Bone Health and Osteoporosis Foundation

Filing Period

Jan 1, 2012 to Dec 31, 2012

Signed

Sep 26, 2013

Return Version

2012v2.1

Gross Receipts

$5,439,404

Mission

Major Activities

Activity 2

Professional education - The Foundation's Education department provides evidence-based information, education, services, and initiatives to healthcare professionals through various activities and channels. These efforts are designed to help healthcare professionals make informed decisions about the prevention, diagnosis, and treatment of osteoporosis.In 2012, the Foundation planned and implemented the 2012 International Symposium on Osteoporosis (ISO12). ISO12 took place in Orlando, FL from April 25-28, included an internationally recognized faculty and was certified for continuing education credit for physicians, nurses and nurse practitioners. More than 400 professionals participated in the conference. In conjunction with the conference, the Foundation's Nursing Advisory Council held a free dinner symposium for nurses attending the conference as well as for nurses in the community. The Foundation also produced two issues of its professional newsletter, Osteoporosis: Clinical Updates, providing continuing education credit for health care professionals on topics relevant to clinical practice. The Foundation also launched an online CME activity in partnership with Medscape in December.

Activity 3

Patient education - The Foundation's Education department also provides patients and caregivers with the latest information on osteoporosis prevention, treatment and detection by answering thousands of personal inquiries each year, sponsoring patient support groups across the country, providing educational information and resources for distribution at consumer events and hosting an online community with more than 9,000 participating members offering peer-to-peers support and advice to one another. In 2012, the Foundation hosted more than 20 Pearls of Strength Salon Series events bringing together leading experts and volunteer advocates to explore the latest topics on bone health and osteoporosis prevention. The events took place in cities across the country and guests walked away with important and practical information to help them build, maintain and protect their bones. In conjunction with ISO12, the Foundation hosted a free, patient education event that attracted more than 100 Orlando area residents. The Healthy Bones, Build Them for Life Consumer and Patient Forum featured panel presentations from leading experts on fractures, calcium and vitamin D, exercise and treatment, followed by an interactive Q&A session.In 2012, the Foundation also revised its support group affiliation agreement with the goal of making it more inviting and appealing to new and existing osteoporosis support groups. The affiliation agreement was updated to require that new support groups have a medical advisor and at least five founding members to affiliate with the Foundation to improve the quality of information disseminated through the support groups and give new groups a better chance at succeeding. The Foundation continued holding quarterly conference calls with support group leaders and identified several new leaders interested in starting new support groups, including a new support group that formed in Hawaii.In the fall of 2012, the Foundation also relaunched its website and online community with the goal of making them more accessible and engaging for patient and consumer audiences. The Foundation's website is the Foundation's most valuable channel for communicating directly with the osteoporosis patients, caregivers and the public and was redesigned to enhance the site content and user experience with the goal of making it easier to navigate. The site now features easy-to-navigate and practical information on how to live with osteoporosis and low-bone mass, learn more about the prevention and treatment of the disease and ways to connect with the Foundation and others through the online community, support groups and special events. Since launching the new site, NOF.org has averaged 50,000 unique visitors per month, up from approximately 30,000 before the redesign. Also in the fall of 2012, the Foundation relaunched its online support community to align with the new NOF website design and Live, Learn, Connect theme. The Foundation also used the opportunity to introduce four new volunteer moderators to actively engage in conversations with community members and help keep discussions on the right track. As a result, the community is now up to more than 8,300 members - up from 7,000 members before the relaunch - and the Foundation has observed a more positive tone to the conversations.

Filer

EIN

36-3350532