Civic Intelligence

National Organization for Disorders of the Corpus Callosum

EIN 33-1029337 • 501(c)3 • Yorba Linda, CA

Profile

The nodcc has become the leading nonprofit organization for the disorders of the corpus callosum and is dedicated to raising the profile, understanding and acceptance of these disorders through education, networking, advocacy and being a catalyst for research.

18032-c Lemon Drive Pmb 363Yorba Linda, CA 92886-3386

www.nodcc.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

33rd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

35th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

38th percentile

-0.8%

Higher net margin than 38% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

39th percentile

-0.7%

Faster asset growth than 39% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

91st percentile

101%

Faster revenue growth than 91% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Assets

Down

$511,624

Down $3,415 (-0.7%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$511,624

Down $3,415 (-0.7%) from 2023

Revenue

Up

$433,762

Up $217,933 (+101%) from 2023

Expenses

Up

$437,177

Up $294,183 (+206%) from 2023

Net Income

Down

-$3,415

Down $76,250 (-105%) from 2023

Trend Graphs

Balance Sheet Trend

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2012: $58,982Liabilities 2012: $0Net Assets 2012: $58,9822012Assets 2013: $75,259Net Assets 2013: $75,2592013Assets 2014: $94,678Liabilities 2014: $0Net Assets 2014: $94,6782014Assets 2015: $153,459Net Assets 2015: $153,4592015Assets 2016: $151,716Liabilities 2016: $0Net Assets 2016: $151,7162016Assets 2017: $234,289Liabilities 2017: $0Net Assets 2017: $234,2892017Assets 2018: $267,380Liabilities 2018: $0Net Assets 2018: $267,3802018Assets 2019: $291,025Liabilities 2019: $0Net Assets 2019: $291,0252019Assets 2020: $418,020Liabilities 2020: $0Net Assets 2020: $418,0202020Assets 2021: $472,514Liabilities 2021: $0Net Assets 2021: $472,5142021Assets 2022: $435,215Liabilities 2022: $0Net Assets 2022: $435,2152022Assets 2023: $515,039Liabilities 2023: $0Net Assets 2023: $515,0392023Assets 2024: $511,624Liabilities 2024: $0Net Assets 2024: $511,6242024

Highlighted filing

2024

Assets$511,624
Liabilities$0
Net Assets$511,624

Operations Trend

Revenue, expenses, and net income by year, with the latest filing highlighted.

$600K$400K$200K$0-$200KExpenses 2012: $185,1762012Revenue 2013: $113,466Expenses 2013: $97,189Net Income 2013: $16,2772013Revenue 2014: $221,450Expenses 2014: $202,031Net Income 2014: $19,4192014Revenue 2015: $163,448Expenses 2015: $104,666Net Income 2015: $58,7822015Revenue 2016: $322,267Expenses 2016: $324,010Net Income 2016: -$1,7432016Revenue 2017: $187,639Expenses 2017: $105,066Net Income 2017: $82,5732017Revenue 2018: $449,600Expenses 2018: $416,509Net Income 2018: $33,0912018Revenue 2019: $176,519Expenses 2019: $152,874Net Income 2019: $23,6452019Revenue 2020: $253,021Expenses 2020: $126,026Net Income 2020: $126,9952020Revenue 2021: $197,851Expenses 2021: $141,307Net Income 2021: $56,5442021Revenue 2022: $339,472Expenses 2022: $360,614Net Income 2022: -$21,1422022Revenue 2023: $215,829Expenses 2023: $142,994Net Income 2023: $72,8352023Revenue 2024: $433,762Expenses 2024: $437,177Net Income 2024: -$3,4152024

Highlighted filing

2024

Revenue$433,762
Expenses$437,177
Net Income-$3,415

Filings

Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 29, 2025
Return Version
2024v5.2
Gross Receipts
$438,507
Mission and Program Overview

Mission

Our mission is to enhance the quality of life and promote opportunities for individuals with disorders of the corpus callosum

The nodcc has become the leading nonprofit organization for the disorders of the corpus callosum and is dedicated to raising the profile, understanding and acceptance of these disorders through education, networking, advocacy and being a catalyst for research.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$331,111$358,224▲ $27,113
Cash and Non-Interest-Bearing Accounts$133,168$106,412▼ $26,756
Savings and Temporary Cash Investments$50,760$46,988▼ $3,772
Total Assets$515,039$511,624▼ $3,415
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$515,039$491,624▼ $23,415
Net Assets With Donor Restrictions-$20,000-
Total Net Assets Fund Balance$515,039$511,624▼ $3,415
Total Liabilities and Net Assets / Fund Balance$515,039$511,624▼ $3,415

Endowment Activity

PeriodBeginningContrib.Gain/LossOther UsesEnd
2024$35,532$20,000--$54,088
2023$37,676---$35,532
2022$39,152--$53$37,676
2021$42,767---$39,152
2020$46,682---$42,767
Compensation and Service Providers

Board Members and Trustees

NameTitle
Deona KalalaPresident
DAVE O'BRIENVice President
Dax NortonDirector
Elliott SherrDirector
Heather BahorichDirector
Ilana DavlinDirector
Jasmin TurnerDirector
Jennifer LittleDirector
Katherine ClaxtonDirector
Kip OrenDirector
Layton ShaffnerDirector
Leann SchoutenDirector
Mike MolettiereDirector
Thomas FreyDirector
Warren BrownDirector
Natalie ErbSecretary
Kevin HightTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$125,540
Program Service Revenue
$210,906
Investment Income
$27,120
Other Revenue
$70,196
All Other Contributions
$97,211
Change in Net Assets
$-3,415
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$437,177
Total Fundraising Expense$5,418
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Conferences and Meetings$270,497--$270,497
Fees for Services Management$58,800$11,025$3,675$73,500
Office Expenses$12,179$6,485-$18,664
Other Expenses$8,850$13,876-$8,850
Occupancy$4,256$1,064-$5,320
Information Technology$5,018$205-$5,223
Travel-$4,720-$4,720
Advertising--$1,743$1,743
Insurance-$1,658-$1,658
Fees for Services Accounting$525$525-$1,050
Total Functional Expenses$392,201$39,558$5,418$437,177
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Gross Income$74,941
Fundraising Direct Expenses$4,745
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Fundraising Events$74,941$74,941$4,745$70,196
Total Events$74,941$74,941$4,745$70,196
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
Yes

Governance Explanations

Form 990, Part VI, Section A, Line 3

Management duties are delegated to barbara fonseca who currently occupies a paid postion as executive director as approved by the board.

Form 990, Part VI, Section B, Line 11B

Prior to submission of the tax return, the form 990 is sent to all board members for review and comment

Form 990, Part VI, Section B, Line 12C

Conflict of interest forms are distributed annually to all parties and are required to be completed and returned. The forms and the policy are provided to all new board members. The returned forms are reviewed in accordance with the policy. When concerns about conflicts have arisen at board or board committee meetings, the policy is reviewed and the individual with the conflict is excused from that portion of the meeting.

Form 990, Part VI, Section C, Line 19

No documents available to the public

Filing and Contact Details

Filer

Filer Name
National Organization for Disorders
EIN
33-1029337
Phone
7148131393
Address
18032-C LEMON DRIVE PMB 363, YORBA LINDA, CA 92886-3386
Doing Business As
Nodcc

Signing Officer

Name
Deona Kalala
Title
President
Phone
7148131393
Signed
2025-09-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Deona Kalala
Formed
2005
Legal Domicile
Mn
Voting Board Members
17
Independent Board Members
17
Employees
0
Volunteers
30

Preparer

Firm
Mauldin & Jenkins LLC
Address
PO BOX 1877, MACON, GA 31202-1877
Preparer
Aaron W Marshall
Phone
4784648000
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IRS990/InvestmentsPubTradedSecGrp/BOYAmt0331111
IRS990/InvestmentsPubTradedSecGrp/EOYAmt0358224
IRS990/IRPDocumentCnt05
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0MN
IRS990/LoanOutstandingInd00
IRS990/LobbyingActivitiesInd00
IRS990/LocalChaptersInd00
IRS990/MaterialDiversionOrMisuseInd00
IRS990/MembershipDuesAmt028329
IRS990/MembersOrStockholdersInd00
IRS990/MethodOfAccountingCashInd0X
IRS990/MinutesOfCommitteesInd01
IRS990/MinutesOfGoverningBodyInd01
IRS990/MissionDesc0THE NODCC HAS BECOME THE LEADING NONPROFIT ORGANIZATION FOR THE DISORDERS OF THE CORPUS CALLOSUM AND IS DEDICATED TO RAISING THE PROFILE, UNDERSTANDING AND ACCEPTANCE OF THESE DISORDERS THROUGH EDUCATION, NETWORKING, ADVOCACY AND BEING A CATALYST FOR RESEARCH.
IRS990/MoreThan5000KToIndividualsInd00
IRS990/MoreThan5000KToOrgInd00
IRS990/NetAssetsOrFundBalancesBOYAmt0515039
IRS990/NetAssetsOrFundBalancesEOYAmt0511624
IRS990/NetIncmFromFundraisingEvtGrp/ExclusionAmt070196
IRS990/NetIncmFromFundraisingEvtGrp/TotalRevenueColumnAmt070196
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0515039
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0491624
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd00
IRS990/OccupancyGrp/ManagementAndGeneralAmt01064
IRS990/OccupancyGrp/ProgramServicesAmt04256
IRS990/OccupancyGrp/TotalAmt05320
IRS990/OfficeExpensesGrp/ManagementAndGeneralAmt06485
IRS990/OfficeExpensesGrp/ProgramServicesAmt012179
IRS990/OfficeExpensesGrp/TotalAmt018664
IRS990/OfficerMailingAddressInd00
IRS990/OperateHospitalInd00
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0COMMUNICATION CONSULTAN
IRS990/OtherExpensesGrp/Desc1BOARD MEETINGS
IRS990/OtherExpensesGrp/Desc2EDUCATION/SCIENTIFIC MT
IRS990/OtherExpensesGrp/Desc3NODCC REGISTRY AND WEBS
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt013876
IRS990/OtherExpensesGrp/ProgramServicesAmt023065
IRS990/OtherExpensesGrp/ProgramServicesAmt19011
IRS990/OtherExpensesGrp/ProgramServicesAmt28850
IRS990/OtherExpensesGrp/TotalAmt023065
IRS990/OtherExpensesGrp/TotalAmt113876
IRS990/OtherExpensesGrp/TotalAmt29011
IRS990/OtherExpensesGrp/TotalAmt38850
IRS990/OtherWebsiteInd0X
IRS990/OwnWebsiteInd0X
IRS990/PartialLiquidationInd00
IRS990/PoliticalCampaignActyInd00
IRS990/PrincipalOfficerNm0DEONA KALALA
IRS990/ProfessionalFundraisingInd00
IRS990/ProgramServiceRevenueGrp/BusinessCd0541900
IRS990/ProgramServiceRevenueGrp/Desc0PROJECT INCOME
IRS990/ProgramServiceRevenueGrp/RelatedOrExemptFuncIncomeAmt0210906
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0210906
IRS990/ProgSrvcAccomActy2Grp/Desc0THE NODCC IS DEEPLY COMMITTED TO IMPROVING THE LIVES OF THOSE AFFECTED BY A DISORDER OF THE CORPUS CALLOSUM BY PROVIDING DIRECT SUPPORT AS WELL AS EDUCATIONAL RESOURCES IN COLLABORATION WITH A WIDE RANGE OF STAKEHOLDERS TO RAISE AWARENESS AND KNOWLEDGE. IN 2024, NODCC STAFF PROVIDED ONE ON ONE SUPPORT THROUGH PHONE CALLS, EMAILS AND INTERACTIONS ON SOCIAL MEDIA. WE PROVIDED WELCOME PACKETS TO NEWLY DIAGNOSED FAMILIES. WE MAINTAIN AN INCREASING NUMBER OF RESOURCES ON OUR WEBSITE, BROCHURE, EDUCATIONAL BOOKLETS, AND EDUCATIONAL VIDEOS ON YOUTUBE.
IRS990/ProgSrvcAccomActy2Grp/ExpenseAmt062895
IRS990/ProgSrvcAccomActy3Grp/Desc0THE NODCC CONFERENCE AND REGIONAL MEETINGS ARE A WAY OF PROVIDING SUPPORT AND COMMUNITY TO OUR FAMILIES AFFECTED BY DCC.
IRS990/ProgSrvcAccomActy3Grp/ExpenseAmt0296386
IRS990/ProgSrvcAccomActy3Grp/RevenueAmt0209605
IRS990/ProhibitedTaxShelterTransInd00
IRS990/PYBenefitsPaidToMembersAmt00
IRS990/PYContributionsGrantsAmt0119037
IRS990/PYExcessBenefitTransInd00
IRS990/PYGrantsAndSimilarPaidAmt00
IRS990/PYInvestmentIncomeAmt011799
IRS990/PYOtherExpensesAmt0142994
IRS990/PYOtherRevenueAmt028140
IRS990/PYProgramServiceRevenueAmt056853
IRS990/PYRevenuesLessExpensesAmt072835
IRS990/PYSalariesCompEmpBnftPaidAmt00
IRS990/PYTotalExpensesAmt0142994
IRS990/PYTotalProfFndrsngExpnsAmt00
IRS990/PYTotalRevenueAmt0215829
IRS990/QuidProQuoContributionsInd00
IRS990/ReconcilationRevenueExpnssAmt0-3415
IRS990/RegularMonitoringEnfrcInd01
IRS990/RelatedEntityInd00
IRS990/RelatedOrganizationCtrlEntInd00
IRS990/ReportInvestmentsOtherSecInd00
IRS990/ReportLandBuildingEquipmentInd00
IRS990/ReportOtherAssetsInd00
IRS990/ReportOtherLiabilitiesInd00
IRS990/ReportProgramRelatedInvstInd00
IRS990/RevenueAmt01301
IRS990/SavingsAndTempCashInvstGrp/BOYAmt050760
IRS990/SavingsAndTempCashInvstGrp/EOYAmt046988
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0160543
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0119037
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0112795
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0124901
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0229911
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt0747187
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt027120
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt011799
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt038919
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0285847
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt091919
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0226677
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt072950
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt023110
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0700503
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt027120
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt011799
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt038919
IRS990ScheduleA/InvestmentIncomeCYPct00.02620
IRS990ScheduleA/InvestmentIncomePYPct00.01000
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY509Pct00.97380
IRS990ScheduleA/PublicSupportPY509Pct00.99010
IRS990ScheduleA/PublicSupportTotal509Amt01447690
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IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
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IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0446390
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0210956
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0339472
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0197851
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0253021
IRS990ScheduleA/Total509Grp/TotalAmt01447690
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearAmt0473510
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus1YearAmt0222755
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus2YearsAmt0339472
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus3YearsAmt0197851
IRS990ScheduleA/TotalSupportCalendarYearGrp/CurrentTaxYearMinus4YearsAmt0253021
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt01486609
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd01
IRS990ScheduleD/CYEndwmtFundGrp/AdministrativeExpensesAmt01444
IRS990ScheduleD/CYEndwmtFundGrp/BeginningYearBalanceAmt035532
IRS990ScheduleD/CYEndwmtFundGrp/ContributionsAmt020000
IRS990ScheduleD/CYEndwmtFundGrp/EndYearBalanceAmt054088
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/AdministrativeExpensesAmt0107
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/BeginningYearBalanceAmt037676
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/EndYearBalanceAmt035532
IRS990ScheduleD/CYMinus1YrEndwmtFundGrp/GrantsOrScholarshipsAmt02037
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/AdministrativeExpensesAmt099
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/BeginningYearBalanceAmt039152
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/EndYearBalanceAmt037676
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/GrantsOrScholarshipsAmt01324
IRS990ScheduleD/CYMinus2YrEndwmtFundGrp/OtherExpendituresAmt053
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/BeginningYearBalanceAmt042767
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/EndYearBalanceAmt039152
IRS990ScheduleD/CYMinus3YrEndwmtFundGrp/GrantsOrScholarshipsAmt03615
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/BeginningYearBalanceAmt046682
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/EndYearBalanceAmt042767
IRS990ScheduleD/CYMinus4YrEndwmtFundGrp/GrantsOrScholarshipsAmt03915
IRS990ScheduleD/EndowmentsHeldRelatedOrgInd00

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