Civic Intelligence

Cutaneous Lymphoma Foundation Inc.

990 • Fiscal year 2021 • EIN 38-3443135

Jul 01, 2020 to Jun 30, 2021 • Filed on Oct 05, 2021

PO Box 374Birmingham, MI 48012

(248) 644-9014

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

38th percentile

0.03x

Higher debt load relative to assets than 38% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Liabilities / Revenue

36th percentile

0.04x

Higher debt load relative to revenue than 36% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Net Margin

78th percentile

35%

Higher net margin than 78% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Top Officer Pay

79th percentile

$126,715

Higher top officer pay than 79% of similar nonprofits.

Top officer pay equals 11.5% of source-year revenue.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2021

Asset Growth

73rd percentile

25%

Faster asset growth than 73% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Revenue Growth

46th percentile

9.0%

Faster revenue growth than 46% of similar nonprofits.

2021 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2020 to 2021

Assets

Up

$1,518,306

Up $300,614 (+25%) from 2020

Net Assets

Up

$1,478,987

Up $380,992 (+35%) from 2020

Liabilities

Down

$39,319

Down $80,378 (-67%) from 2020

Revenue

Up

$1,100,210

Up $90,953 (+9.0%) from 2020

Expenses

Down

$719,218

Down $160,509 (-18%) from 2020

Net Income

Up

$380,992

Up $251,462 (+194%) from 2020

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $1,301,903Liabilities 2011: $19,630Net Assets 2011: $1,282,2732011Assets 2012: $1,156,575Liabilities 2012: $31,097Net Assets 2012: $1,125,4782012Assets 2013: $1,000,527Liabilities 2013: $59,440Net Assets 2013: $941,0872013Assets 2014: $1,065,315Liabilities 2014: $103,307Net Assets 2014: $962,0082014Assets 2015: $924,061Liabilities 2015: $109,411Net Assets 2015: $814,6502015Assets 2016: $726,490Liabilities 2016: $101,014Net Assets 2016: $625,4762016Assets 2017: $673,165Liabilities 2017: $98,539Net Assets 2017: $574,6262017Assets 2018: $811,041Liabilities 2018: $73,772Net Assets 2018: $737,2692018Assets 2019: $1,056,955Liabilities 2019: $88,490Net Assets 2019: $968,4652019Assets 2020: $1,217,692Liabilities 2020: $119,697Net Assets 2020: $1,097,9952020Assets 2021: $1,518,306Liabilities 2021: $39,319Net Assets 2021: $1,478,9872021Assets 2022: $1,694,712Liabilities 2022: $4,052Net Assets 2022: $1,690,6602022Assets 2023: $1,406,163Liabilities 2023: $97,588Net Assets 2023: $1,308,5752023Assets 2024: $1,203,956Liabilities 2024: $74,867Net Assets 2024: $1,129,0892024Assets 2025: $936,554Liabilities 2025: $49,546Net Assets 2025: $887,0082025

Highlighted filing

2021

Assets$1,518,306
Liabilities$39,319
Net Assets$1,478,987

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KExpenses 2011: $553,7022011Revenue 2012: $440,360Expenses 2012: $597,155Net Income 2012: -$156,7952012Revenue 2013: $417,113Expenses 2013: $601,504Net Income 2013: -$184,3912013Revenue 2014: $863,520Expenses 2014: $842,599Net Income 2014: $20,9212014Revenue 2015: $738,671Expenses 2015: $886,029Net Income 2015: -$147,3582015Revenue 2016: $720,903Expenses 2016: $910,077Net Income 2016: -$189,1742016Revenue 2017: $801,939Expenses 2017: $852,789Net Income 2017: -$50,8502017Revenue 2018: $890,597Expenses 2018: $727,954Net Income 2018: $162,6432018Revenue 2019: $1,071,973Expenses 2019: $840,777Net Income 2019: $231,1962019Revenue 2020: $1,009,257Expenses 2020: $879,727Net Income 2020: $129,5302020Revenue 2021: $1,100,210Expenses 2021: $719,218Net Income 2021: $380,9922021Revenue 2022: $943,674Expenses 2022: $732,001Net Income 2022: $211,6732022Revenue 2023: $575,949Expenses 2023: $958,034Net Income 2023: -$382,0852023Revenue 2024: $746,138Expenses 2024: $925,624Net Income 2024: -$179,4862024Revenue 2025: $836,833Expenses 2025: $1,078,914Net Income 2025: -$242,0812025

Highlighted filing

2021

Revenue$1,100,210
Expenses$719,218
Net Income$380,992
Jump To
Filing Snapshot
Filing Period
Jul 1, 2020 to Jun 30, 2021
Signed
Oct 5, 2021
Return Version
2020v4.0
Gross Receipts
$1,100,210
Mission and Program Overview

Mission

The cutaneous lymphoma foundation is an independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$971,979$922,582▼ $49,397
Cash and Non-Interest-Bearing Accounts$205,167$570,006▲ $364,839
Land, Buildings, and Equipment, Net$5,294$17,666▲ $12,372
Prepaid Expenses and Deferred Charges$11,166$8,052▼ $3,114
Pledges and Grants Receivable$5,000--
Total Assets$1,217,692$1,518,306▲ $300,614
Other Assets Total$19,086--
Liabilities
Unsecured Notes Loans Payable$80,400--
Other Liabilities$31,543$35,164▲ $3,621
Accounts Payable and Accrued Expenses$7,754$4,155▼ $3,599
Total Liabilities$119,697$39,319▼ $80,378
Net Assets / Fund Balance
Net Assets With Donor Restrictions$714,205$758,555▲ $44,350
Net Assets Without Donor Restrictions$383,790$720,432▲ $336,642
Total Net Assets Fund Balance$1,097,995$1,478,987▲ $380,992
Total Liabilities and Net Assets / Fund Balance$1,217,692$1,518,306▲ $300,614

Asset Categories

AssetBook ValueDepreciationBasis
Other Land Buildings$17,666$72,343$90,009
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseOtherTotal
Susan ThorntonChief Exec OFT$115,315$11,400$126,715

Board Members and Trustees

NameTitle
Laurel CarlsonPresident
Michael YoungDirector
Steven Horwitz MdDirector
Youn Kim MdDirector
Marianne Tawa Rn Msn AnpSecretary
Jeff WardTreasurer
David ElefantVice Preside
Revenue and Support

Revenue Composition

Contributions and Grants
$1,099,608
Program Service Revenue
$0
Investment Income
$602
Other Revenue
$0
All Other Contributions
$1,019,208
Change in Net Assets
$380,992

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,100,210
Total Revenue per Audited Statements
$1,100,210
Total Revenue per Form 990
$1,100,210
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$431,874
Other Expenses$237,344
Grants and Similar Amounts Paid$50,000
Total Fundraising Expense$35,068
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$266,142$75,073$15,913$357,128
Fees for Services Other$49,915$3,649$1,044$54,608
Grants to Domestic Orgs$50,000--$50,000
Office Expenses$41,754$3,584$3,124$48,462
Other Employee Benefits$33,321$9,787$1,828$44,936
Conferences and Meetings$34,050$2,648$1,136$37,834
Information Technology$28,382$6,826$1,750$36,958
Payroll Taxes$21,464$3,875$4,471$29,810
Occupancy$14,570$2,732$911$18,213
Depreciation Depletion$14,127--$14,127
Insurance$2,327$3,248$485$6,060
Fees for Services Accounting-$5,525-$5,525
Other Expenses$2,777$995$4,018$3,772
Travel$933$110$58$1,101
Total Functional Expenses$565,042$119,108$35,068$719,218

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$719,218
Total Expenses per Audited Statements$719,218
Total Expenses per Form 990$719,218
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Northwestern University - DermatoloChicago, IL-Research$12,500
University of Iowa Dermatology DeptIowa City, IA-Research$12,500
University of Pittsburgh - MedicalPittsburgh, PA-Research$12,500
Yale University Dermatology DeptNew Haven, CT-Research$12,500
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Accrued Expenses$35,164
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 11B

The return is reviewed by the chief executive officer, the treasurer and the chief operating and financial officer before filing and the board receives a copy of the return at the next board meeting.

Form 990, Page 6, Part VI, Line 12C

Annually individuals involved review their situation to determine if a conflict exsists. Conflicts of interest, if any, are reviewed by the board governanace committee.

Form 990, Page 6, Part VI, Line 15A

BOARD APPROVAL

Form 990, Page 6, Part VI, Line 15B

BOARD APPROVAL

Form 990, Page 6, Part VI, Line 17

Kansas, kentucky, louisiana, massachusetts, maryland, maine, michigan, minnesota, missouri, mississippi, montana, north carolina, nebraska, new hampshire, new jersey, new mexico, nevada, new york, oregon, pennsylvania, rhode island, south carolina, south dakota, tennessee, texas, virginia, vermont, washington, wisconsin, west virginia, wyoming

Form 990, Page 6, Part VI, Line 19

Documents are available to the public on request.

Filing and Contact Details

Filer

Filer Name
Cutaneous Lymphoma Foundation
EIN
38-3443135
Phone
2486449014
Address
PO BOX 374, BIRMINGHAM, MI 48012

Signing Officer

Name
Laurel Carlson
Title
President
Signed
2021-10-05
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Laurel Carlson
Formed
1998
Legal Domicile
Mi
Voting Board Members
8
Independent Board Members
7
Employees
5

Preparer

Firm
O'BRIEN RIVAMONTE SLATE & SCHULTE PC
Address
25800 NORTHWESTERN HWY STE 1100, SOUTHFIELD, MI 48075
Preparer
Michael J Schulte
Phone
2483532800
Supplemental Narrative

Additional Explanations

FORM 990 - ORGANIZATION'S MISSION

The cutaneous lymphoma foundation is an independent, non-profit patient advocacy organization dedicated to supporting patients with cutaneous lymphomas by promoting awareness and education, advancing patient care and facilitating research.

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IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt0211
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt0201
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IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/CurrentTaxYearMinus3YearsAmt0184
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt0184
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IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt035164
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0ACCRUED EXPENSES
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IRS990ScheduleD/TotalLiabilityAmt035164
IRS990ScheduleD/TotalRevenuePerForm990Amt01100210
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IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt3RESEARCH
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0UNIVERSITY OF IOWA DERMATOLOGY DEPT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt1YALE UNIVERSITY DERMATOLOGY DEPT
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt2NORTHWESTERN UNIVERSITY - DERMATOLO
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt3UNIVERSITY OF PITTSBURGH - MEDICAL
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0200 HAWKINS DRIVE
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt1DOCTORS BLDG 2 CHURCH ST S
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IRS990ScheduleI/RecipientTable/USAddress/CityNm0IOWA CITY
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0THE CUTANEOUS LYMPHOMA FOUNDATION IS AN INDEPENDENT, NON-PROFIT PATIENT ADVOCACY ORGANIZATION DEDICATED TO SUPPORTING PATIENTS WITH CUTANEOUS LYMPHOMAS BY PROMOTING AWARENESS AND EDUCATION, ADVANCING PATIENT CARE AND FACILITATING RESEARCH.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1THE RETURN IS REVIEWED BY THE CHIEF EXECUTIVE OFFICER, THE TREASURER AND THE CHIEF OPERATING AND FINANCIAL OFFICER BEFORE FILING AND THE BOARD RECEIVES A COPY OF THE RETURN AT THE NEXT BOARD MEETING.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2ANNUALLY INDIVIDUALS INVOLVED REVIEW THEIR SITUATION TO DETERMINE IF A CONFLICT EXSISTS. CONFLICTS OF INTEREST, IF ANY, ARE REVIEWED BY THE BOARD GOVERNANACE COMMITTEE.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3BOARD APPROVAL
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4BOARD APPROVAL
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5KANSAS, KENTUCKY, LOUISIANA, MASSACHUSETTS, MARYLAND, MAINE, MICHIGAN, MINNESOTA, MISSOURI, MISSISSIPPI, MONTANA, NORTH CAROLINA, NEBRASKA, NEW HAMPSHIRE, NEW JERSEY, NEW MEXICO, NEVADA, NEW YORK, OREGON, PENNSYLVANIA, RHODE ISLAND, SOUTH CAROLINA, SOUTH DAKOTA, TENNESSEE, TEXAS, VIRGINIA, VERMONT, WASHINGTON, WISCONSIN, WEST VIRGINIA, WYOMING
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6DOCUMENTS ARE AVAILABLE TO THE PUBLIC ON REQUEST.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0FORM 990 - ORGANIZATION'S MISSION
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1FORM 990, PAGE 6, PART VI, LINE 11B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2FORM 990, PAGE 6, PART VI, LINE 12C
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3FORM 990, PAGE 6, PART VI, LINE 15A
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4FORM 990, PAGE 6, PART VI, LINE 15B
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5FORM 990, PAGE 6, PART VI, LINE 17
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6FORM 990, PAGE 6, PART VI, LINE 19
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IRS990/StatesWhereCopyOfReturnIsFldCd25NE
IRS990/StatesWhereCopyOfReturnIsFldCd26NH

Document Assets

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Filings

Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$0.94$0.05$0.89$0.84$1.08$0.24
2024Detailed filing. Detailed filing data is available for this year.$1.20$0.07$1.13$0.75$0.93$0.18
2023Detailed filing. Detailed filing data is available for this year.$1.41$0.10$1.31$0.58$0.96$0.38
2022Detailed filing. Detailed filing data is available for this year.$1.69$0.00$1.69$0.94$0.73$0.21
2021Detailed filing. Detailed filing data is available for this year.$1.52$0.04$1.48$1.10$0.72$0.38
2020Detailed filing. Detailed filing data is available for this year.$1.22$0.12$1.10$1.01$0.88$0.13
2019Detailed filing. Detailed filing data is available for this year.$1.06$0.09$0.97$1.07$0.84$0.23
2018Detailed filing. Detailed filing data is available for this year.$0.81$0.07$0.74$0.89$0.73$0.16
2017Detailed filing. Detailed filing data is available for this year.$0.67$0.10$0.57$0.80$0.85$0.05
2016Detailed filing. Detailed filing data is available for this year.$0.73$0.10$0.63$0.72$0.91$0.19
2015Detailed filing. Detailed filing data is available for this year.$0.92$0.11$0.81$0.74$0.89$0.15
2014Detailed filing. Detailed filing data is available for this year.$1.07$0.10$0.96$0.86$0.84$0.02
2013Summary only. Only limited summary data is available for this year.$1.00$0.06$0.94$0.42$0.60$0.18
2012Summary only. Only limited summary data is available for this year.$1.16$0.03$1.13$0.44$0.60$0.16
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.30$0.02$1.28$0.55