American Liver Foundation

“A draft of the form 990 is sent to the finance committee for review and comments in the monthly meeting prior to filing. In addition, a draft of the form 990 is also sent to each board member for discussion. After questions and comments are addressed and the form 990 is approved, it is ready for filing.”

“Annually, our conflict of interest form is completed by officers and directors. The form must indicate any possible conflicts of interest and is signed by all officers and directors. When any such conflict of interest is relevant to a matter requiring action by the board, the interested person shall call it to the attention of the board and such person shall not vote on the matter. Moreover, the person having a conflict shall retire from the room in which the board is meeting and shall not participate in the final deliberation or decision regarding the matter under consideration. However, that person shall provide the board with any and all relevant information. The minutes of the meeting of the board, shall reflect that the conflict of interest was disclosed and that the interested person was not present during the final discussion or vote and did not vote. When there is a doubt as to whether a conflict of interest exists, the matter shall be resolved by a vote of the board.”

“Ceo compensation is determined by the national board of director's executive committee and approved by the board members. In determining salary levels, the executive committee reviews an annual salary survey of national voluntary health organizations prepared for the national health council and reviews prior year performance. Current market conditions and the financial condition of the american liver foundation are also considered in setting compensation. This review was last conducted in 2024.”

“The salary of officers and key employees are determinied by the ceo and cfo based on performance, market conditions and the financial condition of the americn liver foundation.”

“The annual audit report and form 990 are available via www.liverfoundation.org and form 1023 and conflict of interest policy are available upon request”

“COMMUNITY SERVICE: ALF conducts important advocacy work on behalf of the patient community, actively raising awareness of legislation affecting the liver community. Began introductory outreach to the 119th Congress. Created a Health Policy Round-Up blog which highlights health policy news. Sent a Medicaid Action Alert to ensure no cuts to Medicaid liver patients. Planned Liver Life Advocacy Summit scheduled for late April. Sent letters to the Centers for Medicare and Medicaid Services regarding their proposed rule on anti-obesity medication coverage. Participated in a Rare Disease Day panel discussion.”

“PATIENT SUPPORT: ALF provides much needed support through numerous programs geared to liver patients and their caregivers. Administered Caring Connections, ALF's Peer-to-Peer support program. Held national support group meetings facilitated by trained social workers. Provided support for biliary atresia families through the Bili the Brave program involving 25 national children's hospitals. Planned the launch of ALF's national non-directed living liver donor transplant registry. Launched a liver website microsite to host clinical trial-related content including educational information for patients and caregivers, and a clinical trials finder tool to help match patients with available clinical trials. Encouraged patient engagement with the American Liver Foundation Patient Registry that has attracted 804 participants to date and is being translated into Spanish.”

“PUBLIC AND PATIENT EDUCATION: Through ALF's signature public health campaign, Think Liver Think Life, made great progress in raising awareness of fatty liver disease. Expanded to 30 states; signed 65 MOUs with free and charitable clinics, FQHCs, and health departments. Screened at 29 community events nationwide. Distributed 2,775 Hep C tests through clinics. Executed 14,000 Think Liver Think Life online quizzes since program inception, with more than 1.75 million people learning about their liver health. ALF focuses on creating impactful national partnerships to provide public and patient education. Executed national agreement with the Veterans Administration to provide liver education and support to veterans including liver videos, liver website microsite, liver webinars and YouTube channel. Launched a national partnership with Walgreens to educate the community on fatty liver disease through the creation of multiple webinars. Published an ALF blog for the National Health Council's Black History Month series. Worked with UPMC to create, produce and promote a new three-part educational webinar series on liver transplant. Raising national public awareness of liver disease is a priority for ALF. Appeared on the nationally televised Tamron Hall Show, featuring a prominent ALF family. Launched the Educated Patient series featuring Q&A and Recipes, working with MJH Life Sciences. Secured media stories in MedPage Today, Everyday Health, and SRN News. Executed public education campaigns including diseases of the liver, hepatitis, liver disease diets, MASLD/MASH. Released 11 videos including presentations about liver cancer, pediatric liver disease, COVID liver update, and several patient testimonials for ALF patient registry.”

“(Expenses $ 133,862 including grants of $) PROFESSIONAL EDUCATION Issued monthly liver newsletter, Healthcare Connections, to over 3,000 medical professionals. Launched first comprehensive educational program for the primary care community on MASH, utilizing a national platform Project Echo. Conducted 2025 Liver Health Poster Competition with liver medical professionals and liver fellows. Engaged medical experts to execute the following tasks: fact sheet content development and/or review; Spanish translation; connections with expert topic medical presenters; support group leadership; recruitment of early career professionals; medical expert champions for events; medical expert KOLs for committees; medical expert recruitment for Corporate Council meetings; and HCP recruitment for media opportunities. Engaged National Medical Visionary Team, an advisory group that meets on a regular basis to explore publication content and avenues to promote ALF's public health work. Engaged medical professionals in ALF's liver disease initiative, palliative care initiative, Veterans partnership, and so much more. Launched second Student Liver Club at an academic medical center.”

“(Expenses $ 91,606 including grants of $) RESEARCH American Liver Foundation (ALF) has a history of commitment to research funding dating back to 1979. In 2023 with the approval of ALF's National Board of Directors, ALF established a dedicated Research Department led by an experienced PhD. Growth has been exponential in terms of meaningful pilot research grant opportunities for experienced researchers and grant awards to support the pipeline of early career researchers. The ALF Research Program was promoted at the annual AASLD (American Association for the Study of Liver Diseases) Liver Meeting through interactions with a variety of stakeholders, including academic researchers, industry partners, patients, and other non-profit organizations.”

“OTHER PROFESSIONAL FEES - Total Expense: 236357, Program Service Expense: 181796, Management and General Expenses: 11184, Fundraising Expenses: 43377;”