Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2020 • EIN 39-1600965

Feb 01, 2019 to Jan 31, 2020 • Filed on Jul 30, 2020

Organization ProfileWWW.ALSAWI.ORG
3333 N Mayfair Road No 104Wauwatosa, WI 53222-3219

(414) 763-2220

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

63rd percentile

0.21x

Higher debt load relative to assets than 63% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

56th percentile

0.18x

Higher debt load relative to revenue than 56% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

31st percentile

-3.0%

Higher net margin than 31% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

84th percentile

$150,626

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 9.8% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

23rd percentile

-2.3%

Faster asset growth than 23% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

39th percentile

-5.3%

Faster revenue growth than 39% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets63rd percentile

Assets

Down

$1,295,260

Down $30,158 (-2.3%) from 2019

Net Assets

Down

$1,024,193

Down $45,670 (-4.3%) from 2019

Liabilities

Up

$271,067

Up $15,512 (+6.1%) from 2019

Revenue And Expenses
Liabilities / Revenue56th percentileNet Margin31st percentile

Revenue

Down

$1,540,683

Down $86,286 (-5.3%) from 2019

Expenses

Up

$1,586,353

Up $93,085 (+6.2%) from 2019

Net Income

Down

-$45,670

Down $179,371 (-134%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth23rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2011: $897,791Liabilities 2011: $110,266Net Assets 2011: $787,5252011Assets 2012: $934,129Liabilities 2012: $177,154Net Assets 2012: $756,9752012Assets 2013: $949,246Liabilities 2013: $183,133Net Assets 2013: $766,1132013Assets 2014: $881,796Liabilities 2014: $235,999Net Assets 2014: $645,7972014Assets 2015: $1,391,096Liabilities 2015: $477,400Net Assets 2015: $913,6962015Assets 2016: $1,239,952Liabilities 2016: $439,422Net Assets 2016: $800,5302016Assets 2017: $1,316,585Liabilities 2017: $417,459Net Assets 2017: $899,1262017Assets 2018: $1,301,700Liabilities 2018: $367,336Net Assets 2018: $934,3642018Assets 2019: $1,325,418Liabilities 2019: $255,555Net Assets 2019: $1,069,8632019Assets 2020: $1,295,260Liabilities 2020: $271,067Net Assets 2020: $1,024,1932020Assets 2021: $1,398,546Liabilities 2021: $320,260Net Assets 2021: $1,078,2862021Assets 2022: $1,293,617Liabilities 2022: $185,368Net Assets 2022: $1,108,2492022

Highlighted filing

2020

Assets$1,295,260
Liabilities$271,067
Net Assets$1,024,193
Open 2020 Filing

Operations Trend

Revenue Growth39th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.5M$1.0M$500K$0-$500KExpenses 2011: $945,6692011Revenue 2012: $953,018Expenses 2012: $983,570Net Income 2012: -$30,5522012Revenue 2013: $1,022,062Expenses 2013: $1,012,925Net Income 2013: $9,1372013Revenue 2014: $1,031,412Expenses 2014: $1,151,728Net Income 2014: -$120,3162014Revenue 2015: $1,807,172Expenses 2015: $1,559,225Net Income 2015: $247,9472015Revenue 2016: $1,367,491Expenses 2016: $1,484,213Net Income 2016: -$116,7222016Revenue 2017: $1,505,770Expenses 2017: $1,407,175Net Income 2017: $98,5952017Revenue 2018: $1,394,662Expenses 2018: $1,359,424Net Income 2018: $35,2382018Revenue 2019: $1,626,969Expenses 2019: $1,493,268Net Income 2019: $133,7012019Revenue 2020: $1,540,683Expenses 2020: $1,586,353Net Income 2020: -$45,6702020Revenue 2021: $1,393,195Expenses 2021: $1,339,102Net Income 2021: $54,0932021Revenue 2022: $1,806,254Expenses 2022: $1,776,291Net Income 2022: $29,9632022

Highlighted filing

2020

Revenue$1,540,683
Expenses$1,586,353
Net Income-$45,670
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Feb 1, 2019 to Jan 31, 2020
Signed
Jul 30, 2020
Return Version
2019v5.1
Gross Receipts
$1,971,760
Mission and Program Overview

Mission

To lead the fight to cure and treat als through global, cutting-edge research, and to empower people living with als in wisconsin, and their families, to live fuller lives by providing them with compassionate care and support.

To discover treatments and a cure for als, and to serve, advocate for, and empower people affected by als to live their lives to the fullest

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$632,603$648,967▲ $16,364
Land, Buildings, and Equipment, Net$606,433$502,646▼ $103,787
Prepaid Expenses and Deferred Charges$40,873$88,535▲ $47,662
Cash and Non-Interest-Bearing Accounts$41,836$51,709▲ $9,873
Accounts Receivable$1,170$731▼ $439
Total Assets$1,325,418$1,295,260▼ $30,158
Other Assets Total$2,503$2,672▲ $169
Liabilities
Deferred Revenue$194,411$154,149▼ $40,262
Accounts Payable and Accrued Expenses$42,343$94,381▲ $52,038
Other Liabilities$18,801$22,537▲ $3,736
Total Liabilities$255,555$271,067▲ $15,512
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,001,137$935,632▼ $65,505
Net Assets With Donor Restrictions$68,726$88,561▲ $19,835
Total Net Assets Fund Balance$1,069,863$1,024,193▼ $45,670
Total Liabilities and Net Assets / Fund Balance$1,325,418$1,295,260▼ $30,158

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$502,646$330,836$833,482
Other Land Buildings$0$23,511$23,511
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Melanie Roach-bekosExecutive DirectorFT$93,886$56,740$150,626

Board Members and Trustees

NameTitle
Kathryn KeppelPresident
Meg PosorskeVice President
Carl BahnemanDirector
Holly BlakeDirector
Joel HessDirector
Manis MullarkeyDirector
Mary Beth SchlechtDirector
Tom KettlerDirector
Ben BeckerDirector (thru 01/2020)
Frank McraeDirector (thru 02/2019)
Terri MckenzieDirector (thru 07/2019)
Laura HinrichsenDirector (thru 11/2019)
Mary Brennan-drumlSecretary
Lauren DomnickTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,586,899
Program Service Revenue
$237,643
Investment Income
$-148,922
Other Revenue
$-134,937
All Other Contributions
$595,014
Change in Net Assets
$-45,670

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table176$237,646Cost of Donated Prop
Total Noncash Contributions176$237,646-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,540,683
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$431,137
Total Revenue per Audited Statements
$1,971,820
Total Revenue per Form 990
$1,540,683
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$736,311
Other Expenses$480,728
Grants and Similar Amounts Paid$369,314
Total Fundraising Expense$131,889
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$414,188$45,855$67,418$527,461
Grants to Domestic Orgs$303,406--$303,406
Depreciation Depletion$164,919$959-$165,878
Current Officers, Directors, Trustees, and Key Employees$93,298-$44,107$137,405
Grants to Domestic Individuals$65,908--$65,908
Payroll Taxes$38,431$3,428$8,077$49,936
Occupancy$26,933$2,402$5,661$34,996
All Other Expenses$18,277$10,260$4,837$33,374
Office Expenses$15,929$13,196-$29,125
Other Employee Benefits$14,801$5,500$1,208$21,509
Other Expenses$19,566--$19,566
Fees for Services Accounting-$16,310-$16,310
Information Technology$6,460$6,852-$13,312
Travel$7,038$1,234-$8,272
Insurance$6,285$1,195$581$8,061
Fees for Services Other$270$3,499-$3,769
Conferences and Meetings$200$335-$535
Total Functional Expenses$1,343,439$111,025$131,889$1,586,353

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,017,490
Expenses per Audited Statements$1,586,353
Total Expenses per Form 990$1,586,353
Expenses Not Reported on Form 990$431,137
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
The Als Association National HeadquartersArlington, VA501(c)(3)Restricted to Research to Find the Cause, Treatments and a Cure for Als.$303,406
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
Yes
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$267,866
Fundraising Gross Income$110,022
Gaming Gross Income$35,832
Gaming Direct Expenses$12,925
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Milwaukee Walk$417,690-$24,664-
Evening of Hope$347,895$59,300$83,818$-24,518
Total Events$1,017,660$59,300$243,773$-184,473
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Due to National Als for Research$22,537
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section A, Line 2

“Board members mary brennan-druml and manis mullarkey have a family relationship.”

Form 990, Part VI, Section B, Line 11B

“The form 990 was provided for review to the board of directors before being filed with the internal revenue service.”

Form 990, Part VI, Section B, Line 12C

“The policy is monitored on a regular basis by the finance manager and finance committee. Directors, officers, staff members, their immediate families and parties, groups or organizations to which they have an allegiance are required to promptly report conflicts of interest to the board of directors. Any person having a conflict of interest with the chapter shall leave the meeting room and shall abstain from participation in the discussion or the vote of issues surrounding the conflict with or in respect to the deliberations of the board, the executive committee or any other committee or deliberative body of the corporation. The minutes of the meeting of the board or appropriate committee shall reflect that the conflict was disclosed and that the interested person or persons left the room and did not participate in the discussion or the vote on the matter of concern.”

Form 990, Part VI, Section B, Line 15

“The executive director's compensation is established by the board of directors on an annual basis after completing a detailed review of the executive director's performance. This review includes an assessment of the success of the year's fund-raising activities, patient service activities, and administrative functions. The executive director's compensation is compared to other area executive directors using sources such as guidestar and charity navigator. These deliberations are documented in the board meeting minutes annually during the development of the year's budget. The care services director's compensation is established by the board of directors on an annual basis after completing a detailed review of the care services director's performance. The board assesses the year's patient services activities, and compensation is compared to salary data available from the national als association and independent sources such as job search websites.”

Form 990, Part VI, Section C, Line 19

“The organization's governing documents, conflict of interest policy, and financial statements are available upon written request.”

Filing and Contact Details

Filer

Filer Name
The Als Association Inc Wisconsin
EIN
39-1600965
Phone
4147632220
Address
3333 N MAYFAIR ROAD NO 104, WAUWATOSA, WI 53222-3219

Signing Officer

Name
Kathryn Keppel
Title
President
Phone
4142711440
Signed
2020-07-30
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Melanie Roach-bekos
Formed
1987
Legal Domicile
Wi
Voting Board Members
10
Independent Board Members
10
Employees
20
Volunteers
400

Preparer

Firm
Wipfli Llp
Address
10000 INNOVATION DRIVE SUITE 250, MILWAUKEE, WI 53226-4837
Preparer
Chloe Chiuminatto
Phone
4144319300
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

“The organization records a liability for the uncertain tax positions when it is probable that a loss has been incurred and the amount can be reasonably estimated. For the years ended january 31, 2020 and 2019, no uncertain tax positions were identified by management and no liability for those positions has been recognized in the accompanying financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Loss on disposal of equipment 150,286.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Loss on disposal of equipment 150,286.”

Raw XML AppendixShowing 400 of 680 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Desc0THE CHAPTER'S CARE SERVICES STAFF PROVIDES SERVICES TO PEOPLE LIVING WITH ALS, THEIR FAMILIES AND THEIR CAREGIVERS, HELPING THEM LEARN ABOUT THE DISEASE, LOCATE RESOURCES IN THE COMMUNITY AND COPE WITH THE CHANGES OCCURRING IN THEIR LIVES. DURING THE YEAR ENDING JANUARY 31, 2020, THE CHAPTER SERVED OVER 400 PEOPLE LIVING WITH ALS IN WISCONSIN. THE FOLLOWING CARE SERVICES PROGRAMS AND SERVICES ARE AVAILABLE TO ASSIST INDIVIDUALS AND FAMILIES TO MEET THE DAILY CHALLENGES OF ALS AT NO COST: SUPPORT GROUPS; SERVICES AT ALS CERTIFIED TREATMENT CENTERS OF EXCELLENCE AT FROEDTERT HOSPITAL/MEDICAL COLLEGE OF WISCONSIN AND THE CLEMENT J. ZABLOCKI MILWAUKEE VA MEDICAL CENTER; SERVICES AT UNIVERSITY HOSPITAL & CLINICS MDA ALS CLINIC IN MADISON; SERVICES AT A DEVELOPING ALS MULTIDISCIPLINARY CLINIC IN THE NEUROSCIENCES CENTER AT GUNDERSEN HEALTH SYSTEM IN LA CROSSE; EQUIPMENT LOAN PROGRAM; AUGMENTATIVE COMMUNICATION PROGRAM; BRIAN TRINASTIC GRANT PROGRAM TO PROVIDE FINANCIAL RELIEF THROUGH REIMBURSEMENT; CARE AND RESEARCH SYMPOSIUM; CARE PROGRAM FOR YOUNG CAREGIVERS.
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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR (THRU 01/2020)
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR (THRU 11/2019)
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6DIRECTOR (THRU 07/2019)
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR (THRU 02/2019)
IRS990/Form990PartVIISectionAGrp/TitleTxt8DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt11VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12SECRETARY
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IRS990/Form990PartVIISectionAGrp/TitleTxt14EXECUTIVE DIRECTOR
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IRS990/MissionDesc0TO LEAD THE FIGHT TO CURE AND TREAT ALS THROUGH GLOBAL, CUTTING-EDGE RESEARCH, AND TO EMPOWER PEOPLE LIVING WITH ALS IN WISCONSIN, AND THEIR FAMILIES, TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/OtherExpensesGrp/Desc0EDUCATION & AWARENESS
IRS990/OtherExpensesGrp/Desc1EQUIPMENT & MAINTENANCE
IRS990/OtherExpensesGrp/Desc2PROCESSING FEES
IRS990/OtherExpensesGrp/Desc3SUPPORT GROUP & CLINIC
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IRS990/OtherExpensesGrp/ProgramServicesAmt319566
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IRS990/PrincipalOfficerNm0MELANIE ROACH-BEKOS
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IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0230164
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt17479
IRS990/ProgSrvcAccomActy2Grp/Desc0OUR CHAPTER WORKS WITH 39 OTHER CHAPTER'S ACROSS THE COUNTRY TO SUPPORT GLOBAL RESEARCH AND OUR EFFORTS ARE FOCUSED TOWARDS A SINGLE VISION OF A WORLD WITHOUT ALS. OUR CHAPTER DIRECTS FUNDS EACH YEAR TOWARDS SOME OF THE MOST PROMISING ALS RESEARCH PROJECTS. THESE PROJECTS ARE ALL RELATED TO FINDING THE CAUSE, A TREATMENT AND A CURE FOR ALS. THE ALS ASSOCIATION IS THE ONLY ORGANIZATION DEDICATED SOLELY TO THE FIGHT AGAINST ALS. THE ORGANIZATION AS A WHOLE FUNDS AGGRESSIVE, CUTTING-EDGE RESEARCH USING THE NEWEST TECHNIQUES WHILE FOSTERING COLLABORATIVE INITIATIVES AMONG GOVERNMENT AGENCIES, THE PRIVATE SECTOR AND SCIENTISTS WHO ARE INVESTED IN TRANSLATIONAL RESEARCH.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0303406
IRS990/ProgSrvcAccomActy2Grp/GrantAmt0303406
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0OUR CHAPTER WORKS TO PROMOTE PUBLIC AWARENESS AND EDUCATION THROUGH ADVOCACY ACTIVITIES AT A STATE AND NATIONAL LEVEL. WE PROVIDE THE FOLLOWING RESOURCES TO PATIENTS AND FAMILIES THROUGHOUT WISCONSIN: BI-MONTHLY PATIENT INFORMATION AND UPDATES; A LENDING LIBRARY OF VARIOUS RESOURCES; BOOKS AND EDUCATIONAL ACTIVITIES FOR CHILDREN AND YOUNG CAREGIVERS; INFORMATION FOR NEWLY DIAGNOSED PATIENTS; INFORMATION ON VA BENEFITS. OUR CHAPTER CONDUCTS EVENTS TO GENERATE GENERAL PUBLIC AWARENESS AND USES TOOLS TO EXPAND THE AWARENESS THROUGH SOCIAL MEDIA AND THE INTERNET. THE CHAPTER PARTICIPATES IN ANNUAL CONFERENCES IN WASHINGTON D.C. TO ADVANCE PUBLIC POLICIES THAT WILL BENEFIT PEOPLE LIVING WITH ALS AND THEIR FAMILIES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt082842
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Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,295,260
Liabilities
$271,067
Net assets
$1,024,193
Revenue
$1,540,683
Expenses
$1,586,353
Net income
-$45,670
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.29$0.19$1.11$1.81$1.78$0.03
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.40$0.32$1.08$1.39$1.34$0.05
2020Detailed filing. Detailed filing data is available for this year.$1.30$0.27$1.02$1.54$1.59$0.05
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.33$0.26$1.07$1.63$1.49$0.13
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.30$0.37$0.93$1.39$1.36$0.04
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.32$0.42$0.90$1.51$1.41$0.10
2016Detailed filing. Detailed filing data is available for this year.$1.24$0.44$0.80$1.37$1.48$0.12
2015XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.39$0.48$0.91$1.81$1.56$0.25
2014Detailed filing. Detailed filing data is available for this year.$0.88$0.24$0.65$1.03$1.15$0.12
2013Import issue. A filing source exists for this year, but detailed import did not complete cleanly.$0.95$0.18$0.77$1.02$1.01$0.01
2012Summary only. Only limited summary data is available for this year.$0.93$0.18$0.76$0.95$0.98$0.03
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.90$0.11$0.79$0.95
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2020 filings • 501(c)3 • $1M-$5M nonprofits