Civic Intelligence

National Foundation for Ectodermal Dysplasias

990 • Fiscal year 2022 • EIN 37-1112496

Jan 01, 2022 to Dec 31, 2022 • Filed on May 18, 2023

Organization ProfileWWW.NFED.ORG
6 Executive Drive Suite 2Fairview Heights, IL 62208

(618) 566-2020

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

46th percentile

0.05x

Higher debt load relative to assets than 46% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

58th percentile

0.13x

Higher debt load relative to revenue than 58% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

78th percentile

27%

Higher net margin than 78% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

Score unavailable

No value available

This filing does not contain officer compensation rows.

Source year 2022

Asset Growth

23rd percentile

-7.8%

Faster asset growth than 23% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Revenue Growth

16th percentile

-24%

Faster revenue growth than 16% of similar nonprofits.

2022 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2021 to 2022

Balance Sheet
Liabilities / Assets46th percentile

Assets

Down

$3,999,579

Down $340,064 (-7.8%) from 2021

Net Assets

Down

$3,808,631

Down $472,246 (-11%) from 2021

Liabilities

Up

$190,948

Up $132,182 (+225%) from 2021

Revenue And Expenses
Liabilities / Revenue58th percentileNet Margin78th percentile

Revenue

Down

$1,493,211

Down $475,331 (-24%) from 2021

Expenses

Up

$1,083,870

Up $198,516 (+22%) from 2021

Net Income

Down

$409,341

Down $673,847 (-62%) from 2021

Historical Trend

Balance Sheet Trend

Asset Growth23rd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$6.0M$4.0M$2.0M$0Assets 2011: $1,324,991Liabilities 2011: $307,598Net Assets 2011: $1,017,3932011Assets 2012: $1,505,095Liabilities 2012: $215,663Net Assets 2012: $1,289,4322012Assets 2013: $1,519,010Liabilities 2013: $144,052Net Assets 2013: $1,374,9582013Assets 2014: $1,897,730Liabilities 2014: $130,150Net Assets 2014: $1,767,5802014Assets 2015: $1,919,131Liabilities 2015: $48,937Net Assets 2015: $1,870,1942015Assets 2016: $2,090,160Liabilities 2016: $68,312Net Assets 2016: $2,021,8482016Assets 2017: $2,330,765Liabilities 2017: $112,571Net Assets 2017: $2,218,1942017Assets 2018: $2,216,012Liabilities 2018: $33,538Net Assets 2018: $2,182,4742018Assets 2019: $2,717,658Liabilities 2019: $52,356Net Assets 2019: $2,665,3022019Assets 2020: $3,174,642Liabilities 2020: $46,088Net Assets 2020: $3,128,5542020Assets 2021: $4,339,643Liabilities 2021: $58,766Net Assets 2021: $4,280,8772021Assets 2022: $3,999,579Liabilities 2022: $190,948Net Assets 2022: $3,808,6312022Assets 2023: $4,529,323Liabilities 2023: $156,409Net Assets 2023: $4,372,9142023Assets 2024: $4,790,999Liabilities 2024: $98,322Net Assets 2024: $4,692,6772024

Highlighted filing

2022

Assets$3,999,579
Liabilities$190,948
Net Assets$3,808,631
Open 2022 Filing

Operations Trend

Revenue Growth16th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $950,8072011Expenses 2012: $1,049,4052012Revenue 2013: $678,375Expenses 2013: $760,390Net Income 2013: -$82,0152013Revenue 2014: $1,082,451Expenses 2014: $688,706Net Income 2014: $393,7452014Revenue 2015: $996,187Expenses 2015: $805,005Net Income 2015: $191,1822015Revenue 2016: $835,098Expenses 2016: $734,715Net Income 2016: $100,3832016Revenue 2017: $871,710Expenses 2017: $855,693Net Income 2017: $16,0172017Revenue 2018: $909,237Expenses 2018: $650,400Net Income 2018: $258,8372018Revenue 2019: $1,078,711Expenses 2019: $849,033Net Income 2019: $229,6782019Revenue 2020: $995,618Expenses 2020: $731,772Net Income 2020: $263,8462020Revenue 2021: $1,968,542Expenses 2021: $885,354Net Income 2021: $1,083,1882021Revenue 2022: $1,493,211Expenses 2022: $1,083,870Net Income 2022: $409,3412022Revenue 2023: $1,161,405Expenses 2023: $1,079,785Net Income 2023: $81,6202023Revenue 2024: $1,229,652Expenses 2024: $1,203,383Net Income 2024: $26,2692024

Highlighted filing

2022

Revenue$1,493,211
Expenses$1,083,870
Net Income$409,341
Open 2022 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2022 to Dec 31, 2022
Signed
May 18, 2023
Return Version
2022v5.0
Gross Receipts
$1,514,984
Mission and Program Overview

Mission

To empower and connect people touched by ectodermal dysplasias through education, support, and research.

Empower and connect people touched by ectodermal dysplasias via education, support, & research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$3,525,150$3,060,702▼ $464,448
Cash and Non-Interest-Bearing Accounts$609,178$772,544▲ $163,366
Intangible Assets-$121,290-
Accounts Receivable$45,724$0▼ $45,724
Prepaid Expenses and Deferred Charges$8,123$23,467▲ $15,344
Pledges and Grants Receivable$25,963$21,575▼ $4,388
Savings and Temporary Cash Investments$125,505$1▼ $125,504
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$4,339,643$3,999,579▼ $340,064
Liabilities
Other Liabilities$0$121,290▲ $121,290
Accounts Payable and Accrued Expenses$49,589$63,558▲ $13,969
Grants Payable$9,177$6,100▼ $3,077
Total Liabilities$58,766$190,948▲ $132,182
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$4,223,557$3,655,423▼ $568,134
Net Assets With Donor Restrictions$57,320$153,208▲ $95,888
Total Net Assets Fund Balance$4,280,877$3,808,631▼ $472,246
Total Liabilities and Net Assets / Fund Balance$4,339,643$3,999,579▼ $340,064

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$41,323$41,323
Compensation and Service Providers
Top Officer PayScore unavailable

Employees

NameTitleFull / Part TimeBaseTotal
Mary FeteExecutive DirectorFT$118,124$118,124
Timothy MickelsonDirector of DevelopmentFT$113,461$113,461

Board Members and Trustees

NameTitle
Karl NelsenPresident
Anil VoraVice President
George BarbarDirector
J Timothy Wright Dds MsDirector
Jack KrizDirector
Krista BasileDirector
Richard StratzDirector
Roy MoffittDirector
Ruth GeismarDirector
Keith ThromSecretary
Marianne VermeerTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,170,684
Program Service Revenue
$24,687
Investment Income
$254,390
Other Revenue
$43,450
All Other Contributions
$876,788
Change in Net Assets
$409,341

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
No
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Securities Publicly Traded3$114,300Stock Market Value
Total Noncash Contributions3$114,300-

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,493,211
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$-819,888
Total Revenue per Audited Statements
$673,323
Total Revenue per Form 990
$1,493,211
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$641,016
Other Expenses$417,751
Total Fundraising Expense$167,009
Grants and Similar Amounts Paid$25,103
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$472,444$6,815$104,495$583,754
Fees for Services Accounting$39,701$484$8,231$48,416
Advertising$40,681$957$6,223$47,861
Payroll Taxes$35,986$519$7,959$44,464
Fees for Services Other$34,193$417$7,088$41,698
All Other Expenses$27,789$105$1,791$29,685
Grants to Domestic Individuals$25,103--$25,103
Depreciation Depletion$17,275$1,657$4,733$23,665
Other Expenses$9,324$2,331$11,652$23,307
Office Expenses$9,892$121$2,050$12,063
Pension Plan Contributions$9,575$138$2,118$11,831
Occupancy$9,008$110$1,867$10,985
Insurance$5,006$61$1,037$6,104
Fees for Service Investment Mgmnt Fees$2,119$26$439$2,584
Fees for Services Legal$840$10$174$1,024
Other Employee Benefits$783$11$173$967
Total Functional Expenses$902,689$14,172$167,009$1,083,870

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$1,145,569
Expenses per Audited Statements$1,083,870
Total Expenses per Form 990$1,083,870
Expenses Not Reported on Form 990$61,699
Expenses Not Reported on Financial Statements$0
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$61,437
Fundraising Direct Expenses$21,773
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Halloween Bash$105,216$11,190$5,413$5,777
Total Events$355,333$61,437$21,773$39,664
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$121,290
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The organization provides a copy of form 990 to every board member prior to filing. It is reviewed in detail by the organization's executive director and board.”

Form 990, Part VI, Section B, Line 12C

“The audit, budget and finance committee annually reviews the disclosure process and reports to the board of directors on the submission of all required disclosure statements.”

Form 990, Part VI, Section B, Line 15

“The board of directors regularly assesses the performance and effectiveness of the executive director and determines future actions to include amount of compensation based on that assessment. The board of directors provide guidance to the executive director in determining the compensation of the organization's staff. The members of the board of directors are not compensated.”

Form 990, Part VI, Section C, Line 19

“The organization makes its governing documents, conflict of interest policy and financial statements available to the public. The financial statements and form 990 are posted on the organization's website and copies of other governing documents such as form 1023 and conflict of interest policy are available upon written request.”

Form 990, Part VI, Page 6, Question 20 - Books in Care of

“The organization externally contracts for bookkeeping services.”

Filing and Contact Details

Filer

Filer Name
National Foundation for Ectodermal
EIN
37-1112496
Phone
6185662020
Address
6 EXECUTIVE DRIVE SUITE 2, FAIRVIEW HEIGHTS, IL 62208

Signing Officer

Name
Karl Nelsen
Title
President
Phone
6185662020
Signed
2023-05-18
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Karl Nelsen
Formed
1981
Legal Domicile
Il
Voting Board Members
11
Independent Board Members
11
Employees
8
Volunteers
375

Preparer

Firm
Cliftonlarsonallen Llp
Address
475 REGENCY PARK SUITE 175, OFALLON, IL 62269
Preparer
Jeff Parker
Phone
6182331200
Supplemental Narrative

Additional Explanations

FORM 990, PART XII, LINE 2C: AUDIT PROCESS -

“There were no changes in the oversight process or selection process during the year.”

Financial Statement Notes

PART X, LINE 2:

“Per note 1 of the audited financial statements: tax status - the foundation is tax-exempt under section 501(c)(3) of the internal revenue code and, therefore, is exempt from both federal and state income taxes. Accordingly, no provision has been made for income taxes in the accompanying financial statements.”

PART XI, LINE 2D - OTHER ADJUSTMENTS:

“Special event expense netted with revenue on 990 21,773.”

PART XII, LINE 2D - OTHER ADJUSTMENTS:

“Special event expense netted with revenue on form 990 21,773.”

Raw XML AppendixShowing 400 of 572 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/Form990PartVIISectionAGrp/TitleTxt0PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt1DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt2SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt3DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt8VICE PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt9DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11DIRECTOR OF DEVELOPMENT
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DIRECTOR
IRS990/Form990ProvidedToGvrnBodyInd01
IRS990/FormationYr01981
IRS990/FormerOfcrEmployeesListedInd00
IRS990/FSAuditedBasisGrp/SeparateBasisFinclStmtInd0X
IRS990/FSAuditedInd01
IRS990/FundraisingActivitiesInd01
IRS990/FundraisingAmt0293896
IRS990/FundraisingDirectExpensesAmt021773
IRS990/FundraisingGrossIncomeAmt061437
IRS990/GainOrLossGrp/SecuritiesAmt0218324
IRS990/GamingActivitiesInd00
IRS990/GoverningBodyVotingMembersCnt011
IRS990/GrantAmt016694
IRS990/GrantsPayableGrp/BOYAmt09177
IRS990/GrantsPayableGrp/EOYAmt06100
IRS990/GrantsToDomesticIndividualsGrp/ProgramServicesAmt025103
IRS990/GrantsToDomesticIndividualsGrp/TotalAmt025103
IRS990/GrantsToIndividualsInd01
IRS990/GrantsToOrganizationsInd00
IRS990/GrantToRelatedPersonInd00
IRS990/GrossAmountSalesAssetsGrp/SecuritiesAmt0218324
IRS990/GrossReceiptsAmt01514984
IRS990/GroupReturnForAffiliatesInd00
IRS990/IncludeFIN48FootnoteInd01
IRS990/IndependentAuditFinclStmtInd01
IRS990/IndependentVotingMemberCnt011
IRS990/IndivRcvdGreaterThan100KCnt02
IRS990/IndoorTanningServicesInd00
IRS990/InfoInScheduleOPartIIIInd0X
IRS990/InfoInScheduleOPartVIInd0X
IRS990/InfoInScheduleOPartXIIInd0X
IRS990/InsuranceGrp/FundraisingAmt01037
IRS990/InsuranceGrp/ManagementAndGeneralAmt061
IRS990/InsuranceGrp/ProgramServicesAmt05006
IRS990/InsuranceGrp/TotalAmt06104
IRS990/IntangibleAssetsGrp/EOYAmt0121290
IRS990/InvestmentIncomeGrp/ExclusionAmt036066
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt036066
IRS990/InvestmentInJointVentureInd00
IRS990/InvestmentsPubTradedSecGrp/BOYAmt03525150
IRS990/InvestmentsPubTradedSecGrp/EOYAmt03060702
IRS990/IRPDocumentCnt01
IRS990/IRPDocumentW2GCnt00
IRS990/LandBldgEquipAccumDeprecAmt041323
IRS990/LandBldgEquipBasisNetGrp/BOYAmt00
IRS990/LandBldgEquipBasisNetGrp/EOYAmt00
IRS990/LandBldgEquipCostOrOtherBssAmt041323
IRS990/LegalDomicileStateCd0IL
IRS990/LessCostOthBasisSalesExpnssGrp/SecuritiesAmt00
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0TO EMPOWER AND CONNECT PEOPLE TOUCHED BY ECTODERMAL DYSPLASIAS THROUGH EDUCATION, SUPPORT, AND RESEARCH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt04280877
IRS990/NetAssetsOrFundBalancesEOYAmt03808631
IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt0218324
IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt0218324
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt039664
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt039664
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NetUnrlzdGainsLossesInvstAmt0-877198
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt04223557
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt03655423
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NoncashContributionsAmt0114300
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/FundraisingAmt01867
IRS990/OccupancyGrp/ManagementAndGeneralAmt0110
IRS990/OccupancyGrp/ProgramServicesAmt09008
IRS990/OccupancyGrp/TotalAmt010985
IRS990/OfficeExpensesGrp/FundraisingAmt02050
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt0121
IRS990/OfficeExpensesGrp/ProgramServicesAmt09892
IRS990/OfficeExpensesGrp/TotalAmt012063
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherEmployeeBenefitsGrp/FundraisingAmt0173
IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt011
IRS990/OtherEmployeeBenefitsGrp/ProgramServicesAmt0783
IRS990/OtherEmployeeBenefitsGrp/TotalAmt0967
IRS990/OtherExpensesGrp/Desc0FAMILY CONFERENCES
IRS990/OtherExpensesGrp/Desc1ADVOCACY
IRS990/OtherExpensesGrp/Desc2MEMBERSHIPS
IRS990/OtherExpensesGrp/Desc3DEVELOPMENT
IRS990/OtherExpensesGrp/FundraisingAmt06979
IRS990/OtherExpensesGrp/FundraisingAmt111652
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt0410
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt12331
IRS990/OtherExpensesGrp/ProgramServicesAmt086888
IRS990/OtherExpensesGrp/ProgramServicesAmt142425
IRS990/OtherExpensesGrp/ProgramServicesAmt233657
IRS990/OtherExpensesGrp/ProgramServicesAmt39324
IRS990/OtherExpensesGrp/TotalAmt086888
IRS990/OtherExpensesGrp/TotalAmt142425
IRS990/OtherExpensesGrp/TotalAmt241046
IRS990/OtherExpensesGrp/TotalAmt323307
IRS990/OtherLiabilitiesGrp/BOYAmt00
IRS990/OtherLiabilitiesGrp/EOYAmt0121290
IRS990/OtherRevenueMiscGrp/BusinessCd0624100
IRS990/OtherRevenueMiscGrp/Desc0PROMOTIONAL ITEMS
IRS990/OtherRevenueMiscGrp/ExclusionAmt03786
IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt03786
IRS990/OtherRevenueTotalAmt03786
IRS990/OtherSalariesAndWagesGrp/FundraisingAmt0104495
IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt06815
IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt0472444
IRS990/OtherSalariesAndWagesGrp/TotalAmt0583754
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PayPremiumsPrsnlBnftCntrctInd00
IRS990/PayrollTaxesGrp/FundraisingAmt07959
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt0519
IRS990/PayrollTaxesGrp/ProgramServicesAmt035986
IRS990/PayrollTaxesGrp/TotalAmt044464
IRS990/PensionPlanContributionsGrp/FundraisingAmt02118
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt0138
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt09575
IRS990/PensionPlanContributionsGrp/TotalAmt011831
IRS990/PledgesAndGrantsReceivableGrp/BOYAmt025963
IRS990/PledgesAndGrantsReceivableGrp/EOYAmt021575
IRS990/PoliticalCampaignActyInd00
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt08123
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt023467
IRS990/PrincipalOfficerNm0KARL NELSEN
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0624100
IRS990/ProgramServiceRevenueGrp/Desc0NATIONAL FAMILY CONFER
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt024687
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt024687
IRS990/ProgSrvcAccomActy2Grp/Desc0TREATMENT - THE PATIENT CARE COUNCIL, COMPRISED OF MEDICAL AND DENTAL EXPERTS, OVERSEES THE NFED'S INITIATIVES TO IMPROVE TREATMENT OF ECTODERMAL DYSPLASIAS. NFED TEACHES CARE PROVIDERS HOW TO DIAGNOSE AND TREAT THE RARE DISORDERS THROUGH PROFESSIONAL SYMPOSIA AND GRAND ROUNDS AT UNIVERSITIES. NFED ADVOCATES FOR IMPROVING ACCESS TO CARE WITH SPONSORING LEGISLATION TO COVER CONGENITAL ANOMALIES, AND COLLABORATING WITH UNIVERSITIES, GOVERNMENT, PATIENT HEALTH ORGANIZATIONS. AFFECTED INDIVIDUALS CAN RECEIVE MORE AFFORDABLE CARE FROM EXPERIENCED TEAMS OF DENTISTS IN TREATMENT OF ECTODERMAL DYSPLASIAS AT NFED DENTAL TREATMENT CENTERS IN THE U.S. NFED ALSO HELPS FAMILIES PAY FOR NEEDED CARE THROUGH THE TREATMENT ASSISTANCE PROGRAM AND INSURANCE COACHING.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt0251127
IRS990/ProgSrvcAccomActy2Grp/GrantAmt08409
IRS990/ProgSrvcAccomActy2Grp/RevenueAmt00
IRS990/ProgSrvcAccomActy3Grp/Desc0RESEARCH - THE SCIENTIFIC ADVISORY COUNCIL OVERSEES NFED'S RESEARCH INITIATIVES, AIMED TO IMPROVE THE HEALTH AND QUALITY OF LIFE OF AFFECTED INDIVIDUALS BY FINDING SOLUTIONS AND, EVENTUALLY, FINDING CURES FOR ECTODERMAL DYSPLASIAS. NFED ADVANCES RESEARCH THROUGH ADVOCACY AND PARTNERSHIPS WITH ORGANIZATIONS SUCH AS THE NATIONAL INSTITUTES OF HEALTH. NFED PROVIDES SEED FUNDS TO RESEARCHERS, PROVIDES THEM WITH ACCESS TO AFFECTED INDIVIDUALS, AND SHARES INFORMATION TO LAUNCH LARGER PROJECTS. THE ECTODERMAL DYSPLASIAS INTERNATIONAL REGISTRY SERVES AS A REPOSITORY OF CLINICAL INFORMATION AND FACILITATES COMMUNICATION AMONG AFFECTED INDIVIDUALS, CLINICIANS INVOLVED IN THEIR TREATMENT AND SCIENTISTS WHO STRIVE TO ADVANCE RESEARCH ON ECTODERMAL DYSPLASIAS. NFED ALSO SPONSORS RESEARCH CONFERENCES.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0188054
IRS990/ProgSrvcAccomActy3Grp/GrantAmt00
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt00
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt01500948
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt014318
IRS990/PYInvestmentIncomeAmt0429476
IRS990/PYOtherExpensesAmt0338445
IRS990/PYOtherRevenueAmt033538
IRS990/PYProgramServiceRevenueAmt04580
IRS990/PYRevenuesLessExpensesAmt01083188
IRS990/PYSalariesCompEmpBnftPaidAmt0532591
IRS990/PYTotalExpensesAmt0885354
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt01968542
IRS990/QuidProQuoContributionsInd00
IRS990/RcvFndsToPayPrsnlBnftCntrctInd00
IRS990/ReconcilationRevenueExpnssAmt0409341
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd01
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd01
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt024687
IRS990/SavingsAndTempCashInvstGrp/BOYAmt0125505
IRS990/SavingsAndTempCashInvstGrp/EOYAmt01
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0MISCELLANEOUS - 2018 AMOUNT: $ 783. 2019 AMOUNT: $ 3,652. 2020 AMOUNT: $ 207. 2021 AMOUNT: $ 803. 2022 AMOUNT: $ 3,786.
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0SCHEDULE A, PART II, LINE 10, EXPLANATION OF OTHER INCOME:
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt01170684
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01500948
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt0793549
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt0823099
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt0685752
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt04974032
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearAmt036066
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus1YearAmt025780
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus2YearsAmt024326
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt026429
IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus4YearsAmt026206
IRS990ScheduleA/GrossInvestmentIncome170Grp/TotalAmt0138807
IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt0259414
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt03786
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt0803
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt0207
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt03652
IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt0783
IRS990ScheduleA/OtherIncome170Grp/TotalAmt09231
IRS990ScheduleA/PublicOrganization170Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00.96020
IRS990ScheduleA/PublicSupportPY170Pct00.93670
IRS990ScheduleA/PublicSupportTotal170Amt04918399
IRS990ScheduleA/SubstantialContributorsTotAmt055633
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt01170684
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt01500948
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0793549
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0823099
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0685752
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt04974032

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Filings

Displayed year

2022 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$3,999,579
Liabilities
$190,948
Net assets
$3,808,631
Revenue
$1,493,211
Expenses
$1,083,870
Net income
$409,341
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.79$0.10$4.69$1.23$1.20$0.03
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.53$0.16$4.37$1.16$1.08$0.08
2022Detailed filing. Detailed filing data is available for this year.$4.00$0.19$3.81$1.49$1.08$0.41
2021Facts available. Structured filing facts are available, but richer extracted sections are limited.$4.34$0.06$4.28$1.97$0.89$1.08
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.17$0.05$3.13$1.00$0.73$0.26
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.72$0.05$2.67$1.08$0.85$0.23
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.22$0.03$2.18$0.91$0.65$0.26
2017XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.33$0.11$2.22$0.87$0.86$0.02
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$2.09$0.07$2.02$0.84$0.73$0.10
2015Detailed filing. Detailed filing data is available for this year.$1.92$0.05$1.87$1.00$0.81$0.19
2014Detailed filing. Detailed filing data is available for this year.$1.90$0.13$1.77$1.08$0.69$0.39
2013Detailed filing. Detailed filing data is available for this year.$1.52$0.14$1.37$0.68$0.76$0.08
2012XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.51$0.22$1.29$1.05
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.32$0.31$1.02$0.95