITH ALS, THEIR FAMILIES AND THEIR CAREGIVERS, HELPING THEM LEARN ABOUT THE DISEASE, LOCATE RESOURCES IN THE COMMUNITY AND COPE WITH THE CHANGES OCCURRING IN THEIR LIVES. DURING THE YEAR ENDING JANUARY 31, 2021, THE CHAPTER SERVED OVER 500 PEOPLE LIVING WITH ALS IN WISCONSIN. THE FOLLOWING CARE SERVICES PROGRAMS AND SERVICES ARE AVAILABLE TO ASSIST INDIVIDUALS AND FAMILIES TO MEET THE DAILY CHALLENGES OF ALS AT NO COST: SUPPORT GROUPS; SERVICES AT ALS CERTIFIED TREATMENT CENTERS OF EXCELLENCE AT FROEDTERT HOSPITAL/MEDICAL COLLEGE OF WISCONSIN AND THE CLEMENT J. ZABLOCKI MILWAUKEE VA MEDICAL CENTER; SERVICES AT UNIVERSITY HOSPITAL & CLINICS MDA ALS CLINIC IN MADISON; SERVICES AT A DEVELOPING ALS MULTIDISCIPLINARY CLINIC IN THE NEUROSCIENCES CENTER AT GUNDERSEN HEALTH SYSTEM IN LA CROSSE; EQUIPMENT LOAN PROGRAM; AUGMENTATIVE COMMUNICATION PROGRAM; BRIAN TRINASTIC GRANT PROGRAM TO PROVIDE FINANCIAL RELIEF THROUGH REIMBURSEMENT; CARE AND RESEARCH SYMPOSIUM; CARE PROGRAM FOR YOUNG CAREGIVERS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt2PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt4SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt5TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR (THRU NOVEMBER)
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR (THRU SEPTEMBER)
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IRS990/MissionDesc0TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH, AND TO EMPOWER PEOPLE LIVING WITH ALS IN WISCONSIN, AND THEIR FAMILIES, TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/ProgSrvcAccomActy2Grp/Desc0OUR CHAPTER WORKS WITH 39 OTHER CHAPTER'S ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DIRECTS FUNDS EACH YEAR TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR ALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING-EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.
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IRS990/ProgSrvcAccomActy3Grp/Desc0OUR CHAPTER WORKS TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH ADVOCACY ACTIVITIES AT A STATE AND NATIONAL LEVEL. WE PROVIDE THE FOLLOWING RESOURCES TO PATIENTS AND FAMILIES THROUGHOUT WISCONSIN: BI-MONTHLY PATIENT INFORMATION AND UPDATES; A LENDING LIBRARY OF VARIOUS RESOURCES; BOOKS AND EDUCATIONAL ACTIVITIES FOR CHILDREN AND YOUNG CAREGIVERS; INFORMATION FOR NEWLY DIAGNOSED PATIENTS; INFORMATION ON VA BENEFITS. OUR CHAPTER CONDUCTS EVENTS TO GENERATE GENERAL PUBLIC AWARENESS AND USES TOOLS TO EXPAND THE AWARENESS THROUGH SOCIAL MEDIA AND THE INTERNET. THE CHAPTER PARTICIPATES IN ANNUAL CONFERENCES IN WASHINGTON D.C. TO ADVANCE PUBLIC POLICIES THAT WILL BENEFIT PEOPLE LIVING WITH ALS AND THEIR FAMILIES.
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Document Assets

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Filings

Displayed year

2021 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,398,546
Liabilities
$320,260
Net assets
$1,078,286
Revenue
$1,393,195
Expenses
$1,339,102
Net income
$54,093
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.29$0.19$1.11$1.81$1.78$0.03
2021Detailed filing. Detailed filing data is available for this year.$1.40$0.32$1.08$1.39$1.34$0.05
2020Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$1.30$0.27$1.02$1.54$1.59$0.05
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.33$0.26$1.07$1.63$1.49$0.13
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.30$0.37$0.93$1.39$1.36$0.04
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.32$0.42$0.90$1.51$1.41$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.24$0.44$0.80$1.37$1.48$0.12
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.48$0.91$1.81$1.56$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.24$0.65$1.03$1.15$0.12
2013Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.95$0.18$0.77$1.02$1.01$0.01
2012Summary only. Only limited summary data is available for this year.$0.93$0.18$0.76$0.95$0.98$0.03
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.90$0.11$0.79$0.95