Civic Intelligence

Amyotrophic Lateral Sclerosis Association

990 • Fiscal year 2019 • EIN 30-0051272

Feb 01, 2018 to Jan 31, 2019 • Filed on Sep 04, 2019

3636 Westown Parkway No 204West Des Moines, IA 50266

(515) 369-2572

Siviq Scores

Precomputed percentiles for this filing year versus similar nonprofits in the same peer cohort.

Liabilities / Assets

61st percentile

0.07x

Higher debt load relative to assets than 61% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Liabilities / Revenue

62nd percentile

0.07x

Higher debt load relative to revenue than 62% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Net Margin

33rd percentile

-2.2%

Higher net margin than 33% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Top Officer Pay

81st percentile

$79,526

Higher top officer pay than 81% of similar nonprofits.

Top officer pay equals 8.9% of source-year revenue.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Source year 2019

Asset Growth

37th percentile

-0.7%

Faster asset growth than 37% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Revenue Growth

53rd percentile

5.4%

Faster revenue growth than 53% of similar nonprofits.

2019 filings • 501(c)3 • $500k-$1M nonprofits • Annualized from 2018 to 2019

Assets

Down

$816,253

Down $5,869 (-0.7%) from 2018

Net Assets

Down

$756,224

Down $19,838 (-2.6%) from 2018

Liabilities

Up

$60,029

Up $13,969 (+30%) from 2018

Revenue

Up

$890,097

Up $45,346 (+5.4%) from 2018

Expenses

Up

$909,935

Up $15,462 (+1.7%) from 2018

Net Income

Up

-$19,838

Up $29,884 (+60%) from 2018

Historical Trend

Balance Sheet Trend

The highlighted filing sits inside the broader history for assets, liabilities, and net assets.

$1.5M$1.0M$500K$0Assets 2017: $888,618Liabilities 2017: $62,834Net Assets 2017: $825,7842017Assets 2018: $822,122Liabilities 2018: $46,060Net Assets 2018: $776,0622018Assets 2019: $816,253Liabilities 2019: $60,029Net Assets 2019: $756,2242019Assets 2020: $744,456Liabilities 2020: $96,385Net Assets 2020: $648,0712020Assets 2021: $788,435Liabilities 2021: $88,413Net Assets 2021: $700,0222021Assets 2022: $1,135,191Liabilities 2022: $72,045Net Assets 2022: $1,063,1462022

Highlighted filing

2019

Assets$816,253
Liabilities$60,029
Net Assets$756,224

Operations Trend

Revenue, expenses, and net income across loaded years, with this filing highlighted.

$1.5M$1.0M$500K$0-$500KRevenue 2017: $864,889Expenses 2017: $889,138Net Income 2017: -$24,2492017Revenue 2018: $844,751Expenses 2018: $894,473Net Income 2018: -$49,7222018Revenue 2019: $890,097Expenses 2019: $909,935Net Income 2019: -$19,8382019Revenue 2020: $1,020,365Expenses 2020: $1,128,518Net Income 2020: -$108,1532020Revenue 2021: $924,095Expenses 2021: $872,144Net Income 2021: $51,9512021Revenue 2022: $1,214,799Expenses 2022: $851,675Net Income 2022: $363,1242022

Highlighted filing

2019

Revenue$890,097
Expenses$909,935
Net Income-$19,838
Jump To
Filing Snapshot
Filing Period
Feb 1, 2018 to Jan 31, 2019
Signed
Sep 4, 2019
Return Version
2018v3.1
Gross Receipts
$922,976
Mission and Program Overview

Mission

Leading the fight to treat and cure als through global research and nationwide advocacy while also empowering people with lou gehrig's disease and their families to live fuller lives by providing them with compassionate care and support.

Balance Sheet Detail
LineBeginningEndChange
Assets
Savings and Temporary Cash Investments$701,204$616,747▼ $84,457
Land, Buildings, and Equipment, Net$120,918$199,506▲ $78,588
Total Assets$822,122$816,253▼ $5,869
Liabilities
Accounts Payable and Accrued Expenses$46,060$60,029▲ $13,969
Total Liabilities$46,060$60,029▲ $13,969
Net Assets / Fund Balance
Unrestricted Net Assets$776,062$756,224▼ $19,838
Total Net Assets Fund Balance$776,062$756,224▼ $19,838
Total Liabilities and Net Assets / Fund Balance$822,122$816,253▼ $5,869

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$199,506$512,570$712,076
Compensation and Service Providers

Employees

NameTitleFull / Part TimeBaseTotal
Josh NussExecutive DirectorFT$79,526$79,526

Board Members and Trustees

NameTitle
Sarah SteinkampPresident
David LingVice President
David JacksonDirector
Doug JeskeDirector
Eddie LlambiasDirector
Eric GrundfastDirector
Erin SpringerDirector
Jamie MyersDirector
Jeff TracyDirector
Justine PeeblesDirector
Melissa HeikesDirector
Mike SmithDirector
Rich WellsDirector
Tara Deering-hansenDirector
Ben TeboSecretary
Kevin DiehlTreasurer
Revenue and Support

Revenue Composition

Contributions and Grants
$877,688
Program Service Revenue
$0
Investment Income
$10,903
Other Revenue
$1,506
All Other Contributions
$445,192
Change in Net Assets
$-19,838

Noncash Contribution Practices

Property subject to holding requirements
No
Reviewed unusual noncash gifts
Yes
Third parties used for noncash contributions
No

Noncash Contributions

Contribution TypeContribution CountReported AmountValuation Method
Other Non Cash Contri Table17$85,000Fair Value at Date O
Other Non Cash Contri Table9$45,000Fair Value at Date O
Total Noncash Contributions26$130,000-

Audited Revenue Reconciliation

Revenue per Audited Statements
$890,097
Revenue Not Reported on Financial Statements
$0
Revenue Not Reported on Form 990
$32,879
Total Revenue per Audited Statements
$922,976
Total Revenue per Form 990
$890,097
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Salaries, Compensation, and Employee Benefits$463,331
Other Expenses$416,604
Total Fundraising Expense$110,786
Grants and Similar Amounts Paid$30,000
Professional Fundraising Fees$0

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Other Salaries and Wages$251,928$7,417$55,480$314,825
Payments to Affiliates$99,384--$99,384
Office Expenses$76,106$4,415-$80,521
Current Officers, Directors, Trustees, and Key Employees$37,493$37,492-$74,985
Depreciation Depletion$66,882--$66,882
Other Employee Benefits$28,362$3,545$3,545$35,452
Payroll Taxes$28,775$1,644$1,643$32,062
Grants to Domestic Orgs$30,000--$30,000
Occupancy$17,033$2,129$2,129$21,291
Travel$6,780$848-$7,628
Fees for Services Accounting$3,688$1,341$1,676$6,705
Pension Plan Contributions$4,805$601$601$6,007
Other Expenses$4,553-$45,402$4,553
Insurance$1,563$195$195$1,953
Advertising$917$115$115$1,147
Total Functional Expenses$739,407$59,742$110,786$909,935

Audited Expense Reconciliation

Line ItemAmount
Total Expenses per Audited Statements$942,814
Expenses per Audited Statements$909,935
Total Expenses per Form 990$909,935
Expenses Not Reported on Form 990$32,879
Expenses Not Reported on Financial Statements$0
International Activity

Grant and Assistance Recipients

RecipientLocationCategoryPurposeAmount
Uhic Department of Neurology Als ClinicIowa City, IA501(c)(3)Als Clinic Expenses$30,000
Fundraising, Events, and Gaming
Fundraising activities
Yes
Gaming activities
No
Professional fundraiser used
No

Fundraising and Gaming Totals

Line ItemAmount
Fundraising Direct Expenses$32,879
Fundraising Gross Income$32,879
Professional Fundraising Fees$0

Fundraising Events

EventGross ReceiptsGross RevenueDirect ExpensesNet Income
Als Walk$465,375$32,879$32,879$0
Total Events$465,375$32,879$32,879$0
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
Yes
Business relationship with family members
No
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
Yes
Other officer compensation reviewed
Yes
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Form 990, Part VI, Section B, Line 11B

Management reviews the form 990 in detail with the finance committee. A copy of form 990 is provided to the board of directors before filing with the irs.

Form 990, Part VI, Section B, Line 12C

If a potential or real conflict of interest is shared or known, it is recorded in the board meeting minutes and/or addressed specifically with the board member in question.

Form 990, Part VI, Section B, Line 15

The executive director's compensation is reviewed and approved by the board of directors. Compensation information from comparable nonprofit organizations is used to establish compensation.

Form 990, Part VI, Section C, Line 19

The organization makes its governing documents, conflict of interest policy and financial statements available to the public upon request.

Filing and Contact Details

Filer

Filer Name
Amyotrophic Lateral Sclerosis
EIN
30-0051272
Phone
5153692572
Address
3636 WESTOWN PARKWAY NO 204, WEST DES MOINES, IA 50266
Doing Business As
The Als Association Iowa Chapter

Signing Officer

Name
Kevin Diehl
Title
Treasurer
Phone
5153692572
Signed
2019-09-04
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Josh Nuss
Formed
2002
Legal Domicile
Ia
Voting Board Members
16
Independent Board Members
16
Employees
9
Volunteers
0

Preparer

Firm
Denman & Company Llp
Address
1601 22ND STREET SUITE 400, WEST DES MOINES, IA 50266-1453
Preparer
James J Hingtgen
Phone
5152258400
Supplemental Narrative

Financial Statement Notes

PART X, LINE 2:

Accounting principles generally accepted in the united states of america require management to evaluate tax positions taken by the association and recognize a liability or asset for an uncertain position that more likely than not would not be sustained upon examination by the internal revenue service. Management has evaluated their material tax positions and determined there are no uncertain positions taken or expected to be taken that would require recognition of a liability or asset or disclosures in the financial statements.

PART XI, LINE 2D - OTHER ADJUSTMENTS:

Fundraising event 32,879.

PART XII, LINE 2D - OTHER ADJUSTMENTS:

Fundraising event 32,879.

Raw XML AppendixShowing 400 of 552 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/ActivityOrMissionDesc0LEADING THE FIGHT TO TREAT AND CURE ALS THROUGH GLOBAL RESEARCH AND NATIONWIDE ADVOCACY WHILE ALSO EMPOWERING PEOPLE WITH LOU GEHRIG'S DISEASE AND THEIR FAMILIES TO LIVE FULLER LIVES BY PROVIDING THEM WITH COMPASSIONATE CARE AND SUPPORT.
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IRS990/Desc0PROGRAM SERVICE COORDINATION AND PUBLIC EDUCATION. OUR PATIENT SERVICES COORDINATORS ARE TRAINED PROFESSIONAL SOCIAL WORKERS WHO PROVIDE ALL OF OUR CHAPTER'S SUPPORT SERVICES TO IOWANS AFFECTED BY ALS. THEY PROVIDE INFORMATION AND REFERRAL SERVICES, FACILITATE SUPPORT GROUPS, MANAGE DURABLE MEDICAL EQUIPMENT PROGRAM AND PROVIDE EDUCATION TO HEALTHCARE PROVIDERS AND FAMILIES. OUR PATIENT SERVICES COORDINATORS SERVE THE PART OF OUR MISSION TO PROVIDE COMPASSIONATE CARE AND SUPPORT TO INDIVIDUALS AND FAMILIES AFFECTED BY LOU GEHRIG'S DISEASE.
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