Civic Intelligence

Adnp Kids Research Foundation

EIN 30-0964243 • 501(c)3 • Brush Prairie, WA

Profile

Rare disease support patient and disease advocacy patient and disease education scientific research drug development funding of treatment studies and drug trials for treatment of ADNP syndrome.

24500 NE 132nd CirBrush Prairie, WA 98606-7220

www.adnpfoundation.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

18th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Liabilities / Revenue

19th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Net Margin

70th percentile

17%

Higher net margin than 70% of similar nonprofits.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Top Officer Pay

57th percentile

$0

Higher top officer pay than 57% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • $1M-$5M nonprofits • Source year 2022

Asset Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2022

Revenue Growth

Score unavailable

No value available

No earlier valid filing was available within the previous three public years.

Source year 2022

Balance Sheet
Liabilities / Assets18th percentile

Assets

Down

$428,086

Down $9,922 (-2.3%) from 2023

Liabilities

Flat

$0

Flat from 2023

Net Assets

Down

$428,086

Down $9,922 (-2.3%) from 2023

Operations
Liabilities / Revenue19th percentileNet Margin70th percentile

Revenue

Up

$1,121,205

Up $963,045 (+609%) from 2023

Expenses

Up

$1,131,127

Up $1,043,370 (+1189%) from 2023

Net Income

Down

-$9,922

Down $80,325 (-114%) from 2023

Trend Graphs

Balance Sheet Trend

Asset GrowthScore unavailable

Grouped bars show assets, liabilities, and net assets across loaded filings.

$600K$400K$200K$0Assets 2021: $171,583Liabilities 2021: $0Net Assets 2021: $171,5832021Assets 2022: $367,605Liabilities 2022: $0Net Assets 2022: $367,6052022Assets 2023: $438,008Liabilities 2023: $0Net Assets 2023: $438,0082023Assets 2024: $428,086Liabilities 2024: $0Net Assets 2024: $428,0862024

Highlighted filing

2024

Assets$428,086
Liabilities$0
Net Assets$428,086
Open 2024 Filing

Operations Trend

Revenue GrowthScore unavailable

Revenue, expenses, and net income by year, with the latest filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2021: $194,035Expenses 2021: $152,405Net Income 2021: $41,6302021Revenue 2022: $1,145,983Expenses 2022: $949,961Net Income 2022: $196,0222022Revenue 2023: $158,160Expenses 2023: $87,757Net Income 2023: $70,4032023Revenue 2024: $1,121,205Expenses 2024: $1,131,127Net Income 2024: -$9,9222024

Highlighted filing

2024

Revenue$1,121,205
Expenses$1,131,127
Net Income-$9,922
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$428,086
Liabilities
$0
Net assets
$428,086
Revenue
$1,121,205
Expenses
$1,131,127
Net income
-$9,922
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$0.43$0.00$0.43$1.12$1.13$0.01
2023Detailed filing. Detailed filing data is available for this year.$0.44$0.00$0.44$0.16$0.09$0.07
2022Detailed filing. Detailed filing data is available for this year.$0.37$0.00$0.37$1.15$0.95$0.20
2021Detailed filing. Detailed filing data is available for this year.$0.17$0.00$0.17$0.19$0.15$0.04
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jun 1, 2023 to May 31, 2024
Signed
Apr 15, 2025
Return Version
2023v6.0
Gross Receipts
$1,121,205
Mission and Program Overview

Mission

Rare disease support, patient advocacy, education, and scientific research and funding treatment studies and drug trials for ADNP syndrome

ADNP Syndrome rare disease patient support advocacy education drug development and scientific research and funder of treatment studies and drug trials for ADNP syndrome. We are a 100% volunteer org working on research for drug development and a cure for ADNP syndrome.

Balance Sheet Detail
LineBeginningEndChange
Assets
Cash and Non-Interest-Bearing Accounts$438,008$428,086▼ $9,922
Savings and Temporary Cash Investments$0$0→ $0
Accounts Receivable$0$0→ $0
Other Notes and Loans Receivable, Net$0$0→ $0
Pledges and Grants Receivable$0$0→ $0
Receivable From Disqualified Prsn$0$0→ $0
Receivables From Officers Etc$0$0→ $0
Investments Other Securities$0$0→ $0
Investments Program Related$0$0→ $0
Investments in Publicly Traded Securities$0$0→ $0
Land, Buildings, and Equipment, Net$0$0→ $0
Intangible Assets$0$0→ $0
Inventories for Sale or Use$0$0→ $0
Loans From Officers Directors$0$0→ $0
Prepaid Expenses and Deferred Charges$0$0→ $0
Total Assets$438,008$428,086▼ $9,922
Other Assets Total$0$0→ $0
Liabilities
Accounts Payable and Accrued Expenses$0$0→ $0
Grants Payable$0$0→ $0
Mortgage Notes Payable Secured by Investment Property$0$0→ $0
Unsecured Notes Loans Payable$0$0→ $0
Other Liabilities$0$0→ $0
Deferred Revenue$0$0→ $0
Escrow Account Liability$0$0→ $0
Tax Exempt Bond Liabilities$0$0→ $0
Total Liabilities$0$0→ $0
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$438,008$428,086▼ $9,922
Net Assets With Donor Restrictions$0$0→ $0
Total Net Assets Fund Balance$438,008$428,086▼ $9,922
Total Liabilities and Net Assets / Fund Balance$438,008$428,086▼ $9,922
Compensation and Service Providers
Top Officer Pay57th percentile

Board Members and Trustees

NameTitle
Sandra SermonePresident
Genie Egerton-WarburtonVice President
Debbie AbrahamSecretary
Tim MosierTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$1,121,205
Program Service Revenue
$0
Investment Income
$0
Other Revenue
$0
All Other Contributions
$1,121,205
Change in Net Assets
$-9,922
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Grants and Similar Amounts Paid$1,106,294
Other Expenses$24,833
Professional Fundraising Fees$0
Salaries, Compensation, and Employee Benefits$0
Total Fundraising Expense$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Grants to Domestic Orgs$1,106,294--$1,106,294
Office Expenses$8,848$0$0$8,848
Conferences and Meetings$7,943$0$0$7,943
Insurance$0$2,616$0$2,616
All Other Expenses$0$1,067$0$1,067
Information Technology$1,034$0$0$1,034
Travel$300$0$0$300
Advertising$20$0$0$20
Total Functional Expenses$1,127,444$3,683$0$1,131,127
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
UC Davis MIND InstituteDavis, CA-3 gene therapy investigations and mouse model characterization$1,042,794
RareBasePalo Alto, CA-Final work on High Throughput Screening Repurposed Drug-Treatment Investigation$37,500
Seaver Center Mount SinaiNew York, NY-Preclinical work on low throughput animal model work neuron biomarkers and grant work for KET$26,000
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$0
Fundraising Gross Income$0
Gaming Direct Expenses$0
Gaming Gross Income$0
Professional Fundraising Fees$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Loans and Receivables

Line ItemBeginningEndChange
Loans from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Receivables from Disqualified Persons$0$0→ $0
Receivables from Officers, Directors, Trustees, and Key Employees$0$0→ $0
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Backup withholding compliance
No
Business relationship with 35% controlled entity
No
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
No
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Part VI, Line 8A

“We keep meeting minutes and have recently created a Drop Box account to safekeeping of past meeting minutes and we do not have official committees at this time.”

Part VI, Line 11A

“We provide the completed 990 along with financial statements to the governing board after submission of 990.”

Filing and Contact Details

Filer

Filer Name
Adnp Kids Research Foundation
EIN
30-0964243
In Care Of
% Sandra Sermone
Phone
3608313069
Address
24500 NE 132ND CIR, BRUSH PRAIRIE, WA 98606-7220

Signing Officer

Name
Sandra Sermone
Title
President
Signed
2025-04-15

Organization Details

Formed
2016
Legal Domicile
Wa
Voting Board Members
4
Independent Board Members
4
Employees
0
Volunteers
5
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