Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
990 • Fiscal year 2021 • EIN 34-1986485
Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.
Liabilities / Assets
64th percentile
Higher debt load relative to assets than 64% of similar nonprofits.
Liabilities / Revenue
53rd percentile
Higher debt load relative to revenue than 53% of similar nonprofits.
Net Margin
73rd percentile
Higher net margin than 73% of similar nonprofits.
Top Officer Pay
85th percentile
Higher top officer pay than 85% of similar nonprofits.
Top officer pay equals 10.4% of source-year revenue.
Asset Growth
98th percentile
Faster asset growth than 98% of similar nonprofits.
Revenue Growth
75th percentile
Faster revenue growth than 75% of similar nonprofits.
Assets
Up$344,744
Up $273,218 (+382%) from 2020
Net Assets
Up$313,662
Up $258,972 (+474%) from 2020
Liabilities
Up$31,082
Up $14,246 (+85%) from 2020
Revenue
Up$868,995
Up $296,302 (+52%) from 2020
Expenses
Up$610,023
Up $58,090 (+11%) from 2020
Net Income
Up$258,972
Up $238,212 (+1147%) from 2020
The mission of uplifting athletes is to inspire the rare disease community with hope through the power of sport. The organization's vision is to empower people to take action against rare diseases and be a catalyst for the medical community to find cures.
| Line | Beginning | End | Change |
|---|---|---|---|
| Assets | |||
| Cash and Non-Interest-Bearing Accounts | $63,645 | $315,744 | ▲ $252,099 |
| Accounts Receivable | $4,000 | $29,000 | ▲ $25,000 |
| Prepaid Expenses and Deferred Charges | $3,500 | - | - |
| Land, Buildings, and Equipment, Net | $381 | - | - |
| Total Assets | $71,526 | $344,744 | ▲ $273,218 |
| Liabilities | |||
| Accounts Payable and Accrued Expenses | $16,836 | $31,082 | ▲ $14,246 |
| Total Liabilities | $16,836 | $31,082 | ▲ $14,246 |
| Net Assets / Fund Balance | |||
| Net Assets Without Donor Restrictions | $54,690 | $313,662 | ▲ $258,972 |
| Total Net Assets Fund Balance | $54,690 | $313,662 | ▲ $258,972 |
| Total Liabilities and Net Assets / Fund Balance | $71,526 | $344,744 | ▲ $273,218 |
| Name | Title | Full / Part Time | Base | Total |
|---|---|---|---|---|
| Robert M Long Jr | Executive Di | FT | $90,000 | $90,000 |
| Brett Brackett | General Mana | FT | $87,095 | $87,095 |
| Name | Title |
|---|---|
| Keith Deaven | President |
| Scott Schliebner | Board Member |
| Shoshanna Engel-lewis | Board Member |
| Scott Shirley | Founder |
| Kerwin Stetler | Treasurer/se |
| David Wozniak | Vice Preside |
| Line Item | Amount |
|---|---|
| Salaries, Compensation, and Employee Benefits | $337,015 |
| Other Expenses | $153,008 |
| Grants and Similar Amounts Paid | $120,000 |
| Total Fundraising Expense | $56,852 |
| Professional Fundraising Fees | $0 |
| Line Item | Program | Management | Fundraising | Total |
|---|---|---|---|---|
| Current Officers, Directors, Trustees, and Key Employees | $135,090 | $22,617 | $19,386 | $177,093 |
| Grants to Domestic Orgs | $120,000 | - | - | $120,000 |
| Other Salaries and Wages | $84,410 | $14,133 | $12,114 | $110,657 |
| Fees for Services Other | $51,500 | $8,750 | - | $60,250 |
| Office Expenses | $6,142 | $10,617 | $15,991 | $32,750 |
| Other Employee Benefits | - | $27,011 | - | $27,011 |
| Payroll Taxes | $16,976 | $2,842 | $2,436 | $22,254 |
| Other Expenses | $18,379 | - | - | $18,379 |
| Conferences and Meetings | $16,106 | - | - | $16,106 |
| Information Technology | $307 | $2,953 | $6,925 | $10,185 |
| Fees for Services Accounting | - | $7,000 | - | $7,000 |
| Travel | $1,855 | $1,535 | - | $3,390 |
| Fees for Services Legal | - | $2,738 | - | $2,738 |
| Insurance | - | $2,051 | - | $2,051 |
| Depreciation Depletion | - | $135 | - | $135 |
| Advertising | $24 | - | - | $24 |
| Total Functional Expenses | $450,789 | $102,382 | $56,852 | $610,023 |
| Line Item | Amount |
|---|---|
| Total Expenses per Audited Statements | $687,885 |
| Expenses per Audited Statements | $610,023 |
| Total Expenses per Form 990 | $610,023 |
| Expenses Not Reported on Form 990 | $77,862 |
| Recipient | Location | Category | Purpose | Amount |
|---|---|---|---|---|
| Boston Children | Boston, MA | 501c3 | To Support Research | $20,000 |
| CHILDREN'S HOSPITAL OF PHILADELPHIA | Philadelphia, PA | 501c3 | To Support Research | $20,000 |
| Icahn School of Medicine at Mount | New York, NY | 501c3 | - | $20,000 |
| University of Virginia | Charlottesville, VA | 501c3 | To Support Research | $20,000 |
| Ut Southwestern | Dallas, TX | 501c3 | To Support Research | $20,000 |
| The Jackson Laboratory | Farmington, CT | 501c3 | To Support Research | $10,000 |
| The Trustees of Columbia University | New York, NY | 501c3 | To Support Research | $10,000 |
| Line Item | Amount |
|---|---|
| Fundraising Gross Income | $213,572 |
| Fundraising Direct Expenses | $77,862 |
| Professional Fundraising Fees | $0 |
| Event | Gross Receipts | Gross Revenue | Direct Expenses | Net Income |
|---|---|---|---|---|
| Ua Ambassadors | $147,521 | $112,521 | $5,800 | $106,721 |
| Young Investiga | $408,000 | $65,500 | $56,065 | $9,435 |
| Total Events | $691,072 | $213,572 | $74,307 | $139,265 |
“The organization has no committees with the authority to act on behalf of the governing body.”
“The general manager reviews the 990 with the board members and the accountant before filing the 990.”
“The independent board members used industry standards to compare salaries with the general manager. The approved salary and the process used to determine the salary was documented.”
“The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.”
“The mission of uplifting athletes is to inspire the rare disease community with hope through the power of sport. The organization's vision is to empower people to take action against rare diseases and be a catalyst for the medical community to find cures.”
“Special events expense 77,862 special events expense -77,862”
“Special events expense 77,862”
“Special events expense 77,862”
This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.
| Path | # | Value |
|---|---|---|
| IRS990/AccountantCompileOrReviewInd | 0 | true |
| IRS990/AccountsPayableAccrExpnssGrp/BOYAmt | 0 | 16836 |
| IRS990/AccountsPayableAccrExpnssGrp/EOYAmt | 0 | 31082 |
| IRS990/AccountsReceivableGrp/BOYAmt | 0 | 4000 |
| IRS990/AccountsReceivableGrp/EOYAmt | 0 | 29000 |
| IRS990/AcctCompileOrReviewBasisGrp/SeparateBasisFinclStmtInd | 0 | X |
| IRS990/ActivitiesConductedPrtshpInd | 0 | false |
| IRS990/ActivityOrMissionDesc | 0 | THE MISSION OF UPLIFTING ATHLETES IS TO INSPIRE THE RARE DISEASE COMMUNITY WITH HOPE THROUGH THE POWER OF SPORT. THE ORGANIZATION'S VISION IS TO EMPOWER PEOPLE TO TAKE ACTION AGAINST RARE DISEASES AND BE A CATALYST FOR THE MEDICAL COMMUNITY TO FIND CURES. |
| IRS990/AdvertisingGrp/ProgramServicesAmt | 0 | 24 |
| IRS990/AdvertisingGrp/TotalAmt | 0 | 24 |
| IRS990/AllOtherContributionsAmt | 0 | 196842 |
| IRS990/AnnualDisclosureCoveredPrsnInd | 0 | true |
| IRS990/BooksInCareOfDetail/PersonNm | 0 | BRETT BRACKETT |
| IRS990/BooksInCareOfDetail/PhoneNum | 0 | 8776670468 |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine1Txt | 0 | 8 ATKINSON DRIVE |
| IRS990/BooksInCareOfDetail/USAddress/AddressLine2Txt | 0 | PO BOX 574 |
| IRS990/BooksInCareOfDetail/USAddress/CityNm | 0 | DOYLESTOWN |
| IRS990/BooksInCareOfDetail/USAddress/StateAbbreviationCd | 0 | PA |
| IRS990/BooksInCareOfDetail/USAddress/ZIPCd | 0 | 18901 |
| IRS990/BusinessRlnWith35CtrlEntInd | 0 | false |
| IRS990/BusinessRlnWithFamMemInd | 0 | false |
| IRS990/BusinessRlnWithOrgMemInd | 0 | false |
| IRS990/CashNonInterestBearingGrp/BOYAmt | 0 | 63645 |
| IRS990/CashNonInterestBearingGrp/EOYAmt | 0 | 315744 |
| IRS990/ChangeToOrgDocumentsInd | 0 | false |
| IRS990/CollectionsOfArtInd | 0 | false |
| IRS990/CompCurrentOfcrDirectorsGrp/FundraisingAmt | 0 | 19386 |
| IRS990/CompCurrentOfcrDirectorsGrp/ManagementAndGeneralAmt | 0 | 22617 |
| IRS990/CompCurrentOfcrDirectorsGrp/ProgramServicesAmt | 0 | 135090 |
| IRS990/CompCurrentOfcrDirectorsGrp/TotalAmt | 0 | 177093 |
| IRS990/CompensationFromOtherSrcsInd | 0 | false |
| IRS990/CompensationProcessCEOInd | 0 | true |
| IRS990/CompensationProcessOtherInd | 0 | false |
| IRS990/ConferencesMeetingsGrp/ProgramServicesAmt | 0 | 16106 |
| IRS990/ConferencesMeetingsGrp/TotalAmt | 0 | 16106 |
| IRS990/ConflictOfInterestPolicyInd | 0 | true |
| IRS990/ConservationEasementsInd | 0 | false |
| IRS990/ConsolidatedAuditFinclStmtInd | 0 | false |
| IRS990/ContriRptFundraisingEventAmt | 0 | 477500 |
| IRS990/CreditCounselingInd | 0 | false |
| IRS990/CYBenefitsPaidToMembersAmt | 0 | 0 |
| IRS990/CYContributionsGrantsAmt | 0 | 732871 |
| IRS990/CYGrantsAndSimilarPaidAmt | 0 | 120000 |
| IRS990/CYInvestmentIncomeAmt | 0 | -247 |
| IRS990/CYOtherExpensesAmt | 0 | 153008 |
| IRS990/CYOtherRevenueAmt | 0 | 136371 |
| IRS990/CYProgramServiceRevenueAmt | 0 | 0 |
| IRS990/CYRevenuesLessExpensesAmt | 0 | 258972 |
| IRS990/CYSalariesCompEmpBnftPaidAmt | 0 | 337015 |
| IRS990/CYTotalExpensesAmt | 0 | 610023 |
| IRS990/CYTotalFundraisingExpenseAmt | 0 | 56852 |
| IRS990/CYTotalProfFndrsngExpnsAmt | 0 | 0 |
| IRS990/CYTotalRevenueAmt | 0 | 868995 |
| IRS990/DecisionsSubjectToApprovaInd | 0 | false |
| IRS990/DeductibleArtContributionInd | 0 | false |
| IRS990/DeductibleNonCashContriInd | 0 | false |
| IRS990/DelegationOfMgmtDutiesInd | 0 | false |
| IRS990/DepreciationDepletionGrp/ManagementAndGeneralAmt | 0 | 135 |
| IRS990/DepreciationDepletionGrp/TotalAmt | 0 | 135 |
| IRS990/Desc | 0 | RARE DISEASE RESEARCH, UPLIFTING EXPERIENCES, RARE DISEASE AWARENESS, AND UPLIFTING LEADERS |
| IRS990/DescribedInSection501c3Ind | 0 | true |
| IRS990/DisregardedEntityInd | 0 | false |
| IRS990/DocumentRetentionPolicyInd | 0 | true |
| IRS990/DonorAdvisedFundInd | 0 | false |
| IRS990/DonorRstrOrQuasiEndowmentsInd | 0 | false |
| IRS990/ElectionOfBoardMembersInd | 0 | false |
| IRS990/EmployeeCnt | 0 | 3 |
| IRS990/EmploymentTaxReturnsFiledInd | 0 | true |
| IRS990/EngagedInExcessBenefitTransInd | 0 | false |
| IRS990/ExpenseAmt | 0 | 330789 |
| IRS990/FamilyOrBusinessRlnInd | 0 | false |
| IRS990/FederalGrantAuditRequiredInd | 0 | false |
| IRS990/FeesForServicesAccountingGrp/ManagementAndGeneralAmt | 0 | 7000 |
| IRS990/FeesForServicesAccountingGrp/TotalAmt | 0 | 7000 |
| IRS990/FeesForServicesLegalGrp/ManagementAndGeneralAmt | 0 | 2738 |
| IRS990/FeesForServicesLegalGrp/TotalAmt | 0 | 2738 |
| IRS990/FeesForServicesOtherGrp/ManagementAndGeneralAmt | 0 | 8750 |
| IRS990/FeesForServicesOtherGrp/ProgramServicesAmt | 0 | 51500 |
| IRS990/FeesForServicesOtherGrp/TotalAmt | 0 | 60250 |
| IRS990/ForeignActivitiesInd | 0 | false |
| IRS990/ForeignFinancialAccountInd | 0 | false |
| IRS990/ForeignOfficeInd | 0 | false |
| IRS990/Form8282PropertyDisposedOfInd | 0 | false |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 0 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 1 | 40.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 2 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 3 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 4 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 5 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 6 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/AverageHoursPerWeekRt | 7 | 1.00 |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 6 | X |
| IRS990/Form990PartVIISectionAGrp/IndividualTrusteeOrDirectorInd | 7 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 0 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 1 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 2 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 3 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 4 | X |
| IRS990/Form990PartVIISectionAGrp/OfficerInd | 5 | X |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 0 | ROBERT M LONG JR |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 1 | BRETT BRACKETT |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 2 | KEITH DEAVEN |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 3 | SHOSHANNA ENGEL-LEWIS |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 4 | SCOTT SCHLIEBNER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 5 | SCOTT SHIRLEY |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 6 | KERWIN STETLER |
| IRS990/Form990PartVIISectionAGrp/PersonNm | 7 | DAVID WOZNIAK |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 0 | 90000 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 1 | 87095 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 0 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 1 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 2 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 3 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 4 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 5 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 6 | 0 |
| IRS990/Form990PartVIISectionAGrp/ReportableCompFromRltdOrgAmt | 7 | 0 |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 0 | EXECUTIVE DI |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 1 | GENERAL MANA |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 2 | PRESIDENT |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 3 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 4 | BOARD MEMBER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 5 | FOUNDER |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 6 | TREASURER/SE |
| IRS990/Form990PartVIISectionAGrp/TitleTxt | 7 | VICE PRESIDE |
| IRS990/Form990ProvidedToGvrnBodyInd | 0 | true |
| IRS990/FormationYr | 0 | 2004 |
| IRS990/FormerOfcrEmployeesListedInd | 0 | false |
| IRS990/FSAuditedInd | 0 | false |
| IRS990/FundraisingActivitiesInd | 0 | true |
| IRS990/FundraisingAmt | 0 | 477500 |
| IRS990/FundraisingDirectExpensesAmt | 0 | 77862 |
| IRS990/FundraisingGrossIncomeAmt | 0 | 213572 |
| IRS990/GainOrLossGrp/OtherAmt | 0 | -247 |
| IRS990/GamingActivitiesInd | 0 | false |
| IRS990/GoverningBodyVotingMembersCnt | 0 | 6 |
| IRS990/GovernmentGrantsAmt | 0 | 58529 |
| IRS990/GrantsToDomesticOrgsGrp/ProgramServicesAmt | 0 | 120000 |
| IRS990/GrantsToDomesticOrgsGrp/TotalAmt | 0 | 120000 |
| IRS990/GrantsToIndividualsInd | 0 | false |
| IRS990/GrantsToOrganizationsInd | 0 | true |
| IRS990/GrantToRelatedPersonInd | 0 | false |
| IRS990/GrossReceiptsAmt | 0 | 947104 |
| IRS990/GroupReturnForAffiliatesInd | 0 | false |
| IRS990/IncludeFIN48FootnoteInd | 0 | false |
| IRS990/IndependentAuditFinclStmtInd | 0 | true |
| IRS990/IndependentVotingMemberCnt | 0 | 6 |
| IRS990/IndoorTanningServicesInd | 0 | false |
| IRS990/InfoInScheduleOPartIIIInd | 0 | X |
| IRS990/InfoInScheduleOPartVIInd | 0 | X |
| IRS990/InfoInScheduleOPartXIInd | 0 | X |
| IRS990/InformationTechnologyGrp/FundraisingAmt | 0 | 6925 |
| IRS990/InformationTechnologyGrp/ManagementAndGeneralAmt | 0 | 2953 |
| IRS990/InformationTechnologyGrp/ProgramServicesAmt | 0 | 307 |
| IRS990/InformationTechnologyGrp/TotalAmt | 0 | 10185 |
| IRS990/InsuranceGrp/ManagementAndGeneralAmt | 0 | 2051 |
| IRS990/InsuranceGrp/TotalAmt | 0 | 2051 |
| IRS990/InvestmentInJointVentureInd | 0 | false |
| IRS990/IRPDocumentCnt | 0 | 7 |
| IRS990/IRPDocumentW2GCnt | 0 | 0 |
| IRS990/LandBldgEquipBasisNetGrp/BOYAmt | 0 | 381 |
| IRS990/LegalDomicileStateCd | 0 | PA |
| IRS990/LessCostOthBasisSalesExpnssGrp/OtherAmt | 0 | 247 |
| IRS990/LoanOutstandingInd | 0 | false |
| IRS990/LobbyingActivitiesInd | 0 | false |
| IRS990/LocalChaptersInd | 0 | true |
| IRS990/MaterialDiversionOrMisuseInd | 0 | false |
| IRS990/MembersOrStockholdersInd | 0 | false |
| IRS990/MethodOfAccountingAccrualInd | 0 | X |
| IRS990/MinutesOfCommitteesInd | 0 | false |
| IRS990/MinutesOfGoverningBodyInd | 0 | true |
| IRS990/MissionDesc | 0 | THE MISSION OF UPLIFTING ATHLETES IS TO INSPIRE THE RARE DISEASE COMMUNITY WITH HOPE THROUGH THE POWER OF SPORT. THE ORGANIZATION'S VISION IS TO EMPOWER PEOPLE TO TAKE ACTION AGAINST RARE DISEASES AND BE A CATALYST FOR THE MEDICAL COMMUNITY TO FIND CURES. |
| IRS990/MoreThan5000KToIndividualsInd | 0 | false |
| IRS990/MoreThan5000KToOrgInd | 0 | false |
| IRS990/NetAssetsOrFundBalancesBOYAmt | 0 | 54690 |
| IRS990/NetAssetsOrFundBalancesEOYAmt | 0 | 313662 |
| IRS990/NetGainOrLossInvestmentsGrp/ExclusionAmt | 0 | -247 |
| IRS990/NetGainOrLossInvestmentsGrp/TotalRevenueColumnAmt | 0 | -247 |
| IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt | 0 | 135710 |
| IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt | 0 | 135710 |
| IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt | 0 | 54690 |
| IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt | 0 | 313662 |
| IRS990/NondeductibleContributionsInd | 0 | false |
| IRS990/OfficeExpensesGrp/FundraisingAmt | 0 | 15991 |
| IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt | 0 | 10617 |
| IRS990/OfficeExpensesGrp/ProgramServicesAmt | 0 | 6142 |
| IRS990/OfficeExpensesGrp/TotalAmt | 0 | 32750 |
| IRS990/OfficerMailingAddressInd | 0 | false |
| IRS990/OperateHospitalInd | 0 | false |
| IRS990/Organization501c3Ind | 0 | X |
| IRS990/OrganizationFollowsFASB117Ind | 0 | X |
| IRS990/OtherEmployeeBenefitsGrp/ManagementAndGeneralAmt | 0 | 27011 |
| IRS990/OtherEmployeeBenefitsGrp/TotalAmt | 0 | 27011 |
| IRS990/OtherExpensesGrp/Desc | 0 | CHAPTER EXPENSES |
| IRS990/OtherExpensesGrp/ProgramServicesAmt | 0 | 18379 |
| IRS990/OtherExpensesGrp/TotalAmt | 0 | 18379 |
| IRS990/OtherRevenueMiscGrp/BusinessCd | 0 | 900099 |
| IRS990/OtherRevenueMiscGrp/Desc | 0 | MISCELLANEOUS |
| IRS990/OtherRevenueMiscGrp/RelatedOrExemptFuncIncomeAmt | 0 | 661 |
| IRS990/OtherRevenueMiscGrp/TotalRevenueColumnAmt | 0 | 661 |
| IRS990/OtherRevenueTotalAmt | 0 | 661 |
| IRS990/OtherSalariesAndWagesGrp/FundraisingAmt | 0 | 12114 |
| IRS990/OtherSalariesAndWagesGrp/ManagementAndGeneralAmt | 0 | 14133 |
| IRS990/OtherSalariesAndWagesGrp/ProgramServicesAmt | 0 | 84410 |
| IRS990/OtherSalariesAndWagesGrp/TotalAmt | 0 | 110657 |
| IRS990/OtherWebsiteInd | 0 | X |
| IRS990/PartialLiquidationInd | 0 | false |
| IRS990/PayPremiumsPrsnlBnftCntrctInd | 0 | false |
| IRS990/PayrollTaxesGrp/FundraisingAmt | 0 | 2436 |
| IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt | 0 | 2842 |
| IRS990/PayrollTaxesGrp/ProgramServicesAmt | 0 | 16976 |
| IRS990/PayrollTaxesGrp/TotalAmt | 0 | 22254 |
| IRS990/PoliciesReferenceChaptersInd | 0 | true |
| IRS990/PoliticalCampaignActyInd | 0 | false |
| IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt | 0 | 3500 |
| IRS990/PrincipalOfficerNm | 0 | BRETT BRACKETT |
| IRS990/ProfessionalFundraisingInd | 0 | false |
| IRS990/ProgSrvcAccomActy2Grp/Desc | 0 | RAISE FUNDS FOR RESEARCHERS SUPPORTING RARE DISEASES. DURING THE FISCAL YEAR ENDED, GRANTS WERE COMMITTED TO PAY FOR RESEARCH IN THE AMOUNT OF 90,000. |
| IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt | 0 | 120000 |
| IRS990/ProgSrvcAccomActy2Grp/GrantAmt | 0 | 120000 |
| IRS990/ProhibitedTaxShelterTransInd | 0 | false |
| IRS990/PYContributionsGrantsAmt | 0 | 624084 |
| IRS990/PYExcessBenefitTransInd | 0 | false |
| IRS990/PYGrantsAndSimilarPaidAmt | 0 | 90000 |
| IRS990/PYOtherExpensesAmt | 0 | 210822 |
| IRS990/PYOtherRevenueAmt | 0 | -51391 |
| IRS990/PYRevenuesLessExpensesAmt | 0 | 20760 |
| IRS990/PYSalariesCompEmpBnftPaidAmt | 0 | 251111 |
| IRS990/PYTotalExpensesAmt | 0 | 551933 |
| IRS990/PYTotalRevenueAmt | 0 | 572693 |
| IRS990/QuidProQuoContributionsInd | 0 | false |
| IRS990/RcvFndsToPayPrsnlBnftCntrctInd | 0 | false |
| IRS990/ReconcilationRevenueExpnssAmt | 0 | 258972 |
| IRS990/RegularMonitoringEnfrcInd | 0 | false |
| IRS990/RelatedEntityInd | 0 | false |
| IRS990/RelatedOrganizationCtrlEntInd | 0 | false |
| IRS990/ReportInvestmentsOtherSecInd | 0 | false |
| IRS990/ReportLandBuildingEquipmentInd | 0 | false |
| IRS990/ReportOtherAssetsInd | 0 | false |
| IRS990/ReportOtherLiabilitiesInd | 0 | false |
| IRS990/ReportProgramRelatedInvstInd | 0 | false |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt | 0 | FUNDRAISING EVENTS, GROSS RECEIPTS 310,671 |
| IRS990ScheduleA/Form990ScheduleAPartVIGrp/FormAndLineReferenceDesc | 0 | PART II, LINE 10 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearAmt | 0 | 732871 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus1YearAmt | 0 | 624084 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 603870 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 336274 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 358095 |
| IRS990ScheduleA/GiftsGrantsContriRcvd170Grp/TotalAmt | 0 | 2655194 |
| IRS990ScheduleA/GrossReceiptsRltdActivitiesAmt | 0 | 6187 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearAmt | 0 | 213572 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus1YearAmt | 0 | 70379 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 40508 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 117697 |
| IRS990ScheduleA/OtherIncome170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 82087 |
| IRS990ScheduleA/OtherIncome170Grp/TotalAmt | 0 | 524243 |
| IRS990ScheduleA/PublicOrganization170Ind | 0 | X |
| IRS990ScheduleA/PublicSupportCY170Pct | 0 | 0.57730 |
| IRS990ScheduleA/PublicSupportPY170Pct | 0 | 0.69010 |
| IRS990ScheduleA/PublicSupportTotal170Amt | 0 | 1835525 |
| IRS990ScheduleA/SubstantialContributorsTotAmt | 0 | 819669 |
| IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind | 0 | X |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt | 0 | 732871 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt | 0 | 624084 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt | 0 | 603870 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt | 0 | 336274 |
| IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt | 0 | 358095 |
| IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt | 0 | 2655194 |
| IRS990ScheduleA/TotalSupportAmt | 0 | 3179437 |
| IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorNum | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine1 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine2 | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode | 0 | RESTRICTED |
| IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt | 0 | RESTRICTED |
| IRS990/ScheduleBRequiredInd | 0 | true |
| IRS990ScheduleD/ExpensesNotReportedAmt | 0 | 77862 |
| IRS990ScheduleD/ExpensesSubtotalAmt | 0 | 610023 |
| IRS990ScheduleD/OtherExpensesIncludedAmt | 0 | 77862 |
| IRS990ScheduleD/OtherRevenueAmt | 0 | 77862 |
| IRS990ScheduleD/RevenueNotReportedAmt | 0 | 77862 |
| IRS990ScheduleD/RevenueSubtotalAmt | 0 | 868995 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 0 | SPECIAL EVENTS EXPENSE 77,862 |
| IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt | 1 | SPECIAL EVENTS EXPENSE 77,862 |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 0 | SCHEDULE D, PAGE 4, PART XI, LINE 2D |
| IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc | 1 | SCHEDULE D, PAGE 4, PART XII, LINE 2D |
| IRS990ScheduleD/TotalExpensesPerForm990Amt | 0 | 610023 |
| IRS990ScheduleD/TotalRevenuePerForm990Amt | 0 | 868995 |
| IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt | 0 | 946857 |
| IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt | 0 | 687885 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContributionsTotAmt | 0 | 477500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent1Amt | 0 | 342500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriEvent2Amt | 0 | 35000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/CharitableContriOtherEventsAmt | 0 | 100000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/DirectExpenseSummaryEventsAmt | 0 | 74307 |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event1Nm | 0 | YOUNG INVESTIGA |
| IRS990ScheduleG/FundraisingEventInformationGrp/Event2Nm | 0 | UA AMBASSADORS |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent1Amt | 0 | 408000 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsEvent2Amt | 0 | 147521 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsOtherEventsAmt | 0 | 135551 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossReceiptsTotalAmt | 0 | 691072 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent1Amt | 0 | 65500 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueEvent2Amt | 0 | 112521 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueOtherEventsAmt | 0 | 35551 |
| IRS990ScheduleG/FundraisingEventInformationGrp/GrossRevenueTotalEventsAmt | 0 | 213572 |
| IRS990ScheduleG/FundraisingEventInformationGrp/NetIncomeSummaryAmt | 0 | 139265 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssOtherEventsAmt | 0 | 12442 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OthDirectExpnssTotalEventsAmt | 0 | 74307 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent1Amt | 0 | 56065 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherDirectExpensesEvent2Amt | 0 | 5800 |
| IRS990ScheduleG/FundraisingEventInformationGrp/OtherEventsTotalCnt | 0 | 1 |
| IRS990ScheduleI/GrantRecordsMaintainedInd | 0 | true |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 0 | 20000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 1 | 20000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 2 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 3 | 20000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 4 | 20000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 5 | 10000 |
| IRS990ScheduleI/RecipientTable/CashGrantAmt | 6 | 20000 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 0 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 1 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 2 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 3 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 4 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 5 | 501C3 |
| IRS990ScheduleI/RecipientTable/IRCSectionDesc | 6 | 501C3 |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 0 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 1 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 2 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 3 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 4 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt | 5 | TO SUPPORT RESEARCH |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 0 | UT SOUTHWESTERN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 1 | CHILDREN'S HOSPITAL OF PHILADELPHIA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 2 | THE JACKSON LABORATORY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 3 | UNIVERSITY OF VIRGINIA |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 4 | BOSTON CHILDREN |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 5 | THE TRUSTEES OF COLUMBIA UNIVERSITY |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt | 6 | ICAHN SCHOOL OF MEDICINE AT MOUNT |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine2Txt | 0 | IN THE CITY OF NEW YORK |
| IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine2Txt | 1 | SINAI |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 0 | 756002868 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 1 | 232237932 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 2 | 010211513 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 3 | 546001796 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 4 | 042774441 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 5 | 135598093 |
| IRS990ScheduleI/RecipientTable/RecipientEIN | 6 | 136171197 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 0 | PO BOX 910888 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 1 | LOCKBOX 1457 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 2 | 10 DISCOVERY DRIVE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 3 | 1001 EMMET STREET NORTH |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 4 | PO BOX 414413 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 5 | 154 HAVEN AVENUE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt | 6 | 1 GUSTAVE L LEVY PLACE |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 0 | PO BOX 8500 |
| IRS990ScheduleI/RecipientTable/USAddress/AddressLine2Txt | 1 | SECOND FLOOR |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 0 | DALLAS |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 1 | PHILADELPHIA |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 2 | FARMINGTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 3 | CHARLOTTESVILLE |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 4 | BOSTON |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 5 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/CityNm | 6 | NEW YORK |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 0 | TX |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 1 | PA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 2 | CT |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 3 | VA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 4 | MA |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 5 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd | 6 | NY |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 0 | 753910888 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 1 | 191781457 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 2 | 06032 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 3 | 229034833 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 4 | 022414413 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 5 | 10032 |
| IRS990ScheduleI/RecipientTable/USAddress/ZIPCd | 6 | 10029 |
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Displayed year
2021 • Form 990Detailed filing. Detailed filing data is available for this year.