Civic Intelligence

Macular Degeneration Association

EIN 27-3025707 • 501(c)3 • Sarasota, FL

Profile

The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.

5969 Cattleridge Blvd STE 100Sarasota, FL 34232

www.macularhope.org

Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

27th percentile

0.02x

Higher debt load relative to assets than 27% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

25th percentile

0.04x

Higher debt load relative to revenue than 25% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Net Margin

86th percentile

41%

Higher net margin than 86% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

92nd percentile

$404,096

Higher top officer pay than 92% of similar nonprofits.

Top officer pay equals 8.8% of source-year revenue.

501(c)3 • $5M-$10M nonprofits • Source year 2024

Asset Growth

84th percentile

27%

Faster asset growth than 84% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2024

Revenue Growth

75th percentile

26%

Faster revenue growth than 75% of similar nonprofits.

501(c)3 • $5M-$10M nonprofits • Annualized from 2022 to 2024

Balance Sheet
Liabilities / Assets27th percentile

Assets

Up

$7,756,435

Up $1,847,820 (+31%) from 2023

Liabilities

Up

$183,488

Up $9,285 (+5.3%) from 2023

Net Assets

Up

$7,572,947

Up $1,838,535 (+32%) from 2023

Operations
Liabilities / Revenue25th percentileNet Margin86th percentile

Revenue

Up

$4,567,782

Up $869,479 (+24%) from 2023

Expenses

Up

$2,694,067

Up $259,325 (+11%) from 2023

Net Income

Up

$1,873,715

Up $610,154 (+48%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth84th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$8.0M$6.0M$4.0M$2.0M$0Assets 2010: $9,887Liabilities 2010: $0Net Assets 2010: $9,8872010Assets 2011: $442,858Liabilities 2011: $143,220Net Assets 2011: $299,6382011Assets 2012: $439,410Liabilities 2012: $164,642Net Assets 2012: $274,7682012Assets 2013: $244,897Liabilities 2013: $147,443Net Assets 2013: $97,4542013Assets 2014: $251,214Liabilities 2014: $49,963Net Assets 2014: $201,2512014Assets 2015: $340,057Liabilities 2015: $48,370Net Assets 2015: $291,6872015Assets 2016: $313,173Liabilities 2016: $92,625Net Assets 2016: $220,5482016Assets 2017: $255,311Liabilities 2017: $74,635Net Assets 2017: $180,6762017Assets 2018: $786,750Liabilities 2018: $213,695Net Assets 2018: $573,0552018Assets 2019: $2,553,410Liabilities 2019: $83,115Net Assets 2019: $2,470,2952019Assets 2020: $3,421,374Liabilities 2020: $131,925Net Assets 2020: $3,289,4492020Assets 2021: $4,711,688Liabilities 2021: $123,209Net Assets 2021: $4,588,4792021Assets 2022: $4,842,918Liabilities 2022: $133,911Net Assets 2022: $4,709,0072022Assets 2023: $5,908,615Liabilities 2023: $174,203Net Assets 2023: $5,734,4122023Assets 2024: $7,756,435Liabilities 2024: $183,488Net Assets 2024: $7,572,9472024

Highlighted filing

2024

Assets$7,756,435
Liabilities$183,488
Net Assets$7,572,947
Open 2024 Filing

Operations Trend

Revenue Growth75th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $1132010Expenses 2011: $479,8232011Expenses 2012: $1,258,8262012Revenue 2013: $1,483,010Expenses 2013: $1,660,324Net Income 2013: -$177,3142013Revenue 2014: $1,154,603Expenses 2014: $1,050,806Net Income 2014: $103,7972014Revenue 2015: $1,043,941Expenses 2015: $959,005Net Income 2015: $84,9362015Revenue 2016: $1,166,471Expenses 2016: $1,237,610Net Income 2016: -$71,1392016Revenue 2017: $1,248,490Expenses 2017: $1,288,362Net Income 2017: -$39,8722017Revenue 2018: $1,466,966Expenses 2018: $1,074,587Net Income 2018: $392,3792018Revenue 2019: $3,341,015Expenses 2019: $1,443,775Net Income 2019: $1,897,2402019Revenue 2020: $2,051,864Expenses 2020: $1,566,842Net Income 2020: $485,0222020Revenue 2021: $2,582,069Expenses 2021: $1,775,123Net Income 2021: $806,9462021Revenue 2022: $2,894,097Expenses 2022: $2,168,162Net Income 2022: $725,9352022Revenue 2023: $3,698,303Expenses 2023: $2,434,742Net Income 2023: $1,263,5612023Revenue 2024: $4,567,782Expenses 2024: $2,694,067Net Income 2024: $1,873,7152024

Highlighted filing

2024

Revenue$4,567,782
Expenses$2,694,067
Net Income$1,873,715
Open 2024 Filing

Filings

Most recent year

2024 • Form 990Detailed filing. Detailed filing data is available for this year.

Open filing
Assets
$7,756,435
Liabilities
$183,488
Net assets
$7,572,947
Revenue
$4,567,782
Expenses
$2,694,067
Net income
$1,873,715
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024Detailed filing. Detailed filing data is available for this year.$7.76$0.18$7.57$4.57$2.69$1.87
2023Detailed filing. Detailed filing data is available for this year.$5.91$0.17$5.73$3.70$2.43$1.26
2022Detailed filing. Detailed filing data is available for this year.$4.84$0.13$4.71$2.89$2.17$0.73
2021Detailed filing. Detailed filing data is available for this year.$4.71$0.12$4.59$2.58$1.78$0.81
2020Detailed filing. Detailed filing data is available for this year.$3.42$0.13$3.29$2.05$1.57$0.49
2019Detailed filing. Detailed filing data is available for this year.$2.55$0.08$2.47$3.34$1.44$1.90
2018Detailed filing. Detailed filing data is available for this year.$0.79$0.21$0.57$1.47$1.07$0.39
2017Detailed filing. Detailed filing data is available for this year.$0.26$0.07$0.18$1.25$1.29$0.04
2016Detailed filing. Detailed filing data is available for this year.$0.31$0.09$0.22$1.17$1.24$0.07
2015Detailed filing. Detailed filing data is available for this year.$0.34$0.05$0.29$1.04$0.96$0.08
2014Detailed filing. Detailed filing data is available for this year.$0.25$0.05$0.20$1.15$1.05$0.10
2013Detailed filing. Detailed filing data is available for this year.$0.24$0.15$0.10$1.48$1.66$0.18
2012Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.44$0.16$0.27$1.26
2011Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.44$0.14$0.30$0.48
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.01$0.00$0.01$0.00
Latest Filing Detail
Jump To
Filing Snapshot
Filing Period
Jan 1, 2024 to Dec 31, 2024
Signed
Mar 3, 2025
Return Version
2024v5.1
Gross Receipts
$4,567,782
Mission and Program Overview

Mission

The mission of Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings and perform educational programs to help those affected by this disease.

The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.

Balance Sheet Detail
LineBeginningEndChange
Assets
Investments in Publicly Traded Securities$5,147,426$5,778,835▲ $631,409
Cash and Non-Interest-Bearing Accounts$742,567$1,975,066▲ $1,232,499
Land, Buildings, and Equipment, Net$3,298$1,979▼ $1,319
Prepaid Expenses and Deferred Charges$15,324$555▼ $14,769
Total Assets$5,908,615$7,756,435▲ $1,847,820
Liabilities
Accounts Payable and Accrued Expenses$174,203$183,488▲ $9,285
Total Liabilities$174,203$183,488▲ $9,285
Net Assets / Fund Balance
Net Assets Without Donor Restrictions$5,734,412$7,572,947▲ $1,838,535
Total Net Assets Fund Balance$5,734,412$7,572,947▲ $1,838,535
Total Liabilities and Net Assets / Fund Balance$5,908,615$7,756,435▲ $1,847,820

Asset Categories

AssetBook ValueDepreciationBasis
Equipment$1,979$1,493$3,472
Compensation and Service Providers
Top Officer Pay92nd percentile

Employees

NameTitleFull / Part TimeBaseOtherTotal
Lawrence HoffheimerChairman of the BoardPT$162,390$80,000$242,390
Donna AugerDirectorFT$144,000$2,096$146,096
Dustin TenneyEmployeePT$74,913$59,357$134,270
Linda PattersonTreasurerPT$115,000$72,638$115,000

Board Members and Trustees

NameTitle
Amy CarrollSecretary

Highest Paid Contractors

ContractorServicesLocationCompensation
DirectMailcomDirect Mail Servic5540 Ketch Road, Prince Frederick, MD 20678$443,016
Revenue and Support

Revenue Composition

Contributions and Grants
$4,214,800
Program Service Revenue
$0
Investment Income
$352,982
Other Revenue
$0
All Other Contributions
$4,214,800
Change in Net Assets
$1,873,715

Audited Revenue Reconciliation

Revenue per Audited Statements
$4,567,782
Revenue Not Reported on Form 990
$-35,180
Total Revenue per Audited Statements
$4,532,602
Total Revenue per Form 990
$4,567,782
Expenses and Functional Allocation

Major Expense Lines

Line ItemAmount
Other Expenses$1,856,606
Salaries, Compensation, and Employee Benefits$751,461
Total Fundraising Expense$677,457
Grants and Similar Amounts Paid$50,000
Professional Fundraising Fees$36,000

Functional Expense Allocation

Line ItemProgramManagementFundraisingTotal
Fees for Services Other$286,020$51,427$231,420$568,867
Current Officers, Directors, Trustees, and Key Employees$383,293$118,097-$501,390
Other Salaries and Wages$164,186$17,998$9,374$191,558
Occupancy$83,264$18,734$2,082$104,080
Office Expenses$47,227$10,626$1,180$59,033
Advertising$56,212--$56,212
Payroll Taxes$40,950$13,064$717$54,731
Grants to Domestic Individuals$50,000--$50,000
Fees for Service Investment Mgmnt Fees-$43,215-$43,215
Travel$39,935--$39,935
Fees for Services Professional Fundraising--$36,000$36,000
All Other Expenses$25,450$5,726$636$31,812
Fees for Services Accounting$4,225$4,225-$8,450
Other Expenses$5,591$1,258$140$6,989
Other Employee Benefits$3,782--$3,782
Depreciation Depletion-$1,319-$1,319
Insurance$784$176$20$980
Total Functional Expenses$573,177$143,294$716,471$1,432,942

Audited Expense Reconciliation

Line ItemAmount
Expenses per Audited Statements$2,694,067
Total Expenses per Audited Statements$2,694,067
Total Expenses per Form 990$2,694,067
Fundraising, Events, and Gaming
Fundraising activities
No
Gaming activities
No
Professional fundraiser used
Yes

Fundraising and Gaming Totals

Line ItemAmount
Professional Fundraising Fees$36,000
Political and Lobbying Activity
Political campaign activity
No
Lobbying activity
No
Subject to proxy tax
No
Insider Transactions and Loans

Interested-Person Transactions

Interested PartyRelationshipDescriptionShared RevenueAmount
Joanna HoffheimerFamily member of CEOEmployee processes state registrationsNo$28,150
Governance and Compliance

Governance Checklist

Compiled or reviewed by an accountant
No
Annual disclosure for covered persons
Yes
Audit committee
No
Backup withholding compliance
Yes
Business relationship with 35% controlled entity
No
Business relationship with family members
Yes
Business relationship with organization members
No
Material changes to governing documents
No
Compensation from other sources disclosed
No
CEO compensation reviewed
No
Other officer compensation reviewed
No
Conflict-of-interest policy
Yes
Audited financial statements prepared
No
Key decisions subject to board approval
No
Management duties delegated
No

Governance Explanations

Officer directors etc family relationship Part VI line 2

“Lawrence Hoffheimer and Amy Carroll are related family members.”

Committee meeting documentation Part VI line 8B

“No committee meetings were held.”

Form 990 governing body review Part VI line 11

“All members of the board reviewed the tax return prior to submission to the Internal Revenue Service.”

Conflict of interest policy compliance Part VI line 12C

“Officers must sign annual disclosure staement disclosing conflicts of interest.”

CEO executive director top management comp Part VI line 15A

“Executive Compensation was compared to other entities reported on their Form 990s and approved by the Board.”

Other officer or key employee compensation Part VI line 15B

“Compensation is reviewed annually and approved by the Board.”

Governing documents etc available to public Part VI line 19

“Available upon request.”

Filing and Contact Details

Filer

Filer Name
Macular Degeneration Association
EIN
27-3025707
In Care Of
% Linda Patterson
Phone
9418704399
Address
5969 Cattleridge Blvd STE 100, Sarasota, FL 34232

Signing Officer

Name
Linda Patterson
Title
Treasurer
Phone
9418704399
Signed
2025-03-03
Discuss with paid preparer
Yes

Organization Details

Principal Officer
Lawrence Hoffheimer
Formed
2010
Legal Domicile
Fl
Voting Board Members
4
Independent Board Members
1
Employees
7

Preparer

Firm
Linda Patterson CPA PA
Address
5732 Whistlewood Circle, Sarasota, FL 34232
Preparer
Linda Patterson
Phone
9417354042
Supplemental Narrative

Additional Explanations

List of other fees for services expenses Part IX line 11G

“11G Total Program Admin Fund RaisingCopywriting 14,300 6,435 1,430 6,435Data Management 28,645 12,890 2,864 12,890Direct Mail Processors 28,306 12,738 2,831 12,738Direct Mail Services 443,016 199,357 44,302 199,357Medical Director 50,000 50,000Honorariums 4,600 4,600”

General explanation attachment

“Part IV, Schedule C, Line 17 All states recieve copies of Form 990.”

Financial Statement Notes

Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)

“Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2024. The Organizations federal income tax returns for fiscal years ended December 31, 2023, 2022 and 2021 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed.”

Raw XML AppendixShowing 400 of 564 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990/MissionDesc0The mission of the Macular Degeneration Association (MDA)is to find a cure for macular degeneration. We disseminate research findings that have the potential to produce new treatments and present educational programs to help those affected by this disease.
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IRS990/ProgSrvcAccomActy2Grp/Desc0The Macular Degeneration Association produces newsletters quarterly. The information provided is for those who have age-related macular degeneration, diabetic eye disease, glaucoma, geographic atrophy, dry eye disease, and cataracts. The newsletter provides educational information, new research, new drug therapies, clinical trials, and treatments. The newsletters go out to 49,200 doctors, patients, families, and caregivers. Brochures were designed and provided to doctors to help their patients navigate macular degeneration and find resources that can help. We have a very robust social media following including 17,225 followers on Facebook, 6,700 on Twitter, 5,000 on Linked In, and 375 on Pinterest.
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IRS990/ProgSrvcAccomActy3Grp/Desc0Macular Degeneration Association has created a state-of-the-art website to provide an extensive number of resources and information to help those affected by macular degeneration and additional diseases that can affect macular degeneration. This website includes educational videos that are produced for patients, family members and caregivers. The website is ADA-compliant and is accessible to people with vision disabilities. There is also a feature for those who speak Spanish to convert English to Spanish. We continue to include up-to-date information on all eye diseases, new treatment options, research information, clinical trials and new drug advances. Our user-friendly website provides the user with friendly navigation, accessibility tools and information for patients, professionals, caregivers and families. This website has an average of 600,000 hits annually.
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IRS990/ProgSrvcAccomActyOtherGrp/Desc0The Macular Degeneration Association funded research to support research. Age-related macular degeneration is a leading cause of blindness in the United States. Geographic atrophy is the advanced form of dry AMD and affects over 5 million Americans and its incidence increases with increasing age. Despite the chronic nature of geographic atrophy, some patients express visual improvement when treated with pegcetacoplan and avacincaptad pegol. This research project aims to investigate the underlying mechanisms and factors contributing to the reported visual improvements in these patients and to help predict which patients may experience visual improvement.
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IRS990ScheduleD/SupplementalInformationDetail/ExplanationTxt0Management has evaluated the effect of an accounting standard relating to accounting for uncertainty in income taxes. Management has determined that the Organization had no uncertain income tax positions that could have a significant effect on the consolidated financial statements for the year ended December 31, 2024. The Organizations federal income tax returns for fiscal years ended December 31, 2023, 2022 and 2021 are subject to examination by the Internal Revenue Service generally for three years after the federal income tax returns were filed.
IRS990ScheduleD/SupplementalInformationDetail/FormAndLineReferenceDesc0Part X, Line 2-Text in footnote regarding FIN 48 (ASC 740)
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IRS990ScheduleG/SupplementalInformationDetail/ExplanationTxt0Additional Payments to Directmail.com
IRS990ScheduleG/SupplementalInformationDetail/FormAndLineReferenceDesc0Fundraiser agreements (Part I, line 2b(v))
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IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm0Lawrence Hoffheimer
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/PersonNm1Linda Patterson
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt0Chairman of the Board
IRS990ScheduleJ/RltdOrgOfficerTrstKeyEmplGrp/TitleTxt1Treasurer
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/NameOfInterested/PersonNm0Joanna Hoffheimer
IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/RelationshipDescriptionTxt0Family member of CEO
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IRS990ScheduleL/BusTrInvolveInterestedPrsnGrp/TransactionDesc0Employee processes state registrations
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IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt0Lawrence Hoffheimer and Amy Carroll are related family members.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt1No committee meetings were held.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt2All members of the board reviewed the tax return prior to submission to the Internal Revenue Service.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt3Officers must sign annual disclosure staement disclosing conflicts of interest.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt4Executive Compensation was compared to other entities reported on their Form 990s and approved by the Board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt5Compensation is reviewed annually and approved by the Board.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt6Available upon request.
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt711G Total Program Admin Fund RaisingCopywriting 14,300 6,435 1,430 6,435Data Management 28,645 12,890 2,864 12,890Direct Mail Processors 28,306 12,738 2,831 12,738Direct Mail Services 443,016 199,357 44,302 199,357Medical Director 50,000 50,000Honorariums 4,600 4,600
IRS990ScheduleO/SupplementalInformationDetail/ExplanationTxt8Part IV, Schedule C, Line 17 All states recieve copies of Form 990.
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc0Officer directors etc family relationship Part VI line 2
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc1Committee meeting documentation Part VI line 8b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc2Form 990 governing body review Part VI line 11
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc3Conflict of interest policy compliance Part VI line 12c
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc4CEO executive director top management comp Part VI line 15a
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc5Other officer or key employee compensation Part VI line 15b
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc6Governing documents etc available to public Part VI line 19
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc7List of other fees for services expenses Part IX line 11g
IRS990ScheduleO/SupplementalInformationDetail/FormAndLineReferenceDesc8General explanation attachment
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