Civic Intelligence

Rothmund-Thomson Syndrome Foundation

EIN 30-0585106 • 501(c)3 • Chantilly, VA

Profile

Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes

4307 Woodward CourtChantilly, VA 20151

www.rtsplace.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

59th percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Liabilities / Revenue

61st percentile

0.00x

Tied with the lowest-debt nonprofits in its peer group.

501(c)3 • <$500k nonprofits • Source year 2025

Net Margin

85th percentile

36%

Higher net margin than 85% of similar nonprofits.

501(c)3 • <$500k nonprofits • Source year 2025

Top Officer Pay

84th percentile

$0

Higher top officer pay than 84% of similar nonprofits.

Top officer pay equals 0.0% of source-year revenue.

501(c)3 • <$500k nonprofits • Source year 2025

Asset Growth

63rd percentile

5.5%

Faster asset growth than 63% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2025

Revenue Growth

40th percentile

-10%

Faster revenue growth than 40% of similar nonprofits.

501(c)3 • <$500k nonprofits • Annualized from 2022 to 2025

Balance Sheet
Liabilities / Assets59th percentile

Assets

Up

$74,975

Up $20,339 (+37%) from 2024

Liabilities

Flat

$0

Flat from 2024

Net Assets

Up

$74,975

Up $20,339 (+37%) from 2024

Operations
Liabilities / Revenue61st percentileNet Margin85th percentile

Revenue

Up

$55,899

Up $7,927 (+17%) from 2024

Expenses

Down

$35,560

Down $17,503 (-33%) from 2024

Net Income

Up

$20,339

Up $25,430 (+500%) from 2024

Trend Graphs

Balance Sheet Trend

Asset Growth63rd percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$100K$50K$0Assets 2014: $57,482Liabilities 2014: $0Net Assets 2014: $57,4822014Assets 2015: $75,786Liabilities 2015: $0Net Assets 2015: $75,7862015Assets 2016: $52,766Liabilities 2016: $0Net Assets 2016: $52,7662016Assets 2017: $51,226Liabilities 2017: $0Net Assets 2017: $51,2262017Assets 2018: $48,963Liabilities 2018: $0Net Assets 2018: $48,9632018Assets 2019: $31,988Liabilities 2019: $0Net Assets 2019: $31,9882019Assets 2020: $46,697Liabilities 2020: $0Net Assets 2020: $46,6972020Assets 2021: $80,186Liabilities 2021: $0Net Assets 2021: $80,1862021Assets 2022: $63,856Liabilities 2022: $0Net Assets 2022: $63,8562022Assets 2023: $59,727Liabilities 2023: $0Net Assets 2023: $59,7272023Assets 2024: $54,636Liabilities 2024: $0Net Assets 2024: $54,6362024Assets 2025: $74,975Liabilities 2025: $0Net Assets 2025: $74,9752025

Highlighted filing

2025

Assets$74,975
Liabilities$0
Net Assets$74,975
Open 2025 Filing

Operations Trend

Revenue Growth40th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$100K$50K$0-$50KRevenue 2014: $26,076Expenses 2014: $18,140Net Income 2014: $7,9362014Revenue 2015: $24,795Expenses 2015: $6,491Net Income 2015: $18,3042015Revenue 2016: $27,205Expenses 2016: $50,225Net Income 2016: -$23,0202016Revenue 2017: $34,675Expenses 2017: $36,215Net Income 2017: -$1,5402017Revenue 2018: $30,021Expenses 2018: $32,359Net Income 2018: -$2,3382018Revenue 2019: $42,456Expenses 2019: $59,431Net Income 2019: -$16,9752019Revenue 2020: $65,900Expenses 2020: $51,191Net Income 2020: $14,7092020Revenue 2021: $85,876Expenses 2021: $52,387Net Income 2021: $33,4892021Revenue 2022: $77,171Expenses 2022: $93,501Net Income 2022: -$16,3302022Revenue 2023: $60,413Expenses 2023: $64,542Net Income 2023: -$4,1292023Revenue 2024: $47,972Expenses 2024: $53,063Net Income 2024: -$5,0912024Revenue 2025: $55,899Expenses 2025: $35,560Net Income 2025: $20,3392025

Highlighted filing

2025

Revenue$55,899
Expenses$35,560
Net Income$20,339
Open 2025 Filing

Filings

Most recent year

2025 • Form 990EZDetailed filing. Detailed filing data is available for this year.

Open filing
Assets
$74,975
Liabilities
$0
Net assets
$74,975
Revenue
$55,899
Expenses
$35,560
Net income
$20,339
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2025Detailed filing. Detailed filing data is available for this year.$75.0$0.00$75.0$55.9$35.6$20.3
2024Detailed filing. Detailed filing data is available for this year.$54.6$0.00$54.6$48.0$53.1$5.09
2023Detailed filing. Detailed filing data is available for this year.$59.7$0.00$59.7$60.4$64.5$4.13
2022Detailed filing. Detailed filing data is available for this year.$63.9$0.00$63.9$77.2$93.5$16.3
2021Detailed filing. Detailed filing data is available for this year.$80.2$0.00$80.2$85.9$52.4$33.5
2020Detailed filing. Detailed filing data is available for this year.$46.7$0.00$46.7$65.9$51.2$14.7
2019Detailed filing. Detailed filing data is available for this year.$32.0$0.00$32.0$42.5$59.4$17.0
2018Detailed filing. Detailed filing data is available for this year.$49.0$0.00$49.0$30.0$32.4$2.34
2017Detailed filing. Detailed filing data is available for this year.$51.2$0.00$51.2$34.7$36.2$1.54
2016Detailed filing. Detailed filing data is available for this year.$52.8$0.00$52.8$27.2$50.2$23.0
2015Detailed filing. Detailed filing data is available for this year.$75.8$0.00$75.8$24.8$6.49$18.3
2014Detailed filing. Detailed filing data is available for this year.$57.5$0.00$57.5$26.1$18.1$7.94
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Oct 1, 2024 to Sep 30, 2025
Signed
Jan 7, 2026
Return Version
2024v5.0
Gross Receipts
$61,869
Mission and Program Overview

Mission

Foster worldwide awareness and education about RTS and related disorders and to encourage research through support of scientists and physicians devoted to studying the clinical spectrum, molecular and cellular basis of RECQL4 and related syndromes

Program Services

DescriptionGrantsExpenses
Provided a funding to Baylor College of Medicine to sponsor continued research on RTS and to fund RTS clinical studies and transfer of patient registry to Genial.$0$30,000
Paid for a RTS video to be used for education and potential fundraising in the future.$0$1,500
Sponsor a sharing and caring conference for RTS families and medical professionals.$0$1,477
Compensation and Service Providers
Top Officer Pay84th percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Staci HansonChairPT$0--
Kara HansonTreasurerPT$0--
Bekkah BlankersVice ChairPT$0--
Tamara MadsenDirectorPT$0--
Camille CarlsonSecretaryPT$0--
Lisette RiggleDirectorPT$0--
Filing and Contact Details

Filer

Filer Name
Rothmund-thomson Syndrome Foundation
EIN
30-0585106
Phone
7038023167
Address
4307 Woodward Court, Chantilly, VA 20151

Signing Officer

Name
Staci Hanson
Title
Chair
Phone
2073320361
Signed
2026-01-07
Supplemental Narrative

Additional Explanations

Form 990-EZ, Part I, Line 16

“Operating expenses and renewal fees for soliciting in numerous States.”

Raw XML Appendix198 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

Path#Value
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IRS990EZ/BooksInCareOfDetail/USAddress/CityNm0Chantilly
IRS990EZ/BooksInCareOfDetail/USAddress/StateAbbreviationCd0VA
IRS990EZ/BooksInCareOfDetail/USAddress/ZIPCd020151
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IRS990EZ/OfficerDirectorTrusteeEmplGrp/TitleTxt3Director
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IRS990EZ/ProgramSrvcAccomplishmentGrp/DescriptionProgramSrvcAccomTxt1Sponsor a sharing and caring conference for RTS families and medical professionals.
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IRS990EZ/ProgramSrvcAccomplishmentGrp/GrantsAndAllocationsAmt00
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IRS990ScheduleA/Form990ScheduleAPartVIGrp/ExplanationTxt0We had no other income this year.
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IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Form 990-EZ, Part I, Line 16
ReturnHeader/BuildTS02025-03-06 01:10:19Z
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ReturnHeader/BusinessOfficerGrp/PersonTitleTxt0Chair
ReturnHeader/BusinessOfficerGrp/PhoneNum02073320361
ReturnHeader/BusinessOfficerGrp/SignatureDt02026-01-07
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ReturnHeader/Filer/PhoneNum07038023167
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ReturnHeader/ReturnTypeCd0990EZ
ReturnHeader/TaxPeriodBeginDt02024-10-01
ReturnHeader/TaxPeriodEndDt02025-09-30
ReturnHeader/TaxYr02024

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