Cure Jm Foundation

“Tom hume shari hume co-founder co-founder husband/wife”

“Draft copy of form 990 was provided to the executive committee for review before it was filed.”

“The organization regularly reviews contracts and relationships with vendors to assure compliance with its conflict of interest policy.”

“The board of directors researched the compensation of comparable organizations based on job description and evaluated the performance of executive director.”

“The organization's exempt organization tax returns and audited financial statements are available for review on its website at www.curejm.org. The organization's form 1023, conflict of interest policy and other governing documents are available for review upon request.”

“The organization directly supported research as follows: 1) 196 ,106 to the cure jm center of excellence in jm research at stanley manne children's research institute, affiliated with ann & robert h. Lurie children's hospital in chicago, il. This facility has cared for over 600 children with jdm and other forms of inflammatory myopathy. The team is working to discover the biomarkers of jm activity to guide the utilization and/or creation of more effective therapies. They have already identified a variety of genetic and environmental factors that not only play a role in the onset of symptoms, but also govern the child' s outcome; 2) 200,000 to the gw medical faculty associates myositis center in washington, dc. As a national referral site for inflammatory muscle diseases, the center is often called upon to either establish a diagnosis or to provide a second opinion related to the management of children and adults with jm. The center also specializes in jm research and education working in collaboration with the national institute of health (nih); 3) 100,000 to nacts to advance translational science research in the area of juvenile autoimmune disorders; 4) 130,000 to george washington university for a study to explore relationships between various components of fatigue primarily mediated by the cardiorespiratory system ; 5 62,500 to carra to support expansion of the registry to include patients with jdm; 6) 120,000 to university of california, san francisco for a fellow to conduct research regarding longitudinal immune profiling for biomarker discovery in patients with jdm; 7 40 ,000 to university of pittsburgh to determine if ultrasound can detect muscle disease in children with active inflammation; 8) 1,031 for transcription services and recording devices related to a mental health focus group; and 10 65,000 to university of bath (uk) for validation of commercial myositis autoantibody panels leading to increased accessibility of testing, standardization in testing and improved diagnostic criteria.”

“Reclassification of event expenses 95,418 reclassification of event expenses -95,418”