Civic Intelligence

Lowe Syndrome Association Inc.

990 • Fiscal year 2024 • EIN 31-1160328

Jan 01, 2024 to Dec 31, 2024 • Filed on Nov 12, 2025

Organization Profilelowesyndrome.org
8190 Beechmont AvenueCincinnati, OH 45255

(910) 622-4455

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.13x

Higher debt load relative to assets than 61% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Liabilities / Revenue

90th percentile

1.20x

Higher debt load relative to revenue than 90% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Net Margin

88th percentile

46%

Higher net margin than 88% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Top Officer Pay

40th percentile

$0

Higher top officer pay than 40% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Source year 2024

Asset Growth

30th percentile

-2.1%

Faster asset growth than 30% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Revenue Growth

20th percentile

-12%

Faster revenue growth than 20% of similar nonprofits.

2024 filings • 501(c)3 • $1M-$5M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets61st percentile

Assets

Down

$1,152,142

Down $25,115 (-2.1%) from 2023

Net Assets

Down

$1,002,804

Down $174,333 (-15%) from 2023

Liabilities

Up

$149,338

Up $149,218 (+124348%) from 2023

Revenue And Expenses
Liabilities / Revenue90th percentileNet Margin88th percentile

Revenue

Down

$124,908

Down $16,642 (-12%) from 2023

Expenses

Down

$67,337

Down $2,569 (-3.7%) from 2023

Net Income

Down

$57,571

Down $14,073 (-20%) from 2023

Historical Trend

Balance Sheet Trend

Asset Growth30th percentile

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2020: $683,327Liabilities 2020: $382Net Assets 2020: $682,9452020Assets 2021: $1,010,256Liabilities 2021: $279Net Assets 2021: $1,009,9772021Assets 2022: $1,102,649Liabilities 2022: $57Net Assets 2022: $1,102,5922022Assets 2023: $1,177,257Liabilities 2023: $120Net Assets 2023: $1,177,1372023Assets 2024: $1,152,142Liabilities 2024: $149,338Net Assets 2024: $1,002,8042024

Highlighted filing

2024

Assets$1,152,142
Liabilities$149,338
Net Assets$1,002,804
Open 2024 Filing

Operations Trend

Revenue Growth20th percentile

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$400K$300K$200K$100K$0Revenue 2020: $158,665Expenses 2020: $125,489Net Income 2020: $33,1762020Revenue 2021: $381,285Expenses 2021: $54,454Net Income 2021: $326,8312021Revenue 2022: $207,028Expenses 2022: $114,413Net Income 2022: $92,6152022Revenue 2023: $141,550Expenses 2023: $69,906Net Income 2023: $71,6442023Revenue 2024: $124,908Expenses 2024: $67,337Net Income 2024: $57,5712024

Highlighted filing

2024

Revenue$124,908
Expenses$67,337
Net Income$57,571
Open 2024 Filing
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Nov 12, 2025
Return Version
2024v5.2
Gross Receipts
$124,908
Mission and Program Overview

Mission

Improve the lives of persons with Lowe syndrome and their families through communication, education, and supporting research so that they can reach their highest potential.

Improve the lives of persons with Lowe Syndrome and their families through community, education, and supporting research

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$599,914$877,696▲ $277,782
Cash and Non-Interest-Bearing Accounts$574,263$262,776▼ $311,487
Prepaid Expenses and Deferred Charges-$11,670-
Accounts Receivable$3,080--
Total Assets$1,177,257$1,152,142▼ $25,115
Liabilities
Other Liabilities$0$139,562▲ $139,562
Accounts Payable and Accrued Expenses$120$8,726▲ $8,606
Deferred Revenue-$1,050-
Total Liabilities$120$149,338▲ $149,218
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$888,833$920,288▲ $31,455
Net Assets With Donor Restrictions$288,304$82,516▼ $205,788
Total Net Assets Fund Balance$1,177,137$1,002,804▼ $174,333
Total Liabilities and Net Assets / Fund Balance$1,177,257$1,152,142▼ $25,115
Compensation and Service Providers
Top Officer Pay40th percentile

Board Members and Trustees

NameTitle
Jeri KubickiPresident
Amy RichardsDirector
Barry ReinhartDirector
Clare GromollDirector
Cori DegoriDirector
John MacDonaldDirector
Laura KimDirector
Lisa WaldbaumDirector
Theresa HaugenDirector
Cristen AlbertsTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$98,591
Program Service Revenue
$0
Investment Income
$26,114
Other Revenue
$203
All Other Contributions
$98,591
Change in Net Assets
$57,571
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$52,458
Grants and Similar Amounts Paid$14,879
Total Fundraising Expense$1,413
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$35,048$2,290$0$37,338
Grants to Domestic Orgs$14,879--$14,879
Travel$4,352$63$1,413$5,828
Office Expenses$438$2,761$0$3,199
Fees for Services Accounting$0$3,117$0$3,117
Information Technology$0$1,269$0$1,269
Insurance$0$806$0$806
Advertising$0$314$0$314
Fees for Services Legal$0$200$0$200
Other Expenses$0$188$0$188
Total Functional Expenses$54,717$11,207$1,413$67,337
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Aguilar (Purdue)West Lafayette, INn/aMedical advanement$14,879
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Debt and Bond Financing

Other Reported Liabilities

LiabilityAmount
Research Awards Payable$139,562
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No
Filing and Contact Details

Filer

Filer Name
Lowe Syndrome Association
EIN
31-1160328
Phone
9106224455
Address
8190 Beechmont Avenue, Cincinnati, OH 45255

Signing Officer

Name
Jeri Kubicki
Title
President
Phone
9106224455
Signed
2025-11-12
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Jeri Kubicki
Formed
1983
Legal Domicile
Oh
Voting Board Members
10
Independent Board Members
10
Employees
0
Volunteers
8

Preparer

Firm
Locey Mitchell & Associates Ltd
Address
4760 Red Bank Expressway Suite 222, Cincinnati, OH 45227
Preparer
Michelle Locey
Phone
5132813333
Supplemental Narrative

Additional Explanations

Pt VI, Line 11B

“Review by BOD members will be conducted by email”

Pt VI, Line 19

“Yes, financial statements provided in annual newsletter”

Pt VI, Line 15A

“Board approved”

Form 990, Part III, Line 4D

“Conference 4883. 0. 0.”

Form 990, Part IX, Line 11G

“Contractor Expenses 16938. 14648. 2290. 0.”

Form 990, Part IX, Line 11G

“Consulting 20400. 20400. 0. 0.”

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IRS990ScheduleA/PublicSupportCY170Pct00.81680
IRS990ScheduleA/PublicSupportCY509Pct00
IRS990ScheduleA/PublicSupportPY170Pct00.99680
IRS990ScheduleA/PublicSupportTotal170Amt0819551
IRS990ScheduleA/PublicSupportTotal509Amt00
IRS990ScheduleA/SubstantialContributorsTotAmt0154933
IRS990ScheduleA/TaxRevLeviedOrgnztnlBnft170Grp/TotalAmt00
IRS990ScheduleA/ThirtyThrPctSuprtTestsCY170Ind0X
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearAmt098591
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus1YearAmt0140047
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus2YearsAmt0190476
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus3YearsAmt0381285
IRS990ScheduleA/TotalCalendarYear170Grp/CurrentTaxYearMinus4YearsAmt0164085
IRS990ScheduleA/TotalCalendarYear170Grp/TotalAmt0974484
IRS990ScheduleA/TotalSupportAmt01003355
IRS990ScheduleA/UnrelatedBusinessNetIncm170Grp/TotalAmt00
IRS990ScheduleB/ContributorInformationGrp/ContributorBusinessName/BusinessNameLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorNum0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine10RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/AddressLine20RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/City0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/State0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/ContributorUSAddress/ZIPCode0RESTRICTED
IRS990ScheduleB/ContributorInformationGrp/TotalContributionsAmt0RESTRICTED
IRS990/ScheduleBRequiredInd0true
IRS990ScheduleD/DisclosedForCharitablePrpsInd0false
IRS990ScheduleD/DisclosedOrgLegCtrlInd0false
IRS990ScheduleD/DonorAdvisedFundsGrantsAmt018134
IRS990ScheduleD/DonorAdvisedFundsHeldCnt0307479
IRS990ScheduleD/DonorAdvisedFundsVlEOYAmt0307479
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Amt0139562
IRS990ScheduleD/OtherLiabilitiesOrgGrp/Desc0Research Awards Payable
IRS990ScheduleD/TotalLiabilityAmt0139562
IRS990ScheduleI/GrantRecordsMaintainedInd0true
IRS990ScheduleI/RecipientTable/CashGrantAmt014879
IRS990ScheduleI/RecipientTable/IRCSectionDesc0n/a
IRS990ScheduleI/RecipientTable/NonCashAssistanceAmt00
IRS990ScheduleI/RecipientTable/NonCashAssistanceDesc0n/a
IRS990ScheduleI/RecipientTable/PurposeOfGrantTxt0Medical advanement
IRS990ScheduleI/RecipientTable/RecipientBusinessName/BusinessNameLine1Txt0Aguilar (Purdue)
IRS990ScheduleI/RecipientTable/RecipientEIN0356002041
IRS990ScheduleI/RecipientTable/USAddress/AddressLine1Txt0Armstrong Hall 701 West Stadium Ave
IRS990ScheduleI/RecipientTable/USAddress/CityNm0West Lafayette
IRS990ScheduleI/RecipientTable/USAddress/StateAbbreviationCd0IN
IRS990ScheduleI/RecipientTable/USAddress/ZIPCd047907
IRS990ScheduleI/RecipientTable/ValuationMethodUsedDesc0book
IRS990/ScheduleJRequiredInd0false
IRS990/ScheduleORequiredInd0true
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Review by BOD members will be conducted by email
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1Yes, financial statements provided in annual newsletter
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2Board approved
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Conference 4883. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Contractor Expenses 16938. 14648. 2290. 0.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Consulting 20400. 20400. 0. 0.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Pt VI, Line 11b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Pt VI, Line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Pt VI, Line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Form 990, Part III, Line 4d
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4Form 990, Part IX, Line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Form 990, Part IX, Line 11g
IRS990/SchoolOperatingInd0false
IRS990/SignificantChangeInd0false
IRS990/SignificantNewProgramSrvcInd0false
IRS990/StatesWhereCopyOfReturnIsFldCd0IN
IRS990/StatesWhereCopyOfReturnIsFldCd1OH
IRS990/SubjectToExcsTaxNetInvstIncInd0false
IRS990/SubjectToProxyTaxInd0false
IRS990/SubjToTaxRmnrtnExPrchtPymtInd0false
IRS990/TaxableDistributionsInd0false
IRS990/TaxablePartyNotificationInd0false
IRS990/TaxExemptBondsInd0false
IRS990/TerminateOperationsInd0false
IRS990/TotalAssetsBOYAmt01177257
IRS990/TotalAssetsEOYAmt01152142
IRS990/TotalAssetsGrp/BOYAmt01177257
IRS990/TotalAssetsGrp/EOYAmt01152142
IRS990/TotalCompGreaterThan150KInd0false
IRS990/TotalContributionsAmt098591
IRS990/TotalEmployeeCnt00
IRS990/TotalFunctionalExpensesGrp/FundraisingAmt01413
IRS990/TotalFunctionalExpensesGrp/ManagementAndGeneralAmt011207
IRS990/TotalFunctionalExpensesGrp/ProgramServicesAmt054717
IRS990/TotalFunctionalExpensesGrp/TotalAmt067337
IRS990/TotalGrossUBIAmt00
IRS990/TotalLiabilitiesBOYAmt0120
IRS990/TotalLiabilitiesEOYAmt0149338
IRS990/TotalLiabilitiesGrp/BOYAmt0120
IRS990/TotalLiabilitiesGrp/EOYAmt0149338
IRS990/TotalNetAssetsFundBalanceGrp/BOYAmt01177137
IRS990/TotalNetAssetsFundBalanceGrp/EOYAmt01002804
IRS990/TotalOtherCompensationAmt00
IRS990/TotalOtherProgSrvcExpenseAmt04883
IRS990/TotalOtherProgSrvcGrantAmt00
IRS990/TotalOtherProgSrvcRevenueAmt00
IRS990/TotalProgramServiceExpensesAmt054717
IRS990/TotalReportableCompFromOrgAmt00
IRS990/TotalRevenueGrp/ExclusionAmt026114
IRS990/TotalRevenueGrp/RelatedOrExemptFuncIncomeAmt0203
IRS990/TotalRevenueGrp/TotalRevenueColumnAmt0124908
IRS990/TotalRevenueGrp/UnrelatedBusinessRevenueAmt00
IRS990/TotalVolunteersCnt08
IRS990/TotLiabNetAssetsFundBalanceGrp/BOYAmt01177257

Document Assets

No mirrored PDF or thumbnail assets are attached yet.

Filings

Displayed year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$1,152,142
Liabilities
$149,338
Net assets
$1,002,804
Revenue
$124,908
Expenses
$67,337
Net income
$57,571
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$1.15$0.15$1.00$0.12$0.07$0.06
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.18$0.00$1.18$0.14$0.07$0.07
2022Facts available. Structured filing facts are available, but richer extracted sections are limited.$1.10$0.00$1.10$0.21$0.11$0.09
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$1.01$0.00$1.01$0.38$0.05$0.33
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$0.68$0.00$0.68$0.16$0.13$0.03
Peer Organizations

Similar nonprofits based on the same Siviq industry and scale cohort. 2024 filings • 501(c)3 • $1M-$5M nonprofits