Civic Intelligence

North American Pediatric Renal

EIN 31-1673897 • 501(c)3 • Andover, MA

Profile

To register and monitor greater than 80% of the children receiving renal allografts in north america, and to study the clinical course and natural history of patients with renal dysfunction

Refreshing map…

10 Stevens StAndover, MA 01810

www.naprtcs.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

82nd percentile

0.35x

Higher debt load relative to assets than 82% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Liabilities / Revenue

70th percentile

0.10x

Higher debt load relative to revenue than 70% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Net Margin

29th percentile

-5.6%

Higher net margin than 29% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Top Officer Pay

55th percentile

$0

Higher top officer pay than 55% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $500k-$1M nonprofits • Source year 2024

Asset Growth

15th percentile

-18%

Faster asset growth than 15% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Revenue Growth

82nd percentile

49%

Faster revenue growth than 82% of similar nonprofits.

501(c)3 • $500k-$1M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets82nd percentile

Assets

Down

$222,211

Down $82,603 (-27%) from 2022

Liabilities

Down

$77,551

Down $6,606 (-7.8%) from 2022

Net Assets

Down

$144,660

Down $75,997 (-34%) from 2022

Operations
Liabilities / Revenue70th percentileNet Margin29th percentile

Revenue

Up

$794,139

Up $436,692 (+122%) from 2022

Expenses

Up

$838,780

Up $392,982 (+88%) from 2022

Net Income

Up

-$44,641

Up $43,710 (+49%) from 2022

Trend Graphs

Balance Sheet Trend

Asset Growth15th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$2.0M$1.5M$1.0M$500K$0Assets 2011: $969,958Liabilities 2011: $348,085Net Assets 2011: $621,8732011Assets 2012: $914,281Liabilities 2012: $223,336Net Assets 2012: $690,9452012Assets 2014: $1,436,533Liabilities 2014: $416,329Net Assets 2014: $1,020,2042014Assets 2015: $1,810,774Liabilities 2015: $457,041Net Assets 2015: $1,353,7332015Assets 2016: $1,697,264Liabilities 2016: $196,508Net Assets 2016: $1,500,7562016Assets 2018: $1,428,675Liabilities 2018: $199,919Net Assets 2018: $1,228,7562018Assets 2019: $917,379Liabilities 2019: $67,039Net Assets 2019: $850,3402019Assets 2020: $641,700Liabilities 2020: $102,311Net Assets 2020: $539,3892020Assets 2021: $396,735Liabilities 2021: $87,727Net Assets 2021: $309,0082021Assets 2022: $304,814Liabilities 2022: $84,157Net Assets 2022: $220,6572022Assets 2024: $222,211Liabilities 2024: $77,551Net Assets 2024: $144,6602024

Highlighted filing

2024

Assets$222,211
Liabilities$77,551
Net Assets$144,660
Open 2024 Filing

Operations Trend

Revenue Growth82nd percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$2.0M$1.0M$0-$1.0MExpenses 2011: $738,5372011Expenses 2012: $881,0262012Revenue 2014: $975,446Expenses 2014: $1,142,899Net Income 2014: -$167,4532014Revenue 2015: $1,654,462Expenses 2015: $1,320,933Net Income 2015: $333,5292015Revenue 2016: $1,189,451Expenses 2016: $1,042,428Net Income 2016: $147,0232016Revenue 2018: $528,348Expenses 2018: $779,139Net Income 2018: -$250,7912018Revenue 2019: $367,277Expenses 2019: $745,693Net Income 2019: -$378,4162019Revenue 2020: $359,740Expenses 2020: $670,691Net Income 2020: -$310,9512020Revenue 2021: $324,252Expenses 2021: $553,946Net Income 2021: -$229,6942021Revenue 2022: $357,447Expenses 2022: $445,798Net Income 2022: -$88,3512022Revenue 2024: $794,139Expenses 2024: $838,780Net Income 2024: -$44,6412024

Highlighted filing

2024

Revenue$794,139
Expenses$838,780
Net Income-$44,641
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Facts available. Structured filing facts are available, but richer extracted sections are limited.

Open filing
Assets
$222,211
Liabilities
$77,551
Net assets
$144,660
Revenue
$794,139
Expenses
$838,780
Net income
-$44,641
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.22$0.08$0.14$0.79$0.84$0.04
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.30$0.08$0.22$0.36$0.45$0.09
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.40$0.09$0.31$0.32$0.55$0.23
2020Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.64$0.10$0.54$0.36$0.67$0.31
2019Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.92$0.07$0.85$0.37$0.75$0.38
2018XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.43$0.20$1.23$0.53$0.78$0.25
2016XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.70$0.20$1.50$1.19$1.04$0.15
2015Detailed filing. Detailed filing data is available for this year.$1.81$0.46$1.35$1.65$1.32$0.33
2014Detailed filing. Detailed filing data is available for this year.$1.44$0.42$1.02$0.98$1.14$0.17
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.91$0.22$0.69$0.88
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.97$0.35$0.62$0.74
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Sep 29, 2025
Return Version
2024v5.2
Gross Receipts
$794,139
Mission and Program Overview

Mission

To register and monitor greater than 80% of the children receiving renal allografts in north america, and to study the clinical course and natural history of patients with renal dysfunction

To register and monitor greater than 80% of the children receiving renal allografts in North America, and to study the clinical course and natural history of patients with renal dysfunction.

Balance Sheet Detail
LineBeginningEndChange
Assets
Accounts Receivable$198,885$123,202▼ $75,683
Cash and Non-Interest-Bearing Accounts$67,013$93,967▲ $26,954
Prepaid Expenses and Deferred Charges$4,312$5,042▲ $730
Land, Buildings, and Equipment, Net$85$0▼ $85
Investments Other Securities$0--
Total Assets$270,295$222,211▼ $48,084
Liabilities
Accounts Payable and Accrued Expenses$80,994$77,551▼ $3,443
Total Liabilities$80,994$77,551▼ $3,443
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$189,301$144,660▼ $44,641
Total Net Assets Fund Balance$189,301$144,660▼ $44,641
Total Liabilities and Net Assets / Fund Balance$270,295$222,211▼ $48,084

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$0$2,368-
Compensation and Service Providers
Top Officer Pay55th percentile

Board Members and Trustees

NameTitle
Alicia Neu MDPresident
Bradley Warady MDVice President
Jodi SmithBoard Member
Michael Somers MDBoard Member
Tom Blydt-Hansen MDBoard Member
Vikas Dharnidharka MDBoard Member
Stuart Goldstein MDSecretary/Treasurer

Highest Paid Contractors

ContractorServicesLocationCompensation
The Emmes CorporationRegistry Support401 N Washington St, Rockville, MD 20850$292,721
Revenue and Support

Revenue Composition

Contributions and Grants
$598,612
Program Service Revenue
$195,000
Investment Income
$0
Other Revenue
$527
All Other Contributions
$598,612
Change in Net Assets
$-44,641

Audited Revenue Reconciliation

Revenue per Audited Statements
$794,139
Total Revenue per Audited Statements
$794,139
Total Revenue per Form 990
$794,139
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$742,421
Salaries, Compensation, and Employee Benefits$96,359
Grants and Similar Amounts Paid$0
Professional Fundraising Fees$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
All Other Expenses$292,985$35$0$293,020
Fees for Services Other$0$99,580$0$99,580
Current Officers, Directors, Trustees, and Key Employees$86,094$0$0$86,094
Fees for Services Legal$0$63,216$0$63,216
Insurance$0$11,717$0$11,717
Conferences and Meetings$8,607$0$0$8,607
Fees for Services Accounting$0$8,019$0$8,019
Payroll Taxes$7,252$0$0$7,252
Office Expenses$0$4,373$0$4,373
Pension Plan Contributions$3,013$0$0$3,013
Other Expenses$260$0$0$260
Depreciation Depletion$0$86$0$86
Total Functional Expenses$651,754$187,026$0$838,780

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$838,780
Total Expenses per Audited Statements$838,780
Total Expenses per Form 990$838,780
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Bradley Warady MDBoard MemberInvestigator StudyNo$1,500
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
Yes
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
North American Pediatric Renal Transplant Case Study Inc
EIN
31-1673897
Phone
7819449868
Address
10 Stevens St, Andover, MA 01810

Signing Officer

Name
Stuart Goldstein MD
Title
Secretary/Treasurer
Phone
7819449868
Signed
2025-09-29
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Alicia Neu MD
Formed
1999
Legal Domicile
Ma
Voting Board Members
7
Independent Board Members
7
Employees
1
Volunteers
0

Preparer

Firm
SCHULMAN BLACK & KATZ LLP CPA'S
Address
475 ROUTE 304, NEW CITY, NY 10956
Preparer
Joel Black CPA
Phone
8456384600
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

“Organizations process to review Form 990 Copy of Form 990 Provided Each Member of the Board of Directors Prior To Filing”

Pt VI, Line 12C

“Enforcement of conflicts policy, Annual Disclosure and Acknowledgement by each member of the Board of Directors”

Pt VI, Line 19

“Governing documents disclosure explanation, No Governing documents made available”

Form 990, Part IX, Line 11G

“Employment Services 99580. 0. 99580. 0.”

Form 990, Part IX, Line 24E

“Clinical Trials Consult 1500. 1500. 0. 0.”

Form 990, Part IX, Line 24E

“Bank Charges 35. 0. 35. 0.”

Form 990, Part IX, Line 24E

“Other Business Expense 1022. 1022. 0. 0.”

Form 990, Part IX, Line 24E

“Cystinosis Registry 32989. 32989. 0. 0.”

Form 990, Part IX, Line 24E

“Care DX Cell-free DNA Registry 88910. 88910. 0. 0.”

Form 990, Part IX, Line 24E

“Otsuka 204 75007. 75007. 0. 0.”

Form 990, Part IX, Line 24E

“Otsuka 307 74987. 74987. 0. 0.”

Form 990, Part IX, Line 24E

“Amgen 20140135 12110. 12110. 0. 0.”

Form 990, Part IX, Line 24E

“NAPRTCS PHIS Data Merge 4460. 4460. 0. 0.”

Form 990, Part IX, Line 24E

“Clinical Trials Budget Review 2000. 2000. 0. 0.”

Raw XML AppendixShowing 400 of 459 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/OtherExpensesGrp/FundraisingAmt30
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt00
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt10
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt20
IRS990/OtherExpensesGrp/ManagementAndGeneralAmt30
IRS990/OtherExpensesGrp/ProgramServicesAmt0233721
IRS990/OtherExpensesGrp/ProgramServicesAmt119087
IRS990/OtherExpensesGrp/ProgramServicesAmt2735
IRS990/OtherExpensesGrp/ProgramServicesAmt3260
IRS990/OtherExpensesGrp/TotalAmt0233721
IRS990/OtherExpensesGrp/TotalAmt119087
IRS990/OtherExpensesGrp/TotalAmt2735
IRS990/OtherExpensesGrp/TotalAmt3260
IRS990/OtherRevenueTotalAmt0527
IRS990/PartialLiquidationInd0false
IRS990/PayPremiumsPrsnlBnftCntrctInd0false
IRS990/PayrollTaxesGrp/FundraisingAmt00
IRS990/PayrollTaxesGrp/ManagementAndGeneralAmt00
IRS990/PayrollTaxesGrp/ProgramServicesAmt07252
IRS990/PayrollTaxesGrp/TotalAmt07252
IRS990/PensionPlanContributionsGrp/FundraisingAmt00
IRS990/PensionPlanContributionsGrp/ManagementAndGeneralAmt00
IRS990/PensionPlanContributionsGrp/ProgramServicesAmt03013
IRS990/PensionPlanContributionsGrp/TotalAmt03013
IRS990/PoliticalCampaignActyInd0false
IRS990/PrepaidExpensesDefrdChargesGrp/BOYAmt04312
IRS990/PrepaidExpensesDefrdChargesGrp/EOYAmt05042
IRS990/PrincipalOfficerNm0Alicia Neu MD
IRS990/ProfessionalFundraisingInd0false
IRS990/ProgramServiceRevenueGrp/BusinessCd0621399
IRS990/ProgramServiceRevenueGrp/Desc0Benchmarking Fees
IRS990/ProgramServiceRevenueGrp/ExclusionAmt00
IRS990/ProgramServiceRevenueGrp/TotalRevenueColumnAmt0195000
IRS990/ProgramServiceRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/ProhibitedTaxShelterTransInd0false
IRS990/PYContributionsGrantsAmt0303707
IRS990/PYExcessBenefitTransInd0false
IRS990/PYInvestmentIncomeAmt03936
IRS990/PYOtherExpensesAmt0471832
IRS990/PYOtherRevenueAmt0505
IRS990/PYProgramServiceRevenueAmt0225000
IRS990/PYRevenuesLessExpensesAmt0-34109
IRS990/PYSalariesCompEmpBnftPaidAmt095425
IRS990/PYTotalExpensesAmt0567257
IRS990/PYTotalRevenueAmt0533148
IRS990/QuidProQuoContributionsInd0false
IRS990/RcvFndsToPayPrsnlBnftCntrctInd0false
IRS990/ReconcilationRevenueExpnssAmt0-44641
IRS990/RegularMonitoringEnfrcInd0true
IRS990/RelatedEntityInd0false
IRS990/RelatedOrganizationCtrlEntInd0false
IRS990/ReportInvestmentsOtherSecInd0false
IRS990/ReportLandBuildingEquipmentInd0true
IRS990/ReportOtherAssetsInd0false
IRS990/ReportOtherLiabilitiesInd0false
IRS990/ReportProgramRelatedInvstInd0false
IRS990/RevenueAmt0793612
IRS990ScheduleA/AmountsRcvdDsqlfyPersonGrp/TotalAmt00
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearAmt0598612
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus1YearAmt0303707
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus2YearsAmt0242894
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus3YearsAmt0204442
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/CurrentTaxYearMinus4YearsAmt0253670
IRS990ScheduleA/GiftsGrantsContrisRcvd509Grp/TotalAmt01603325
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearAmt00
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus1YearAmt03936
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus2YearsAmt04955
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus3YearsAmt04810
IRS990ScheduleA/GrossInvestmentIncome509Grp/CurrentTaxYearMinus4YearsAmt04680
IRS990ScheduleA/GrossInvestmentIncome509Grp/TotalAmt018381
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearAmt0195000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus1YearAmt0225000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus2YearsAmt0100000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus3YearsAmt0115000
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/CurrentTaxYearMinus4YearsAmt0101390
IRS990ScheduleA/GrossReceiptsAdmissionsGrp/TotalAmt0736390
IRS990ScheduleA/GrossReceiptsNonUnrltBusGrp/TotalAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearAmt00
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus1YearAmt03936
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus2YearsAmt04955
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus3YearsAmt04810
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/CurrentTaxYearMinus4YearsAmt04680
IRS990ScheduleA/InvestmentIncomeAndUBTIGrp/TotalAmt018381
IRS990ScheduleA/InvestmentIncomeCYPct00.00780
IRS990ScheduleA/InvestmentIncomePYPct00.01190
IRS990ScheduleA/OtherSupportSumAmt00
IRS990ScheduleA/PubliclySupportedOrg509a2Ind0X
IRS990ScheduleA/PublicSupportCY170Pct00
IRS990ScheduleA/PublicSupportCY509Pct00.99220
IRS990ScheduleA/PublicSupportPY509Pct00.98810
IRS990ScheduleA/PublicSupportTotal509Amt02339715
IRS990ScheduleA/SubstAndDsqlfyPrsnsTotGrp/TotalAmt00
IRS990ScheduleA/SubstantialContributorsAmtGrp/TotalAmt00
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft509Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY509Ind0X
IRS990ScheduleA/Total509Grp/CurrentTaxYearAmt0793612
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus1YearAmt0528707
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus2YearsAmt0342894
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus3YearsAmt0319442
IRS990ScheduleA/Total509Grp/CurrentTaxYearMinus4YearsAmt0355060
IRS990ScheduleA/Total509Grp/TotalAmt02339715
IRS990ScheduleA/TotalSupportCalendarYearGrp/TotalAmt02358096
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/EquipmentGrp/BookValueAmt00
IRS990ScheduleD/EquipmentGrp/DepreciationAmt02368
IRS990ScheduleD/EquipmentGrp/InvestmentCostOrOtherBasisAmt02368
IRS990ScheduleD/ExpensesSubtotalAmt0838780
IRS990ScheduleD/RevenueSubtotalAmt0794139
IRS990ScheduleD/TotalBookValueLandBuildingsAmt00
IRS990ScheduleD/TotalExpensesPerForm990Amt0838780
IRS990ScheduleD/TotalRevenuePerForm990Amt0794139
IRS990ScheduleD/TotalRevEtcAuditedFinclStmtAmt0794139
IRS990ScheduleD/TotExpnsEtcAuditedFinclStmtAmt0838780
IRS990/ScheduleJRequiredInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Bradley Warady MD
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Board Member
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/SharingOfRevenuesInd0false
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionAmt01500
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Investigator Study
IRS990ScheduleL/SupplementalInformationDetail/ExplanationTxt0Board members were paid as Consultants on research studies.
IRS990ScheduleL/SupplementalInformationDetail/FormAndLineReferenceDesc0Part IV
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Organizations process to review Form 990 Copy of Form 990 Provided Each Member of the Board of Directors Prior To Filing
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Enforcement of conflicts policy, Annual Disclosure and Acknowledgement by each member of the Board of Directors
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Governing documents disclosure explanation, No Governing documents made available
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Employment Services 99580. 0. 99580. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Clinical Trials Consult 1500. 1500. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Bank Charges 35. 0. 35. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Other Business Expense 1022. 1022. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt7Cystinosis Registry 32989. 32989. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8Care DX Cell-free DNA Registry 88910. 88910. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt9Otsuka 204 75007. 75007. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt10Otsuka 307 74987. 74987. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt11Amgen 20140135 12110. 12110. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt12NAPRTCS PHIS Data Merge 4460. 4460. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt13Clinical Trials Budget Review 2000. 2000. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt VI, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt VI, Line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Pt VI, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part IX, Line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc8Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc9Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc10Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc11Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc12Form 990, Part IX, Line 24e
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc13Form 990, Part IX, Line 24e
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0NY
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt0270295
IRS990/TotalAssetsEOYAmt0222211
IRS990/TotalAssetsGrp/BOYAmt0270295
IRS990/TotalAssetsGrp/EOYAmt0222211
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt0598612
IRS990/TotalEmployeeCnt01
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt00
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt0187026

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