Liabilities / Assets
59th percentile
Tied with the lowest-debt nonprofits in its peer group.
Aps Type 1 Foundation Inc
EIN 32-0241819 • 501(c)3 • Stony Brook, NY
Pub. 78 Eligible990-N CoverageNTEE G80
Profile
Raise awareness, education and research related to APS Type 1, a rare autoimmune disease.
Siviq Scores
Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.
0.00x
Liabilities / Revenue
61st percentile
Tied with the lowest-debt nonprofits in its peer group.
Net Margin
86th percentile
Higher net margin than 86% of similar nonprofits.
Top Officer Pay
95th percentile
Higher top officer pay than 95% of similar nonprofits.
Top officer pay equals 20.1% of source-year revenue.
Asset Growth
63rd percentile
Faster asset growth than 63% of similar nonprofits.
Revenue Growth
73rd percentile
Faster revenue growth than 73% of similar nonprofits.
Balance Sheet
Assets
Up$359,039
Up $61,860 (+21%) from 2023
Liabilities
Flat$0
Flat from 2023
Net Assets
Up$359,039
Up $61,860 (+21%) from 2023
Revenue
Up$161,120
Up $26,670 (+20%) from 2023
Expenses
Down$99,278
Down $33,707 (-25%) from 2023
Net Income
Up$61,842
Up $60,377 (+4121%) from 2023
Trend Graphs
Filings
Most recent year
2024 • Form 990EZDetailed filing. Detailed filing data is available for this year.
- Assets
- $359,039
- Liabilities
- $0
- Net assets
- $359,039
- Revenue
- $161,120
- Expenses
- $99,278
- Net income
- $61,842
Latest Filing Detail
Jump To
Filing Snapshot
- Filing Period
- Jan 1, 2024 to Dec 31, 2024
- Signed
- May 13, 2025
- Return Version
- 2024v5.0
- Gross Receipts
- $161,120
Mission and Program Overview
Mission
Raise awareness, education and research related to APS Type 1, a rare autoimmune disease.
The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this autoimmune disorder.
Program Services
| Description | Grants | Expenses |
|---|---|---|
| The APS Type 1 Foundation's community is approximately 200 in North America and counting. There are many undiagnosed APS Type 1 patients. Diagnosis can take 4-5 years. The Foundation's accomplishments for 2024 include Education: This July, The APS Type 1 Foundation Inc. will hold its 6th Biannual International Symposium on APS Type 1 in San Francisco, California. This will provide much-needed education, especially for the newly diagnosed patients, their families, physicians, and clinicians worldwide. We are helping to promote best practices and increase research interest throughout the world. Awareness: The Foundation held our second Global Summit in San Francisco in July 2024. For this event, the Foundation partnered with the Clinical Immunology Society and the National Institute of Allergy and Infectious Diseases. We produce a quarterly newsletter and continue awareness and education on social media platforms. Research: The Foundation continues to fund research in APS Type 1, also known as APECED, typically every two years. We continue to run the first-ever Natural History Study on APS Type 1. | $250 | $0 |
Compensation and Service Providers
Employees
| Name | Title | Full / Part Time | Base | Other | Total |
|---|---|---|---|---|---|
| Svetlana Hutfles | Executive Director | PT | $32,308 | - | $32,308 |
| Sherri Seyfert | Treasurer | PT | $0 | - | - |
| Todd Talarico | President | PT | $0 | - | - |
| Jennifer Orange | Vice President | PT | $0 | - | - |
| Robin Finch | Secretary | PT | $0 | - | - |
| David Seyfert | Board Member | PT | $0 | - | - |
| Pushpa Rao | Board Member | PT | $0 | - | - |
| Julia Richardson | Board Member | PT | $0 | - | - |
| Laura Rivard | Board Member | PT | $0 | - | - |
Filing and Contact Details
Filer
- Filer Name
- APS TYPE 1 FOUNDATION Inc
- EIN
- 32-0241819
- Phone
- 6316825550
- Address
- PO Box 404 12 Sand Street, Stony Brook, NY 11790
Signing Officer
- Name
- Sherri Seyfert
- Title
- Treasurer
- Phone
- 6316825550
- Signed
- 2025-05-13
Supplemental Narrative
Additional Explanations
Form 990-EZ, Part I, Line 8
“Grant for registration fee to the NORD (National Organization for Rare Disorders) Conference”
Form 990-EZ, Part I, Line 16
“Part 1, Line 16: The APS Type 1 foundation, Inc expenses include $3500. to North Star IRB for the Naatural History Registry, $6599 on the Global Physician and Scientist meeting in June 2024 and upcoming 2025 6th International Symposium, $4,585 on Insurance including General Liability, Officers and Directors and Media liability, $400. in membership fee;s to NORD, $5,699 fundraising expenses, Bank Fees $40, $14,961 to The Park Group for Administrative support, $92 for background check and $40 in banking fees. $7,085 Annual in person Board Conference in NYC. $23597 in additinal Operational Expenses including, Website, Promotional Expenses, Accounting Software, Maichimp, Benevity Fee, Stripe Fee, Printing, Go Daddy, Zoom, Attorney Fee, Board member attending a conference at IndoUSRare in India, Payroll Service, and Payroll Reimbursements ( Health Care, Internet, Phone)”
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| IRS990EZ/PrimaryExemptPurposeTxt | 0 | The APS Type 1 Foundation unites and empowers a global community to drive awareness, education, and groundbreaking research for APS Type 1, transforming lives affected by this autoimmune disorder. |
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| IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt | 0 | The APS Type 1 Foundation's community is approximately 200 in North America and counting. There are many undiagnosed APS Type 1 patients. Diagnosis can take 4-5 years. The Foundation's accomplishments for 2024 include Education: This July, The APS Type 1 Foundation Inc. will hold its 6th Biannual International Symposium on APS Type 1 in San Francisco, California. This will provide much-needed education, especially for the newly diagnosed patients, their families, physicians, and clinicians worldwide. We are helping to promote best practices and increase research interest throughout the world. Awareness: The Foundation held our second Global Summit in San Francisco in July 2024. For this event, the Foundation partnered with the Clinical Immunology Society and the National Institute of Allergy and Infectious Diseases. We produce a quarterly newsletter and continue awareness and education on social media platforms. Research: The Foundation continues to fund research in APS Type 1, also known as APECED, typically every two years. We continue to run the first-ever Natural History Study on APS Type 1. |
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| IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt | 1 | Part 1, Line 16: The APS Type 1 foundation, Inc expenses include $3500. to North Star IRB for the Naatural History Registry, $6599 on the Global Physician and Scientist meeting in June 2024 and upcoming 2025 6th International Symposium, $4,585 on Insurance including General Liability, Officers and Directors and Media liability, $400. in membership fee;s to NORD, $5,699 fundraising expenses, Bank Fees $40, $14,961 to The Park Group for Administrative support, $92 for background check and $40 in banking fees. $7,085 Annual in person Board Conference in NYC. $23597 in additinal Operational Expenses including, Website, Promotional Expenses, Accounting Software, Maichimp, Benevity Fee, Stripe Fee, Printing, Go Daddy, Zoom, Attorney Fee, Board member attending a conference at IndoUSRare in India, Payroll Service, and Payroll Reimbursements ( Health Care, Internet, Phone) |
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