Civic Intelligence

International Essential Tremor Foundation

EIN 36-3847816 • 501(c)3 • Lenexa, KS

Profile

The IETF provides hope to the ET community worldwide through awareness, education, support, and research.

13628 W 95th StreetLenexa, KS 66215

www.essentialtremor.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

20th percentile

0.01x

Higher debt load relative to assets than 20% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Liabilities / Revenue

33rd percentile

0.07x

Higher debt load relative to revenue than 33% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Net Margin

80th percentile

30%

Higher net margin than 80% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Top Officer Pay

62nd percentile

$135,081

Higher top officer pay than 62% of similar nonprofits.

Top officer pay equals 10.2% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2025

Asset Growth

63rd percentile

9.7%

Faster asset growth than 63% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2025

Revenue Growth

30th percentile

-2.3%

Faster revenue growth than 30% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2025

Balance Sheet
Liabilities / Assets20th percentile

Assets

Up

$9,514,675

Up $512,459 (+5.7%) from 2024

Liabilities

Down

$91,662

Down $51,887 (-36%) from 2024

Net Assets

Up

$9,423,013

Up $564,346 (+6.4%) from 2024

Operations
Liabilities / Revenue33rd percentileNet Margin80th percentile

Revenue

Up

$1,320,431

Up $499,684 (+61%) from 2024

Expenses

Up

$929,864

Up $25,134 (+2.8%) from 2024

Net Income

Up

$390,567

Up $474,550 (+565%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth63rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2011: $787,400Liabilities 2011: $17,601Net Assets 2011: $769,7992011Assets 2012: $1,767,352Liabilities 2012: $25,640Net Assets 2012: $1,741,7122012Assets 2014: $1,779,930Liabilities 2014: $41,645Net Assets 2014: $1,738,2852014Assets 2015: $1,663,729Liabilities 2015: $27,809Net Assets 2015: $1,635,9202015Assets 2016: $1,975,307Liabilities 2016: $13,395Net Assets 2016: $1,961,9122016Assets 2017: $2,345,336Liabilities 2017: $18,236Net Assets 2017: $2,327,1002017Assets 2018: $3,030,187Liabilities 2018: $24,472Net Assets 2018: $3,005,7152018Assets 2019: $3,502,554Liabilities 2019: $5,993Net Assets 2019: $3,496,5612019Assets 2020: $3,713,088Liabilities 2020: $11,820Net Assets 2020: $3,701,2682020Assets 2021: $6,492,585Liabilities 2021: $17,149Net Assets 2021: $6,475,4362021Assets 2022: $7,213,165Liabilities 2022: $15,186Net Assets 2022: $7,197,9792022Assets 2023: $8,330,203Liabilities 2023: $177,454Net Assets 2023: $8,152,7492023Assets 2024: $9,002,216Liabilities 2024: $143,549Net Assets 2024: $8,858,6672024Assets 2025: $9,514,675Liabilities 2025: $91,662Net Assets 2025: $9,423,0132025

Highlighted filing

2025

Assets$9,514,675
Liabilities$91,662
Net Assets$9,423,013
Open 2025 Filing

Operations Trend

Revenue Growth30th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$4.0M$3.0M$2.0M$1.0M$0-$1.0MExpenses 2011: $569,5672011Expenses 2012: $626,1632012Revenue 2014: $703,967Expenses 2014: $611,815Net Income 2014: $92,1522014Revenue 2015: $618,274Expenses 2015: $720,639Net Income 2015: -$102,3652015Revenue 2016: $861,863Expenses 2016: $571,635Net Income 2016: $290,2282016Revenue 2017: $944,605Expenses 2017: $585,344Net Income 2017: $359,2612017Revenue 2018: $1,237,036Expenses 2018: $580,817Net Income 2018: $656,2192018Revenue 2019: $1,104,655Expenses 2019: $630,900Net Income 2019: $473,7552019Revenue 2020: $932,509Expenses 2020: $628,402Net Income 2020: $304,1072020Revenue 2021: $3,394,217Expenses 2021: $620,049Net Income 2021: $2,774,1682021Revenue 2022: $1,414,746Expenses 2022: $690,255Net Income 2022: $724,4912022Revenue 2023: $2,020,359Expenses 2023: $825,598Net Income 2023: $1,194,7612023Revenue 2024: $820,747Expenses 2024: $904,730Net Income 2024: -$83,9832024Revenue 2025: $1,320,431Expenses 2025: $929,864Net Income 2025: $390,5672025

Highlighted filing

2025

Revenue$1,320,431
Expenses$929,864
Net Income$390,567
Open 2025 Filing

Filings

Most recent year

2025 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$9,514,675
Liabilities
$91,662
Net assets
$9,423,013
Revenue
$1,320,431
Expenses
$929,864
Net income
$390,567
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$9.51$0.09$9.42$1.32$0.93$0.39
2024Detailed filing. Detailed filing data is available for this year.$9.00$0.14$8.86$0.82$0.90$0.08
2023Detailed filing. Detailed filing data is available for this year.$8.33$0.18$8.15$2.02$0.83$1.19
2022Detailed filing. Detailed filing data is available for this year.$7.21$0.02$7.20$1.41$0.69$0.72
2021Detailed filing. Detailed filing data is available for this year.$6.49$0.02$6.48$3.39$0.62$2.77
2020Detailed filing. Detailed filing data is available for this year.$3.71$0.01$3.70$0.93$0.63$0.30
2019Detailed filing. Detailed filing data is available for this year.$3.50$0.01$3.50$1.10$0.63$0.47
2018Detailed filing. Detailed filing data is available for this year.$3.03$0.02$3.01$1.24$0.58$0.66
2017Detailed filing. Detailed filing data is available for this year.$2.35$0.02$2.33$0.94$0.59$0.36
2016Detailed filing. Detailed filing data is available for this year.$1.98$0.01$1.96$0.86$0.57$0.29
2015Detailed filing. Detailed filing data is available for this year.$1.66$0.03$1.64$0.62$0.72$0.10
2014Detailed filing. Detailed filing data is available for this year.$1.78$0.04$1.74$0.70$0.61$0.09
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.77$0.03$1.74$0.63
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.79$0.02$0.77$0.57
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Apr 1, 2024 to Mar 31, 2025
Signed
Nov 17, 2025
Return Version
2024v5.0
Gross Receipts
$2,557,973
Mission and Program Overview

Mission

To provide global educational information, services and support to those affected by essential tremor, and to health care providers, while promoting and funding et research.

The International Essential Tremor Foundation (the Foundation), was incorporated on June 25, 1992, in the state of Illinois as a nonprofit organization. The mission of the Foundation is to provide funding for research on tremor disorders, educational information, services, and support to individuals who have been diagnosed with essential tremor (ET), their families, and health care providers. The Foundation is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by essential tremor.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$8,358,813$8,846,118▲ $487,305
Savings and Temporary Cash Investments-$350,840-
Cash and Non-Interest-Bearing Accounts$389,713$141,202▼ $248,511
Accounts Receivable$143,052$96,044▼ $47,008
Land, Buildings, and Equipment, Net$0$0→ $0
Total Assets$9,002,216$9,514,675▲ $512,459
Other Assets Total$110,638$80,471▼ $30,167
Liabilities
Other Liabilities$108,590$78,424▼ $30,166
Accounts Payable and Accrued Expenses$34,959$13,238▼ $21,721
Total Liabilities$143,549$91,662▼ $51,887
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,715,896$6,118,905▲ $403,009
Net Assets With Donor Restrictions$3,142,771$3,304,108▲ $161,337
Total Net Assets Fund Balance$8,858,667$9,423,013▲ $564,346
Total Liabilities and Net Assets / Fund Balance$9,002,216$9,514,675▲ $512,459

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$51,324$51,324
Other Land Buildings$0$36,000$36,000
Buildings$0$0$0
Land$0-$0
Leasehold Improvements$0$0$0
Compensation and Service Providers
Top Officer Pay62nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Patrick McCartneyExecutive DirectorFT$120,099$14,982$135,081

Board Members and Trustees

NameTitle
Kelly LyonsPresident
Shari FinsilverVice President
Claudine BoldridgeBoard Member
Patrick ReidyBoard Member
Paula NauerBoard Member
Paul RoddenSecretary
Nathan FiserTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$924,098
Program Service Revenue
$31,665
Investment Income
$364,668
Other Revenue
$0
All Other Contributions
$924,098
Change in Net Assets
$390,567

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,320,431
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$173,780
Other Revenue Adjustments
$0
Total Revenue per Audited Statements
$1,494,211
Total Revenue per Form 990
$1,320,431
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$422,137
Salaries, Compensation, and Employee Benefits$311,677
Grants and Similar Amounts Paid$196,050
Total Fundraising Expense$42,313
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$127,467$23,900$7,967$159,334
Other Salaries and Wages$111,554$20,916$6,972$139,442
Current Officers, Directors, Trustees, and Key Employees$110,512$20,721$6,907$138,140
Foreign Grants$100,000--$100,000
Grants to Domestic Orgs$75,050--$75,050
Fees for Service Investment Mgmnt Fees$30,342$5,689$1,896$37,927
Information Technology$22,693$4,255$1,418$28,366
Office Expenses$22,260$4,174$1,391$27,825
Occupancy$19,097$3,581$1,194$23,872
Payroll Taxes$17,163$3,218$1,073$21,454
Grants to Domestic Individuals$21,000--$21,000
Fees for Services Accounting$0$19,145$0$19,145
Conferences and Meetings$15,102$2,832$943$18,877
Advertising$14,349$2,690$897$17,936
Other Expenses$10,225$1,917$639$12,781
Other Employee Benefits$8,177$1,533$511$10,221
Insurance$6,066$1,138$379$7,583
Pension Plan Contributions$1,936$363$121$2,420
Total Functional Expenses$762,244$125,307$42,313$929,864

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$929,870
Expenses per Audited Statements$929,864
Total Expenses per Form 990$929,864
Expenses Not Reported on Form 990$6
Expenses Not Reported on Financial Statements$0
Other Expense Adjustments$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Dignity Health Dba St Joseph HospitalPhoenix, AZ501c3Funds are for the annual Essential Tremor research grant.$75,050

International Summary

Offices
0
Employees
0
Spending
$100,000

International Compliance

Foreign grant records maintained
Yes
Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No

International Activities

RegionActivityServicesOfficesEmployeesSpending
North America (including Canada and Mexico, but not the United States)Grantmaking-00$100,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Lease Liability$78,424
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

“The Executive Director and Finance Committee review the Form 990 before the final copy is submitted for filing.”

Form 990, Part VI, Section B, Line 12C

“The Board is given a statement regarding IETF's conflict of interest policy. Each Board member must read and sign the statement annually.”

Form 990, Part VI, Section B, Line 15

“The Board votes on a compensation package for the Executive Director, along with an annual performance and raise review. Compensation for staff is discussed and approved by the Board.”

Form 990, Part VI, Section C, Line 19

“Financial statements and other documents are available upon request.”

Filing and Contact Details

Filer

Filer Name
International Essential Tremor Foundation
EIN
36-3847816
Phone
9133413880
Address
13628 W 95th Street, Lenexa, KS 66215

Signing Officer

Name
Kelly Lyons
Title
President
Phone
8168389599
Signed
2025-11-17
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Patrick McCartney
Formed
1992
Legal Domicile
Ks
Voting Board Members
7
Independent Board Members
7
Employees
3
Volunteers
65

Preparer

Firm
Support Kansas City Inc
Address
6750 Antioch Rd Suite 305, Merriam, KS 66204
Preparer
Catherine Jay
Phone
9138314752
Supplemental Narrative

Additional Explanations

Form 990, Header, Line B

“The Form 990 is being amended to update reporting of program service revenue and unrelated business income.”

Form 990, Part IX, Line 11G

“Janitorial services, public relations and marketing.”

Form 990, Part XI, Line 9

“Rounding adjustment.”

Financial Statement Notes

Schedule D, Part X, Line 2

“The Foundation is exempt from federal income tax under Section 501(c)(3) of the Internal Revenue Code and files the informational Federal Form 990. However, income from certain activities not directly related to the Foundation's tax-exempt purpose are subject to taxation as unrelated business income. The Foundation has also been classified as an entity that is not a private foundation within the meaning of Section 509(a) and qualifies for deductible contributions as provided in Section 170(b)(1)(A)(vi). The Foundation utilizes the provisions of FASB ASC 740-10, Accounting for Uncertain Tax Positions. The Foundation continually evaluates expiring statutes of limitations, audits, proposed settlements, changes in tax law, and new authoritative rulings. The Foundation believes that it has appropriate support for any tax position taken, and as such, does not have any uncertain tax positions that are material to the financial statements.”

Schedule D, Part XII, Line 2D

“Rounding adjustment.”

Raw XML AppendixShowing 400 of 618 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0The International Essential Tremor Foundation (the Foundation), was incorporated on June 25, 1992, in the state of Illinois as a nonprofit organization. The mission of the Foundation is to provide funding for research on tremor disorders, educational information, services, and support to individuals who have been diagnosed with essential tremor (ET), their families, and health care providers. The Foundation is the only worldwide organization dedicated to meeting the needs of those whose daily lives are challenged by essential tremor.
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IRS990/Desc0Essential tremor (ET) is a neurological condition that mostly causes a rhythmic trembling of the hands while performing a task such as eating, writing, dressing, or drinking. (1) Each March the International Essential Tremor Foundation (IETF) hosts a special campaign to raise awareness about essential tremor during National Essential Tremor Awareness Month (NETA). Our goal is to achieve a greater understanding and acceptance of essential tremor. (2) Essential Tremor Research James Parkinson first distinguished essential tremor from other tremor disorders (including the disease that carries his namesake) in 1817. More than 200 years later, there are still many unanswered questions about essential tremor. However, researchers are moving our knowledge forward. It is vital to understand what causes ET in order to develop tailored treatment options and a cure for this life-altering condition. IETF Funded Research Essential tremor (ET) has no cure. If only we understood the cause of ET, then new, tailored treatments could be developed. Each year researchers with an interest in studying the various aspects of essential tremor are encouraged to submit scientific proposals for grant funding from the IETF. To date, your research donations have provided more than $1,350,000 to fund numerous promising studies. (3) Educational Programs The IETF facilitates and shares information on a variety of educational programs to educate patients, caregivers, healthcare providers and the general public about essential tremor (ET). Programs may cover the following topics: the diagnosis of ET, current treatment options, research, support groups, assistive technology, and more.
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