Civic Intelligence

Cure Jm Foundation

990 • Fiscal year 2020 • EIN 35-2222262

Oct 01, 2019 to Sep 30, 2020 • Filed on Aug 16, 2021

Organization ProfileWWW.CUREJM.ORG
19309 Winmeade Drive Suite 204Leesburg, VA 20176

(202) 596-6267

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

52nd percentile

0.11x

Higher debt load relative to assets than 52% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Liabilities / Revenue

46th percentile

0.11x

Higher debt load relative to revenue than 46% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Net Margin

31st percentile

-3.0%

Higher net margin than 31% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Top Officer Pay

91st percentile

$218,700

Higher top officer pay than 91% of similar nonprofits.

Top officer pay equals 11.5% of source-year revenue.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2020

Asset Growth

42nd percentile

3.0%

Faster asset growth than 42% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Revenue Growth

46th percentile

-0.8%

Faster revenue growth than 46% of similar nonprofits.

2020 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2019 to 2020

Balance Sheet
Liabilities / Assets52nd percentile

Assets

Up

$1,977,559

Up $57,223 (+3.0%) from 2019

Net Assets

Down

$1,759,758

Down $54,712 (-3.0%) from 2019

Liabilities

Up

$217,801

Up $111,935 (+106%) from 2019

Revenue And Expenses
Liabilities / Revenue46th percentileNet Margin31st percentile

Revenue

Down

$1,907,570

Down $15,700 (-0.8%) from 2019

Expenses

Up

$1,964,707

Up $224,307 (+13%) from 2019

Net Income

Down

-$57,137

Down $240,007 (-131%) from 2019

Historical Trend

Balance Sheet Trend

Asset Growth42nd percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$3.0M$2.0M$1.0M$0Assets 2019: $1,920,336Liabilities 2019: $105,866Net Assets 2019: $1,814,4702019Assets 2020: $1,977,559Liabilities 2020: $217,801Net Assets 2020: $1,759,7582020Assets 2021: $2,049,716Liabilities 2021: $0Net Assets 2021: $2,049,7162021Assets 2022: $2,112,799Liabilities 2022: $0Net Assets 2022: $2,112,7992022Assets 2023: $2,301,494Liabilities 2023: $0Net Assets 2023: $2,301,4942023Assets 2024: $2,581,082Liabilities 2024: $0Net Assets 2024: $2,581,0822024

Highlighted filing

2020

Assets$1,977,559
Liabilities$217,801
Net Assets$1,759,758
Open 2020 Filing

Operations Trend

Revenue Growth46th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$3.0M$2.0M$1.0M$0-$1.0MRevenue 2019: $1,923,270Expenses 2019: $1,740,400Net Income 2019: $182,8702019Revenue 2020: $1,907,570Expenses 2020: $1,964,707Net Income 2020: -$57,1372020Revenue 2021: $2,232,153Expenses 2021: $1,987,838Net Income 2021: $244,3152021Revenue 2022: $1,824,036Expenses 2022: $1,760,953Net Income 2022: $63,0832022Revenue 2023: $2,243,763Expenses 2023: $2,055,068Net Income 2023: $188,6952023Revenue 2024: $2,318,946Expenses 2024: $2,062,981Net Income 2024: $255,9652024

Highlighted filing

2020

Revenue$1,907,570
Expenses$1,964,707
Net Income-$57,137
Open 2020 Filing
Jump To
Filing Snapshot
Filing Period
Oct 1, 2019 to Sep 30, 2020
Signed
Aug 16, 2021
Return Version
2019v5.0
Gross Receipts
$2,004,444
Mission and Program Overview

Mission

To find better treatments and a cure for juvenile myositis and improve the lives of families.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$1,136,751$1,177,222▲ $40,471
Savings and Temporary Cash Investments$783,585$797,912▲ $14,327
Total Assets$1,920,336$1,977,559▲ $57,223
Other Assets Total-$2,425-
Liabilities
Other Liabilities$105,866$117,601▲ $11,735
Unsecured Notes Loans Payable-$100,200-
Total Liabilities$105,866$217,801▲ $111,935
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$1,814,470$1,759,758▼ $54,712
Total Net Assets Fund Balance$1,814,470$1,759,758▼ $54,712
Total Liabilities and Net Assets / Fund Balance$1,920,336$1,977,559▲ $57,223
Compensation and Service Providers
Top Officer Pay91st percentile

Employees

NameTitleFull / Part TimeBaseTotal
Andrew Heaton PhdChief ScientFT$218,700$218,700
Andrew Heaton PhdChief Scientific Ofc-$218,700$218,700
James MinowExecutive DiFT$165,418$165,418
James MinowExecutive Director-$165,418$165,418

Board Members and Trustees

NameTitle
Mitali DaveChairman
Rhonda MckeeverChairman Eme
Nikki HahnPresident
Allison TaylorDirector
Annie MitchellDirector
Denise KochDirector
Kevin CoffeyDirector
Kristine AlderferDirector
Suzanne EdisonDirector
Tim ShelbyDirector
Tracy Van NessDirector
Shari HumeCo-founder
Tom HumeCo-founder
Ragan CantrelleSecretary
Tim HauserTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,891,711
Program Service Revenue
$0
Investment Income
$14,640
Other Revenue
$1,219
All Other Contributions
$1,302,759
Change in Net Assets
$-57,137

Audited Revenue Reconciliation

Revenue per Audited Statements
$1,907,570
Revenue Not Reported on Form 990
$96,874
Total Revenue per Audited Statements
$2,004,444
Total Revenue per Form 990
$1,907,570
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,075,543
Salaries, Compensation, and Employee Benefits$669,864
Total Fundraising Expense$379,360
Other Expenses$219,300
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$925,523--$925,523
Other Salaries and Wages$120,959$41,676$248,653$411,288
Current Officers, Directors, Trustees, and Key Employees$63,350$54,300$63,350$181,000
Foreign Grants$150,020--$150,020
Payroll Taxes$35,716$12,455$29,405$77,576
Fees for Services Accounting$8,998$50,991-$59,989
Information Technology-$31,800$2,383$34,183
Fees for Services Other$6,250$5,514$19,486$31,250
All Other Expenses$3,566$2,818$4,117$10,501
Insurance-$6,855-$6,855
Office Expenses-$5,532$414$5,946
Other Expenses$1,120$1,975$2,242$5,337
Conferences and Meetings$2,169$1,316-$3,485
Fees for Services Legal-$1,079-$1,079
Total Functional Expenses$1,360,834$224,513$379,360$1,964,707

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$2,061,581
Expenses per Audited Statements$1,964,707
Total Expenses per Form 990$1,964,707
Expenses Not Reported on Form 990$96,874
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
ANN & ROBERT H LURIE CHILDREN'SChicago, IL501c3Conduct the Ongoing$187,501
The George Washington UniversityAshburn, VA501c3Study to Explore Rel$165,000
CHILDREN'S HOSPITAL OF PHILADELPHIAPhiladelphia, PA--$113,234
Duke University Medical CenterDurham, NC501c3Juvenile Idiopathic$76,000
Childhood Arthritis & RheumatologyMilwaukee, WI501c3Support the Expansio$73,210
Seattle Childrens HospitalSeattle, WA501c3-$57,078
Natl Institute of Envir Health ScieDurham, NC501c3Genetic Discovery$25,000

International Compliance

Activity in boycott countries
No
Foreign corporation ownership
No
Foreign partnership interest
No
Interest in foreign trust
No
Passive foreign investment company interest
No
Transfers to foreign corporations
No
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$96,874
Fundraising Gross Income$96,874
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Walk Strong Ame$154,724$15,871$15,871$0
Walk Strong New$99,773$730$730$0
Total Events$685,826$96,874$96,874-
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Payroll Taxes Payable$109,919
Credit Cards Payable$7,682
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
Yes
Annual disclosure for covered persons
Yes
Audit committee
Yes
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Page 6, Part VI, Line 2

“Tom hume shari hume co-founder co-founder husband/wife”

Form 990, Page 6, Part VI, Line 11B

“Draft copy of form 990 was provided to the executive committee for review before it was filed.”

Form 990, Page 6, Part VI, Line 12C

“The organization regularly reviews contracts and relationships with vendors to assure compliance with its conflict of interest policy.”

Form 990, Page 6, Part VI, Line 15A

“The board of directors researched the compensation of comparable organizations based on job description and evaluated the performance of executive director.”

Form 990, Page 6, Part VI, Line 19

“The organization's exempt organization tax returns and audited financial statements are available for review on its website at www.curejm.org. The organization's form 1023, conflict of interest policy and other governing documents are available for review upon request.”

Filing and Contact Details

Filer

Filer Name
Cure Jm Foundation
EIN
35-2222262
Phone
2025966267
Address
19309 WINMEADE DRIVE SUITE 204, LEESBURG, VA 20176

Signing Officer

Name
James Minow
Title
Executive Director
Phone
2025966267
Signed
2021-08-16

Organization Details

Principal Officer
James Minow
Formed
2003
Legal Domicile
CA
Voting Board Members
15
Independent Board Members
15
Employees
9
Volunteers
226

Preparer

Firm
Toal Murray Day & Lalor LLC
Address
130 ADMIRAL COCHRANE DR SUITE 200, ANNAPOLIS, MD 21401-7368
Preparer
Thaddeus N Toal CPA
Phone
4102240343
Supplemental Narrative

Additional Explanations

Form 990, Page 2, Part III, Line 4A

“The organization directly supported research as follows: 1) 262,548 to the childhood arthritis & rheumatology research alliance (carra) to launch a multi-center jm patient registry to collect information at the time of diagnosis and at regular intervals about how a patient is doing, medications used, and side effects; 2) 113,234 to the center for applied genomics at childrens's hospital of philadelphia, to invest in a genetic discovery program; 3) 100,000 to the national center for advancing translational sciences - nih in bethesda, md; 4) 95,000 to george washington university's project to measure oxidative stress and mitochondrial function as possible causes of fatigue; 5) 87,500 to the ann & robert h. Lurie children's hospital in chicago, il for cure jm program of excellence research; 6) 83,500 to duke university medical center in durham, nc to identify aberrant patterns of metabolite expression in the blood and muscle of children with jdm; 7) 73,938 to the hospital for sick children in washington, dc; 8) 60,014 to the seattle children's hospital in seattle, wa; 9) 20,000 to the national institute of environmental health sciences in durham, nc to investigate the clinical response to therapies in patients with jdm; 10) 11,581 to the global conference on myositis, inc. In jacksonville, fl; and 11) 150,020 to university college london (uk) for the study of genetic risk factors for juvenile dermatomyositis.”

Form 990, Part XI, Line 9

“Reclassification of event expenses 96,874 reclassification of event expenses -96,874”

Financial Statement Notes

Schedule D, Page 3, Part X

“Cure jm foundation accounts for uncertainty in income tax positions in the financial statements by applying a recognition threshold and measurement attribute for financial statement recognition and measurement of a tax position taken or expected to be taken in a tax return. Management has analyzed the tax positions taken and has concluded that as of september 30, 2020, there are no uncertain tax positions taken or expected to be taken that would require recognition of a liability (or asset) or disclosure in the financial statements.”

Schedule D, Page 4, Part XI, Line 2D

“Reclassification of event expenses 96,874”

Schedule D, Page 4, Part XII, Line 2D

“Reclassification of event expenses 96,874”

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IRS990/Form990PartVIISectionAGrp/TitleTxt0DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt1SECRETARY
IRS990/Form990PartVIISectionAGrp/TitleTxt2DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt3CHAIRMAN
IRS990/Form990PartVIISectionAGrp/TitleTxt4DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt5PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt6TREASURER
IRS990/Form990PartVIISectionAGrp/TitleTxt7CHIEF SCIENT
IRS990/Form990PartVIISectionAGrp/TitleTxt8CO-FOUNDER
IRS990/Form990PartVIISectionAGrp/TitleTxt9CO-FOUNDER
IRS990/Form990PartVIISectionAGrp/TitleTxt10DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt11CHAIRMAN EME
IRS990/Form990PartVIISectionAGrp/TitleTxt12EXECUTIVE DI
IRS990/Form990PartVIISectionAGrp/TitleTxt13DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt14DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt15DIRECTOR
IRS990/Form990PartVIISectionAGrp/TitleTxt16DIRECTOR
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IRS990/FormationYr02003
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IRS990/InsuranceGrp/ManagementAndGeneralAmt06855
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IRS990/OtherExpensesGrp/Desc0EDUCATIONAL/SPECIAL EVENT
IRS990/OtherExpensesGrp/Desc1BANK FEES
IRS990/OtherExpensesGrp/Desc2PENALTIES & INTEREST
IRS990/OtherExpensesGrp/Desc3OTHER EXPENSES
IRS990/OtherExpensesGrp/FundraisingAmt04778
IRS990/OtherExpensesGrp/FundraisingAmt14532
IRS990/OtherExpensesGrp/FundraisingAmt22242
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt04209
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt13993
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt21975
IRS990/OtherExpensesGrp/ProgramServicesAmt038507
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IRS990/OtherExpensesGrp/ProgramServicesAmt31120
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IRS990/OtherExpensesGrp/TotalAmt111377
IRS990/OtherExpensesGrp/TotalAmt210791
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IRS990/OtherRevenueMiscGrp/Desc0OTHER REVENUE
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IRS990/PartialLiquidationInd0false
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IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt012455
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IRS990/PoliciesReferenceChaptersInd0true
IRS990/PoliticalCampaignActyInd0false
IRS990/PrincipalOfficerNm0JAMES MINOW
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IRS990/ProfessionalFundraisingInd0false
IRS990/ProgSrvcAccomActy2Grp/Desc0THE ANNUAL NATIONAL FAMILY CONFERENCE & WALK STRONG TO CURE JM EVENT WAS HELD IN VARIOUS LOCATIONS ACROSS THE UNITED STATES. FAMILIES ATTENDED INCLUDING GRANDPARENTS, PARENTS, CHILDREN, TEENS, YOUNG ADULTS. MEDICAL PROFESSIONALS ALSO PARTICIPATED IN A MEDICAL CONFERENCE TO SHARE THE LATEST ADVANCEMENTS IN JM RESEARCH AND TREATMENTS. FAMILIES CAPPED THE WEEKEND WITH ATTENDANCE AT THE WALK STRONG TO CURE JM EVENTS.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt096874
IRS990/ProgSrvcAccomActy3Grp/Desc0THE ORGANIZATION IS COMMITTED TO INCREASING AWARENESS AND EDUCATION OF THIS RARE, INCURABLE AUTOIMMUNE DISEASE AS WELL AS PROVIDING A SUPPORT COMMUNITY FOR IMPACTED FAMILIES. THESE EFFORTS ARE ACCOMPLISHED THROUGH A VARIETY OF METHODS SUCH AS: ATTENDANCE AT MEDICAL CONFERENCES REPRESENTING CURE JM FOUNDATION AND ITS WORK/ACTIVITIES; DISTRIBUTION OF PRINTED INFORMATION CARDS, BROCHURES AND EDUCATIONAL BOOKS TO IMPACTED FAMILIES AND THE MEDICAL COMMUNITY; DISTRIBUTION OF WELCOME KITS TO NEWLY DIAGNOSED FAMILIES; NEWSLETTERS; EDUCATIONAL EVENTS AND GATHERINGS; FAMILY SUPPORT; SURVEY AND METRIC TOOLS; MAINTENANCE OF A PATIENT REGISTRY AND MESSAGE BOARD AND UPDATES/MAINTENANCE OF THE ORGANIZATION' S WEBSITE.
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IRS990/PYExcessBenefitTransInd0false
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IRS990/PYInvestmentIncomeAmt013143
IRS990/PYOtherExpensesAmt0198806
IRS990/PYOtherRevenueAmt055797
IRS990/PYRevenuesLessExpensesAmt0182870
IRS990/PYSalariesCompEmpBnftPaidAmt0660872
IRS990/PYTotalExpensesAmt01740400
IRS990/PYTotalRevenueAmt01923270
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IRS990/QuidProQuoContriDisclInd0true
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-57137
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
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IRS990/ReportProgramRelatedInvstInd0false
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IRS990/SavingsAndTempCashInvstGrp/EOYAmt0797912
IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0OTHER INCOME 1,501
IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc0PART II, LINE 10
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IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt01854330
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt01959884
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt01721373
IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt01288464
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IRS990ScheduleA/GrossInvestmentIncome170Grp/CurrentTaxYearMinus3YearsAmt07916
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IRS990/ScheduleBRequiredInd0true
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IRS990ScheduleD/ExpensesSubtotalAmt01964707
IRS990ScheduleD/FootnoteTextInd0X
IRS990ScheduleD/OtherExpensesIncludedAmt096874
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0109919
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt17682
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0PAYROLL TAXES PAYABLE
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc1CREDIT CARDS PAYABLE
IRS990ScheduleD/OtherRevenueAmt096874
IRS990ScheduleD/RevenueNotReportedAmt096874
IRS990ScheduleD/RevenueSubtotalAmt01907570
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0CURE JM FOUNDATION ACCOUNTS FOR UNCERTAINTY IN INCOME TAX POSITIONS IN THE FINANCIAL STATEMENTS BY APPLYING A RECOGNITION THRESHOLD AND MEASUREMENT ATTRIBUTE FOR FINANCIAL STATEMENT RECOGNITION AND MEASUREMENT OF A TAX POSITION TAKEN OR EXPECTED TO BE TAKEN IN A TAX RETURN. MANAGEMENT HAS ANALYZED THE TAX POSITIONS TAKEN AND HAS CONCLUDED THAT AS OF SEPTEMBER 30, 2020, THERE ARE NO UNCERTAIN TAX POSITIONS TAKEN OR EXPECTED TO BE TAKEN THAT WOULD REQUIRE RECOGNITION OF A LIABILITY (OR ASSET) OR DISCLOSURE IN THE FINANCIAL STATEMENTS.
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt1RECLASSIFICATION OF EVENT EXPENSES 96,874
IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt2RECLASSIFICATION OF EVENT EXPENSES 96,874
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0SCHEDULE D, PAGE 3, PART X

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2020 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,977,559
Liabilities
$217,801
Net assets
$1,759,758
Revenue
$1,907,570
Expenses
$1,964,707
Net income
-$57,137
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$2.58$0.00$2.58$2.32$2.06$0.26
2023Detailed filing. Detailed filing data is available for this year.$2.30$0.00$2.30$2.24$2.06$0.19
2022Detailed filing. Detailed filing data is available for this year.$2.11$0.00$2.11$1.82$1.76$0.06
2021Detailed filing. Detailed filing data is available for this year.$2.05$0.00$2.05$2.23$1.99$0.24
2020Detailed filing. Detailed filing data is available for this year.$1.98$0.22$1.76$1.91$1.96$0.06
2019Detailed filing. Detailed filing data is available for this year.$1.92$0.11$1.81$1.92$1.74$0.18