Civic Intelligence

Dravet Syndrome Foundation Inc

EIN 27-0924627 • 501(c)3

11 Nancy Dr06468
Siviq Scores

Precomputed percentiles relative to similar nonprofits. These scores are descriptive rather than judgmental.

Liabilities / Assets

93rd percentile

0.18x

Higher debt load relative to assets than 93% of similar nonprofits.

NTEE T • $5M-$10M nonprofits • Source year 2024

Liabilities / Revenue

92nd percentile

0.37x

Higher debt load relative to revenue than 92% of similar nonprofits.

NTEE T • $5M-$10M nonprofits • Source year 2024

Net Margin

37th percentile

-0.9%

Higher net margin than 37% of similar nonprofits.

NTEE T • $5M-$10M nonprofits • Source year 2024

Top Officer Pay

94th percentile

$172,586

Higher top officer pay than 94% of similar nonprofits.

Top officer pay equals 4.1% of source-year revenue.

NTEE T • $5M-$10M nonprofits • Source year 2024

Asset Growth

77th percentile

14%

Faster asset growth than 77% of similar nonprofits.

NTEE T • $5M-$10M nonprofits • Annualized from 2023 to 2024

Revenue Growth

54th percentile

30%

Faster revenue growth than 54% of similar nonprofits.

NTEE T • $5M-$10M nonprofits • Annualized from 2023 to 2024

Balance Sheet
Liabilities / Assets93rd percentile

Assets

Up

$8,536,916

Up $1,027,014 (+14%) from 2023

Liabilities

Up

$1,560,863

Up $965,697 (+162%) from 2023

Net Assets

Up

$6,976,053

Up $61,317 (+0.9%) from 2023

Operations
Liabilities / Revenue92nd percentileNet Margin37th percentile

Revenue

Up

$4,221,622

Up $964,526 (+30%) from 2023

Expenses

Up

$4,259,172

Up $2,096,120 (+97%) from 2023

Net Income

Down

-$37,550

Down $1,131,594 (-103%) from 2023

Trend Graphs

Balance Sheet Trend

Asset Growth77th percentile

Grouped bars show assets, liabilities, and net assets across loaded filings.

$10M$5.0M$0Assets 2010: $121,679Liabilities 2010: $0Net Assets 2010: $121,6792010Assets 2019: $3,618,355Liabilities 2019: $276,857Net Assets 2019: $3,341,4982019Assets 2020: $4,882,989Liabilities 2020: $497,523Net Assets 2020: $4,385,4662020Assets 2021: $5,918,927Liabilities 2021: $592,323Net Assets 2021: $5,326,6042021Assets 2022: $6,249,148Liabilities 2022: $488,374Net Assets 2022: $5,760,7742022Assets 2023: $7,509,902Liabilities 2023: $595,166Net Assets 2023: $6,914,7362023Assets 2024: $8,536,916Liabilities 2024: $1,560,863Net Assets 2024: $6,976,0532024

Highlighted filing

2024

Assets$8,536,916
Liabilities$1,560,863
Net Assets$6,976,053
Open 2024 Filing

Operations Trend

Revenue Growth54th percentile

Revenue, expenses, and net income by year, with the latest filing highlighted.

$6.0M$4.0M$2.0M$0-$2.0MExpenses 2010: $226,3442010Revenue 2019: $2,030,205Expenses 2019: $1,162,133Net Income 2019: $868,0722019Revenue 2020: $1,964,117Expenses 2020: $921,735Net Income 2020: $1,042,3822020Revenue 2021: $2,186,012Expenses 2021: $1,265,323Net Income 2021: $920,6892021Revenue 2022: $2,515,782Expenses 2022: $2,028,839Net Income 2022: $486,9432022Revenue 2023: $3,257,096Expenses 2023: $2,163,052Net Income 2023: $1,094,0442023Revenue 2024: $4,221,622Expenses 2024: $4,259,172Net Income 2024: -$37,5502024

Highlighted filing

2024

Revenue$4,221,622
Expenses$4,259,172
Net Income-$37,550
Open 2024 Filing

Filings

Most recent year

2024 • Form 990XML pending. An XML filing is linked for this year, but detailed extraction is still pending.

Open filing
Assets
$8,536,916
Liabilities
$1,560,863
Net assets
$6,976,053
Revenue
$4,221,622
Expenses
$4,259,172
Net income
-$37,550
Balance SheetOperations
YearAssetsLiabilitiesNet AssetsRevenueExpensesNet Income
2024XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$8.54$1.56$6.98$4.22$4.26$0.04
2023XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$7.51$0.60$6.91$3.26$2.16$1.09
2022XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$6.25$0.49$5.76$2.52$2.03$0.49
2021XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$5.92$0.59$5.33$2.19$1.27$0.92
2020XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$4.88$0.50$4.39$1.96$0.92$1.04
2019XML pending. An XML filing is linked for this year, but detailed extraction is still pending.$3.62$0.28$3.34$2.03$1.16$0.87
2010Facts available. Structured filing facts are available, but richer extracted sections are limited.$0.12$0.00$0.12$0.23
Latest Detailed Filing

The latest 2024 filing currently has linked XML that has not been fully parsed yet. Showing the latest detailed filing from 2010 below.

Jump To
Filing Snapshot
Filing Period
Jan 1, 2010 to Dec 31, 2010
Signed
May 26, 2011
Return Version
2010v3.2
Gross Receipts
$338,407
Mission and Program Overview

Mission

The mission of the Dravet Syndrome Foundation is to aggressively raise funds for Dravet syndrome & related epilepsies; support & fund research; increase awareness; & provide support to affected individuals & families. We understand the ongoing need to fund innovative research, the urgency in finding better treatments, the motivation of our donors to make an impact specifically in the fields of Dravet syndrome and related epilepsies, the importance of transparency and accountability of not only our organization, but the researchers that we fund, and the need for global collaboration in order to find a cure.

Major Activities

Activity 2
The DSF produces an annual Research Roundtable Meeting to provide the opportunity for researchers and clinicians to collaborate and discuss better treatment options and a roadmap toward a cure and how to best facilitate both.
Activity 3
We understand that medical expenses are high when caring for a child with chronic health issues. Unfortunately, some of the items that might improve the quality of life for the child and/or family aren't always covered by medical insurance. Through our International Patience Assistance Grant Program, we provide grants to cover these items.
Filing and Contact Details

Filer

EIN
27-0924627
Raw XML AppendixShowing 400 of 463 raw XML fields

This appendix keeps the raw XML leaves available for debugging and edge-case review. The human report above is the primary experience.

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IRS990ScheduleI/Form990ScheduleIPartIV/Explanation0The DSF Scientific Advisory Board reviews and selects research grants to be funded. Once selected, the grantee is required to submit written reports on the status of the project.
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IRS990ScheduleI/RecipientTable/EINOfRecipient1364253176
IRS990ScheduleI/RecipientTable/EINOfRecipient2386006309
IRS990ScheduleI/RecipientTable/IRCSection0501(c) 3
IRS990ScheduleI/RecipientTable/IRCSection1501(c) 3
IRS990ScheduleI/RecipientTable/PurposeOfGrant0Research
IRS990ScheduleI/RecipientTable/PurposeOfGrant1Research
IRS990ScheduleI/RecipientTable/PurposeOfGrant2Research
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine10Children's Memorial Hospital Foundation
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine11CURE Citizens United for Research in Epilepsy
IRS990ScheduleI/RecipientTable/RecipientNameBusiness/BusinessNameLine12Regents of the University of Michigan
IRS990ScheduleI/RecordsMaintained01
IRS990ScheduleI/TotalNbrOf501C3AndGovtGrants03
IRS990ScheduleI/TotalNbrOfOtherOrganizations00
IRS990/ScheduleJRequired00
IRS990ScheduleO/GeneralExplanation/Explanation0The DSF was incorporated in October 2009 thus, our programs were not yet implemented. They were initiated in the beginning of 2010. Those programs (as described in Part III) are 1. Research Grant Program, 2. Research Roundatable Meeting and 3. International Patient Assistance Program.
IRS990ScheduleO/GeneralExplanation/Explanation1All 3 officers received copies of completed 990 Form along with Profit and Loss statements from 2009 and 2010 to review and discuss prior to submission.
IRS990ScheduleO/GeneralExplanation/Explanation2Open and frequent communication is maintained by the officers and any potential conflicts of interest are addressed and discussed at Board Meetings.
IRS990ScheduleO/GeneralExplanation/Explanation3We publish and annual report which will be posted on our website and also available via email or mail as requested.
IRS990ScheduleO/GeneralExplanation/Identifier0F990_P03_S00_L02
IRS990ScheduleO/GeneralExplanation/Identifier1F990_P06_S0B_L11a
IRS990ScheduleO/GeneralExplanation/Identifier2F990_P06_S0B_L12c
IRS990ScheduleO/GeneralExplanation/Identifier3F990_P06_S0C_L19
IRS990ScheduleO/GeneralExplanation/ReturnReference0Form 990, Part III, Line 2
IRS990ScheduleO/GeneralExplanation/ReturnReference1Form 990, Part VI, Section B, Line 11a
IRS990ScheduleO/GeneralExplanation/ReturnReference2Form 990, Part VI, Section B, Line 12c
IRS990ScheduleO/GeneralExplanation/ReturnReference3Form 990, Part VI, Section C, Line 19
IRS990/ScheduleORequired01
IRS990/School00
IRS990/SignificantChange00
IRS990/SignificantNewProgramServices01
IRS990/StateLegalDomicile0CT
IRS990/StatesWhereCopyOfReturnIsFiled0CT
IRS990/StatesWhereCopyOfReturnIsFiled1IL
IRS990/TaxablePartyNotification00
IRS990/TaxExemptBonds00
IRS990/TemporarilyRestrictedNetAssets/BOY00
IRS990/TemporarilyRestrictedNetAssets/EOY00
IRS990/Terminated00
IRS990/TermOrPermanentEndowments00
IRS990/TheBooksAreInCareOf/AddressUS/AddressLine10102 Bellevue Avenue
IRS990/TheBooksAreInCareOf/AddressUS/City0West Haven
IRS990/TheBooksAreInCareOf/AddressUS/State0CT
IRS990/TheBooksAreInCareOf/AddressUS/ZIPCode006515
IRS990/TheBooksAreInCareOf/NamePerson0Amanda Renz
IRS990/TheBooksAreInCareOf/TelephoneNumber02039319921
IRS990/TotalAssets/BOY09616
IRS990/TotalAssetsBOY09616
IRS990/TotalAssets/EOY0121679
IRS990/TotalAssetsEOY0121679
IRS990/TotalCompGT150K00
IRS990/TotalContributions0338407
IRS990/TotalExpensesCurrentYear0226344
IRS990/TotalExpensesPriorYear09616
IRS990/TotalFunctionalExpenses/Fundraising053527
IRS990/TotalFunctionalExpenses/ManagementAndGeneral020955

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