Civic Intelligence

Kleine-Levin Syndrome Foundation In

EIN 31-1685893 • 501(c)3 • San Jose, CA

Profile

Research education and patient and family outreach

PO Box 5382San Jose, CA 95150-5382

www.klsfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

60th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Liabilities / Revenue

62nd percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2024

Net Margin

10th percentile

-97%

Higher net margin than 10% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2024

Top Officer Pay

81st percentile

$0

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2024

Asset Growth

44th percentile

-5.8%

Faster asset growth than 44% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Revenue Growth

18th percentile

-51%

Faster revenue growth than 18% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets60th percentile

Assets

Down

$421,198

Down $7,736 (-1.8%) from 2022

Liabilities

Flat

$0

Flat from 2022

Net Assets

Down

$421,198

Down $7,736 (-1.8%) from 2022

Operations
Liabilities / Revenue62nd percentileNet Margin10th percentile

Revenue

Down

$30,450

Down $56,257 (-65%) from 2022

Expenses

Up

$59,843

Up $22,076 (+58%) from 2022

Net Income

Down

-$29,393

Down $78,333 (-160%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth44th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2017: $320,247Liabilities 2017: $0Net Assets 2017: $320,2472017Assets 2018: $385,569Liabilities 2018: $0Net Assets 2018: $385,5692018Assets 2019: $312,088Liabilities 2019: $0Net Assets 2019: $312,0882019Assets 2020: $336,180Liabilities 2020: $0Net Assets 2020: $336,1802020Assets 2021: $379,919Liabilities 2021: $0Net Assets 2021: $379,9192021Assets 2022: $428,934Liabilities 2022: $0Net Assets 2022: $428,9342022Assets 2024: $421,198Liabilities 2024: $0Net Assets 2024: $421,1982024

Highlighted filing

2024

Assets$421,198
Liabilities$0
Net Assets$421,198
Open 2024 Filing

Operations Trend

Revenue Growth18th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$300K$200K$100K$0-$100KRevenue 2017: $155,752Expenses 2017: $59,333Net Income 2017: $96,4192017Revenue 2018: $228,016Expenses 2018: $162,694Net Income 2018: $65,3222018Revenue 2019: $134,835Expenses 2019: $208,316Net Income 2019: -$73,4812019Revenue 2020: $60,096Expenses 2020: $36,005Net Income 2020: $24,0912020Revenue 2021: $106,938Expenses 2021: $70,964Net Income 2021: $35,9742021Revenue 2022: $86,707Expenses 2022: $37,767Net Income 2022: $48,9402022Revenue 2024: $30,450Expenses 2024: $59,843Net Income 2024: -$29,3932024

Highlighted filing

2024

Revenue$30,450
Expenses$59,843
Net Income-$29,393
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$421,198
Liabilities
$0
Net assets
$421,198
Revenue
$30,450
Expenses
$59,843
Net income
-$29,393
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.21$0.00$4.21$0.30$0.60$0.29
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.29$0.00$4.29$0.87$0.38$0.49
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.80$0.00$3.80$1.07$0.71$0.36
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.36$0.00$3.36$0.60$0.36$0.24
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$3.12$0.00$3.12$1.35$2.08$0.73
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.86$0.00$3.86$2.28$1.63$0.65
2017Detailed filing. Detailed filing data is available for this year.$3.20$0.00$3.20$1.56$0.59$0.96
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2019 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2019 to Dec 31, 2019
Signed
Mar 1, 2020
Return Version
2019v5.0
Gross Receipts
$134,835
Mission and Program Overview

Mission

Research education and patient and family outreach

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$294,994$221,441▼ $73,553
Savings and Temporary Cash Investments$90,575$90,647▲ $72
Total Assets$385,569$312,088▼ $73,481
Liabilities
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$385,569$312,088▼ $73,481
Total Net Assets Fund Balance$385,569$312,088▼ $73,481
Total Liabilities and Net Assets / Fund Balance$385,569$312,088▼ $73,481
Compensation and Service Providers
Top Officer Pay81st percentile

Board Members and Trustees

NameTitle
Stephen T MaierPresident
Dani FarberDirector
Lori Haller SchillerDirector
Richard B MaierTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$134,762
Program Service Revenue
$0
Investment Income
$73
Other Revenue
$0
All Other Contributions
$134,762
Change in Net Assets
$-73,481
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$184,101
Other Expenses$24,215
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$184,101--$184,101
Other Expenses$1,771--$1,771
Office Expenses$34--$34
Total Functional Expenses$208,316$0$0$208,316
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Thriverx LLCLodi, NJ-Research Supercomputer Time$100,000
Stanford UniversityPalo Alto, CA-Sleep Study$84,101
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Family members included on board of directors”

Form 990 governing body review Part VI line 11

“REVIEW BY BOARD”

Governing documents etc available to public Part VI line 19

“All documents available on request”

Filing and Contact Details

Filer

Filer Name
Kleine-levin Syndrome Foundation in
EIN
31-1685893
Address
PO BOX 5382, San Jose, CA 95150-5382
Doing Business As
Kleine-levin Syndrome Foundati

Signing Officer

Name
Richard B Maier
Title
Treasurer
Phone
4082691099
Signed
2020-03-01
Discuss with paid preparer
No

Organization Details

Formed
1999
Legal Domicile
CA
Voting Board Members
8
Independent Board Members
8
Employees
0
Volunteers
10

Preparer

Firm
Maier Richmond Accountancy
Address
3595 ALMADEN ROAD, San Jose, CA 95118
Preparer
Richard B Maier
Phone
4082694402
Supplemental Narrative

Additional Explanations

List of other expenses Part IX line 24E

“SEE ATTACHED”

Raw XML Appendix320 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/EmployeeCnt00
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IRS990/ExpenseAmt0208316
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IRS990/Form990PartVIISectionAGrp/OtherCompensationAmt30
IRS990/Form990PartVIISectionAGrp/PersonNm0DANI FARBER
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IRS990/Form990PartVIISectionAGrp/ReportableCompFromOrgAmt00
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IRS990/Form990PartVIISectionAGrp/TitleTxt2PRESIDENT
IRS990/Form990PartVIISectionAGrp/TitleTxt3TREASURER
IRS990/Form990ProvidedToGvrnBodyInd0true
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IRS990/GrantsToIndividualsInd0false
IRS990/GrantsToOrganizationsInd0true
IRS990/GrantToRelatedPersonInd0false
IRS990/GrossReceiptsAmt0134835
IRS990/GroupReturnForAffiliatesInd0false
IRS990/IncludeFIN48FootnoteInd0false
IRS990/IndependentAuditFinclStmtInd0false
IRS990/IndependentVotingMemberCnt08
IRS990/IndivRcvdGreaterThan100KCnt00
IRS990/IndoorTanningServicesInd0false
IRS990/InfoInScheduleOPartIXInd0X
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IRS990/InvestmentIncomeGrp/RelatedOrExemptFuncIncomeAmt073
IRS990/InvestmentIncomeGrp/TotalRevenueColumnAmt073
IRS990/InvestmentInJointVentureInd0false
IRS990/IRPDocumentCnt00
IRS990/IRPDocumentW2GCnt00
IRS990/LegalDomicileStateCd0CA
IRS990/LoanOutstandingInd0false
IRS990/LobbyingActivitiesInd0false
IRS990/LocalChaptersInd0false
IRS990/MaterialDiversionOrMisuseInd0false
IRS990/MembersOrStockholdersInd0false
IRS990/MethodOfAccountingAccrualInd0X
IRS990/MinutesOfCommitteesInd0true
IRS990/MinutesOfGoverningBodyInd0true
IRS990/MissionDesc0RESEARCH EDUCATION AND PATIENT AND FAMILY OUTREACH
IRS990/MoreThan5000KToIndividualsInd0false
IRS990/MoreThan5000KToOrgInd0false
IRS990/NetAssetsOrFundBalancesBOYAmt0385569
IRS990/NetAssetsOrFundBalancesEOYAmt0312088
IRS990/NetUnrelatedBusTxblIncmAmt00
IRS990/NoDonorRestrictionNetAssetsGrp/BOYAmt0385569
IRS990/NoDonorRestrictionNetAssetsGrp/EOYAmt0312088
IRS990/NoListedPersonsCompensatedInd0X
IRS990/NondeductibleContributionsInd0false
IRS990/OfficeExpensesGrp/ProgramServicesAmt034
IRS990/OfficeExpensesGrp/TotalAmt034
IRS990/OfficerMailingAddressInd0false
IRS990/OperateHospitalInd0false
IRS990/Organization501c3Ind0X
IRS990/OrganizationFollowsFASB117Ind0X
IRS990/OtherChangesInNetAssetsAmt00
IRS990/OtherExpensesGrp/Desc0CONSULTING
IRS990/OtherExpensesGrp/Desc1RUN FOR RYAN
IRS990/OtherExpensesGrp/Desc2OTHER
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IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PoliticalCampaignActyInd0false
IRS990/ProfessionalFundraisingInd0false
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0227944
IRS990/PYExcessBenefitTransInd0false
IRS990/PYGrantsAndSimilarPaidAmt079605
IRS990/PYInvestmentIncomeAmt072
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IRS990/ReconcilationRevenueExpnssAmt0-73481
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IRS990/RevenueAmt0134762
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3List of other expenses Part IX line 24e
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ReturnHeader/BuildTS02020-09-22 18:59:49Z
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ReturnHeader/Filer/USAddress/StateAbbreviationCd0CA
ReturnHeader/Filer/USAddress/ZIPCd0951505382
ReturnHeader/FilingSecurityInformation/AtSubmissionCreationDeviceId0C4911E394D5C2CCB0037D83CD8538B77B932A4A8
ReturnHeader/FilingSecurityInformation/AtSubmissionFilingDeviceId0C4911E394D5C2CCB0037D83CD8538B77B932A4A8
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionId07741902020063kpxb4lr
ReturnHeader/FilingSecurityInformation/FederalOriginalSubmissionIdDt02020-03-03
ReturnHeader/FilingSecurityInformation/FilingLicenseTypeCd0P
ReturnHeader/FilingSecurityInformation/IPAddress/IPv4AddressTxt0198.136.43.50
ReturnHeader/FilingSecurityInformation/IPDt02020-03-03
ReturnHeader/FilingSecurityInformation/IPTm011:51:27
ReturnHeader/PreparerFirmGrp/PreparerFirmEIN0770504849
ReturnHeader/PreparerFirmGrp/PreparerFirmName/BusinessNameLine1Txt0MAIER RICHMOND ACCOUNTANCY
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/AddressLine1Txt03595 ALMADEN ROAD
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/CityNm0San Jose
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/StateAbbreviationCd0CA
ReturnHeader/PreparerFirmGrp/PreparerUSAddress/ZIPCd095118
ReturnHeader/PreparerPersonGrp/PhoneNum04082694402
ReturnHeader/PreparerPersonGrp/PreparationDt02020-02-29
ReturnHeader/PreparerPersonGrp/PreparerPersonNm0Richard B Maier
ReturnHeader/ReturnTs02020-02-29T14:26:43-05:00
ReturnHeader/ReturnTypeCd0990
ReturnHeader/TaxPeriodBeginDt02019-01-01
ReturnHeader/TaxPeriodEndDt02019-12-31
ReturnHeader/TaxYr02019

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